Journal of Public Health Research最新文献

{"title":"A thematic analysis of Lay knowledge and beliefs about dementia among first-generation Black African immigrants from West Africa living in London: Informed by a grounded theory approach.","authors":"Raphael Chinedu Mokwenye","doi":"10.1177/22799036251368446","DOIUrl":"10.1177/22799036251368446","url":null,"abstract":"<p><strong>Background: </strong>Many Black Africans live in the UK. More than 850,000 people live with dementia in the UK, and more than 25,000 people with dementia are from Black and minority ethnic groups. The study explores themes of lay knowledge and beliefs about dementia.</p><p><strong>Design and methods: </strong>This study employs a qualitative research design and methods to explore lay knowledge and beliefs about dementia amongst Black African populations living in London. The research is philosophically underpinned by social constructionism and sociological and anthropological lay concepts of health and illness. The researcher interviewed 31 adult respondents, male and female, from the Black African community in London to generate rich data. Participants were first-generation immigrants from West Africa living in London and were mainly carers. Thematic data analysis informed by a grounded theory approach was used to analyse the data.</p><p><strong>Results: </strong>The findings show that dementia is a complex biopsychosocial phenomenon. Four key themes with subthemes emerged and were developed: (i) Traditional views, (ii) Disease and illness, (iii) Help-seeking, and (iv) Caregiving and treatment. The group's understanding of dementia evolved from traditional views to a more medical perspective. This study added witchcraft to the dementia literature on BAME in the UK.</p><p><strong>Conclusions: </strong>The study concluded that the group does not lack knowledge of dementia. Their understanding and beliefs about dementia are evolving, and further efforts are needed to enhance awareness through education, training, and outreach to support individuals with dementia and their families within the Black African community.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251368446"},"PeriodicalIF":1.8,"publicationDate":"2025-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12398662/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing an ecosystem of advanced digital services for healthy ageing by a co-creation methodology: preliminary results of the AGAPE project.","authors":"Chiara Pedrini, Maria Anna Szczepanska, Ileana Ciobanu, Sabrina Tazzari, Angela Pinto, Jensen Joymangul, Elena Tamburini, Pietro Dionisio, Samuele Pinna, Diego Longo, Marco Baccini, Mihai Berteanu, Francesca Cecchi","doi":"10.1177/22799036251348127","DOIUrl":"10.1177/22799036251348127","url":null,"abstract":"<p><strong>Background: </strong>Digital solutions can support healthier ageing and better functioning throughout life; the AGAPE project aimed to co-create and implement a digital ecosystem of services to promote Active and Healthy Ageing, with the involvement of Older adults (OAs) and their formal and informal caregivers. The project's co-creation methodology followed five phases: Pre-selection of devices; Focus groups and questionnaires; Workshops and Living Labs; Pre-Pilot; Pilot. Aim: The aim of this paper is to describe the first four phases of the project, including the results of the usability study (phases 3-4).</p><p><strong>Design and methods: </strong>Co-creation followed the YOUSE Toolbox of Active and Assisted Living projects for user-centred design. Phases 1-4 of the study were conducted in parallel in Italy, Portugal, Romania, to integrate feedback from all sites. To assess the usability and the level of stress related to technology usage (phases 3 and 4), the System Usability Scale (SUS) and the Technostress (TS) were administered, respectively.</p><p><strong>Results: </strong>Two hundred and eighty-two participants (Italy <i>n</i> = 103; Portugal <i>n</i> = 86; Romania <i>n</i> = 93) were involved. Participants appreciated the solution, its services and the health self-monitoring opportunities. Feedback from phases 1 to 4 led wearables choice, interfaces design and coaching strategies. SUS scores showed a significant reduction during Living Lab and Pre-Pilot (<i>p</i> < 0.001); TS did not significantly change. Both scores differed between user groups and countries.</p><p><strong>Conclusions: </strong>This paper presents a reproducible and measurable co-creation approach that has been successfully applied to develop different digital health services for AHA and rehabilitation.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251348127"},"PeriodicalIF":1.8,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397591/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973800","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Household drinking water management practices in urban and rural households in Dschang City, Cameroon.","authors":"Honorine Ntangmo Tsafack, Julie Wandji Kwekap, Godfroy Rostant Pokam Djoko, Franck Robean Wamba, Primus Azinwi Tamfuh, Teh Exodus Akwa, Emile Temgoua","doi":"10.1177/22799036251369402","DOIUrl":"10.1177/22799036251369402","url":null,"abstract":"<p><strong>Context: </strong>Consumption of water from dubious alternative sources or from improved sources contaminated during collection, transport, or storage presents significant health risks. This study aims to assess drinking water management practices in households in Dschang, a city faced with rapid urbanization and water infrastructure problems, compounding public health concerns.</p><p><strong>Methodology: </strong>This descriptive, cross-sectional study was carried out between March and May 2023 in six neighborhoods of Dschang, Cameroon, including both urban and rural areas. A sample of 261 households was selected using a health inspection form based on WHO guidelines, using a non-probability convenience sampling technique. Data analysis was carried out using descriptive statistics and chi-square tests to assess significant differences between areas, with a significance level of <i>p</i> < 0.05.</p><p><strong>Results: </strong>The results show that jerrycans are the most commonly used containers for water storage, with a prevalence of 29% in rural areas and 64% in urban areas. In urban areas, 70% of households used containers considered unhygienic, compared with 55% in rural areas (<i>p</i> < 0.05). The drinking water storage environment was classified as unhygienic in 43% of urban households and 68% of rural households (<i>p</i> < 0.05). In addition, 45% of urban households and 70% of rural households used unhygienic utensils for water collection (<i>p</i> < 0.05). Containers without lids were frequently observed, representing 85% in urban areas versus 70% in rural areas (<i>p</i> > 0.05).</p><p><strong>Conclusions: </strong>These results highlight the factors contributing to the deterioration of drinking water quality in the home, and provide decision-makers with a basis for developing strategies to combat water-borne diseases. It is recommended that water distribution infrastructures be improved and that the population be made aware of good water management practices.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251369402"},"PeriodicalIF":1.8,"publicationDate":"2025-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12394843/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nutrition and health status of Anganwadi workers in urban centers of Faridabad district, Haryana, India.","authors":"Devanshi Kumari, Vandana Garg","doi":"10.1177/22799036251361427","DOIUrl":"10.1177/22799036251361427","url":null,"abstract":"<p><strong>Background: </strong>The performance of Anganwadi workers (AWWs<b>)</b> is often hindered by a lack of supervision, resources, infrastructure, helpers, fair honorarium, and the stress associated with their workload. This study aimed to assess the nutrition and health status of AWWs, who are relentlessly working toward improving the nutrition and health status of children, pregnant, and lactating mothers.</p><p><strong>Design and methods: </strong>A cross-sectional descriptive study was conducted among 46 AWWs aged 25 years and above working at the Anganwadi centers (AWCs) of Faridabad district, Haryana. Participants inclusion into the study was based on attending at least one training program and were willing to participate in the study. The nutrition knowledge was determined on ICMR dietary guidelines for adults; Minimum dietary diversity-women were assessed using 29-item diet quality questionnaire for India, practice and attitude toward healthy habits were assessed. Weight and Height were recorded and the body mass indexes (BMI) were computed.</p><p><strong>Results: </strong>Findings revealed that though majority of AWWs were attended frequent nutrition training; having 10-15 years of experience and high nutrition knowledge score (9.8) and positive attitude and better healthy habits still their Mean Dietary Diversity-Women (MDD-W) score was 4.9, indicating poor dietary diversity, as it falls below the standard of consuming foods from at least five different food groups (38%). Approximately 80% of the AWWs were categorize as overweight and obese. Negative correlation was found between nutrition knowledge and diet quality indicators.</p><p><strong>Conclusions: </strong>The study explored that most AWWs in Faridabad had appropriate dietary practices and food intakes but still had high BMI, which increased their vulnerability to health outcomes and impacted their work performance.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251361427"},"PeriodicalIF":1.8,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12378612/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973577","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pharmacist's knowledge, attitude, and practice toward proper inhaler technique.","authors":"Khansaa A Ibrahim Albaroodi","doi":"10.1177/22799036251368440","DOIUrl":"10.1177/22799036251368440","url":null,"abstract":"<p><strong>Introduction: </strong>Recognizing and correcting inhaler technique faults are critical for pharmacists. This study assesses the inhaler usage practices, attitudes, and knowledge among pharmacists.</p><p><strong>Methods: </strong>This cross-sectional study was conducted among 200 pharmacists in 2 provinces (Karbala and Najaf) from October 1, 2022, to the end of December 2022.</p><p><strong>Results: </strong>Two hundred Iraqi pharmacists, aged 28.1 ± 4.6 years, and randomly selected from Najaf and Karbala, participated in the study. The use of inhalers was well-known to about one-third of the participants. Most participants felt that using inhalers properly impacts how well a patient responds to treatment and that pharmacists must take courses to improve their credentials as educators. About a third of the volunteers checked how inhalers were used and explained the inhale-hold technique.</p><p><strong>Conclusion: </strong>In conclusion, pharmacists in Iraq demonstrated a fair level of knowledge and practice regarding inhaler usage techniques, with a good attitude toward teaching patients how to use their inhalers. The training programs on how to use inhalers would be beneficial in improving their healthcare services.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251368440"},"PeriodicalIF":1.8,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12374106/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"<i>Giardia lamblia</i> infections and associated risk factors among patients seeking stool examination at Bule Hora University Teaching Hospital, West Guji Zone, Ethiopia.","authors":"Alqeer Aliyo, Nebiyu Taye, Girma Ashenafi","doi":"10.1177/22799036251368444","DOIUrl":"10.1177/22799036251368444","url":null,"abstract":"<p><strong>Background: </strong>Giardiasis represents a significant health problem in Ethiopia, originating from the consumption of contaminated water and poor hygiene practices, such as inadequate hand washing and improper food handling. Despite various regional studies in Ethiopia, this study provides updated insights.</p><p><strong>Objective: </strong>To determine the prevalence of <i>Giardia lamblia</i> (<i>G. lamblia)</i> infection and associated risk factors among patients who seek stool examinations at Bule Hora University Teaching Hospital, West Guji Zone, Ethiopia.</p><p><strong>Methods: </strong>A facility-based cross-sectional study on 134 patients seeking stool examinations was conducted from February 15 to March 15, 2023. A systematic random sampling method was used to select study participants. Data were collected using a pre-tested structured questionnaire. The stool samples were examined using the wet mount technique. Descriptive and inferential analyses were performed. The chi-square test was performed.</p><p><strong>Results: </strong>The results of this study revealed that the prevalence of <i>G. lamblia</i> infection was 18.7% (25/134; 95% CI: 12.1-25.3). This study revealed that factors such as rural residency (χ² = 2.82, <i>p</i> = 0.027), poorly food hygiene practices (χ² = 6.6, <i>p</i> = 0.03), lack of hand washing before a meal (χ² = 4.25, <i>p</i> = 0.003), drinking non-piped water source (χ² = 12.6, <i>p</i> = 0.0001), and untrimmed patient fingernails (χ² = 3.47, <i>p</i> = 0.026) were significantly associated with <i>G. lamblia</i> among patients.</p><p><strong>Conclusions and recommendations: </strong><i>G. lamblia</i> was detected in nearly one-fifth of patients. Targeted health education and improved sanitation are recommended to reduce its prevalence. Further research with larger samples is warranted.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251368444"},"PeriodicalIF":1.8,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12374109/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Hospital doctors' attitudes to the adoption, implementation and utilisation of digital virtual consultations.","authors":"Dorothy Zammit, Gianpaolo Tomaselli, Lalit Garg, Sandra C Buttigieg, Gloria Macassa","doi":"10.1177/22799036251361425","DOIUrl":"10.1177/22799036251361425","url":null,"abstract":"<p><strong>Background: </strong>The digitalisation of healthcare has introduced virtual consultations as a means of improving accessibility and efficiency. However, the adoption of this technology among hospital doctors remains slow due to concerns about patient safety, quality of care, usability, and medico-legal implications.</p><p><strong>Aim: </strong>This study examines hospital doctors' perceptions of digital virtual consultations, identifying key factors influencing their acceptance and implementation.</p><p><strong>Design and methods: </strong>A structured survey based on the Technology Acceptance Model 3 (TAM3) was distributed to 886 hospital doctors in a tertiary hospital in Malta. A total of 133 responses were received (15% response rate), with 67% of respondents completing the full questionnaire. The survey measured key variables such as perceived usefulness, perceived ease of use, job relevance and behavioural intention. Statistical analyses included Fisher's exact test, Friedman's test and ANOVA to explore significant relationships among variables.</p><p><strong>Results: </strong>The findings suggest that while doctors acknowledge virtual consultations as beneficial adjuncts to face-to-face consultations, concerns persist regarding technological infrastructure, usability and cost-effectiveness. Job relevance (<i>p</i> = 0.028) and perceived external control were significant predictors of perceived usefulness and ease of use. Behavioural intention was most strongly influenced by perceived usefulness (<i>p</i> < 0.001). Despite the insights offered, the 15% response rate may introduce non-response bias, limiting the generalisability of findings across the wider population of hospital doctors.</p><p><strong>Conclusions: </strong>To enhance adoption, healthcare systems must invest in infrastructure, training, and policy frameworks. Conducting feasibility and cost-effectiveness studies, coupled with stakeholder engagement, will be essential for successful implementation.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251361425"},"PeriodicalIF":1.8,"publicationDate":"2025-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12365454/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973044","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluation of knowledge and attitude toward self-medication among general population in Omdurman City, Sudan: A descriptive community-based study.","authors":"Safaa Badi, Amr Siddig Siddig, Shakir Tariq Fayed, Ahmed Altijani Salah Ibrahim, Ahmed Alnaeem Altom, Khalid Yahya Ali, Eiman Eltayeb M Ibrahim","doi":"10.1177/22799036251369404","DOIUrl":"10.1177/22799036251369404","url":null,"abstract":"<p><strong>Introduction: </strong>Self-care, including self-medication, has become increasingly important in modern healthcare. Many studies revealed the unacceptable knowledge level regarding self-medication. In Sudan, there is a necessity to study this phenomenon, as there are no data that describes Knowledge and attitude toward self-medication among Omdurman citizens.</p><p><strong>Methods: </strong>A cross-sectional, descriptive community-based study design targeted adult people living in Omdurman city and agreed to be part of the study were included. Data were collected using a pre-tested self-administered questionnaire and analyzed using The Statistical Package for the Social Sciences program (version. 26) and Microsoft Excel (version 10). Results were considered significant at P value less than 0.05.</p><p><strong>Results: </strong>More than half of the participants (59.6%) were males, 41.6% of them were aged 17-25 years, and about three-quarters (73.7%) were university graduates. 56.9% of the participants were found to have moderate level of knowledge regarding self-medication and 58.6% of them showed negative attitude. Level of education and occupation were found to have a statistically significant relationship to participants knowledge regarding self-medication (<i>p</i> < 0.01 and 0.04) respectively, while gender, age, and level of education were found to be significantly associated with participants' attitude level (<i>p</i> = 0.017, 0.010, <0.01) respectively.</p><p><strong>Conclusion: </strong>The majority of participants in Omdurman city possess a moderate level of knowledge and generally hold negative attitudes toward self-medication. Participants' educational level was found to affect their knowledge and attitude highlighting the critical role of education in enhancing public awareness and shaping responsible self-medication practice.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251369404"},"PeriodicalIF":1.8,"publicationDate":"2025-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12365455/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Public knowledge attitudes and practices toward antibiotic use among the adult Sudanese community: A cross-sectional descriptive study.","authors":"Sigood Omran, Musab Kheyar, Nafisa Alfatih, Ali Abdelatti, Marwa F Alamin, Yousif B Hamadalneel","doi":"10.1177/22799036251365577","DOIUrl":"10.1177/22799036251365577","url":null,"abstract":"<p><strong>Background: </strong>The growth and spread of antibiotic-resistant bacteria have become a major global concern, posing a serious threat to public health in the 21st century. Therefore, this study aimed to evaluate public knowledge, attitudes, and practices toward antibiotic use.</p><p><strong>Design and methods: </strong>A cross-sectional descriptive study design was used. The study was conducted at the Wad Medani locality, Gezira state, Sudan, from December 2022 to March 2023. Any citizen >18 years from the Wad Medani locality with at least 3 months of residency was included in the study.</p><p><strong>Results: </strong>A total of 420 questionnaires were distributed and collected. A total of 253 (56%) of the participants were in the 18-30 year age group, 242 (57%) were male, 254 (60.6%) were at the university level, and 254 (61.2%) had a medical background. Overall, 183 (43.5%) and 172 (41%) participants demonstrated poor knowledge and practice, respectively. However, 236 (56.2%) of the participants agreed that using antibiotics when they are not necessary leads to antibiotic resistance, and 334 (79.5%) believed that antibiotics accelerate recovery from the common cold and coughs.</p><p><strong>Conclusions: </strong>Our findings revealed that the majority of Sudanese people have inadequate knowledge, attitudes, and practices toward antibiotics. Most of the participants believed that antibiotics accelerated their recovery from the common cold and cough. Therefore, community leaders and local influencers could be engaged to spread awareness about antibiotic resistance and address misconceptions about antibiotics. In addition, enforcing stricter regulations on pharmacies to prevent the sale of antibiotics without a valid prescription.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251365577"},"PeriodicalIF":1.8,"publicationDate":"2025-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12357986/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144875858","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Clinician's knowledge and awareness of patient-reported outcomes in immune thrombocytopenia: Results of a national survey (ITP NET, GIMEMA Working Group Anemia and Thrombocytopenia).","authors":"Esther Natalie Oliva, Fabio Efficace, Maria Rosa Valvano, Paola Arcuri, Roberta Battistini, Elisa Buzzatti, Cristina Clissa, Cristina Danesin, Alessia Salemme, Francesco Sparano, Francesco Ramundo, Ugo Consoli, Federico Chiurazzi","doi":"10.1177/22799036251361377","DOIUrl":"10.1177/22799036251361377","url":null,"abstract":"<p><strong>Background: </strong>Patient-reported outcomes (PROs) are increasingly recognized in hematology, yet clinician awareness remains limited. In immune thrombocytopenia (ITP), an autoimmune disease, symptoms like fatigue impact quality of life (QoL).</p><p><strong>Design and methods: </strong>This Italian survey evaluated hematologists' knowledge of PROs within the Italian ITP NET network. Between April 4-20, 2023, 63 hematologists from 49 centers were invited to complete a 63-item online questionnaire on demographics, QoL understanding, and attitudes toward clinical use.</p><p><strong>Results: </strong>Thirty-nine responded, treating a median of 50 ITP patients in the prior year. PROs were used in research by 51% and applied clinically by 56%. Greater PRO knowledge was found among hematologists with over 17 years' experience (72%) and extensive ITP exposure (64%) (p=0.033 and p=0.037). Larger centers reported more trial involvement (p=0.035) and regular QoL tool use.</p><p><strong>Conclusion: </strong>Results highlight knowledge gaps and emphasize how clinical experience and exposure support effective PRO implementation in ITP.</p>","PeriodicalId":45958,"journal":{"name":"Journal of Public Health Research","volume":"14 3","pages":"22799036251361377"},"PeriodicalIF":1.8,"publicationDate":"2025-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12344225/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144849326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}