AJOB Neuroscience最新文献_第4页

Disentangling Function from Benefit: Participant Perspectives from an Early Feasibility Trial for a Novel Visual Cortical Prosthesis. 从利益中分离功能：一种新型视觉皮层假体早期可行性试验的参与者视角。

AJOB Neuroscience Pub Date : 2024-07-01 Epub Date: 2023-10-09 DOI: 10.1080/21507740.2023.2257152

Lilyana Levy, Hamasa Ebadi, Ally Peabody Smith, Lauren Taiclet, Nader Pouratian, Ashley Feinsinger

{"title":"Disentangling Function from Benefit: Participant Perspectives from an Early Feasibility Trial for a Novel Visual Cortical Prosthesis.","authors":"Lilyana Levy, Hamasa Ebadi, Ally Peabody Smith, Lauren Taiclet, Nader Pouratian, Ashley Feinsinger","doi":"10.1080/21507740.2023.2257152","DOIUrl":"10.1080/21507740.2023.2257152","url":null,"abstract":"<p><p>Visual cortical prostheses (VCPs) have the potential to provide artificial vision for visually impaired persons. However, the nature and utility of this form of vision is not yet fully understood. Participants in the early feasibility trial for the Orion VCP were interviewed to gain insight into their experiences using artificial vision, their motivations for participation, as well as their expectations and assessments of risks and benefits. Analyzed using principles of grounded theory and an interpretive description approach, these interviews yielded six themes, including: the irreducibility of benefit to device functionality, mixed expectations for short-term device functionality and long-term technological advancement of visual prostheses, and a broad range of risks, concerns, and fears related to trial participation. We argue that these narratives motivate a nuanced set of ethical considerations related to the complex relationship between functionality and benefit, the intersection of user experience with disability justice, and the import of expectations and indirect risks on consent.</p>","PeriodicalId":39022,"journal":{"name":"AJOB Neuroscience","volume":" ","pages":"158-176"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11001790/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41152823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}