Palliative Care and Social Practice最新文献

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Colombia's 5-year public health strategy for palliative care: Implementation protocol. 哥伦比亚姑息治疗5年公共卫生战略:执行议定书。
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-04-21 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251328036
Lina María Vargas-Escobar, Juan Esteban Correa-Morales, María Alejandra Umbacia, Marta Ximena León-Delgado, Erwin Hernandéz, Rene Francisco Abello Gomez, Emma Isabel Rodríguez Darabos, Carmen Rosy Ramírez, Miguel Antonio Sánchez-Cárdenas
{"title":"Colombia's 5-year public health strategy for palliative care: Implementation protocol.","authors":"Lina María Vargas-Escobar, Juan Esteban Correa-Morales, María Alejandra Umbacia, Marta Ximena León-Delgado, Erwin Hernandéz, Rene Francisco Abello Gomez, Emma Isabel Rodríguez Darabos, Carmen Rosy Ramírez, Miguel Antonio Sánchez-Cárdenas","doi":"10.1177/26323524251328036","DOIUrl":"https://doi.org/10.1177/26323524251328036","url":null,"abstract":"<p><strong>Background: </strong>In recent years, Colombia has evolved from having isolated palliative care services to becoming a leader in the field. The country has enacted pioneering palliative care legislation and established the Colombian Observatory of Palliative Care to support research and advocacy. These efforts have addressed regional needs and barriers, and Colombia has also developed compassionate communities to support those with serious illnesses. In line with global health initiatives, a comprehensive public health action plan has been created, focusing on underserved areas and including new legislation to enhance palliative care education. However, implementing these plans in conflict-affected regions remains a significant challenge. With support from the Ministry of Health, the Observatory will lead the implementation process, starting with stakeholder analysis and collaborative efforts to identify effective solutions.</p><p><strong>Objectives: </strong>Through stakeholder focus groups, this study aims to develop a comprehensive methodology for implementing the National Palliative Care Plan in three rural regions of Colombia.</p><p><strong>Design and methods: </strong>Through a participatory action research approach, we conducted two distinct workshops. The first workshop is dedicated to analyzing the current context and generating feasible solutions, while the second workshop builds on these solutions to formulate collaborative strategies. Each workshop engages a diverse array of stakeholders, including patients, healthcare professionals, and policymakers, among others, to ensure comprehensive representation. The workshops are organized with presentations, facilitated discussions, and roundtable sessions to address various palliative care domains. Data gathered from these discussions are recorded, transcribed, and subjected to thematic analysis to report the process of building collaborative networks in palliative care. This process will facilitate the development of actionable, sustainable solutions tailored to regional needs and provide a methodological framework that other countries can adapt to implement their palliative care plan.</p><p><strong>Conclusion: </strong>There is growing health interest in developing national palliative care plans. However, effective implementation remains challenging, particularly in low- and middle-income countries. This protocol describes the co-creation of a stakeholder-focused methodology for developing palliative care in Colombia.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251328036"},"PeriodicalIF":2.7,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12033551/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144032171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The value of home-based advance care planning in addressing existential concerns among older Norwegian patients with cancer and their relatives: A narrative ethnographic study. 以家庭为基础的提前护理计划在解决挪威老年癌症患者及其亲属存在问题中的价值:一项叙事民族志研究。
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-04-21 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251330658
Line Elida Festvåg, Beate Lie Sverre, Ørnulf Paulsen, Grethe Eilertsen
{"title":"The value of home-based advance care planning in addressing existential concerns among older Norwegian patients with cancer and their relatives: A narrative ethnographic study.","authors":"Line Elida Festvåg, Beate Lie Sverre, Ørnulf Paulsen, Grethe Eilertsen","doi":"10.1177/26323524251330658","DOIUrl":"https://doi.org/10.1177/26323524251330658","url":null,"abstract":"<p><strong>Background: </strong>The importance of holistic and person-centered palliative care is widely recognized, but the existential dimensions remain less focused. There is a need for more knowledge about the existential content in advance care planning (ACP) and the significance thereof in the context of home-based palliative care from the perspective of patients and their relatives.</p><p><strong>Objective: </strong>This study aimed to explore home-based ACP as an existential conversation when conducted as a part of a palliative-care coordination meeting, and how older home-dwelling patients with advanced cancer and their relatives experience its significance.</p><p><strong>Design: </strong>A narrative ethnographic design was employed.</p><p><strong>Methods: </strong>The reported empirical material is based on participant observations of the home-based ACP conversations and follow-up interviews with eight patients and their relatives. The analytical approach was guided by the theoretical framework of narrative ethnography.</p><p><strong>Results: </strong>The ACP conversations strongly supported the patients and their relatives in discussing existential concerns, such as existential fear, lived lives, and decision-making at the end of life. The significance of these conversations extended beyond the initial conversation by profoundly influencing subsequent family interactions and enhancing their ability to make informed and meaningful decisions regarding future medical treatment and care.</p><p><strong>Conclusion: </strong>Home-based ACP can be a valuable approach for addressing the existential concerns of older patients and their relatives in the final stages of life. Home-based ACP conversations start a process that continues within the family context and affects their relational dynamics and communication patterns. This study indicates that the home environment fosters discussions about past, present, and future lives, shaping the content and outcomes of home-based ACP.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251330658"},"PeriodicalIF":2.7,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12033682/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144038745","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of hospice staff beyond the frontlines during COVID-19: A qualitative secondary analysis study. COVID-19期间前线以外安宁疗护人员的经验:一项定性二次分析研究
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-04-12 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251327804
Thanga Harini Sundaramoorthy, John I MacArtney, Abi Eccles
{"title":"Experiences of hospice staff beyond the frontlines during COVID-19: A qualitative secondary analysis study.","authors":"Thanga Harini Sundaramoorthy, John I MacArtney, Abi Eccles","doi":"10.1177/26323524251327804","DOIUrl":"https://doi.org/10.1177/26323524251327804","url":null,"abstract":"<p><strong>Background: </strong>The COVID-19 pandemic presented different challenges and work pressures for hospice staff. Staff who continued to work during the emergency public health period had to redefine not only their norms at work, but also the norms of their home and personal lives. Research on hospice staff, and broadly healthcare staff, mainly explores their professional roles and responsibilities, often overlooking the personal experiences and challenges that they encountered outside of this, especially during the first 2 years of the pandemic where their work and commitment persevered amidst unprecedented circumstances.</p><p><strong>Objective: </strong>To explore the impacts of the COVID-19 pandemic on the home life of hospice staff and identify opportunities to support staff in the future.</p><p><strong>Design: </strong>Qualitative interpretive secondary analysis study.</p><p><strong>Method: </strong>Reflexive thematic analysis of qualitative in-depth interviews of hospice staff (<i>n</i> = 25), conducted across seven hospices, to explore the impact and implications of the pandemic on hospice care.</p><p><strong>Results: </strong>Three main themes were identified: (1) Blurred margins: Participants discussed facing difficulty separating work and home life and taking stresses and thoughts about work home. (2) Isolation, loneliness and social interactions: Staff described being anxious and lonely during this period, and not feeling like socialising after demanding workdays. (3) Disruption to family and personal commitments: Some staff felt unable to see or support their parents, partners and children during the pandemic subsequently impacting their psychological and emotional well-being.</p><p><strong>Conclusion: </strong>Hospice staff compromised aspects of their personal life and family responsibilities during the pandemic to carry out their role at work. Workplaces and organisations should aim to support hospice staff more broadly to help with managing work-related pressures and balancing personal commitments in future emergency periods.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251327804"},"PeriodicalIF":2.7,"publicationDate":"2025-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12033463/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143986573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Till death do us Part: experiences of migrant live-in care workers facing the death of their care recipients - a study from Israel. 直到死亡将我们分开:面对被照顾者死亡的移民住家护理员的经历——来自以色列的一项研究。
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-03-31 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251326105
Daniella Arieli, Gila Amitay, Dalit Yassour-Borochowitz
{"title":"Till death do us Part: experiences of migrant live-in care workers facing the death of their care recipients - a study from Israel.","authors":"Daniella Arieli, Gila Amitay, Dalit Yassour-Borochowitz","doi":"10.1177/26323524251326105","DOIUrl":"10.1177/26323524251326105","url":null,"abstract":"<p><strong>Background: </strong>As ageing in place becomes more widespread, the burdens on relatives of older people at advanced stages of illness, particularly those reaching life's end, become greater, requiring a level of support and responsibility that often exceeds the families' abilities. A common solution is employing live-in care workers, frequently migrant workers.</p><p><strong>Objectives: </strong>This study explores how live-in migrant care workers experience and cope with their care recipients' end-of-life and death phases.</p><p><strong>Methods: </strong>This study is based on an ethnographic study that included 37 interviews with live-in migrant care workers employed in the homes of older adults in Israel.</p><p><strong>Results: </strong>We identified four themes: (1) Loneliness and fear due to the need to make decisions; (2) Devotion; (3) Trauma, loss and disenfranchised grief; and (4) The impact of the national immigration policy. The first two themes related to the care workers' pre-death experiences, the third their post-death experiences and the last extraneous factors affecting end-of-life care.</p><p><strong>Discussion: </strong>Live-in care workers, often the last to accompany their care recipients in their final moments, develop a sense of devotion and responsibility, often leading to feelings of fear and loneliness. Their lower occupational status and sociocultural foreignness affect them in the pre-death and post-death phases. The local immigration policy also influences their motivation to work with palliative patients.</p><p><strong>Conclusion: </strong>Applying a feminist critical social care perspective, we recommend policy and social attitude changes regarding live-in migrant care workers' role in end-of-life care.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251326105"},"PeriodicalIF":2.7,"publicationDate":"2025-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11960149/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Neuropalliative care for Parkinson's disease in India: a qualitative exploration of healthcare professionals' perspectives. 神经姑息治疗帕金森氏病在印度:医疗保健专业人员的观点的定性探索。
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-03-31 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251326952
Prerna Sharma, Upasana Baruah, Suman Kushwaha, Akanksha Yadav, Rajinder K Dhamija
{"title":"Neuropalliative care for Parkinson's disease in India: a qualitative exploration of healthcare professionals' perspectives.","authors":"Prerna Sharma, Upasana Baruah, Suman Kushwaha, Akanksha Yadav, Rajinder K Dhamija","doi":"10.1177/26323524251326952","DOIUrl":"10.1177/26323524251326952","url":null,"abstract":"<p><strong>Introduction: </strong>The prevalence of Parkinson's disease (PD) in India is roughly 10% of the global burden, which is a considerable public health concern. The burden on healthcare services in India is substantial due to the variations in PD prevalence and the country's large population. The unique cultural, ethnic, and social differences in India give rise to distinct needs among PD patients and their caregivers. Neuropalliative care (NPC) is an emerging subspecialty with a holistic approach that requires a unique skill set and the involvement of allied healthcare professionals who play a crucial role in providing integrated services.</p><p><strong>Aim: </strong>The objective of this study is to explore the experiences and perspectives of the primary and allied healthcare professionals working with persons with PD in India.</p><p><strong>Methods: </strong>The current study employed a qualitative, exploratory, inductive research design, using in-depth interviews with 15 primary and allied healthcare professionals who had more than 5 years of experience working with persons with PD. Participants worked in varied settings such as academic hospitals, rehabilitation services, and tertiary care hospitals.</p><p><strong>Results: </strong>The mean years of work experience for the participants were 7.5 ± 3.26 years with a mean number of 30.8 ± 14.8 patients with PD per month. Thematic analysis of the data revealed 5 main themes and 20 subthemes. The major themes revealed were understanding of NPC, the needs of patients and caregivers of PD, barriers and challenges, interventions for patients and caregivers, facilitators, and components of NPC for PD.</p><p><strong>Conclusion: </strong>To provide a structured stepped-care approach to managing PD, there is a need to understand the psychosocial and palliative care aspects of PD in patients and caregivers in the Indian context. Adequate training and resource allocation are needed for NPC to be adopted in clinical care.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251326952"},"PeriodicalIF":2.7,"publicationDate":"2025-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11960147/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The role of the municipal welfare domain in palliative care: exploring the views of coordinators of Dutch regional palliative care networks. 市政福利领域在姑息治疗中的作用:探索荷兰区域姑息治疗网络协调员的观点。
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-03-31 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251326188
Trudy Schutter, Ian Koper, Kris Vissers, Jeroen Hasselaar
{"title":"The role of the municipal welfare domain in palliative care: exploring the views of coordinators of Dutch regional palliative care networks.","authors":"Trudy Schutter, Ian Koper, Kris Vissers, Jeroen Hasselaar","doi":"10.1177/26323524251326188","DOIUrl":"10.1177/26323524251326188","url":null,"abstract":"<p><strong>Background: </strong>Collaboration between the healthcare domain and welfare domain could benefit people confronted with an incurable disease residing at home and their informal caregivers, but little is known about this collaboration regarding palliative care. There are regional palliative care networks in the Netherlands, supporting interdisciplinary integrated palliative care; each network has a network coordinator who is a primary liaison for the network and who has an overview of palliative care services and activities in the region. However, the view of the networks on the role of the welfare domain and collaboration with the welfare domain in the field of palliative care is unknown.</p><p><strong>Objective: </strong>The aim of this study is to explore the awareness of professionals for the social dimension of palliative care and to explore how collaboration between the healthcare domain and the Dutch municipal welfare domain, in the field of palliative care, can be improved.</p><p><strong>Design: </strong>Focus group research.</p><p><strong>Methods: </strong>In 2022, six focus groups and two individual interviews were held with 30 coordinators of regional palliative care networks in the Netherlands.</p><p><strong>Results: </strong>This study showed that coordinators of regional palliative care networks consider collaboration with the welfare domain to be important. There are major differences between the regional palliative care networks regarding knowledge about and collaboration with the welfare domain. Coordinators themselves can function as catalysts for collaboration between palliative care and the welfare domain.</p><p><strong>Conclusion: </strong>In the Netherlands, collaboration between the welfare domain and the healthcare domain in the field of palliative care is limited and differs considerably between regions. The Dutch municipal welfare domain is relevant for a large group of people confronted with an incurable disease, but it does not provide them with tailored services. Collaboration between palliative care and the municipal welfare domain has great potential, both on the patient level and on the level of the sustainability of palliative care, but it currently seems underexplored.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251326188"},"PeriodicalIF":2.7,"publicationDate":"2025-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11956517/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143754839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What functions do palliative care bereavement services deliver? A scoping review. 姑息关怀丧亲服务提供哪些功能?范围审查。
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-03-22 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251326947
Kathleen E Jurgens, David C Currow, Jennifer Tieman
{"title":"What functions do palliative care bereavement services deliver? A scoping review.","authors":"Kathleen E Jurgens, David C Currow, Jennifer Tieman","doi":"10.1177/26323524251326947","DOIUrl":"10.1177/26323524251326947","url":null,"abstract":"<p><p>Following someone's death, bereaved people may struggle with their grief. When a patient receives palliative care, bereavement support for the patient's family is an expected function of specialist palliative care services. To date, detailed descriptions of the purpose, function and provision of support from bereavement services are limited. This study examined how specialist palliative bereavement services self-defined their functions and described any support and interventions they offer. The aim was to synthesise how services satisfied their responsibilities for continuity of support to the family following a patient dying. A scoping review was undertaken to examine the literature on bereavement support within palliative care services to codify how they initiated post-death contact, the purpose of contact and what interventions were offered. Seven databases were interrogated in 2020 using search terms developed by CareSearch (www.caresearch.com.au) with refinement. Items needed to be in English and detail the aims and functions of service-initiated contacts and support. Information was thematically analysed using an inductive approach. Bereavement contact from palliative care services had an overall aim of offering guidance through the provision of information, access to a risk assessment and counselling. The analysis demonstrated the provision of bereavement information, describing support pathways and delivery of accessible grief interventions provided a 'safety net'. Other themes revealed services often monitored adjustment through scheduled reviews, were aware of their limitations and completed referrals to other services as needed. This study adds to our understanding of palliative care bereavement services and provides valuable information about their intended functions. To improve understanding of bereavement functions, services need to clearly define their primary purpose and how this meets the needs of bereaved people and national standards. Ideally, future research would interview bereavement staff directly to ensure accurate descriptions of service aims and model.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251326947"},"PeriodicalIF":2.7,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11946289/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732161","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A mixed methods pilot study of a serious illness communication training curriculum among medical residents. 住院医师大病沟通训练课程之混合方法初步研究。
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-03-20 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251326949
Megan Smith-Uffen, Shilpa Jyothi Kumar, Oren Levine, Daryl Bainbridge, Jeff Myers, Leah Steinberg, Nadia Incardona, Maggie Civak, Hsien Seow
{"title":"A mixed methods pilot study of a serious illness communication training curriculum among medical residents.","authors":"Megan Smith-Uffen, Shilpa Jyothi Kumar, Oren Levine, Daryl Bainbridge, Jeff Myers, Leah Steinberg, Nadia Incardona, Maggie Civak, Hsien Seow","doi":"10.1177/26323524251326949","DOIUrl":"10.1177/26323524251326949","url":null,"abstract":"<p><strong>Background: </strong>It is crucial that clinicians develop skillful communication to support patients to improve their illness understanding. A strong understanding of illness is associated with improved quality of life and care that is consistent with patient priorities. Unfortunately, many clinicians lack these skills, and residents, in particular, feel unprepared. The ABCs (All Providers, Better Communication Skills) is a virtual curriculum that teaches core communication skills to facilitate conversations with people who are living with serious illnesses.</p><p><strong>Objectives: </strong>We explored whether the ABCs curriculum increases self-efficacy and addresses self-reported weaknesses in communication training for internal medicine (IM) and family medicine (FM) residents.</p><p><strong>Design: </strong>We conducted a prospective sequential mixed methods cohort study.</p><p><strong>Methods: </strong>Residents completed pre-/post-curriculum self-assessment surveys and a post-curriculum semi-structured interview. Primary outcomes were changes in self-efficacy, whether the curriculum addressed self-identified training needs and feedback on its structure and delivery. Secondary outcomes included feedback on how the modules could be tailored to IM and FM-specific content.</p><p><strong>Results: </strong>Twelve residents completed the study. Most were in IM, female, and aged 26-30 years. Self-efficacy improved significantly as per the SE-12 summative score (mean difference 11.5 points (SD 10.35), <i>p</i> = 0.003). The study-created items showed a significant improvement in breaking bad news (0.83 (SD 0.84), <i>p</i> = 0.005), overall knowledge (0.67 (SD 0.65), <i>p</i> = 0.005), and confidence (0.67 (SD 0.50), <i>p</i> = 0.001). Key strengths of the curriculum were its structured approach, focus on allowing for silence, transferrable skills, and practical application. The virtual format was both a strength and a weakness, as residents appreciated its accessibility but valued real-time practice.</p><p><strong>Conclusion: </strong>The ABCs improved self-efficacy among IM and FM residents. We will use results from this study to inform future iterations of the platform that are tailored to resident-specific learning needs and improving patient-centered outcomes.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251326949"},"PeriodicalIF":2.7,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11926845/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143693769","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact of neonatal palliative care on neonates, their parents, and nurses: a systematic review. 新生儿姑息治疗对新生儿及其父母和护士的影响:一项系统综述。
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-03-15 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251326103
Arman Mohammadi, Mostafa Gholami, Mohammadamin Jandaghian-Bidgoli, Fatemeh Abdi
{"title":"Impact of neonatal palliative care on neonates, their parents, and nurses: a systematic review.","authors":"Arman Mohammadi, Mostafa Gholami, Mohammadamin Jandaghian-Bidgoli, Fatemeh Abdi","doi":"10.1177/26323524251326103","DOIUrl":"https://doi.org/10.1177/26323524251326103","url":null,"abstract":"<p><strong>Background: </strong>Neonatal palliative care (NPC) is a comprehensive approach that addresses the physical, mental, social, and spiritual well-being of neonates in need of palliative care.</p><p><strong>Objective and design: </strong>The objective of this systematic review was to examine the impact of NPC on the management of symptoms and conditions in neonates admitted to the neonatal intensive care unit, as well as its effects on their parents and nurses.</p><p><strong>Methods: </strong>This study was conducted following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Five electronic databases, including Scopus, PubMed, Web of Science (WoS), Cumulative Index to Nursing and Allied Health Literature (CINAHL), and the Cochrane Library, were searched up to July 30, 2024. The quality of eligible studies was assessed using the Mixed Methods Appraisal Tool.</p><p><strong>Results: </strong>A total of 10 studies that met the inclusion criteria were included in the review. The results indicated that the implementation of an NPC program led to an increased use of analgesic drugs, a reduction in invasive therapeutic and diagnostic procedures for newborns, an increase in withdrawal of life support, more do-not-resuscitate orders, and greater parental involvement in the care of newborns. These findings suggest that providing NPC can improve parents' quality of life, as well as enhance symptom management and pain relief in newborns.</p><p><strong>Conclusion: </strong>The implementation of an NPC program can benefit both neonates and parents. It can improve the quality of life and reduce stress for parents, enhance the quality of newborn care, foster better inter-team collaboration, and prevent unnecessary invasive procedures, leading to greater comfort for newborns and improved pain and symptom management.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"19 ","pages":"26323524251326103"},"PeriodicalIF":2.7,"publicationDate":"2025-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11909679/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651331","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Is there a role for hypnosis in palliative care? 催眠在姑息治疗中有作用吗?
IF 2.7
Palliative Care and Social Practice Pub Date : 2025-02-25 eCollection Date: 2025-01-01 DOI: 10.1177/26323524251321852
Petra Vayne-Bossert, Janet Hardy
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