Motricite Cerebrale最新文献_第2页

Étude sur le recours aux stages de rééducation motrice chez des enfants atteints de paralysie cérébrale 关于脑瘫儿童运动康复课程使用情况的研究

Motricite Cerebrale Pub Date : 2024-11-05 DOI: 10.1016/j.motcer.2024.07.002

M. Maze, L. Rey, N. Pinsault

{"title":"Étude sur le recours aux stages de rééducation motrice chez des enfants atteints de paralysie cérébrale","authors":"M. Maze, L. Rey, N. Pinsault","doi":"10.1016/j.motcer.2024.07.002","DOIUrl":"10.1016/j.motcer.2024.07.002","url":null,"abstract":"<div><h3>Introduction</h3><div>People with cerebral palsy undergo lifelong care. In the literature, motor rehabilitation courses have been shown to be of interest. However, nowadays there are no data describing the use of motor rehabilitation courses by children and adolescents with cerebral palsy in France.</div></div><div><h3>Methods</h3><div>A questionnaire was distributed online to families of children and adolescents with cerebral palsy. A descriptive analysis was carried out.</div></div><div><h3>Results</h3><div>Twenty-two questionnaires were analyzed. Fifty percent of participants have completed or are about to complete at least one motor rehabilitation course. The courses identified by the families were the Pacte stay (8.3%), the Hand and Arm Bimanual Intensive Therapy Including Lower Extremities method (33.3%), the Medek method (8.3%) and the Kids Avenger course (8.3%). The majority did not know the title of the course or the method used (41.7%). Families can make significant financial and travel commitments to participate. They want information about motor rehabilitation courses, but don’t necessarily know where to find them. The study shows that health professionals and social networks are the main vehicles for this information.</div></div><div><h3>Discussion</h3><div>Participation in motor rehabilitation courses does not appear to be related to the type of cerebral palsy. There is a contrast between the courses shown to be effective in the literature and those carried out by the population.</div></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 4","pages":"Pages 109-118"},"PeriodicalIF":0.0,"publicationDate":"2024-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142701591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Lu pour vous 为您阅读

Motricite Cerebrale Pub Date : 2024-10-30 DOI: 10.1016/j.motcer.2024.10.004

La rédaction

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Issue contents 议题内容

Motricite Cerebrale Pub Date : 2024-09-01 DOI: 10.1016/S0245-5919(24)00058-X

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Martin Gough et Niek De Taeye, lauréats des prix de la Fondation Paralysie Cérébrale au congrès de l’EACD 2024 马丁-高夫（Martin Gough）和尼科-德塔耶（Niek De Taeye），脑瘫基金会在 2024 年 EACD 大会上的获奖者

Motricite Cerebrale Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.07.001

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Vécu psychosocial des parents d’enfants atteints de paralysie cérébrale à Abidjan en 2021 2021 年阿比让脑瘫儿童父母的社会心理经历

Motricite Cerebrale Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.06.006

D.A. Alloh , R. Koffi , S. Kouassi , A. Tia , C.N. Sie , J.D. Bombo

{"title":"Vécu psychosocial des parents d’enfants atteints de paralysie cérébrale à Abidjan en 2021","authors":"D.A. Alloh , R. Koffi , S. Kouassi , A. Tia , C.N. Sie , J.D. Bombo","doi":"10.1016/j.motcer.2024.06.006","DOIUrl":"10.1016/j.motcer.2024.06.006","url":null,"abstract":"<div><h3>Objective</h3><p>Evaluate at the psychosocial level, the experience of parents of children with cerebral palsy in Abidjan (RCI).</p></div><div><h3>Methods</h3><p>Analytical multicenter cross-sectional study carried out over 3 months (April-June 2021) from a sample of 246 biological parents or non-parents of children followed for cerebral palsy. Scales used: Hospital Anxiety and Depression Scale and Family Impact of Childhood Disability scale.</p></div><div><h3>Results</h3><p>Parents aged between 30 and 40 (44.3 %), living with a partner (<em>n</em>  =0.01) despite their religious faith (<em>P</em>  >0.05).</p></div><div><h3>Conclusion</h3><p>Childhood CP had an impact on parents’ psychosocial experiences. This impact was associated with the severity of the child's motor impairment, but the social and economic discomfort was independent of the parents’ social and cultural background and family beliefs and ties. Psychological support for parents of children with CP should not be ignored in the follow-up of these children.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 3","pages":"Pages 83-88"},"PeriodicalIF":0.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142169069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Apport de la sensibilité intéroceptive dans l’identification de la co-occurrence douleurs aiguës et douleurs chroniques chez les enfants atteints de paralysie cérébrale 感知间灵敏度对识别脑瘫儿童急性和慢性疼痛并存的贡献

Motricite Cerebrale Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.06.003

M. Zabalia

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Éditorial 编辑

Motricite Cerebrale Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.08.001

P. Toullet (Rédacteur en chef)

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Agenda 议程

Motricite Cerebrale Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.08.002

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Développement d’un livret de rééducation pour la prise en charge de la sialorrhée antérieure chez les enfants atteints de paralysie cérébrale 为治疗脑瘫儿童的前溢液编写康复手册

Motricite Cerebrale Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.06.005

R. Bard-Pondarré, J. Dohin, S. Chopard, E. Chaléat-Valayer

{"title":"Développement d’un livret de rééducation pour la prise en charge de la sialorrhée antérieure chez les enfants atteints de paralysie cérébrale","authors":"R. Bard-Pondarré, J. Dohin, S. Chopard, E. Chaléat-Valayer","doi":"10.1016/j.motcer.2024.06.005","DOIUrl":"10.1016/j.motcer.2024.06.005","url":null,"abstract":"<div><h3>Introduction</h3><p>As part of the TOXSIALO-2 study (currently underway) on the drug treatment of drooling in children with cerebral palsy (CP), training material has been developed to intensify and standardize rehabilitation management.</p></div><div><h3>Methods</h3><p>A working group of experts (6 speech and language therapists, 1 occupational therapist, 2 rehabilitation doctors) in the care of CP children with persistent drooling has drawn up a booklet of exercises based on their clinical expertise, presented in an accessible and fun way, to be carried out daily at home as part of an approach based on individualized objectives.</p></div><div><h3>Results</h3><p>Using the Goal Attainment Scaling methodology, the booklet enables the functional goals to be defined with the child and his or her family (based on the difficulties encountered in daily life as a result of hypersialorrhoea). The therapist can then choose exercises that relate to the deficient skills and individualize them from among the 29 clearly illustrated exercises described in the booklet, divided into 4 key areas of swallowing: nasal breathing, oral sensory information, swallowing reflex and orofacial muscle strengthening. The booklet also enables therapists to monitor compliance with the rehabilitation program.</p></div><div><h3>Discussion and conclusion</h3><p>The booklet can help families to carry out self-rehabilitation or stimulation exercises at home to reduce sialorrhoea. In research, the booklet should also make it possible to better standardize oromotor rehabilitation associated with medical or surgical therapies in this indication, thereby improving the reliability of the therapy.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 3","pages":"Pages 89-96"},"PeriodicalIF":0.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141841183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Douleur, souffrance et besoins psychologiques des jeunes atteints de paralysie cérébrale 脑瘫青少年的疼痛、痛苦和心理需求

Motricite Cerebrale Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.06.004

M. Derome

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