Chai Eng Tan MMed, Sie Chong Doris Lau MMed, Zarina Abdul Latiff Msc, MMed, Chee Chan Lee MMed, Kok Hoi Teh MRCPCH, Sherina Mohd Sidik PhD
{"title":"Parents of children with cancer require health literacy support to meet their information needs","authors":"Chai Eng Tan MMed, Sie Chong Doris Lau MMed, Zarina Abdul Latiff Msc, MMed, Chee Chan Lee MMed, Kok Hoi Teh MRCPCH, Sherina Mohd Sidik PhD","doi":"10.1111/hir.12491","DOIUrl":"10.1111/hir.12491","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Timely and relevant information helps parents to cope when a child is diagnosed with cancer. However, obtaining and understanding information is not a straightforward process for parents.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>This article aims to explain paediatric cancer parents' information behaviour related to the care of their child.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Qualitative in-depth interviews were conducted with fourteen Malaysian paediatric cancer parents and eight healthcare professionals who worked with paediatric cancer patients. Reflexivity and inductive approaches were used to interpret the data to identify meaningful themes and subthemes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three themes about how paediatric cancer parents interact with information emerged: Acquiring information, internalising information, and using information. Information may be actively sought or passively acquired. Cognitive and affective aspects influence how information is internalised into meaningful knowledge. Knowledge then leads to further action including further information gathering.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Paediatric cancer parents need health literacy support to meet their information needs. They require guidance in identifying and appraising suitable information resources. Development of suitable supporting materials is needed to facilitate parents' ability to comprehend information related to their child's cancer. Understanding parents' information behaviour could assist healthcare professionals in providing information support in the context of paediatric cancer.</p>\u0000 </section>\u0000 </div>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"41 3","pages":"267-282"},"PeriodicalIF":2.2,"publicationDate":"2023-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9649214","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jane Morgan-Daniel MLIS, AHIP, Hannah F. Norton MS, AHIP, Mary Edwards MLIS, EdD, Lauren Adkins MLIS, AHIP
{"title":"Integrating diversity, equity, and inclusion principles into instruction: Case studies from the University of Florida's Health Science Center Libraries","authors":"Jane Morgan-Daniel MLIS, AHIP, Hannah F. Norton MS, AHIP, Mary Edwards MLIS, EdD, Lauren Adkins MLIS, AHIP","doi":"10.1111/hir.12490","DOIUrl":"10.1111/hir.12490","url":null,"abstract":"<p>Librarians at the University of Florida Health Science Center Libraries have begun to intentionally incorporate diversity, equity, and inclusion (DEI) principles into teaching during design, implementation, and evaluation. This article uses four case studies to provide an overview of the librarians' approaches to inclusive teaching (1) an annual workshop for Physical Therapy students on the intersection between DEI, health literacy, and patient education; (2) a librarian-taught one-credit course for public health students, which was revised to create a more inviting syllabus and integrate elements of universal design; (3) an annual project for first year medical students highlighting health disparities and community resources; and (4) piloting the application of critical librarianship principles in library standalone sessions on database searching and reference management. Suggestions are provided for other librarians who are interested in developing a culture of inclusive teaching in their own libraries.</p>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"40 3","pages":"332-338"},"PeriodicalIF":3.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10079226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mahinur Durmuş Iskender PhD, MSc, BSc, RN, Handan Eren PhD, MSc, BSc, RN, Ayşenur Durmuş MSc, BSc, RN, PhD Student
{"title":"The effect of COVID-19 vaccine literacy on attitudes towards COVID-19 vaccine among university students","authors":"Mahinur Durmuş Iskender PhD, MSc, BSc, RN, Handan Eren PhD, MSc, BSc, RN, Ayşenur Durmuş MSc, BSc, RN, PhD Student","doi":"10.1111/hir.12489","DOIUrl":"10.1111/hir.12489","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>University students are a large group of the population who should be vaccinated to prevent the spread of the pandemic. This research aimed to determine the effect of COVID-19 vaccine literacy on the attitudes towards the COVID-19 vaccine among university students.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This descriptive and cross-sectional study was conducted with 2384 university students via online survey in September and October 2021. ‘Demographic Information Form’, ‘COVID-19 Vaccine Literacy Scale’, and ‘Attitudes towards the COVID-19 Vaccine Scale’ were used to collect the data. Data were evaluated via descriptive statistics, independent group <i>t</i>-test, ANOVA, Tukey HSD, and Pearson Correlation analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The mean score on the COVID-19 Vaccine Literacy Scale was 27.26 ± 6.49 (moderate). Demographic differences that significantly affected students' vaccine literacy scales included parents' education levels (lower levels of parental education associated with higher communicative/critical vaccine literacy). Health sciences students had more positive attitudes to the COVID vaccine than students of other disciplines. The higher the level of mother's education, the more positive the student's attitude towards the vaccine, and similarly the higher the student's socio-economic background the higher the positive attitude towards the vaccine. Examination of the relationship between the vaccine literacy scale and the attitudes towards the vaccine showed low levels of correlation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>Students who had parents of lower education levels may have more responsibilities for explaining vaccination to their parents, thus improving their communicative/critical vaccine literacy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>A vaccine literacy scale with separate functional literacy score and critical/communicative score helps to explain some of socio-demographic differences in students' scores, and similarly for attitude towards the COVID-19 vaccine (positive and negative attitude sub-scales).</p>\u0000 </section>\u0000 </div>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"40 3","pages":"307-318"},"PeriodicalIF":3.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hir.12489","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10473409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"New to health information, library or knowledge work …","authors":"Maria J. Grant PhD","doi":"10.1111/hir.12488","DOIUrl":"10.1111/hir.12488","url":null,"abstract":"<p><i>Dissertations into Practice</i> is changing. Details on how those new to health information, library and knowledge work can get involved coming shortly.</p>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"40 2","pages":"217"},"PeriodicalIF":3.8,"publicationDate":"2023-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9832051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Perceived and performed electronic health literacy of medical sciences students","authors":"Rezvan Ghaedi MSc, Maryam Shekofteh PhD, Saeideh Valizadeh-Haghi PhD, Ahmadreza Baghestani PhD","doi":"10.1111/hir.12487","DOIUrl":"10.1111/hir.12487","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Evidence indicates that perceived skills for searching the Internet for health information may differ from actual skills in searching, finding, and appraising health information.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>This study investigated the perceived and performed eHealth literacy of medical sciences students, as well as the relationships between those literacies.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This study enrolled 228 medical sciences students (convenience sample) in Iran. The study tools include the eHEALS literacy scale for the perceived eHealth literacy and a questionnaire designed by the authors to assess performed eHealth literacy (skills around access, understanding, appraising, applying, and generating information). Data were analysed using descriptive statistics and the Pearson correlation coefficient.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In general, over 70% of students perceived their skills of access and appraisal as good/very good, correlating with their estimated performance. Students perceived they were less confident in some appraisal skills (e.g., using information from the Internet to make health decisions) than others. Performed skills in information generation were mostly poor or very good; performed application skills generally good/very good.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The eHEALS score scales with actual skills (access and appraisal). Support is necessary for students in particular types of appraisal skills.</p>\u0000 </section>\u0000 </div>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"41 4","pages":"386-393"},"PeriodicalIF":2.2,"publicationDate":"2023-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9520339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Medical students and residents appreciate ebooks’ convenience, but prefer the print book reading experience","authors":"Erin M. Watson MLIS","doi":"10.1111/hir.12485","DOIUrl":"10.1111/hir.12485","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Increasingly, libraries buy medical monographs as ebooks, but that may not be what medical students and residents want. Some studies have shown that they prefer print books for some types of reading. On the other hand, for participants in distributed medical programs, ebooks are more accessible.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>To determine whether medical students and residents at an institution with a distributed medical education program prefer medical ebooks or print books.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>In February 2019, 844 medical students and residents were invited to complete an online questionnaire on their format preferences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Two hundred thirty-two students and residents responded. Most preferred electronic format for reading a few pages, but print for entire books. Respondents preferred ebooks because they were immediately available, searchable and could be used on the go, and print books because they strained users' eyes less, facilitated absorption of the text and could be held in users’ hands. The location of respondents and year of study had little effect on responses.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>Libraries should consider buying quick reference and large, heavy textbooks as ebooks and pocket-sized or shorter, single-topic titles, in print format.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Libraries have a responsibility to make both print and ebooks available to their users.</p>\u0000 </section>\u0000 </div>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"41 4","pages":"374-385"},"PeriodicalIF":2.2,"publicationDate":"2023-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9524754","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Refining the online health information searcher typology: Applying the patient health engagement model.","authors":"Wendy Macias, Mina Lee","doi":"10.1111/hir.12486","DOIUrl":"https://doi.org/10.1111/hir.12486","url":null,"abstract":"<p><strong>Background: </strong>Despite numerous quantitative findings on online health information seeking, little is known about the process of online health information seeking itself.</p><p><strong>Objectives: </strong>The study aimed to learn about how adults search for health information online, whether Macias et al.'s Online Health Searcher Typology applies to a broader, non-university sample, and to better identify and understand online health searchers by employing the Patient Health Engagement (PHE) model.</p><p><strong>Methods: </strong>This study examined the role of engagement in online health information search processes using think-aloud qualitative interviews with 11 participants in their 30s to 70s. The research applied both thematic analysis and a quantitative coding scheme based on the PHE model to analyse the qualitative data that consists of 500 pages of think-aloud verbatim transcripts.</p><p><strong>Results: </strong>This study found that four (flounderer, skimmer, digester and devourer) out of five types emerged as distinct search styles. Insights into engagement helped distinguish online health searcher types in this sample.</p><p><strong>Conclusion: </strong>The dynamics of the engagement dimension indicate that the online health information search process is multi-dimensional. It is comprised of different levels of cognitive, emotional, and conative responses, further extending the PHE model. Health science librarians and health professionals have a unique opportunity to help individuals better navigate online health search.</p>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":" ","pages":""},"PeriodicalIF":3.8,"publicationDate":"2023-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9808999","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Retracted publications in autism research are mostly concerned with ethical misconduct","authors":"Deborah H. Charbonneau PhD, Leah R. Ketcheson PhD","doi":"10.1111/hir.12482","DOIUrl":"10.1111/hir.12482","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>As the prevalence of autism appears to increase, more research to guide effective diagnosis and intervention practices is needed. Findings disseminated through peer-reviewed publications are critical, but the number of retractions continues to rise. An understanding of retracted publications is imperative to ensure the body of evidence is corrected and current.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>The objectives of this analysis were to summarize key characteristics of retracted publications in autism research, examine the length of time between publication and retraction, and assess the extent journals are adhering to publishing ethical guidelines for reporting retracted articles.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We searched five databases through 2021 (PubMed, EMBASE, Scopus, Web of Science, and Retraction Watch).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 25 retracted articles were included in the analysis. Ethical misconduct accounted for the majority of retractions rather than scientific error. The shortest time to retraction was 2 months and the longest length was 144 months.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>The time lag between publication and retraction since 2018 has improved considerably. Nineteen of the articles had retraction notices (76%), whereas six articles did not have a notice (24%).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>These findings summarize errors of previous retractions and illuminate opportunities for researchers, journal publishers and librarians to learn from retracted publications.</p>\u0000 </section>\u0000 </div>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"41 1","pages":"64-75"},"PeriodicalIF":3.8,"publicationDate":"2023-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9425764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Health literacy and consumer health information","authors":"Maria J. Grant PhD","doi":"10.1111/hir.12477","DOIUrl":"10.1111/hir.12477","url":null,"abstract":"<p>The rigours of the past few years have demonstrated the importance of good health literacy levels with the imperative of being able to obtain and interpret information to maintain and improve one's health never more apparent. With this in mind, this issue is focused on consumer health information, the gender and population group differences that exist in information seeking behaviour, the challenges of understanding medical explanations and terminology, and existing criteria to assess and ultimately produce better consumer health information.</p>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"40 1","pages":"1-2"},"PeriodicalIF":3.8,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9234632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Issue Information Covers","authors":"","doi":"10.1111/hir.12435","DOIUrl":"https://doi.org/10.1111/hir.12435","url":null,"abstract":"","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":"40 1","pages":"i-iv"},"PeriodicalIF":3.8,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hir.12435","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50155853","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}