Journal of Communication in Healthcare最新文献

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Exploring empathy's role as a buffer against physician burnout: a narrative review. 探讨共情作为医生职业倦怠缓冲的作用:叙述性回顾。
Journal of Communication in Healthcare Pub Date : 2025-07-01 Epub Date: 2025-05-04 DOI: 10.1080/17538068.2025.2488071
Beatriz Pires, Miguel Barbosa
{"title":"Exploring empathy's role as a buffer against physician burnout: a narrative review.","authors":"Beatriz Pires, Miguel Barbosa","doi":"10.1080/17538068.2025.2488071","DOIUrl":"10.1080/17538068.2025.2488071","url":null,"abstract":"<p><strong>Background: </strong>High prevalence of burnout among physicians, along with its widely acknowledged detrimental effects on the doctor-patient relationship and the quality of care delivered, underscores a critical concern. Empathy is frequently linked to burnout, yet a consensus regarding the interplay between these concepts remains elusive. This narrative review aims to synthesize and interpret existing research on the relationship between empathy and burnout in physicians, with a particular focus on evaluating whether empathy serves as a protective factor against burnout.</p><p><strong>Methods: </strong>This narrative review was conducted in accordance with the PRISMA 2020 guidelines. A comprehensive search was performed across three databases: PubMed, EMBASE, and Web of Science, using the keywords 'empathy' AND 'burnout' AND 'doctors' OR 'physicians.' Studies were included if they assessed the correlation between burnout and empathy in specialist or resident physicians, specifically using the Jefferson Scale of Empathy to measure empathy.</p><p><strong>Results: </strong>The review included 14 studies. Of these, 12 studies identified a negative correlation between empathy and burnout. Notably, 9 of these studies demonstrated that higher levels of empathy were associated with reduced levels of burnout. Conversely, 3 studies found that increased burnout levels were linked to a decrease in empathy.</p><p><strong>Conclusions: </strong>The literature indicates a negative correlation between empathy and burnout, with the majority of the included studies suggesting that empathy serves as a protective factor against burnout. This relationship highlights the potential value of empathy-enhancing interventions as a strategy to mitigate burnout among physicians.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"83-91"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144005026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patients' views on physicians' communication skills in telemedicine: Validation of Communication Assessment Tool among Bangladeshi sample. 患者对远程医疗中医生沟通技巧的看法:在孟加拉国样本中验证沟通评估工具。
Journal of Communication in Healthcare Pub Date : 2025-07-01 Epub Date: 2024-12-10 DOI: 10.1080/17538068.2024.2438474
Mohammad Aminul Islam, Tanvir Hasan, Shabnam Mostari, Taufique Joarder
{"title":"Patients' views on physicians' communication skills in telemedicine: Validation of Communication Assessment Tool among Bangladeshi sample.","authors":"Mohammad Aminul Islam, Tanvir Hasan, Shabnam Mostari, Taufique Joarder","doi":"10.1080/17538068.2024.2438474","DOIUrl":"10.1080/17538068.2024.2438474","url":null,"abstract":"<p><strong>Background: </strong>Technological advancement has added new dimensions to the communication between physicians and their patients in healthcare settings worldwide. This study aimed to measure patients' views about physicians' interpersonal communication during telemedicine consultations by cultural adaptation and validation of the communication assessment tool (CAT) in Bangladesh.</p><p><strong>Methods: </strong>A cross-sectional phone survey was conducted among 400 patients who received healthcare services from a telemedicine centre in Bangladesh. Both exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) were performed to test the dimensionality of the CAT-Bangla scale. The goodness of fit of the CFA was assessed using the comparative fit index (CFI), Tucker-Lewis index (TLI), Chi-square values, root-mean-square error of approximation (RMSEA) and standardized root mean squared residual (SRMR). The internal consistency reliability of the CAT-Bangla scale was assessed using Cronbach's alpha.</p><p><strong>Results: </strong>Factor analysis findings suggest that the CAT-Bangla scale is unidimensional with good internal consistency (Cronbach's α = 0.876). The individual item analysis findings suggest that most of the patients felt that the physicians treated them with respect (81% rated 'excellent') and allowed them to talk without interruption (73.5% rated 'excellent'). Overall, the level of satisfaction among patients regarding physicians' communication skills was high with a mean score of 4.36 (SD = 0.30) across all the 14 items. However, the patients were not satisfied with the amount of time that physicians spent with them as none of them reported 'excellent' in that domain.</p><p><strong>Conclusion: </strong>The CAT-Bangla scale is feasible, valid, and internally consistent for measuring physicians' communication skills in the telemedicine environment. This study can contribute to policymakers regarding the integration of learning communication skills of future physicians to competently deliver healthcare in the telemedicine environment. It would also help to understand various aspects of doctor-patient communication in a telemedicine context.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"102-111"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830179","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experts of their own experience: adolescent and young adult cancer patients' advice-giving as a coping mechanism. 专家以自己的经验:青少年和青年癌症患者的建议给予作为应对机制。
Journal of Communication in Healthcare Pub Date : 2025-07-01 Epub Date: 2024-12-11 DOI: 10.1080/17538068.2024.2438446
Nicholas T Iannarino, Nina Francis-Levin, Julianna Corrao, Daria Stelmak, Chiu Yi Tan, Erin Ellman, Anao Zhang, Lindsey A Herrel, Molly B Moravek, Rashmi Chugh, Emily B Walling, Bradley J Zebrack
{"title":"Experts of their own experience: adolescent and young adult cancer patients' advice-giving as a coping mechanism.","authors":"Nicholas T Iannarino, Nina Francis-Levin, Julianna Corrao, Daria Stelmak, Chiu Yi Tan, Erin Ellman, Anao Zhang, Lindsey A Herrel, Molly B Moravek, Rashmi Chugh, Emily B Walling, Bradley J Zebrack","doi":"10.1080/17538068.2024.2438446","DOIUrl":"10.1080/17538068.2024.2438446","url":null,"abstract":"<p><strong>Background: </strong>To better understand informal coping strategies among adolescents and young adults (AYAs) with cancer, the current investigation asked AYA study participants to describe the 'advice' they would offer to hypothetical peers about coping following diagnosis. This study explores the utility of the single item 'advice' prompt for supportive oncology research and practice.</p><p><strong>Methods: </strong>AYA cancer patients (n = 27) aged 12-25 years were recruited through electronic health record query at a single-institution health system. Participants completed semi-structured interviews. Inductive themes were described regarding advice about informal coping strategies following cancer diagnosis. The Institutional Review Board approved this study (HUM#00157267).</p><p><strong>Results: </strong>Emergent advice themes included <b>(</b>1) attitude re/framing, (2) engage support network, and (3) self-advocacy. Participants advised cultivating a positive yet realistic attitude about the present and future. Reaching out to support network members and accepting help were advised, as was rebuffing unhelpful support. Participants also advocated for addressing medical information needs and building trusting relationships with clinicians.</p><p><strong>Conclusions: </strong>Soliciting AYA advice serves to identify informal coping mechanisms in response to life-stage-specific concerns. Future research is called to substantiate the utility of 'advice' as a single item tool for research and clinical questionnaires. Practice implications call for creating opportunities for AYAs to impart their advice to others (e.g. anonymous community message board) as a means of personal catharsis, altruistic service, and legitimizing AYAs as 'embodied' experts of their own experiences.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"112-121"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142813452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Open access to pathology reports: potential harms and proposed solutions. 开放获取病理报告:潜在危害和建议的解决方案。
Journal of Communication in Healthcare Pub Date : 2025-07-01 Epub Date: 2025-02-14 DOI: 10.1080/17538068.2025.2462426
Alex P Tannenbaum, Paul S Weisman, Thomas D Harter
{"title":"Open access to pathology reports: potential harms and proposed solutions.","authors":"Alex P Tannenbaum, Paul S Weisman, Thomas D Harter","doi":"10.1080/17538068.2025.2462426","DOIUrl":"10.1080/17538068.2025.2462426","url":null,"abstract":"<p><p>The Cures Rule permits patients to unfettered, immediate access of their documented health information unless medical providers 'block' this information. While the transparency of open notes has perceived benefits for clinic-based progress notes, the extension of the Cures Rule in its current form to include pathology reports could lead to unintended harms. Several consequences for both patient and provider are identified by examining hypothetical cases, inspired by patient and provider experiences, of misunderstood diagnoses and unexpectedly discovered cancers in seemingly benign tissue. Identified consequences include patient confusion, increased distress, harm to the patient-provider relationship, and moral injury to providers. These unintended consequences may be mitigated through several harm-reducing strategies: informed release, individualized delay, and the 'pop-up' warning. While each presented harm-reducing measure has pros and cons, they all have the potential to improve patient care from where it currently stands.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"134-142"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415612","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Where do we go from here? The threat of misinformation in clinical settings. 我们从这里往哪里走?临床环境中错误信息的威胁。
Journal of Communication in Healthcare Pub Date : 2025-07-01 Epub Date: 2025-07-05 DOI: 10.1080/17538068.2025.2521910
Renata Schiavo
{"title":"Where do we go from here? The threat of misinformation in clinical settings.","authors":"Renata Schiavo","doi":"10.1080/17538068.2025.2521910","DOIUrl":"https://doi.org/10.1080/17538068.2025.2521910","url":null,"abstract":"","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":"18 2","pages":"65-68"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144567957","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medical communication, physicians' adjustment, and therapeutic relationships: exploring potential mechanisms. 医疗沟通、医师适应与治疗关系:探讨潜在机制。
Journal of Communication in Healthcare Pub Date : 2025-06-04 DOI: 10.1080/17538068.2025.2515342
Ana C Alves-Nogueira, Cláudia Melo, Maria Cristina Canavarro, Carlos Carona
{"title":"Medical communication, physicians' adjustment, and therapeutic relationships: exploring potential mechanisms.","authors":"Ana C Alves-Nogueira, Cláudia Melo, Maria Cristina Canavarro, Carlos Carona","doi":"10.1080/17538068.2025.2515342","DOIUrl":"https://doi.org/10.1080/17538068.2025.2515342","url":null,"abstract":"<p><strong>Background: </strong>Research on the associations between medical communication competence (MCC) and physicians' psychological adjustment and therapeutic relationships is warranted. This study aimed to analyze the associations between MCC and both physicians' psychological adjustment outcomes (i.e. burnout and flourishing) and therapeutic relationships via barriers to compassion and expressive suppression.</p><p><strong>Methods: </strong>A sample of 221 physicians completed an online survey, which assessed MCC, barriers to compassion, expressive suppression, burnout, flourishing and therapeutic relationships. Structural equation modeling was used to explore direct and indirect associations between variables. Multigroup analyses were performed to ascertain the invariance of the obtained model between groups of physicians with more (≥14) or fewer (<14) years of professional experience.</p><p><strong>Results: </strong>Barriers to compassion and expressive suppression were indirectly associated with the relationship between MCC and both physician burnout (β = -.01, 95% CI [-.03, -.00] and β = -.01, 95% CI [-.02, -.00], respectively) and flourishing (β = .04, 95% CI [.01, .10] and β = .07, 95% CI [.03, .13], respectively). The association between MCC and therapeutic relationship was exclusively explained by barriers to compassion (β = .03, 95% CI [.01, .06]). The mediation model was invariant across groups of physicians with more or fewer years of professional experience.</p><p><strong>Conclusions: </strong>Regardless of professional experience, MCC training should address physicians' barriers to compassion and emotion regulation skills to improve their psychological adjustment and the quality of their therapeutic relationships. Interventions at the physician level may impact the quality of health care at an organizational level.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"1-16"},"PeriodicalIF":0.0,"publicationDate":"2025-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144217166","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing knowledge translation following a pre-cancer diagnosis: a multinational evaluation of online resources targeting patients with cervical dysplasia. 评估癌前诊断后的知识转化:针对宫颈发育不良患者的在线资源的多国评估。
Journal of Communication in Healthcare Pub Date : 2025-05-27 DOI: 10.1080/17538068.2025.2508346
Garth Griffiths, Diane Tomalty, Michael A Adams, Olivia Giovannetti
{"title":"Assessing knowledge translation following a pre-cancer diagnosis: a multinational evaluation of online resources targeting patients with cervical dysplasia.","authors":"Garth Griffiths, Diane Tomalty, Michael A Adams, Olivia Giovannetti","doi":"10.1080/17538068.2025.2508346","DOIUrl":"https://doi.org/10.1080/17538068.2025.2508346","url":null,"abstract":"<p><strong>Background: </strong>Distressful clinician-to-patient dialogue such as a pre-cancer diagnosis of cervical dysplasia may interfere with information retention. Patient education material provided as an online resource offers a suitable option to review relevant health information outside the clinic. The aim of this study was to evaluate online resources (ORs) affiliated with healthcare institutions across Australia and the United Kingdom (UK) on their effectiveness to translate accessible and current knowledge to patients referred for loop electrosurgical excision procedure (LEEP) treatment.</p><p><strong>Methods: </strong>A comprehensive directory of ORs related to LEEP was compiled from public hospital websites across Australia and the UK. Quantitative and qualitative methods were applied to evaluate resource reading-level (measured using three validated readability indices); actionability and understandability (measured using the Patient Education Material Assessment Tool [PEMAT]); and content (described using content analysis to assess disclosure practices associated with LEEP-related complications).</p><p><strong>Results: </strong>All ORs (n = 39) exceeded the recommended reading level (Australia: x̄ = 10.07, σ = 1.01; UK: x̄ = 10.17, σ = 0.96). PEMAT results indicated higher percentages of ORs scored as understandable (Australia: 50.0%; UK: 69.7%) versus actionable (Australia: 33.3%; UK: 6.1%). Content analysis revealed widespread discordance in the disclosure of longer-term LEEP complications associated with pregnancy, fertility, and sexual function in both countries.</p><p><strong>Conclusions: </strong>Disclosures with significant health and wellness implications should be made with clear reference to peer reviewed science. Wider application of purpose-designed health literacy tools could improve measures of readability, actionability and understandability. International collaborations may provide opportunities to develop more comprehensive and patient-centred education materials to improve provider-to-patient knowledge translation.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"1-10"},"PeriodicalIF":0.0,"publicationDate":"2025-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Longitudinal assessment of residents' perceptions of shared decision-making, patient-centered communication, and reactions to uncertainty. 居民对共同决策、以病人为中心的沟通和对不确定性的反应的看法的纵向评估。
Journal of Communication in Healthcare Pub Date : 2025-05-21 DOI: 10.1080/17538068.2025.2508359
Anna M Kerr, Charee M Thompson, Claire A Stewart, Alexander Rakowsky
{"title":"Longitudinal assessment of residents' perceptions of shared decision-making, patient-centered communication, and reactions to uncertainty.","authors":"Anna M Kerr, Charee M Thompson, Claire A Stewart, Alexander Rakowsky","doi":"10.1080/17538068.2025.2508359","DOIUrl":"https://doi.org/10.1080/17538068.2025.2508359","url":null,"abstract":"<p><strong>Background: </strong>Managing uncertainty is an essential element of patient-centered communication (PCC) and shared decision making (SDM), yet we know little about how residents' reactions to uncertainty are related to their perceptions of their ability to engage in these important activities. This longitudinal study assesses whether residents' self-perceived PCC and SDM skills are associated with their reactions to uncertainty throughout residency.</p><p><strong>Methods: </strong>Data were collected using a three-year, longitudinal survey of two cohorts of pediatric residents. Before each year of residency, residents self-reported PCC behaviors (information exchange and socioemotional communication), SDM skills, and general intolerance of uncertainty, and context-specific reactions to uncertainty in patient care. 100 residents completed Phase I (intern year), 61 residents completed Phase II (second year), and 53 residents completed Phase III (third year).</p><p><strong>Results: </strong>Anxiety from uncertainty and reluctance to disclose uncertainty to parents were significant, negative predictors of SDM perceptions at each phase. Anxiety from uncertainty negatively predicted PCC information-related behaviors (seeking, giving, and verifying) at each phase, but not socioemotional communication. At each phase, concerns for bad outcomes only significantly predicted information giving. Tolerance of uncertainty was not a significant predictor of SDM perceptions or any of the four dimensions of PCC.</p><p><strong>Conclusions: </strong>Residents with stronger negative reactions to uncertainty reported poorer self-perceptions of patient-centered communication and shared decision making over the course of residency. Thus, residency programs should implement training that normalizes conversations about uncertainty and identifies strategies for PCC and SDM in situations of clinical uncertainty.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"1-8"},"PeriodicalIF":0.0,"publicationDate":"2025-05-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121040","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
'But you don't look sick:' hypothyroid narratives shared on Instagram. “但你看起来没病啊!”
Journal of Communication in Healthcare Pub Date : 2025-04-21 DOI: 10.1080/17538068.2025.2491965
Cristina De León-Menjivar
{"title":"'But you don't look sick:' hypothyroid narratives shared on Instagram.","authors":"Cristina De León-Menjivar","doi":"10.1080/17538068.2025.2491965","DOIUrl":"https://doi.org/10.1080/17538068.2025.2491965","url":null,"abstract":"<p><strong>Background: </strong>This study focused on how narratives with hypothyroidism are rhetorically constructed in online spaces, specifically, on Instagram. Currently, hypothyroid patients represent the majority of the approximately 20 million Americans with thyroid disease, and the use of Instagram as a platform allows for unique, multimodal rhetorical constructions that focus on visual narratives and reveal how thyroid patients understand themselves, their condition, and their standing in institutional settings.</p><p><strong>Methods: </strong>Using a phenomenological approach, five public Instagram accounts owned and maintained by thyroid patient advocates who have 'influencer' status were identified. From these accounts, 100 posts were analyzed that specifically discuss major phenomena in the life of a thyroid patient.</p><p><strong>Results: </strong>Although each patient-advocate had their own style when creating posts, they are united in their pursuit of promoting community-building and institutional change through digital activism founded on narrating experiences dealing with hypothyroidism. Furthermore, their choice to focus on visual story-telling through Instagram posts emphasizes the way that invisible illnesses are continuously mischaracterized.</p><p><strong>Conclusion: </strong>The results indicated that patient-advocates' narrative posts highlight the variance in which hypothyroidism presents, which may contribute to misunderstandings surrounding the condition and others like it in and out of clinical spaces. The choice to use social media to present these messages to the thyroid community and the public is significant because it illustrates the desire for change through a participatory culture mediated through digital activism. Furthermore, using social media presents a way to relay these narratives outside of institutional barriers and rebuke.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"1-11"},"PeriodicalIF":0.0,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144039910","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Online community discourse on spinal cord injury research. 关于脊髓损伤研究的在线社区讨论。
Journal of Communication in Healthcare Pub Date : 2025-04-19 DOI: 10.1080/17538068.2025.2491968
Salwa B A Malhas, Tanya A Barretto, Judy Illes
{"title":"Online community discourse on spinal cord injury research.","authors":"Salwa B A Malhas, Tanya A Barretto, Judy Illes","doi":"10.1080/17538068.2025.2491968","DOIUrl":"https://doi.org/10.1080/17538068.2025.2491968","url":null,"abstract":"<p><strong>Background: </strong>Public perceptions of spinal cord injury (SCI) research can influence trust in scientific advancements and therapeutic interventions. Social media is a useful tool to provide insight into these perceptions and related values. This study examines comments to posts pertaining to SCI research reports on a widely used social media platform.</p><p><strong>Method: </strong>We used search term 'spinal cord injury' to collect posts and associated top-level comments spanning 2016-2023 from Reddit. Posts were included if they contained research reports on one of the following SCI interventions: biologic and synthetic materials; devices and technologies; physical and behavioral interventions; and pharmacological treatments. Each unique comment per Reddit post was coded for user self-identification, format, intervention, topic, and tone.</p><p><strong>Results: </strong>We retrieved and analyzed 994 comments from 24 posts<b><i>.</i></b> Key topics of interest were: scientific progress (52%, 514/994), study details (30%, 301/994), and ethical implications (24%, 237/994) across interventions. Comments were generally neutral in tone. Fifty-four comments were made by users who self-identified as persons with lived experience of a spinal cord-related condition. Ethics-related comments (237/994) were focused on the themes of access (35%, 84/237) and beneficence (24%, 58/237).</p><p><strong>Conclusion: </strong>The SCI community is actively using the social media platform Reddit to seek information about research and its ethical dimensions. Across users, a significant proportion of comments are on research progress, ethics and study information. The largest proportion of ethics-focused comments by self-identifiers are on agency, and then equally on access, values, and resilience; ethics-related comments by non-self-identifiers focus on access, and beneficence.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"1-8"},"PeriodicalIF":0.0,"publicationDate":"2025-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143988530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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