Vécu psychosocial des parents d’enfants atteints de paralysie cérébrale à Abidjan en 2021

Q4 Medicine

Motricite Cerebrale Pub Date : 2024-09-01 DOI:10.1016/j.motcer.2024.06.006

D.A. Alloh , R. Koffi , S. Kouassi , A. Tia , C.N. Sie , J.D. Bombo

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引用次数: 0

Abstract

Objective

Evaluate at the psychosocial level, the experience of parents of children with cerebral palsy in Abidjan (RCI).

Methods

Analytical multicenter cross-sectional study carried out over 3 months (April-June 2021) from a sample of 246 biological parents or non-parents of children followed for cerebral palsy. Scales used: Hospital Anxiety and Depression Scale and Family Impact of Childhood Disability scale.

Results

Parents aged between 30 and 40 (44.3 %), living with a partner (n = 190) and attending school in 81.7 % of cases. The mean score of the positive FICD items was 14.5 out of 10 and that of the negative items was 20 out of 40, reflecting the presence of symptoms of anxiety and depression in 25 cases (10.3 %) and 22 cases (9 %) respectively in parents. The severity of children's motor impairments was associated with the occurrence of anxiety among parents (P = 0.01) despite their religious faith (P = 0.03). There was no significant association between the children's clinical and sociodemographic parameters, the parents’ religious faith and the parents’ onset of depression (P > 0.05).

Conclusion

Childhood CP had an impact on parents’ psychosocial experiences. This impact was associated with the severity of the child's motor impairment, but the social and economic discomfort was independent of the parents’ social and cultural background and family beliefs and ties. Psychological support for parents of children with CP should not be ignored in the follow-up of these children.

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2021 年阿比让脑瘫儿童父母的社会心理经历

方法：对 246 名脑瘫患儿的亲生父母或非亲生父母进行为期 3 个月（2021 年 4 月至 6 月）的多中心横断面分析研究。使用的量表结果父母年龄在 30-40 岁之间（44.3%），与伴侣同住（190 人），81.7% 的病例在上学。儿童早期残疾影响量表阳性项目的平均得分为 14.5 分（满分 10 分），阴性项目的平均得分为 20 分（满分 40 分），反映出父母中分别有 25 例（10.3%）和 22 例（9%）存在焦虑和抑郁症状。尽管父母有宗教信仰（P = 0.03），但儿童运动障碍的严重程度与父母焦虑的发生有关（P = 0.01）。儿童的临床和社会人口学参数、父母的宗教信仰与父母抑郁症的发生之间没有明显的关联（P > 0.05）。这种影响与儿童运动障碍的严重程度有关，但社会和经济方面的不适与父母的社会和文化背景以及家庭信仰和关系无关。在对患有小儿麻痹症的儿童进行随访时，不应忽视对其父母的心理支持。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Motricite Cerebrale Medicine-Rehabilitation

CiteScore

0.10

自引率

0.00%

发文量

审稿时长

58 days

期刊介绍： La recherche et les traitements des atteintes cérébrales Motricité cérébrale sa adresse aux ?praticiens de la motricité concernés par le examen et la rééducation des handicapés souffrant de troubles neurologiques et associés, allant du polyhandicap a le IMC. Motricité cérébrale publie des études et des évaluations sur les conséquences motrices, psychomotrices, pédagogiques et sociales résultant des atteintes cérébrales. La revue propose également des articles de clinique et de réadaptation.