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European Court of Human Rights. 欧洲人权法院。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-06-13 DOI: 10.1163/15718093-12423571
Tom Goffin, Joseph Dute
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引用次数: 0
Strong or Weak Consent in Medical Law? Identifying the Values Protected in Transplantation Medicine in Europe. 医疗法中的同意是强是弱？确定欧洲移植医学保护的价值。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-06-04 DOI: 10.1163/15718093-bja10148
Farrah Raza, Jonathan Herring, James Neuberger, Isabel Quiroga, Cornelius Engelmann, Ernest Ryder, Thomas Berg
{"title":"Strong or Weak Consent in Medical Law? Identifying the Values Protected in Transplantation Medicine in Europe.","authors":"Farrah Raza, Jonathan Herring, James Neuberger, Isabel Quiroga, Cornelius Engelmann, Ernest Ryder, Thomas Berg","doi":"10.1163/15718093-bja10148","DOIUrl":"10.1163/15718093-bja10148","url":null,"abstract":"<p><p>Across European legal systems, there is a consensus on the importance of consent in medical ethics as recently emphasised by the European Court of Human Rights in Pindo Mulla v Spain. Yet, consent in medical law poses several challenges in practice which includes the need to reduce mistakes in the consent process. We argue that consent is scalar and includes 'strong' consent (where a patient has maximum capacity to express a fully informed, voluntary decision) to weak consent (where a patient has said 'yes' but with limited understanding or liberty. We propose a 'model of disaggregating consent' which highlights the range of values that consent protects albeit to varying degrees in different cases. We apply our model to the example of organ donation and organ transplantation to illuminate how our model paves the way for improving decision-making in the consent process by factoring in the pluralistic values at play.</p>","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"281-307"},"PeriodicalIF":0.6,"publicationDate":"2025-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144337142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
European Court of Justice. 欧洲法院。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-05-23 DOI: 10.1163/15718093-12423570
Herman Nys
{"title":"European Court of Justice.","authors":"Herman Nys","doi":"10.1163/15718093-12423570","DOIUrl":"10.1163/15718093-12423570","url":null,"abstract":"","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"357-362"},"PeriodicalIF":0.6,"publicationDate":"2025-05-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144337139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Current Status, Challenges and Future of Medical and Health Data Sharing in China: Lessons from the European Health Data Space. 中国医疗卫生数据共享的现状、挑战与未来：来自欧洲健康数据空间的经验教训。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-05-19 DOI: 10.1163/15718093-bja10147
Yulu Jin, Jiayu Hu
{"title":"The Current Status, Challenges and Future of Medical and Health Data Sharing in China: Lessons from the European Health Data Space.","authors":"Yulu Jin, Jiayu Hu","doi":"10.1163/15718093-bja10147","DOIUrl":"10.1163/15718093-bja10147","url":null,"abstract":"<p><p>The rapid development of information technology has made the sharing and utilization of medical and health data a key factor in promoting medical innovation and improving public health levels. However, China still faces many challenges in the field of medical and health data sharing, including an imperfect legislative system, unclear data ownership, lack of incentive mechanisms, and lagging construction of data sharing platforms. This paper analyzes the current status of medical and health data sharing in China and the existing problems, pointing out that the decentralization and low level of legislation restrict the rational flow and effective utilization of health data. Through comparative analysis with the European Health Data Space, the deficiencies in China's data sharing are revealed, and drawing on the experience of the EU, corresponding improvement paths are proposed. This paper suggests that measures such as establishing a medical data ownership and authorization mechanism, constructing a diversified benefit distribution mechanism, and building a secure and trustworthy dual-track sharing platform should be taken to promote the efficient utilization and circulation of medical and health data in China. These measures will facilitate the implementation of medical informatization and the medical data sharing strategy.</p>","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"239-280"},"PeriodicalIF":0.6,"publicationDate":"2025-05-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144337143","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Human Rights and Artificial Intelligence in Healthcare-Related Settings: A Grammar of Human Rights Approach. 医疗保健相关环境中的人权和人工智能：人权方法的语法。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-05-13 DOI: 10.1163/15718093-bja10146
Helga Molbæk-Steensig, Martin Scheinin
{"title":"Human Rights and Artificial Intelligence in Healthcare-Related Settings: A Grammar of Human Rights Approach.","authors":"Helga Molbæk-Steensig, Martin Scheinin","doi":"10.1163/15718093-bja10146","DOIUrl":"10.1163/15718093-bja10146","url":null,"abstract":"<p><p>This article examines the expanding role of Artificial Intelligence (AI) in healthcare and associated human rights concerns, including whether new EU legislation takes all relevant human rights concerns into account. AI presents promising ways to fulfil the right to health through improving diagnostics, treatments, and resource allocation, but its use also comes with risks concerning privacy, bias, discrimination, and human dignity. Existing literature often relies on the rather vague FATE (Fairness, Accountability, Transparency, Ethics) principles, but recent calls have been made for a human-rights-based approach more broadly to ensure the legality and ethics of AI applications. This article responds to that call by proposing a structured methodology for reconciling rights, considering both the different structures of civil and political versus economic, social and cultural human rights, the negative and positive obligations of the state, and the interplay with different AI design choices.</p>","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"139-164"},"PeriodicalIF":0.6,"publicationDate":"2025-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081251","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
European Court of Human Rights. 欧洲人权法院。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-05-02 DOI: 10.1163/15718093-bja10145
Joseph Dute, Tom Goffin
{"title":"European Court of Human Rights.","authors":"Joseph Dute, Tom Goffin","doi":"10.1163/15718093-bja10145","DOIUrl":"10.1163/15718093-bja10145","url":null,"abstract":"","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"223-228"},"PeriodicalIF":0.6,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144043497","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
'Synthetic' Embryonic Entities: What Really Matters in Legal Regulation? “合成”胚胎实体：法律法规中真正重要的是什么？
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-05-02 DOI: 10.1163/15718093-bja10144
Takis Vidalis
{"title":"'Synthetic' Embryonic Entities: What Really Matters in Legal Regulation?","authors":"Takis Vidalis","doi":"10.1163/15718093-bja10144","DOIUrl":"10.1163/15718093-bja10144","url":null,"abstract":"<p><p>Modern ethics and law understand the human embryo as a value deserving special protection. This protection is ensured by legal systems and until recently was based on a generally accepted understanding of what we mean by 'embryo'. With the technological innovations of the last decades, this perception has begun to be challenged, as new embryonic entities have been artificially created. These entities are not derived from a gamete union and may develop in a biologically similar way to the natural embryo, at least in their early stages. To what extent should these new biological forms be protected, given their similarities and differences with the latter? This article argues that from an ethical and legal point of view, the sole criterion justifying the protection of the human embryo is its potential to fully develop into a complete organism. It is on the basis of this criterion that we should assess the protection of 'synthetic' embryonic entities and proceed to adopt specific regulations for their treatment, particularly in research.</p>","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"207-222"},"PeriodicalIF":0.6,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144040273","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
From European Standards to Responsible Use of AI in Clinical Practice. 从欧洲标准到在临床实践中负责任地使用人工智能。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-05-02 DOI: 10.1163/15718093-bja10143
Roosmarie Jessen, Marieke A R Bak, Catelijne C J Muller, Helena M Verkooijen, Kak Khee Yeung, M Corrette Ploem
{"title":"From European Standards to Responsible Use of AI in Clinical Practice.","authors":"Roosmarie Jessen, Marieke A R Bak, Catelijne C J Muller, Helena M Verkooijen, Kak Khee Yeung, M Corrette Ploem","doi":"10.1163/15718093-bja10143","DOIUrl":"10.1163/15718093-bja10143","url":null,"abstract":"<p><p>This contribution explores the implications of the EU legal framework for the use of AI in health care, with a focus on the EU Artificial Intelligence Act. The AI Act, currently the most specific legal AI document, is not tailored to health care and the provisions that focus on the deployer (in this case the physician) lack specificity. Ultimately, we identify five elements for responsible AI usage in medical decision-making that, in our view, should be included in practical guidance, established by the medical profession.</p>","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"111-138"},"PeriodicalIF":0.6,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143986941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
European Court of Justice. 欧洲法院。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-04-29 DOI: 10.1163/15718093-12423569
Herman Nys
{"title":"European Court of Justice.","authors":"Herman Nys","doi":"10.1163/15718093-12423569","DOIUrl":"10.1163/15718093-12423569","url":null,"abstract":"","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"229-237"},"PeriodicalIF":0.6,"publicationDate":"2025-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144033165","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Opting Out of Scientific Research with Health Data: The Limits of the EHDS and the GDPR. 选择退出科学研究与健康数据：EHDS和GDPR的限制。
IF 0.6
EUROPEAN JOURNAL OF HEALTH LAW Pub Date : 2025-04-08 DOI: 10.1163/15718093-bja10141
Maret Kruus
{"title":"Opting Out of Scientific Research with Health Data: The Limits of the EHDS and the GDPR.","authors":"Maret Kruus","doi":"10.1163/15718093-bja10141","DOIUrl":"10.1163/15718093-bja10141","url":null,"abstract":"<p><p>In the future, the European Health Data Space (EHDS) Regulation will enhance the secondary use of electronic health data in the EU, including for scientific research purposes. From the data subjects' perspective, the EHDS introduces a significant change, a new opt-out mechanism for the secondary use of data, in which data subjects shall have the right to opt out at any time without stating reasons. However, not all scientific research with health data will be covered by the opt-out rules of the EHDS. This article aims to clarify the effects of the EHDS' opt-out mechanism and its scope of application. It also suggests a balanced approach for Member States to implement the EHDS opt-out mechanism and reassess the implementation of the GDPR's right to object that remains relevant in the future in addition to the opt-out introduced by the EHDS.</p>","PeriodicalId":43934,"journal":{"name":"EUROPEAN JOURNAL OF HEALTH LAW","volume":" ","pages":"165-189"},"PeriodicalIF":0.6,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143812667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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