Parents of children with cancer require health literacy support to meet their information needs

IF 2.2 4区医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE

Health Information and Libraries Journal Pub Date : 2023-06-18 DOI:10.1111/hir.12491

Chai Eng Tan MMed, Sie Chong Doris Lau MMed, Zarina Abdul Latiff Msc, MMed, Chee Chan Lee MMed, Kok Hoi Teh MRCPCH, Sherina Mohd Sidik PhD

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引用次数: 0

Abstract

Background

Timely and relevant information helps parents to cope when a child is diagnosed with cancer. However, obtaining and understanding information is not a straightforward process for parents.

Objectives

This article aims to explain paediatric cancer parents' information behaviour related to the care of their child.

Methods

Qualitative in-depth interviews were conducted with fourteen Malaysian paediatric cancer parents and eight healthcare professionals who worked with paediatric cancer patients. Reflexivity and inductive approaches were used to interpret the data to identify meaningful themes and subthemes.

Results

Three themes about how paediatric cancer parents interact with information emerged: Acquiring information, internalising information, and using information. Information may be actively sought or passively acquired. Cognitive and affective aspects influence how information is internalised into meaningful knowledge. Knowledge then leads to further action including further information gathering.

Conclusion

Paediatric cancer parents need health literacy support to meet their information needs. They require guidance in identifying and appraising suitable information resources. Development of suitable supporting materials is needed to facilitate parents' ability to comprehend information related to their child's cancer. Understanding parents' information behaviour could assist healthcare professionals in providing information support in the context of paediatric cancer.

查看原文本刊更多论文

癌症患儿的家长需要健康扫盲支持，以满足他们的信息需求。

背景：当孩子被诊断出患有癌症时，及时提供相关信息有助于家长应对。然而，对于家长来说，获取和理解信息并不是一个简单的过程：本文旨在解释儿科癌症父母在照顾子女方面的信息行为：方法：对 14 位马来西亚儿科癌症家长和 8 位为儿科癌症患者服务的医疗保健专业人员进行了定性深入访谈。采用反射法和归纳法对数据进行解释，以确定有意义的主题和次主题：结果：关于儿科癌症家长如何与信息互动，出现了三个主题：获取信息、内化信息和使用信息。信息可以是主动寻求的，也可以是被动获取的。认知和情感方面会影响信息如何内化为有意义的知识。然后，知识会导致进一步的行动，包括进一步收集信息：结论：儿科癌症家长需要健康素养支持来满足他们的信息需求。他们需要在识别和评估合适的信息资源方面得到指导。需要开发合适的辅助材料，帮助家长理解与子女癌症相关的信息。了解家长的信息行为有助于医护人员为儿童癌症患者提供信息支持。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Health Information and Libraries Journal INFORMATION SCIENCE & LIBRARY SCIENCE-

CiteScore

6.70

自引率

10.50%

发文量

期刊介绍： Health Information and Libraries Journal (HILJ) provides practitioners, researchers, and students in library and health professions an international and interdisciplinary forum. Its objectives are to encourage discussion and to disseminate developments at the frontiers of information management and libraries. A major focus is communicating practices that are evidence based both in managing information and in supporting health care. The Journal encompasses: - Identifying health information needs and uses - Managing programmes and services in the changing health environment - Information technology and applications in health - Educating and training health information professionals - Outreach to health user groups