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Vulnerable Lives, Irrelevant Deaths? Dying Alone and Receiving Flawed Care in an Institution for the Aged in Lima, Peru. 脆弱的生命，无关紧要的死亡？在秘鲁利马的一家养老院中孤独终老并接受有缺陷的护理。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-08-17 Epub Date: 2024-08-15 DOI: 10.1080/01459740.2024.2388201
Magdalena Zegarra Chiappori
{"title":"Vulnerable Lives, Irrelevant Deaths? Dying Alone and Receiving Flawed Care in an Institution for the Aged in Lima, Peru.","authors":"Magdalena Zegarra Chiappori","doi":"10.1080/01459740.2024.2388201","DOIUrl":"10.1080/01459740.2024.2388201","url":null,"abstract":"<p><p>This ethnographic exploration of death in the Peruvian context draws on fieldwork among abandoned-both by their families and the state-older adults in a shelter for the homeless in Lima, Peru. I examine the conditions and local forces that shape the ways people at this institution socially and physically die. My argument is that people in this long-term care facility who have lived entire lives on the margins, usually, end up having irrelevant deaths to their families, other residents of the institution, and the Peruvian state. At this shelter, dying in an irrelevant way means dying without companionship from family members and receiving poor and flawed care from the institution that shelters them.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"482-494"},"PeriodicalIF":1.5,"publicationDate":"2024-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141984298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ethical and Epistemological Implications of Conducting Ethnographic Fieldwork as a Researcher-cum-Clinician in Brussels, Belgium. 在比利时布鲁塞尔以研究员兼临床医生的身份开展人种学田野调查的伦理和认识论影响。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-08-17 Epub Date: 2024-08-07 DOI: 10.1080/01459740.2024.2386583
Dirk Lafaut, Lisa Dikomitis
{"title":"Ethical and Epistemological Implications of Conducting Ethnographic Fieldwork as a Researcher-cum-Clinician in Brussels, Belgium.","authors":"Dirk Lafaut, Lisa Dikomitis","doi":"10.1080/01459740.2024.2386583","DOIUrl":"10.1080/01459740.2024.2386583","url":null,"abstract":"<p><p>We draw on ethnographic fieldwork conducted in Brussels (Belgium) on the health care experiences of undocumented migrants. We explore the implications of the double position of the ethnographer, who is both a researcher and a practicing doctor. We describe how the intimate knowledge the ethnographer-cum-clinician holds about the health care system influenced and shaped the data collection, analysis and subsequent policy recommendations. We examine the ethical dilemmas in conducting research from an engaged position about care practices toward vulnerable populations in one's own professional field. We conclude with recommendations on how to challenge and interrupt complexities faced by multi-positioned ethnographers.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"538-552"},"PeriodicalIF":1.5,"publicationDate":"2024-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141903203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sitting in Wait: Everyday Caregiving Practices for People with Dementia in Rural South Africa. 坐等：南非农村地区痴呆症患者的日常护理实践》（Sitting in Wait: Everyday Caregiving Practices for People with Dementia in Rural South Africa）。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-08-17 Epub Date: 2024-09-05 DOI: 10.1080/01459740.2024.2395285
Michelle R Brear, Themby Nkovana, Lenore Manderson
{"title":"Sitting in Wait: Everyday Caregiving Practices for People with Dementia in Rural South Africa.","authors":"Michelle R Brear, Themby Nkovana, Lenore Manderson","doi":"10.1080/01459740.2024.2395285","DOIUrl":"10.1080/01459740.2024.2395285","url":null,"abstract":"<p><p>Practice theories offer potential to reveal, understand, and attribute value to the everyday thoughts and actions of dementia caregivers. Drawing on ethnographic data from research in rural South Africa, on everyday dementia care practices, we highlight the profound importance of mundane practices - especially \"sitting in wait\" - for optimizing wellbeing of people with dementia who are cared for at home. We draw attention to the structural drivers of homebased (informal) care, which is underpinned by state inaction. This situates the act of sitting in wait as both an act of care and an embodied form of structural powerlessness.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":"43 6","pages":"469-481"},"PeriodicalIF":1.5,"publicationDate":"2024-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142141411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Precarity and Hope at the Intersections of HIV and Cervical Cancer in a Johannesburg Clinic. 约翰内斯堡一家诊所中艾滋病毒与宫颈癌交汇处的危险与希望》（Precarity and Hope at the Intersections of HIV and Cervical Cancer in a Johannesburg Clinic）。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-08-17 Epub Date: 2024-09-05 DOI: 10.1080/01459740.2024.2395273
Jonathan Stadler, Fiona Scorgie
{"title":"Precarity and Hope at the Intersections of HIV and Cervical Cancer in a Johannesburg Clinic.","authors":"Jonathan Stadler, Fiona Scorgie","doi":"10.1080/01459740.2024.2395273","DOIUrl":"10.1080/01459740.2024.2395273","url":null,"abstract":"<p><p>In a tragically ironic twist, antiretroviral therapy (ART) that promised an end to AIDS ushered in a syndemic of viral cancers, transforming hope to despair. In this article we draw from the illness narratives of HIV positive women attending a cervical cancer screening clinic in Johannesburg, South Africa, and chart their pathways from HIV to cancer, and their quest for treatment. Our interlocutors described protracted struggles to access surgical procedures to prevent the onset of cervical cancer. Dealt a double blow of HIV and cervical cancer, women's narratives reveal the intersections of exposure to pathogens and the precarity of hope.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":"43 6","pages":"495-508"},"PeriodicalIF":1.5,"publicationDate":"2024-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142141410","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Collective Sensemaking and Healthcare Workers' Ripple Effect Influencing Vaccine Hesitancy in West Michigan. 影响西密歇根州疫苗接种意愿的集体感性认识和医护人员的涟漪效应。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-08-17 Epub Date: 2024-08-14 DOI: 10.1080/01459740.2024.2388199
Kristin Hedges, Maggie Willson
{"title":"Collective Sensemaking and Healthcare Workers' Ripple Effect Influencing Vaccine Hesitancy in West Michigan.","authors":"Kristin Hedges, Maggie Willson","doi":"10.1080/01459740.2024.2388199","DOIUrl":"10.1080/01459740.2024.2388199","url":null,"abstract":"<p><p>The social efficacy of vaccines has been a central concern around COVID-19 vaccine uptake rates. As partners on the Vaccinate West Michigan Coalition, we conducted a rapid ethnographic assessment project among adults living in West Michigan. Three case studies are presented to convey the nuanced context around decisions with a focus on the influence of fear, trust, and the ripple effect of healthcare workers' (HCW) beliefs around vaccines. While HCWs' attitudes and beliefs influence their patients, the unique contribution of this study is its focus on how HCWs' perceptions influence friends and family members.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"553-568"},"PeriodicalIF":1.5,"publicationDate":"2024-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141984297","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ambivalent Speculations: Learning to Live with Barrett's Esophagus in the UK Using Facebook Support Groups. 矛盾的猜测：在英国利用 Facebook 支持小组学会与巴雷特食道癌共存。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-08-02 DOI: 10.1080/01459740.2024.2376004
Elspeth Davies
{"title":"Ambivalent Speculations: Learning to Live with Barrett's Esophagus in the UK Using Facebook Support Groups.","authors":"Elspeth Davies","doi":"10.1080/01459740.2024.2376004","DOIUrl":"10.1080/01459740.2024.2376004","url":null,"abstract":"<p><p>Drawing on fieldwork in Facebook support groups, in this article I explore how people, now patients, learnt to live with Barrett's esophagus, a risk state or \"precancer\" for a type of esophageal cancer. This diagnosis brought the possibility of both facing and averting cancerous futures into the present. Far from passive recipients, members worked to foreground speculations of \"wanted futures\" in which prompt surveillance successfully prevented cancer deaths, transforming cancer risk into an opportunity for hope. Speculation here was an ambivalent and active process, involving not only the \"observation of potentiality,\" but the opening up and foreclosing of both desirable and undesirable potentialities.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"1-14"},"PeriodicalIF":1.5,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141876311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"As Long as There's a Glimmer of Hope, I'm Willing to Try": The Moral Experiences of Parental Pursuit for Autism Therapy in Urban China. "只要有一线希望，我就愿意尝试"：中国城市家长追求自闭症治疗的道德体验》。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-07-03 Epub Date: 2024-07-24 DOI: 10.1080/01459740.2024.2376005
Mengzhu An
{"title":"\"As Long as There's a Glimmer of Hope, I'm Willing to Try\": The Moral Experiences of Parental Pursuit for Autism Therapy in Urban China.","authors":"Mengzhu An","doi":"10.1080/01459740.2024.2376005","DOIUrl":"10.1080/01459740.2024.2376005","url":null,"abstract":"<p><p>In today's China, countless parents embark on a journey of moral peril in search of treatment for their children with autism, navigating a bustling yet chaotic market of therapies. Based on 13 months of fieldwork in the Pearl River Delta, this study examines how the boom of China's autism therapy industry has plunged parents, who are relentlessly striving for their children's futures, into deeper vulnerability. I view the \"ethics of trying\" as parental enactment of their moral agency in seeking therapy and reveal how it serves as a moral engine for the industry's growth in the early 21st century, as well as how it leads to moral tragedies for parents as new norms of therapeutic choice emerge with government and professional guidance compelling them to make optimal therapeutic choices within a critical developmental window. Although parental efforts to avoid \"agent-regret\" can paradoxically lead to significant remorse, the moral tragedy they encounter can also prompt reflection and reevaluation of their approach to their child's condition.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":"43 5","pages":"455-468"},"PeriodicalIF":1.5,"publicationDate":"2024-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Making it Work: Everyday Life and Healthcare with Multiple Chronic Illnesses in Denmark. 让它发挥作用：丹麦多重慢性病患者的日常生活和医疗保健。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-07-03 Epub Date: 2024-07-24 DOI: 10.1080/01459740.2024.2376015
Anna Louise Skovgaard, Tine Tjørnhøj-Thomsen, Marianne Johansson Jørgensen, Mette Terp Høybye
{"title":"Making it Work: Everyday Life and Healthcare with Multiple Chronic Illnesses in Denmark.","authors":"Anna Louise Skovgaard, Tine Tjørnhøj-Thomsen, Marianne Johansson Jørgensen, Mette Terp Høybye","doi":"10.1080/01459740.2024.2376015","DOIUrl":"10.1080/01459740.2024.2376015","url":null,"abstract":"<p><p>A growing concern in clinical literature with the \"treatment burden\" of living with multimorbidity raises questions about how we can study and produce knowledge on the impact of health care. In this article, we draw on ethnographic material from fieldwork among people with multimorbidity in Denmark and recent theorization on \"values\" in health care, to show how an ongoing \"trying out\" and ways of \"just getting on with it\" are enacted in illness trajectories marked by multimorbidity. Our findings point to the importance of attending to the subject positions that particular healthcare relations and encounters make possible.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":"43 5","pages":"397-410"},"PeriodicalIF":1.5,"publicationDate":"2024-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pregnancy As Window of Opportunity? A Danish RCT on Physical Activity During Pregnancy. 孕期是机会之窗？丹麦一项关于孕期体育锻炼的 RCT 研究。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-07-03 Epub Date: 2024-07-24 DOI: 10.1080/01459740.2024.2376007
Julie Bønnelycke, Maria Larsen, Astrid Pernille Jespersen
{"title":"Pregnancy As Window of Opportunity? A Danish RCT on Physical Activity During Pregnancy.","authors":"Julie Bønnelycke, Maria Larsen, Astrid Pernille Jespersen","doi":"10.1080/01459740.2024.2376007","DOIUrl":"10.1080/01459740.2024.2376007","url":null,"abstract":"<p><p>Pregnancy is seen as a window of opportunity for health interventions, with the potential to produce long-term health changes for mother and child. The RCT FitMum investigates the effects of different regimes of physical activity during pregnancy. We suggest that rather than hitting a window of opportunity, the trial works in choreography with different timescapes through the processes of management of time. These timescapes are characterized by linear progression and futurity, alongside composite, complex time. We reconceptualize the intervention as a navigation of flows and passages in collective efforts, providing a situated and sustainable approach to interventions.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":"43 5","pages":"441-454"},"PeriodicalIF":1.5,"publicationDate":"2024-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health Care Delays and Social Suffering Among Indigenous People with Diabetic Foot Complications in Mexico. 墨西哥原住民糖尿病足并发症患者的医疗延误和社会痛苦。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-07-03 Epub Date: 2024-06-12 DOI: 10.1080/01459740.2024.2364241
Laura Montesi, María Guadalupe Ramírez-Rojas, Jesús Elizarrarás-Rivas
{"title":"Health Care Delays and Social Suffering Among Indigenous People with Diabetic Foot Complications in Mexico.","authors":"Laura Montesi, María Guadalupe Ramírez-Rojas, Jesús Elizarrarás-Rivas","doi":"10.1080/01459740.2024.2364241","DOIUrl":"10.1080/01459740.2024.2364241","url":null,"abstract":"<p><p>Diabetic foot (DF) is a leading cause of nontraumatic lower-extremity amputations, premature death, and a sign of social inequality in diabetes treatment. In Mexico, the incidence of DF is on the rise yet little is known about its impact among indigenous people, a disadvantaged group. Based on ethnographic research conducted in Oaxaca and analysis of institutional health-data, in this article we show the health care delays that rural indigenous people face when dealing with DF. Indigenous people's uncertainty regarding their right to health and the structural barriers to medical care favor DF complications, a phenomenon that should be read as social suffering. Since health data concerning indigenous health care service users is patchy and imprecise, indigenous people's social suffering is invisibilized. This omission or partiality in the official records limits public health decision-making and undermines the human rights of the population.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"411-427"},"PeriodicalIF":1.5,"publicationDate":"2024-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141311952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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