Scandinavian Journal of Caring Sciences最新文献

{"title":"Navigating ICU Survival With a Temporary Tracheostomy. A Phenomenological Hermeneutic Study.","authors":"A Akroute, B S Brinchmann, A Hovland, S T D Fredriksen","doi":"10.1111/scs.70317","DOIUrl":"10.1111/scs.70317","url":null,"abstract":"<p><strong>Introduction: </strong>Adult intensive care unit survivors who were mechanically ventilated with a temporary tracheostomy tube have reported distressing physical discomfort, emotional strain and communication challenges during and after ICU discharge.</p><p><strong>Aim: </strong>To reveal the meaning of the lived experiences of ICU adult survivors in and after ICU discharge.</p><p><strong>Methods: </strong>Individual interviews were conducted with a purposive sample of eight adult ICU survivors from a medical-surgical ICU at a Norwegian university hospital. The theory of interpretation of the French philosopher Paul Ricoeur inspired the analysis.</p><p><strong>Findings: </strong>The analysis resulted in two themes and six sub-themes. The first theme, 'ICU survivors' reflections on support and care', consists of the sub-themes: compassionate nursing as affirmation of personhood and family presence as existential anchor. The second theme, 'From critical care to uncertainty', consisted of sub-themes: voicelessness as existential isolation, transition as existential dislocation and ICU survivors' vulnerability in transition.</p><p><strong>Conclusion: </strong>Adult ICU survivors had ambivalent emotions about their ICU stay. The narratives reveal the multifaceted struggles of ICU survivors, including physical impairments, psychological challenges and communication barriers. Further research is needed to understand the meaning of being a critically ill patient with a temporary tracheostomy in both the ICU and general wards.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 3","pages":"e70317"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13558847/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148921370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mapping Scandinavian Hospital-at-Home Organisations and Interventions for Patients With Acute Somatic Illness-A Scoping Review.","authors":"Kristina Kock Hansen, Dorthe Eg Holm, Maria Klitgaard Christensen, Peter Biesenbach, Kristian Kidholm, Christian Backer Mogensen, Jette Holt, Pia Lysdal Veje, Mette Elkjær, Caroline Moos","doi":"10.1111/scs.70312","DOIUrl":"10.1111/scs.70312","url":null,"abstract":"<p><strong>Introduction: </strong>Hospital-at-Home (HaH) has been implemented in several countries. However, HaH interventions vary depending on organisational structures and target populations. In Denmark, Norway, and Sweden, HaH is offered in selected regions and municipalities, often as pilot or quality projects. Currently, there are no guidelines or systematic overviews of Scandinavian HaH models.</p><p><strong>Aim: </strong>This review aims to map published research that describes Scandinavian HaH organisations, interventions, and patient characteristics for acute somatic illness.</p><p><strong>Methods: </strong>In this scoping review, papers were identified through a systematic search of Medline, Embase, and CENTRAL, supplemented by a grey literature search. Eligible studies focused on Scandinavian adults (≥ 18 years) with acute somatic illness requiring initial contact with an emergency department (< 24 h), out-of-hours doctor, or a general practitioner. Exclusions criteria were early discharge care, post-discharge care, self-monitoring or single health care contacts. Two researchers screened studies in a two-step process.</p><p><strong>Results: </strong>Ten studies met the inclusion criteria. Three primary HaH models were identified: (1) municipal acute nursing teams collaborating with general practitioners (GPs) and hospital physicians or municipal mobile acute care with physicians, (2) hospital-affiliated emergency department (ED) teams providing mobile acute care, and (3) specialised acute units integrating virtual and in-person health care. Common interventions included intravenous therapy, point-of-care diagnostics, clinical monitoring and digital consultations. The majority of HaH patients were older adults with multiple chronic conditions, commonly treated for infections, dehydration, or exacerbations of chronic diseases.</p><p><strong>Conclusion: </strong>Scandinavian HaH can be categorised into three models. The primary distinction between the models lies in the organisational affiliation of the nursing teams, which plays a pivotal role in defining the care structure.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 3","pages":"e70312"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13548793/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148901296","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient Involvement as Understood by Healthcare Professionals: A Multi-Methods Study in a Danish University Hospital.","authors":"Frederikke Andsbjerg Johansen, Lotte Ørneborg Rodkjær, Hilary Louise Bekker, Anna Holm","doi":"10.1111/scs.70244","DOIUrl":"10.1111/scs.70244","url":null,"abstract":"<p><strong>Aim: </strong>Although patient involvement is widely promoted in healthcare policy, there is limited understanding of how healthcare professionals interpret and implement it in practice. This study explores healthcare professionals' perceptions of patient involvement and how their understanding influences interactions with patients, addressing a gap in knowledge about its enactment in clinical practice.</p><p><strong>Design and methods: </strong>A multi-methods design was used to capture both the breadth and depth of healthcare professionals' experiences. Quantitative survey data (n = 1214) were collected from multiple hospital departments and analysed descriptively. Semi-structured interviews (n = 12) were conducted between April and November 2022 and analysed using hermeneutic content analysis. The survey assessed healthcare professionals' perceptions of patient involvement, while interviews explored how these perceptions were enacted in everyday practice.</p><p><strong>Ethics statement: </strong>According to The Danish Healthcare Act §42, studies of this type do not require formal ethical approval. All participants provided informed consent, and data were anonymized and securely stored.</p><p><strong>Results: </strong>Survey findings indicated that 69% emphasized patients' role in influencing care decisions, 60% highlighted addressing patients' needs and preferences, and 37% noted patient education. Interviews revealed four central themes: patient involvement as shared decision-making, fostering partnerships, integrating patients' lifeworlds into care, and recognizing the influence of healthcare professionals in guiding decisions. These illustrate how patient involvement is enacted through tailored communication and ethical management of professional influence.</p><p><strong>Study limitations: </strong>Although the qualitative interviews were limited by a small sample, they offered rich insights into professionals' interactions with patients, whereas survey responses reflected self-reported perspectives and may be subject to selection bias.</p><p><strong>Conclusions: </strong>Patient involvement is shaped by both professional actions and interaction dynamics. Healthcare professionals foster meaningful engagement through communication, shared decision-making, ethical management of power asymmetries, and individualized support tailored to patients' circumstances and needs. The findings highlight the need for training, organizational strategies, and further research incorporating patient perspectives.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70244"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13069166/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147655219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Being There: Danish Nurses' Lived Experiences of Companionship With Families in Home-Based Paediatric Palliative Care in Regional Settings.","authors":"Anne Alm, Malene Beck","doi":"10.1111/scs.70239","DOIUrl":"10.1111/scs.70239","url":null,"abstract":"<p><strong>Background: </strong>Paediatric palliative care (PPC) is a relatively new field in many countries, including Denmark, where regional home-based PPC teams were established between 2015 and 2016. While research on PPC is growing, the lived experiences of nurses providing care in the family home remain underexplored. Understanding how nurses experience this form of care is essential for developing practices that support both families and professionals in this demanding field.</p><p><strong>Aim: </strong>This study asks what it is like for nurses to accompany children and families through illness, dying, and bereavement in the context of home-based PPC.</p><p><strong>Method: </strong>A qualitative phenomenological-hermeneutical approach informed by Max van Manen guided the study. Ten nurses from the Danish regional PPC teams participated in individual phenomenological interviews. Analysis followed van Manen's holistic, selective, and detailed reflection, allowing meaning to emerge through attentive engagement with the lived experiences expressed in the interviews.</p><p><strong>Results: </strong>The analysis brought forward three ways in which the experience showed itself: The experience of coming close by walking alongside families; The experience of letting care arise through presence rather than action; The experience of sensing what is at stake.</p><p><strong>Conclusions: </strong>Nurses' accounts show that home-based PPC unfolds through ways of being that move between doing and being present. Their care is shaped by the ability to come close as relationships develop, to remain with families when no further action is possible, and to sense what is lived but not spoken. These forms of attentiveness draw on professional experience as well as an openness to what the situation calls for, supporting families through illness, dying, and the time that follows.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70239"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13088930/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147700074","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health Outcomes Following the Health-Promoting \"Reflective STRENGTH-Giving Dialogue\" Intervention Among Community-Dwelling Older Adults.","authors":"Cecilia Åberg, Catharina Gillsjö, Mia Berglund, Jenny Hallgren","doi":"10.1111/scs.70280","DOIUrl":"10.1111/scs.70280","url":null,"abstract":"<p><strong>Background: </strong>Effective health-promoting interventions can support older adults in maintaining and regaining good health and can foster healthy aging. The Reflective STRENGTH-Giving Dialogues (STRENGTH) intervention was created to optimise a holistic healthcare delivery that supports older adults in learning to live with long-term musculoskeletal pain. Findings from previous studies indicate that the dialogues contributed to an increased sense of well-being and had an immediate pain-alleviating effect. The aim of this extended study was to explore the health effects of the STRENGTH intervention among older community-dwelling adults living with long-term health problems.</p><p><strong>Methods: </strong>Older adults (n = 47) in Sweden completed questionnaires inquiring about levels of well-being, impact of health problems on daily life, depression symptom occurrences, health-related quality of life, physical performance, and consumption of care using a quasi-experimental design. Descriptive statistics were used to explain and compare results within groups. Data were collected before, during, and after the STRENGTH intervention in autumn 2017 and spring 2018. It consisted of health-care professionals engaging in recurrent dialogues to guide and support older adults in ways that increase sense of well-being, joy, strength, and meaning in life through carrying out small and large life projects.</p><p><strong>Results: </strong>According to self-reports, the STRENGTH intervention had immediate positive effects on perceived well-being and health problems. From a longitudinal perspective, although no significant differences in health outcomes were found based on comparisons of baseline and follow-up data within groups, positive effects were shown.</p><p><strong>Conclusions: </strong>To contribute to healthy aging, HCPs need favourable conditions for conversations in care encounters, extensive knowledge about the importance and potential of dialogues, and an understanding of how to integrate dialogues into health and social care.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70280"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13254495/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148220380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mental Health, Coping Strategies and Self-Care Practices Among Professionals Who Work With People Who Experience or Have Experienced Domestic Violence: A Quantitative Study.","authors":"Elisabete Ferreira, Rafaela Monteiro, Janete Borges, Sofia Barros, Cláudia Oliveira, Mariana Salafranca-Alves, Ana Maia, Anita Santos","doi":"10.1111/scs.70264","DOIUrl":"10.1111/scs.70264","url":null,"abstract":"<p><strong>Background: </strong>Domestic violence (DV) profoundly affects not only those who experience or have experienced it but also the professionals who support them, exposing workers to trauma narratives and operational pressures that may harm mental health.</p><p><strong>Objective: </strong>This study examined depressive (PHQ-9) and generalised anxiety (GAD-7) symptoms among Portuguese DV-service professionals (n = 251) and assessed whether coping domains and self-care are associated with-and may condition-the links between burnout, secondary traumatic stress (STS) and symptoms.</p><p><strong>Methods: </strong>Participants completed ProQOL-5 (compassion satisfaction [CS], burnout, STS), PHQ-9, GAD-7, the Brief COPE (higher-order: avoidant, self-sufficient, socially supported) and a self-care capacity scale (EACAC). Analyses comprised correlations and three-step hierarchical regressions, with interaction terms between burnout, STS and theoretically selected coping and self-care variables entered at Step 3 to test moderation.</p><p><strong>Results: </strong>DV professionals reported moderate levels of burnout, STS and CS, along with mild depressive and generalised anxiety symptoms. Across correlations and regressions, burnout and STS were positively associated with both symptom domains; avoidant coping aligned with higher symptoms, and self-care aligned with lower symptoms. The hierarchical regressions explained 61.7% (PHQ-9) and 54.9% (GAD-7) of variance in Step 2. Evidence for moderation was limited and exploratory: although the interaction block did not reach conventional significance for either outcome, one individual interaction term-Burnout × Avoidant coping-was significant for generalised anxiety symptoms, suggesting that the positive association between burnout and generalised anxiety symptoms may be stronger at higher levels of avoidant coping.</p><p><strong>Conclusion: </strong>Findings consolidate robust correlational signals-higher burnout/STS and greater avoidance co-occur with higher symptoms, while self-care co-occurs with lower symptoms-and motivate longitudinal and intervention research to test causal leverage and evaluate whether targeting avoidance and routine self-care can improve mental-health outcomes in DV services.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70264"},"PeriodicalIF":1.8,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148018251","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The DORR Framework: Reframing Trustworthiness Criteria for Hermeneutic Research.","authors":"Linda S Estman","doi":"10.1111/scs.70286","DOIUrl":"10.1111/scs.70286","url":null,"abstract":"<p><strong>Background: </strong>This article introduces a reflexive methodological framework for evaluating the quality of hermeneutic research, grounded in interpretive epistemologies and a reinterpretation of Lincoln and Guba's classic trustworthiness criteria. While hermeneutic inquiry has become increasingly significant, few frameworks explicitly align quality evaluation with its ontological and epistemological foundations. Existing standards often reflect post-positivist ideals of neutrality and replicability, creating tension with the philosophical assumptions of hermeneutics.</p><p><strong>Aim: </strong>The aim of this article was to develop and present the DORR Framework, a hermeneutically grounded and philosophically coherent structure for assessing interpretive rigour in hermeneutic research as a whole.</p><p><strong>Design: </strong>The framework synthesizes insights from philosophical hermeneutics caring science and qualitative methodology. Lincoln and Guba's trustworthiness criteria, credibility, transferability, dependability, and confirmability are reinterpreted through hermeneutic principles, resulting in four dimensions: Depth, Openness, Resonance, and Reflexivity.</p><p><strong>Results: </strong>Each dimension is operationalised through reflective questions designed to support researchers in demonstrating interpretive depth, dialogical openness, contextual resonance, and reflexive accountability, while avoiding procedural reductionism.</p><p><strong>Conclusion: </strong>The DORR Framework offers a philosophically coherent yet practically applicable approach to evaluating hermeneutic inquiry. By fostering epistemological transparency, ethical integrity, and scholarly reflexivity, it equips researchers, supervisors, and reviewers with a means of assessing quality that is consistent with the philosophical and ethical foundations of caring science, including attentiveness to human dignity, suffering, and responsible knowledge development in health-related research.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70286"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148303568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Relationship Between Nurses' Moral Courage and Caring Behaviours: A Cross-Sectional Study in Türkiye.","authors":"Emine Korkmaz, Emine Üstün Gökçe, Fatma Gönül Burkev","doi":"10.1111/scs.70271","DOIUrl":"10.1111/scs.70271","url":null,"abstract":"<p><strong>Background: </strong>Moral courage is a fundamental professional trait that enables nurses to uphold ethical principles, protect patient rights and provide safe and compassionate care. Care behaviours constitute the essence of nursing practice and reflect the ethical, humanistic and professional dimensions of care. Although it is assumed that moral courage influences the quality of care, empirical evidence directly examining this relationship is limited.</p><p><strong>Aim: </strong>This study aimed to determine nurses' levels of moral courage and caring behaviours and to examine the relationship between these two concepts.</p><p><strong>Methods: </strong>This cross-sectional, correlational study was conducted among nurses working at three public hospitals in Turkey between March and July 2025. The sample consisted of 328 nurses selected from a population of 1800 nurses using a stratified proportional sampling method. Data were collected online using the Nurses' Ethical Courage Scale and the Nursing Care Behaviours Inventory-30. The data were analysed using descriptive statistics, Pearson correlation analysis, the independent samples t-test, one-way ANOVA and linear regression.</p><p><strong>Results: </strong>It was determined that nurses' levels of moral courage (83.51 ± 12.53) and care behaviours (144.39 ± 19.62) were high. A moderate, positive and statistically significant relationship was found between moral courage and total care behaviours (r = 0.407, p < 0.01). Regression analysis results indicated that moral courage is a predictor of care behaviours and explains 16.3% of the variance (R² = 0.163, p < 0.001). Additionally, it was found that nurses with a lower patient load, aged ≥ 41, with ≥ 16 years of professional experience and who believe the nursing profession is care-focused had significantly higher care behaviour scores (p < 0.05).</p><p><strong>Conclusion: </strong>The findings indicate a significant positive relationship between moral courage and nursing caring behaviours and demonstrate that moral courage is a predictor of caring behaviours. These results suggest that moral courage may contribute to the delivery of ethical, holistic and high-quality nursing care. In this context, enhancing ethics education and fostering supportive organisational environments are recommended to strengthen nurses' moral courage. Future research should examine contextual and organisational factors influencing moral courage and caring behaviours using larger and more diverse samples.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70271"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148044227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Care Partners' Information Needs When Caring for a Family Member With Parkinson's Disease: An Explorative Study.","authors":"Helena Larsson, Maria Haak, Peter Hagell, Carina Hellqvist","doi":"10.1111/scs.70277","DOIUrl":"10.1111/scs.70277","url":null,"abstract":"<p><strong>Background: </strong>Parkinson's disease (PD) is a progressive neurodegenerative disorder that increasingly impacts many aspects of everyday life for those affected. The involvement of family members becomes increasingly important as PD progresses. Although family members are often willing and ready to help and support as a care partner, their role can be demanding, with consequences for their own health and well-being. One way to offer care partners support could involve providing information to increase insight into the progress of PD.</p><p><strong>Aim: </strong>To explore care partners' information needs when caring for a family member with Parkinson's disease.</p><p><strong>Methods: </strong>Fifteen care partners were interviewed in focus groups, dyadic or individually, with open-ended questions. The interviews were recorded and transcribed. Data were analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>The analysis revealed four themes reflecting care partners' information needs in their caregiving role: (1) to be prepared when symptoms limit daily life; (2) to preserve participation and social life; (3) to find reassurance together with others; and (4) to cope with feelings of uncertainty.</p><p><strong>Conclusions: </strong>The results demonstrate the need for personalised information meeting the care partners' physical, social, emotional and existential needs. This calls for holistic information-based interventions built on collaboration between healthcare professionals, the person with PD and the care partner, aimed at promoting care partners' well-being and helping them support their family member with PD. The themes identified here may be seen as a framework for such information-based interventions.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70277"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13241751/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148177037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Lived Experience of Delirium in a Critically Ill Child: A Narrative Study.","authors":"Rikke Louise Stenkjaer, Ingrid Egerod, Mala Moszkowicz, Erwin Ista, Suzanne Forsyth Herling","doi":"10.1111/scs.70253","DOIUrl":"10.1111/scs.70253","url":null,"abstract":"<p><strong>Background: </strong>While the negative experience of intensive care delirium has been established in adults, paediatric delirium (PD) is increasingly being recognized internationally. Knowledge, however, is still lacking regarding the experience of delirium in critically ill children. Therefore, we wish to provide insight into the subjective experience of delirium to better understand the children's perspective and enable the development of strategies to support children and their parents during and after the delirium episode.</p><p><strong>Aim: </strong>We aimed to describe the lived experience of delirium in a paediatric intensive care unit survivor. Our research question was: How does a child make sense of delirium after critical illness?</p><p><strong>Method: </strong>We interviewed 16-year-old Eric 10 months after discharge from the intensive care unit, using Frank's narrative theory to analyse Eric's narrative and performing thematic analysis to further interpret his experiences.</p><p><strong>Results: </strong>We identified Eric's story as a Quest narrative. According to Frank's theory, Eric uses his narrative to understand his experiences and perhaps to help others. We identified the following themes: Being lost, being pursued, being paralysed, and being back. During delirium, Eric lost control of reality during delusions and hallucinations. He experienced being pursued, being paralysed, and finally regaining his sense of reality. After discharge, Eric told and retold his story to his mother. Together, they developed a version of the story that was used to develop strategies to deal with delirium in the event of future admissions.</p><p><strong>Conclusion: </strong>Similarly to adults, children experience the distress of delusions and hallucinations during ICU delirium. The adolescent in our case was able to reflect on and suggest explanations for his delusional experiences. Mother and child prepared strategies to manage delirium during future admissions.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70253"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13090561/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147718458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}