Scandinavian Journal of Caring Sciences最新文献

{"title":"On a healing journey together and apart: A Swedish critical incident technique study on family involvement from a patient perspective in relation to elective open-heart surgery.","authors":"Anna Drakenberg, Ann-Sofie Sundqvist, Bengt Fridlund, Elisabeth Ericsson","doi":"10.1111/scs.13303","DOIUrl":"10.1111/scs.13303","url":null,"abstract":"<p><strong>Background: </strong>As family members affect patient outcomes following open-heart surgery, the objective was to provide updated knowledge on family involvement in to guide future interventions facilitating family involvement.</p><p><strong>Aim: </strong>The aim was to explore and describe the experiences and actions of important situations of family involvement asexpressed by patients who underwent elective open-heart surgery in Sweden.</p><p><strong>Methodological design and justification: </strong>The critical incident technique (CIT) was used, which is a qualitative research method suitable for clinical problems when a phenomenon is known but the experiences and consequences of it are not.</p><p><strong>Ethical issues and approval: </strong>Considerations for patient integrity were made during the recruitment phase by ensuring that voluntary informed consent was obtained in two steps.</p><p><strong>Research methods: </strong>Individual interviews were conducted with 35 patients who underwent open-heart surgery in Sweden in 2023. Important situations were analysed according to the CIT method.</p><p><strong>Results: </strong>Two main areas emerged: Patients described important situations of family involvement as experiences of mutual dependency while also being independent individuals. These experiences led to balancing healing and risk-taking activities as a family. The positive consequences of family involvement described by patients included improved recovery through practical help at home and emotional support.</p><p><strong>Conclusions: </strong>As complements to preserving the existing positive aspects of family involvement, social support screening, the establishment of individualised visitation policies and the provision of professional and peer support earlier can improve patient recovery following open-heart surgery.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"1018-1029"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337143","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nurses' values when caring for persons suffering from substance use disorder: A hermeneutical study.","authors":"Kari Marie Thorkildsen, Linda Rykkje, Kari Kaldestad","doi":"10.1111/scs.13290","DOIUrl":"10.1111/scs.13290","url":null,"abstract":"<p><strong>Background: </strong>Persons suffering from a substance use disorder (SUD) in need of help from low-threshold centres have complex and severe conditions together with uncontrolled use of mainly illicit substances. Their sufferings are all-encompassing and demand ethically aware nurses with competence to take care of somatic, existential and spiritual needs.</p><p><strong>Aim: </strong>To explore and describe a new understanding of the ethical and ontological values upon which nurses base their work when caring for persons suffering from SUD.</p><p><strong>Methodology: </strong>The study had a hermeneutical approach. A focus-group interview was conducted with five nurses working at a low-threshold centre in Norway. Data analysis was carried out through a hermeneutical reading based on Gadamer's hermeneutics.</p><p><strong>Ethical considerations: </strong>The study was approved by the Norwegian Agency for Shared Services in Education and Research (SIKT). Oral and written consent was obtained from the participants.</p><p><strong>Results: </strong>The hermeneutical reading revealed three dimensions; A wish to be useful; Nurses' motive for caring for persons suffering from SUD is a wish to be useful and needed. Nurses are fighting a battle against injustice and stigmatisation. Neighbourly love, the core value; Neighbourly love serves as the basis for the nurses` work. Nurses feel humble towards their clients, they feel privileged to have the opportunity to help others through compassionate care. The value of being clients` advocate; Nurses are trying to ensure that clients receive the help they need. A large part of nurses` job is to monitor and take care of the clients` condition. This involves working close to death, trying to save lives.</p><p><strong>Conclusion: </strong>Nurses wish to care in accordance with their ethos of usefulness. Sacrifice stands out as the ultimate form of neighbourly love, empowering nurses with moral authority to act as advocates for their clients.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"907-916"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141972108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Caring science matters.","authors":"Lena Wiklund Gustin","doi":"10.1111/scs.13301","DOIUrl":"10.1111/scs.13301","url":null,"abstract":"","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"817-819"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142082199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient involvement in interdisciplinary bedside rounds from nursing and medical students' perceptions. A Swedish qualitative interview study.","authors":"Yelyzaveta Hordiienko, Cecilia Fagerström, Hafrún Rafnar Finnbogadóttir","doi":"10.1111/scs.13307","DOIUrl":"10.1111/scs.13307","url":null,"abstract":"<p><strong>Background: </strong>Patient involvement in the interdisciplinary bedside round (IBR) increases care quality and safety but is influenced and perceived differently by different round participants. Nursing and medical students are still not structurally embedded in the healthcare system, and they participate in interdisciplinary bedside rounds for educational purposes. Thus, the students may give a valuable perspective on patient involvement from the 'outside view'.</p><p><strong>Aim: </strong>This study aimed to describe nursing and medical students' perceptions of patient involvement in IBRs.</p><p><strong>Methods: </strong>This study has a qualitative design with individual interviews. Eighteen informants were recruited with the help of gatekeepers from two sites in Sweden: a university training health clinic and a county hospital. They participated in one-to-one semi-structured interviews, which were analysed with an inductive qualitative content analysis approach.</p><p><strong>Ethical issues and approval: </strong>The study has been approved by the Swedish Ethical Review Authority. Informed consent was received from all participants.</p><p><strong>Results: </strong>The results yielded five categories. Two sub-themes and one theme of meaning emerged as a 'red thread' across the categories. The theme of meaning was: 'In hospital rounds, the patient is a respected guest, but with a disadvantaged \"alien status\" due to the hosts' difficult medical language and unclear routines'. Students perceive patients are not fully involved in IBRs, and the healthcare team controls this involvement due to patients' lack of knowledge and vulnerability, the hectic hospital environment, and complicated medical language. Doctors lead IBRs and encourage or discourage patient involvement and nurses act as patient advocates, supporting their involvement.</p><p><strong>Conclusions: </strong>According to nursing and medical students, patients are seldom involved in IBRs due to multiple interaction barriers and despite communicational facilitators. Their involvement depends on healthcare professionals. Further research should investigate other IBRs stakeholders' perspectives on patient involvement in IBRs to facilitate it.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"1050-1060"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142568883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parents' comprehensive health literacy and child health after attending extended home visiting in Swedish multicultural settings-A case-comparison study.","authors":"Kirsi Tiitinen Mekhail, Bo Burström, Anneli Marttila, Josefin Wångdahl, Lene Lindberg","doi":"10.1111/scs.13292","DOIUrl":"10.1111/scs.13292","url":null,"abstract":"<p><strong>Background: </strong>Parents' low health literacy (HL) has negative impacts on child health. Parental interventions may improve parents' HL and thus impact child health positively.</p><p><strong>Objectives: </strong>This study aimed to gain knowledge about associations between parents' comprehensive HL (CHL) and child health after an extended postnatal home visiting program in Swedish multicultural, disadvantaged settings compared to parents receiving regular child healthcare (CHC).</p><p><strong>Materials and methods: </strong>This quasi-experimental study used a case-control sampling method to recruit first-time parents through two CHC centres in Stockholm (2017-2020). Participants (N = 151) were interviewed twice through structured questionnaires when their child was <2 months and 15-18 months old. HLS-EU-Q16 assessed parents' CHL. Children's medical records (0-18 months) were reviewed regarding breastfeeding, children's exposure to smoking, language development and healthcare utilisation. Data were analysed with regression models and non-parametric tests.</p><p><strong>Results: </strong>No significant association was found between parents' CHL and child health. However, significantly fewer unplanned visits to the CHC centre were observed among children (0-18 months) in the intervention group irrespective of CHL, compared with children to parents with improved CHL in the comparison group (F = 3.856, p = 0.011).</p><p><strong>Conclusions: </strong>Postnatal home visiting interventions practicing proportional universalism and family-centred care may reduce unplanned visits within CHC in disadvantaged settings despite parents' CHL. Further studies with long-term follow-up are suggested to explore associations between parents' CHL and child health.</p><p><strong>Trial registration: </strong>As a clinical study (not a clinical trial) with appropriate ethical permission with participants' consents, this study was retrospectively registered (18 February 2020) in the ISRCTN registry (ISRCTN10336603).</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"876-887"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Embodied suffering: Uncovering the illness experiences of patients with severe psoriasis.","authors":"Lin-Lin Lee, An-Ping Huo, Shu-Ling Chen","doi":"10.1111/scs.13305","DOIUrl":"10.1111/scs.13305","url":null,"abstract":"<p><strong>Background: </strong>The visibility of skin lesions significantly burdens people with psoriasis, leading to social hostility and numerous emotional and psychological problems. These issues adversely affect self-esteem, can result in chronic mental health challenges and cause numerous life problems. This study aimed to explore patients' long-term experiences with severe psoriasis.</p><p><strong>Methods: </strong>A qualitative study was conducted with 20 patients with psoriasis (PASI ≥12) recruited from general and specialist dermatology practices in a regional teaching hospital in Taiwan. Interviews lasted 60-90 min and data were analysed using content analysis.</p><p><strong>Findings: </strong>A core theme emerged: 'Embodied suffering-life worse than death'. This overarching concept comprised three interrelated themes: (i) Experiencing physical suffering, (ii) Experiencing psychological suffering and (iii) Experiencing the stigma of suffering.</p><p><strong>Conclusion: </strong>This study highlights the holistic nature of suffering among individuals with severe psoriasis. It emphasises the need for healthcare professionals to consider the entirety of a patient's circumstances when addressing their suffering.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"1041-1049"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Traces of spiritual care in nursing records: A qualitative study of cancer care.","authors":"Ingerd Irgens Hynnekleiv, Tove Giske, Kristin Heggdal","doi":"10.1111/scs.13294","DOIUrl":"10.1111/scs.13294","url":null,"abstract":"<p><strong>Background: </strong>Serious illnesses, such as cancer, bring the threat of loss of health and life closer. This may compromise spiritual well-being. Addressing patients' spirituality is essential in nursing care. Therefore, nursing records should reflect, clarify, and enable spiritual-care follow-up.</p><p><strong>Aim: </strong>The aim of this study is to explore how spiritual care is expressed in nursing records in cancer care.</p><p><strong>Method: </strong>This study adopted a hermeneutic approach, and a qualitative content analysis was used to explore the nursing records of 43 inpatients with cancer from Norway. Ethical approval was obtained, and the privacy of the patients and healthcare professionals was safeguarded in line with the applicable legislation.</p><p><strong>Results: </strong>Spiritual care was rarely reported in the nursing records (i.e., the nursing care plans and the progress notes). However, traces of spiritual care appeared in the records of everyday nursing. Four themes emerged from the analysis: (1) relieving life pain and mitigating loss, (2) facilitating faith support, (3) welcoming family and friends, and (4) sustaining normality and sharing joy.</p><p><strong>Conclusions: </strong>This study showed that the nursing records of cancer care seldom expressed spiritual care concerning patients' life pain, loss, or faith support. Increasing nurses' competencies in mapping, documenting, and attending to spiritual care, as well as overcoming the limitations of documentation systems, could help address the spiritual needs of cancer patients.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"924-935"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Support needed by parents when a child's mental well-being is threatened-A qualitative study of views of experts-by-experience.","authors":"Putkuri Tiina, Latva-Korpela Irene, Häkkinen Mikko","doi":"10.1111/scs.13310","DOIUrl":"10.1111/scs.13310","url":null,"abstract":"<p><strong>Background: </strong>In situations where a child's mental well-being is threatened, the parents also need support. The available support has been perceived as insufficient by both parents and professionals.</p><p><strong>Aim: </strong>To explore the views of experts-by-experience of the support needed by parents when a child's mental well-being is threatened.</p><p><strong>Methods: </strong>A qualitative study with a phenomenological approach was conducted in Finland. The data were collected in six focus group interviews during the autumn of 2022. The participants (n = 26) were adult experts-by-experience who had experienced either mental well-being challenges in their own childhood (before the age of 18 years) or experienced the mental well-being challenges of a child from the role of a parent. The data were analysed using inductive content analysis.</p><p><strong>Results: </strong>The support needed by parents in situations where the mental well-being of their child is at risk consists of support for parenting, support for sharing and support for surviving.</p><p><strong>Conclusion: </strong>Parents whose child's mental well-being is at risk, need support both for their own well-being and for their ability to support their child's well-being. Support is needed not only from professionals but also from peers.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"1061-1071"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142569183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effect of post-discharge online kangaroo care training on breastfeeding self-efficacy in mothers with preterm infants: A randomised controlled study.","authors":"Serap Kaynak, Sibel Ergün","doi":"10.1111/scs.13293","DOIUrl":"10.1111/scs.13293","url":null,"abstract":"<p><strong>Background: </strong>Preterm newborns face many health problems due to their incomplete intrauterine development and the immaturity of their systems. One of these problems concerns nutrition. This study aimed to determine the effect of online kangaroo care (KC) training provided post-discharge on breastfeeding self-efficacy in mothers with preterm infants.</p><p><strong>Methods: </strong>This research was conducted as an experimental study with a randomised control group. Two groups were formed: kangaroo care and control. The sample of the study consisted of 68 mothers of preterm infants. The mothers in the KC group were given online KC training after discharge from the hospital. The mothers were asked to perform KC regularly, at least once a day, for 20 min, 7 days a week. The Breastfeeding Self-Efficacy Scale was administered to the mothers before and after training.</p><p><strong>Results: </strong>The results of the study revealed that the difference between the pre-test and post-test breastfeeding self-efficacy scores was statistically significantly higher among the mothers who received online KC training compared with the controls (p < 0.001).</p><p><strong>Conclusion: </strong>According to the results of our research carried out in this context, the mothers who received online KC training had increased breastfeeding self-efficacy compared to those in the control group.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"917-923"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142001090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Catalysts for change: A qualitative study of middle managers' perception of nursing professional competence in primary healthcare.","authors":"Choi Kristian Wiik, Anne Vifladt, Sevald Høye","doi":"10.1111/scs.13286","DOIUrl":"10.1111/scs.13286","url":null,"abstract":"<p><strong>Aim: </strong>This study aims to explore middle managers' perception of nursing professional competence within the Norwegian primary healthcare service, a sector vital for managing complex patient needs.</p><p><strong>Design/methods: </strong>Semi-structured interviews were conducted with four middle managers across different municipalities in Norway. Qualitative content analyses, following Graneheim and Lundman, were used for analysing the transcription of the interviews and the data collected.</p><p><strong>Findings: </strong>The qualitative content analysis revealed three main themes: the significance of advanced competence, challenges related to competence development and the necessity for defining advanced competence. The findings indicate that middle managers recognise the importance of advanced nursing competence in providing comprehensive patient care, notwithstanding challenges in manpower and competence enhancement.</p><p><strong>Conclusion: </strong>This research underlines the significance of investing in increased competence and improved management in primary healthcare and offers valuable insights for healthcare policy and practice to enhance patient care.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"854-863"},"PeriodicalIF":1.9,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141793803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}