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Motricite Cerebrale Pub Date : 2024-03-01 DOI: 10.1016/j.motcer.2024.03.002
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引用次数: 0
Le point de vue des familles. Table ronde réalisée par Loubna Chérif Kanouni Mekouar, Emmanuelle Petronzio et Xiao Hui Loo, animée par Jean-Claude Riou dans le cadre des journées du CRMH : Suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 家庭的观点。圆桌会议由Loubna cherif Kanouni Mekouar、Emmanuelle Petronzio和Xiao Hui Loo主持，由Jean-Claude Riou主持，作为CRMH日的一部分:多残疾儿童的骨科监测，2023年6月9日，巴黎
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.003
L.C. Kanouni Mekouar , E. Petronzio , X.H. Loo , J.-C. Riou , A. Jouve
{"title":"Le point de vue des familles. Table ronde réalisée par Loubna Chérif Kanouni Mekouar, Emmanuelle Petronzio et Xiao Hui Loo, animée par Jean-Claude Riou dans le cadre des journées du CRMH : Suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris","authors":"L.C. Kanouni Mekouar ,&nbsp;E. Petronzio ,&nbsp;X.H. Loo ,&nbsp;J.-C. Riou ,&nbsp;A. Jouve","doi":"10.1016/j.motcer.2023.10.003","DOIUrl":"10.1016/j.motcer.2023.10.003","url":null,"abstract":"<div><p>How do parents of children with PIMD understand and experience their child's orthopaedic issues ? How do they perceive and approach the various treatments proposed during their child's growth? Surgical indications are almost systematically part of the journey for children and adolescents with polyhandicap. How do parents receive these proposals and how do they navigate with professionals, their child, and their siblings during these significant periods? These are the questions that we discussed with three parents during this roundtable discussion.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Pages 142-144"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135371402","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Agenda 议程
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.11.002
{"title":"Agenda","authors":"","doi":"10.1016/j.motcer.2023.11.002","DOIUrl":"https://doi.org/10.1016/j.motcer.2023.11.002","url":null,"abstract":"","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Page 159"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0245591923000869/pdfft?md5=caaabb052d2ce3502f4089fcee90377b&pid=1-s2.0-S0245591923000869-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138502022","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
La place de l’ergothérapeute dans la mise en place d’installations orthopédiques pour un enfant polyhandicapé. Présentation faite par Burtin Adeline, Milhem Romane et Morcant Audrey dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 职业治疗师在为多残疾儿童建立骨科设施中的作用。2023年6月9日，巴黎，Burtin Adeline, Milhem Romane和Morcant Audrey在CRMH日的背景下所做的报告:多残疾儿童的矫形随访
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.005
A. Burtin , R. Milhem , A. Morcant , A. Jouve
{"title":"La place de l’ergothérapeute dans la mise en place d’installations orthopédiques pour un enfant polyhandicapé. Présentation faite par Burtin Adeline, Milhem Romane et Morcant Audrey dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris","authors":"A. Burtin ,&nbsp;R. Milhem ,&nbsp;A. Morcant ,&nbsp;A. Jouve","doi":"10.1016/j.motcer.2023.10.005","DOIUrl":"10.1016/j.motcer.2023.10.005","url":null,"abstract":"<div><p>The occupational therapist plays a central role in the development of an assistive device. They are in contact with the individual with PIMD for whom the assistive device project arises, their family, and the medical-educational teams. They accompany the orthoprosthetist from the molding stage to the delivery of the device. They contribute by proposing additions and potential new positioning devices to enhance the manufactured device. Each assistive device project is unique, and we will illustrate this diversity through several objectives related to clinical situations: limiting deformities, reducing risk situations, promoting well-being, enhancing participation in daily activities, managing pathological contractions to improve function, and improving cause-and-effect relationships.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Pages 145-152"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135371218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
La question orthopédique dans la globalité du suivi thérapeutique de l’enfant polyhandicapé 多残疾儿童治疗随访的整体骨科问题
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.001
Alain Jouve
{"title":"La question orthopédique dans la globalité du suivi thérapeutique de l’enfant polyhandicapé","authors":"Alain Jouve","doi":"10.1016/j.motcer.2023.10.001","DOIUrl":"10.1016/j.motcer.2023.10.001","url":null,"abstract":"<div><p>The management of orthopaedic disorders in individuals with PIMD has been evolving rapidly in recent years. Knowledge related to polyhandicap is expanding, and our understanding of the interplay between the orthopaedic disorder itself and the neurological condition is leading to new therapeutic approaches. Reference texts on the support and care of individuals with PIMD have been published. The context of healthcare organization is also changing, prompting our institutions to adapt their operations. The role of families is also shifting access to a wealth of information about care and methods has diverse effects, ranging from dispersion to the development of expertise. These current developments represent challenges to be addressed in order to continue improving the quality of life and the future of children with PIMD and their families.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Pages 153-158"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135371736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Éditorial
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.11.001
P. Toullet, A. Jouve
{"title":"Éditorial","authors":"P. Toullet,&nbsp;A. Jouve","doi":"10.1016/j.motcer.2023.11.001","DOIUrl":"https://doi.org/10.1016/j.motcer.2023.11.001","url":null,"abstract":"","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Page 105"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138502021","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Introduction de la journée 今天的介绍
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.008
J.-C. Riou , A. Jouve
{"title":"Introduction de la journée","authors":"J.-C. Riou ,&nbsp;A. Jouve","doi":"10.1016/j.motcer.2023.10.008","DOIUrl":"10.1016/j.motcer.2023.10.008","url":null,"abstract":"<div><p>The Multihandicap Resource Center (CRMH) is dedicated to polyhandicap. The CRMH carries out activities aimed at families and professionals and is involved in various institutional and associative groups. Orthopedic disorders caused by neurological impairments significantly impact the quality of life of children with polyhandicap. Therefore, we have chosen this theme for the 2023 day of sharing and reflection. The purpose of this meeting is to enhance the care of individuals with PIMD.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Pages 106-108"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135371041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Le suivi médical global et orthopédique de l’enfant porteur de handicap. Présentation faite par le Docteur Bombart Camus dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 残疾儿童的全球医疗和骨科监测。2023年6月9日，巴黎，庞巴迪·加米斯博士在CRMH日:多残疾儿童的骨科随访中所作的报告
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.007
V. Bombart Camus , A. Jouve
{"title":"Le suivi médical global et orthopédique de l’enfant porteur de handicap. Présentation faite par le Docteur Bombart Camus dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris","authors":"V. Bombart Camus ,&nbsp;A. Jouve","doi":"10.1016/j.motcer.2023.10.007","DOIUrl":"10.1016/j.motcer.2023.10.007","url":null,"abstract":"<div><p>The medical management of orthopedic disorders in children with polyhandicap is inseparable from the care provided for all aspects of their general health. Cutaneous, oral-dental, digestive, respiratory, bladder, and intestinal disorders are intricately linked to the neuro-orthopedic condition of the individual. Therefore, it is essential to assess the state of these organs and the functioning of these functions in order to unravel the cause-and-effect relationships of these impairments. Orthopedic disorders develop in their own right. The primary disorder generates secondary impairments. The pursuit of functional strategies may further deteriorate the orthopedic condition in the long run. Various rehabilitative approaches, combined with the use of orthoses, can help prevent or limit deterioration of the body's physical capabilities. Medical and surgical interventions aim to minimize the expression of spasticity and restore orthopedic function (joint mobility and muscle length) as much as possible. All proposed therapies should be part of the individualized plan for the person with PIMD.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Pages 109-116"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135410368","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Conception du siège moulé : le point de vue de l’orthoprothésiste. Présentation faite par Louisa Cheick* et Julien Marcuzzi,* dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 模压座椅的设计:正畸医生的观点。2023年6月9日，巴黎，Louisa Cheick*和Julien Marcuzzi在CRMH日:多残疾儿童的骨科随访中所做的报告
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.004
L. Cheick , J. Marcuzzi , A. Jouve
{"title":"Conception du siège moulé : le point de vue de l’orthoprothésiste. Présentation faite par Louisa Cheick* et Julien Marcuzzi,* dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris","authors":"L. Cheick ,&nbsp;J. Marcuzzi ,&nbsp;A. Jouve","doi":"10.1016/j.motcer.2023.10.004","DOIUrl":"10.1016/j.motcer.2023.10.004","url":null,"abstract":"<div><p>The fabrication of a molded orthopedic seat for a child with PIMD is carried out in our practice as orthoprosthetists through a series of successive steps. The proper functioning of each step is crucial for the final quality of the product. Precision in the specifications is essential: the reasons for considering the seat and the characteristics expected from its fabrication. The perspective of users (families, educational teams) is essential. The presence of a therapist who is familiar with the child and the specifications is also necessary. The quality of assessments performed by the medical and rehabilitative team, as well as those carried out by the orthoprosthetists, is necessary to validate the specifications based on the unique situation of each child. The orthoprosthetist has various technical means to create the molding of the specific body part and then to manufacture the seat. Different additions are used to finalize the customization of the installation.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Pages 124-133"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135371411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
La Prise en charge kinésithérapique à l’EEAP Les Amis de Laurence. Présentation faite par Luisa Aparicio Hurtado et Nadja Le Nail dans le cadre des journées du CRMH : Suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 在eeap Les Amis de Laurence进行物理治疗。Luisa Aparicio Hurtado和Nadja Le Nail在CRMH日的背景下所做的报告:多残疾儿童的矫形随访，2023年6月9日，巴黎
Motricite Cerebrale Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.006
L. Aparicio Hurtado , N. Le Nail , A. Jouve
{"title":"La Prise en charge kinésithérapique à l’EEAP Les Amis de Laurence. Présentation faite par Luisa Aparicio Hurtado et Nadja Le Nail dans le cadre des journées du CRMH : Suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris","authors":"L. Aparicio Hurtado ,&nbsp;N. Le Nail ,&nbsp;A. Jouve","doi":"10.1016/j.motcer.2023.10.006","DOIUrl":"10.1016/j.motcer.2023.10.006","url":null,"abstract":"<div><p>One of the goals of physiotherapy in facilities for children with polyhandicap is to combat the onset and development of orthopedic disorders. We aim to actively engage each child based on their abilities. Additionally, we implement installations and orthoses in the child's daily life. Our work is inherently collaborative with parents and other members of the educational team, in order to share observations, technical expertise, and to determine responsibilities throughout the child's daily life.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 4","pages":"Pages 117-123"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135371413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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