JBI evidence synthesis最新文献

筛选
英文 中文
Experiences of having a sibling with autism spectrum disorder: a qualitative systematic review. 兄弟姐妹患有自闭症谱系障碍的经历:一项定性的系统回顾。
IF 6.8
JBI evidence synthesis Pub Date : 2026-10-01 Epub Date: 2026-08-18 DOI: 10.11124/JBIES-25-00454
Alžběta Smrčková, Jiří Kantor, Dagmar Sedláčková, Neda Kabiri, Zuzana Svobodová, Blanche Kiszio, Tereza Vrbová, Véronique de Goumoëns, Lua Perimal-Lewis, Zachary Munn, Miloslav Klugar
{"title":"Experiences of having a sibling with autism spectrum disorder: a qualitative systematic review.","authors":"Alžběta Smrčková, Jiří Kantor, Dagmar Sedláčková, Neda Kabiri, Zuzana Svobodová, Blanche Kiszio, Tereza Vrbová, Véronique de Goumoëns, Lua Perimal-Lewis, Zachary Munn, Miloslav Klugar","doi":"10.11124/JBIES-25-00454","DOIUrl":"10.11124/JBIES-25-00454","url":null,"abstract":"<p><strong>Objective: </strong>The aim of this systematic review was to explore the experiences of neurotypical individuals who have a sibling with autism spectrum disorder (ASD).</p><p><strong>Introduction: </strong>The presence of a child with ASD significantly impacts the life and functioning of the entire family. Support is typically associated with individuals with ASD and their parents, yet the needs of siblings of these individuals are often overlooked. Being a sibling of a person with ASD is linked to various challenges and complex situations that accompany them throughout their lives, influencing their health, personal development, and social integration.</p><p><strong>Eligibility criteria: </strong>Qualitative studies involving neurotypical siblings of individuals with ASD who describe their experiences were eligible for inclusion. There were no limitations regarding age, gender, sex, or length of relationship with the sibling. We considered studies from all countries and contexts.</p><p><strong>Methods: </strong>This study was conducted according to JBI methodology for qualitative reviews. A 3-step search strategy was used to find published and unpublished studies from the following sources: MEDLINE, CINAHL, APA PsycINFO, Scopus, SocINDEX, Web of Science Core Collection, Embase, ERIC, ProQuest Dissertations and Theses, Open Dissertations, and Google Scholar (first 100 records). Screening, critical appraisal, data extraction, and data synthesis were conducted by 2 reviewers independently.</p><p><strong>Results: </strong>As a result of the search, 7445 records were identified. After removal of duplicates and ineligible records, full-text screening and methodological quality assessment led to the inclusion of 34 studies that met the eligibility criteria. The synthesis of the results led to the identification of 3 synthesized findings, based on 13 thematic categories, including 289 findings. The overall confidence in the findings was moderate for 2 synthetized findings and high for 1. The first synthesized finding focused on siblings' evolving understanding, sources of information, and acceptance of ASD, as well as broader societal awareness. The second finding addressed the direct impact on sibling identity and lived experiences, encompassing both positive aspects and emotional burdens, alongside caregiving roles and challenging behaviors. The third finding covered unmet support needs, family dynamics, coping strategies, and future perspectives regarding lifelong care demands.</p><p><strong>Conclusions: </strong>Siblings of people with ASD need to develop an understanding of the disability in order to accept their siblings. They wish for a better understanding of ASD in society. In their relationships, neurotypical siblings experience moments of happiness and love as well as challenging situations caused by their siblings' disability, and these experiences influence their identity; their private, family, and social lives; and impact their","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"1947-2014"},"PeriodicalIF":6.8,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13649267/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148799003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Interventions to address social and structural conditions for individuals with select complex, chronic, disabling conditions: a scoping review protocol. 针对具有特定复杂、慢性和致残状况的个体的社会和结构状况的干预措施:范围审查方案。
IF 6.8
JBI evidence synthesis Pub Date : 2026-10-01 Epub Date: 2026-05-15 DOI: 10.11124/JBIES-25-00410
Marcia Finlayson, Nadine Akbar, Erna Snelgrove-Clarke, Amanda Ross-White, Afolasade Fakolade, Ruth Ann Marrie
{"title":"Interventions to address social and structural conditions for individuals with select complex, chronic, disabling conditions: a scoping review protocol.","authors":"Marcia Finlayson, Nadine Akbar, Erna Snelgrove-Clarke, Amanda Ross-White, Afolasade Fakolade, Ruth Ann Marrie","doi":"10.11124/JBIES-25-00410","DOIUrl":"10.11124/JBIES-25-00410","url":null,"abstract":"<p><strong>Objective: </strong>This review will describe features of interventions that address social and structural conditions for individuals with select complex, chronic conditions: multiple sclerosis (MS), inflammatory arthritis, diabetes, or frailty.</p><p><strong>Introduction: </strong>Despite advances in health care over the past 30 years, substantial heterogeneity in health outcomes persists across people with complex, chronic conditions. Social and structural conditions affect this heterogeneity and contribute to social vulnerability, marginalization, and equity-seeking status.</p><p><strong>Eligibility criteria: </strong>We will examine academic and gray literature sources to identify and describe the features (eg, focus, theoretical underpinnings, content) of interventions that have been implemented in community settings (including outpatient clinics) to address social and structural conditions associated with social vulnerability, marginalization, and/or equity-seeking status among adults (older than 18 years) with MS, inflammatory arthritis, diabetes, or frailty.</p><p><strong>Methods: </strong>This review will follow the JBI methodology for scoping reviews. Keywords will be searched in MEDLINE (Ovid), Embase (Ovid), CINAHL (EBSCOhost), Sociological Abstracts (ProQuest), and Web of Science Core Collection. Titles and abstracts will be screened by 2 reviewers for eligibility, followed by full-text review to determine eligibility for inclusion. One reviewer will be responsible for data extraction, with a second reviewer verifying the extraction. Findings will be collated and synthesized by the review team to map the current status of interventions that address social and structural conditions for individuals with MS, inflammatory arthritis, diabetes, or frailty.</p><p><strong>Review registration: </strong>OSF https://osf.io/e7tnb/overview.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"2148-2159"},"PeriodicalIF":6.8,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147943112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Methodological quality of systematic reviews on neck pain treatments: a cross-sectional appraisal using AMSTAR 2. 颈部疼痛治疗系统评价(2019-2024)的方法学质量:使用AMSTAR 2进行横断面评估
IF 6.8
JBI evidence synthesis Pub Date : 2026-10-01 Epub Date: 2026-07-23 DOI: 10.11124/JBIES-25-00425
Leonard Ho, Ka Wai Yuen, Cyrus Chung Ching Choi, Yolenda Man Kei Cheung, Irene Xy Wu, Vincent Chi Ho Chung
{"title":"Methodological quality of systematic reviews on neck pain treatments: a cross-sectional appraisal using AMSTAR 2.","authors":"Leonard Ho, Ka Wai Yuen, Cyrus Chung Ching Choi, Yolenda Man Kei Cheung, Irene Xy Wu, Vincent Chi Ho Chung","doi":"10.11124/JBIES-25-00425","DOIUrl":"10.11124/JBIES-25-00425","url":null,"abstract":"<p><strong>Objective: </strong>This critical appraisal study aimed to evaluate the methodological quality of recent systematic reviews on neck pain treatments.</p><p><strong>Introduction: </strong>Systematic reviews offer the best evidence on neck pain treatments. However, the quality of reviews can vary, and methodological flaws can limit their reliability in clinical and policy decision-making.</p><p><strong>Eligibility criteria: </strong>We included systematic reviews with at least 1 meta-analysis on randomized controlled trials on treatments for neck pain. Reviews evaluating pharmacological, non-pharmacological, or combined pharmacological and non-pharmacological treatments were eligible. Systematic reviews on the treatment of neck pain complications were excluded, as were editorials, protocols, systematic reviews without randomized controlled trials, and network meta-analyses.</p><p><strong>Methods: </strong>We searched MEDLINE (Ovid), Embase (Ovid), PsycINFO (Ovid), and the Cochrane Database of Systematic Reviews for eligible systematic reviews on neck pain treatments published between 2019 and 2024 in English or Chinese. We extracted bibliographical data and critically appraised the methodological quality using the AMSTAR 2 (A MeaSurement Tool to Assess systematic Reviews) tool. Logistic regression analyses were conducted to evaluate the predictability of bibliographical characteristics for overall methodological quality.</p><p><strong>Results: </strong>Of the 63 systematic reviews, 2 (3.2%) were high quality, 2 (3.2%) were moderate, 5 (7.9%) were low, and 54 (85.7%) were critically low. The reviews performed poorly across 4 critical domains. The majority of the reviews (n=53; 84.1%) did not provide lists of excluded studies; 29 (46.0%) did not account for the risk of bias in primary studies when interpreting the results; 38 (60.3%) did not investigate and discuss publication bias, and 26 (41.3%) did not publish review protocols. While 6 bibliographical characteristics showed significant associations with overall methodological quality in univariate logistic regression, no associations were observed after adjusting for confounders in the subsequent multivariate analysis.</p><p><strong>Conclusions: </strong>The methodological quality of systematic reviews on neck pain treatments is unsatisfactory. Future reviewers should pay attention to the aforementioned critical domains. Resources should also be allocated for upscaling the infrastructure of evidence synthesis and improving the critical appraisal skills of all evidence users.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"2105-2128"},"PeriodicalIF":6.8,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148563083","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Suffering at the end of life in the intensive care unit: a scoping review protocol. 重症监护病房生命末期的痛苦:范围审查方案。
IF 6.8
JBI evidence synthesis Pub Date : 2026-10-01 Epub Date: 2026-05-26 DOI: 10.11124/JBIES-25-00331
Yodang Yodang, Rongyu Hua, Decha Tamdee, Jittawadee Rhiantong, Patraporn Bhatarasakoon
{"title":"Suffering at the end of life in the intensive care unit: a scoping review protocol.","authors":"Yodang Yodang, Rongyu Hua, Decha Tamdee, Jittawadee Rhiantong, Patraporn Bhatarasakoon","doi":"10.11124/JBIES-25-00331","DOIUrl":"10.11124/JBIES-25-00331","url":null,"abstract":"<p><strong>Objective: </strong>This scoping review, conducted using a concept analysis framework, aims to synthesize the most robust evidence regarding suffering at the end of life (EOL), encompassing its attributes, antecedents, consequences, and empirical referents in nursing and other fields.</p><p><strong>Introduction: </strong>Suffering is a significant phenomenon during the EOL, particularly in the intensive care unit (ICU). Suffering at the EOL cannot always be well treated or managed. Since various definitions of suffering exist, managing suffering among patients at the EOL in the ICU is complex. Thus, to manage suffering properly in an ICU setting, it is necessary to identify meaningful and suitable attributes.</p><p><strong>Eligibility criteria: </strong>This review will consider quantitative, qualitative, and mixed methods studies that address the concept of suffering at the EOL for adults and older adults, particularly in the ICU setting. A search of gray literature will include expert opinions, clinical guidelines, dissertations and theses, editorial articles, and reports on policies and strategies in use by professional bodies or organizations.</p><p><strong>Methods: </strong>This scoping review will follow JBI methodology for scoping reviews. Nine academic electronic databases will be searched for studies employing quantitative, qualitative, and mixed methods study designs. Articles published in any language from database inception to the present will be included. Two or more reviewers will independently complete title and abstract screening prior to full-text review and data extraction. The Walker and Avant concept analysis framework will be used to map antecedents, attributes, consequences, and referents. Specific tools will also be employed for bibliometric analysis, contextual analysis, and data visualization.</p><p><strong>Review registration: </strong>OSF https://osf.io/7xzq6/overview.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"2170-2177"},"PeriodicalIF":6.8,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148017637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Concept analyses on care and caring in nursing and midwifery: a scoping review protocol. 护理和助产学中护理和护理的概念分析:范围审查方案。
IF 6.8
JBI evidence synthesis Pub Date : 2026-10-01 Epub Date: 2026-06-02 DOI: 10.11124/JBIES-25-00486
Janet Bell
{"title":"Concept analyses on care and caring in nursing and midwifery: a scoping review protocol.","authors":"Janet Bell","doi":"10.11124/JBIES-25-00486","DOIUrl":"10.11124/JBIES-25-00486","url":null,"abstract":"<p><strong>Objective: </strong>This scoping review will synthesize evidence from concept analyses on the phenomena of care and caring in nursing and midwifery.</p><p><strong>Introduction: </strong>Care and caring are foundational concepts in nursing and midwifery. Concept analyses have been used to determine how care and caring are understood from various perspectives and in various contexts. Despite the utility of these focused analyses for refining our understanding, a diverse and dispersed knowledge base can limit the contemporary understanding of care and caring as concepts in nursing and midwifery.</p><p><strong>Eligibility criteria: </strong>The review will include concept analyses in which a recognized, structured process was applied to interrogate care and/or caring as the primary concepts of analysis in the context of nursing or midwifery.</p><p><strong>Methods: </strong>The JBI scoping review methodology will be used. Key databases to be searched include PubMed, CINAHL (EBSCOhost), SAGE, ScienceDirect, Scopus, ProQuest Dissertations and Theses Global, and Google Scholar. Concept analyses spanning 2000 to 2025 will be included. Two reviewers will independently extract data to a predetermined extraction tool to map data and support the analysis. Descriptive content analysis will be used to support the narrative synthesis of the findings.</p><p><strong>Review registration: </strong>OSF https://osf.io/tncg2/.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":"2186-2192"},"PeriodicalIF":6.8,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148144997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Healthy work environments among health care professionals: a scoping review protocol. 卫生保健专业人员的健康工作环境:范围审查方案。
IF 6.8
JBI evidence synthesis Pub Date : 2026-09-25 DOI: 10.11124/JBIES-26-00146
Susan Salmond, Marsha J Bennett, Cheryl Holly, Audrey Rosenblatt, Karen Dominguez-Cancino, Mona Choi, Eui Geum Oh, Pei-Fan Mu, Mary Ramos, Dru Riddle, Amanda Ross-White, Amanda Vandyk, Kevin Dowling, Shwu-Feng Tsay
{"title":"Healthy work environments among health care professionals: a scoping review protocol.","authors":"Susan Salmond, Marsha J Bennett, Cheryl Holly, Audrey Rosenblatt, Karen Dominguez-Cancino, Mona Choi, Eui Geum Oh, Pei-Fan Mu, Mary Ramos, Dru Riddle, Amanda Ross-White, Amanda Vandyk, Kevin Dowling, Shwu-Feng Tsay","doi":"10.11124/JBIES-26-00146","DOIUrl":"https://doi.org/10.11124/JBIES-26-00146","url":null,"abstract":"<p><strong>Objective: </strong>This scoping review will explore the breadth and types of evidence on healthy work environments (HWEs) worldwide for interprofessional multidisciplinary health care teams collaborating to provide direct patient care across clinical settings.</p><p><strong>Introduction: </strong>Enhancing work environments is a priority for health care systems to maintain adequate staffing, high-quality care, and workforce engagement. However, the literature on HWEs is fragmented and compartmentalized by discipline, making it difficult to compare findings or determine which elements are most effective across settings. Hence, health care leaders lack a comprehensive, interprofessional evidence base to guide HWE initiatives.</p><p><strong>Eligibility criteria: </strong>This review will include quantitative, qualitative, and mixed methods evidence on HWEs or conceptually aligned constructs. It will consider interprofessional health care team members with direct care responsibilities (eg, hands-on assessment, treatment, or support to patients; education for patient/family caregivers) in any clinical setting. Studies involving students or academic settings will be excluded.</p><p><strong>Methods: </strong>This review will follow JBI methodology for scoping reviews. Searches will be conducted in CINAHL (EBSCOhost), PubMed, Embase (Ovid), PsycINFO (Ovid), Scopus, LILACS, PEDro, and OTseeker. Gray literature, unpublished studies, and policy documents will be identified through ProQuest Central (ProQuest) and the websites of health organizations, professional associations, and government and regulatory agencies. The search will cover 2016 to the present, including materials in English, Spanish, Traditional Chinese, and Korean. Two reviewers will independently screen titles, abstracts, and full-text articles. Data charting will follow a structured, AI-assisted workflow with rigorous human verification. Results will be presented descriptively with tables, charts, and a narrative summary.</p><p><strong>Review registration: </strong>OSF osf.io/gjze4.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2026-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149082193","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effectiveness of revision surgery following trochanteric fracture fixation in older adults: a systematic review and meta-analysis protocol. 老年人粗隆骨折固定后翻修手术的有效性:一项系统回顾和荟萃分析方案。
IF 6.8
JBI evidence synthesis Pub Date : 2026-09-16 DOI: 10.11124/JBIES-25-00563
Nicholas Dominguez, Ruurd Jaarsma, Anum Awais, Vanesa Bochkezanian, Edoardo Aromataris
{"title":"Effectiveness of revision surgery following trochanteric fracture fixation in older adults: a systematic review and meta-analysis protocol.","authors":"Nicholas Dominguez, Ruurd Jaarsma, Anum Awais, Vanesa Bochkezanian, Edoardo Aromataris","doi":"10.11124/JBIES-25-00563","DOIUrl":"https://doi.org/10.11124/JBIES-25-00563","url":null,"abstract":"<p><strong>Objective: </strong>The objective of this review is to evaluate the effect of revision surgical strategies compared on functional outcomes, health-related quality of life, and postoperative complications in patients aged 65 years and older with failed primary fixation of trochanteric femoral fractures.</p><p><strong>Introduction: </strong>Trochanteric fractures of the femur, including both intertrochanteric and pertrochanteric fractures, are prevalent in older populations and frequently require surgical intervention. Despite initial surgical efforts, failures often occur and revision surgery may be required.</p><p><strong>Eligibility criteria: </strong>This systematic review will include randomized controlled trials, quasi-experimental designs, prospective and retrospective cohort studies and case control studies. Studies will be included if they assess surgical revision strategies following failed primary fixation of trochanteric femoral fractures, including intertrochanteric and pertrochanteric fractures, in patients aged 65 years and above. Any surgical method for revision will be compared against other surgical revision strategies.</p><p><strong>Methods: </strong>PubMed, Embase, Cochrane Central Register of Controlled Trials (CENTRAL), and AgeLine will be searched for eligible studies. Titles and abstracts will be screened, followed by a full-text review of potentially eligible studies by 2 independent reviewers. Critical appraisal of studies will be conducted independently by the same reviewers guided by the JBI critical appraisal tools. Data will be meta-analyzed statistically, if appropriate; where meta-analysis is not possible, vote counting based on the direction of effect will be used as a quantitative synthesis approach, with supporting narrative. The Grading of Recommendations, Assessment, Development and Evaluation (GRADE) will be utilized to assess the certainty of the synthesized results.</p><p><strong>Review registration: </strong>PROSPERO (CRD420251250047).</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2026-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148978298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Neonatal outcomes related to parental holding during therapeutic hypothermia for neonates with hypoxic ischemic encephalopathy: a systematic review protocol. 低氧缺血性脑病新生儿在低温治疗期间与父母监护相关的新生儿结局:一项系统回顾方案。
IF 6.8
JBI evidence synthesis Pub Date : 2026-09-16 DOI: 10.11124/JBIES-26-00058
NaDeana Norris, Helen McCord, Cameron Bruce, Morgan McNeil, Daria Hughes, Lior Goldchtaub, Marsha Campbell-Yeo
{"title":"Neonatal outcomes related to parental holding during therapeutic hypothermia for neonates with hypoxic ischemic encephalopathy: a systematic review protocol.","authors":"NaDeana Norris, Helen McCord, Cameron Bruce, Morgan McNeil, Daria Hughes, Lior Goldchtaub, Marsha Campbell-Yeo","doi":"10.11124/JBIES-26-00058","DOIUrl":"https://doi.org/10.11124/JBIES-26-00058","url":null,"abstract":"<p><strong>Objective: </strong>This review will evaluate neonatal outcomes related to parental holding during therapeutic hypothermia for treatment of hypoxic ischemic encephalopathy in neonates.</p><p><strong>Introduction: </strong>Neonates diagnosed with or at risk for hypoxic ischemic encephalopathy, an acquired brain injury at birth, receive therapeutic hypothermia as a neuroprotective intervention. However, despite a lack of evidence on associated harm, parents are often restricted from holding the newborn until the therapeutic hypothermia treatment is completed.</p><p><strong>Eligibility criteria: </strong>The review will include all experimental and non-experimental quantitative studies evaluating neonatal outcomes related to parental holding during therapeutic hypothermia treatment. Studies conducted in any clinical settings and involving newborns with hypoxic ischemic encephalopathy related to perinatal asphyxia and/or birth depression receiving therapeutic hypothermia will be considered (eg, neonatal or pediatric intensive care units). Outcomes of interest will include physiologic, biophysiologic, biobehavioral, and neurological outcomes; adverse events; and care outcomes (length of stay, feeding).</p><p><strong>Methods: </strong>The systematic review will be conducted in accordance with the JBI methodology for systematic reviews of effectiveness and the Preferred Reporting Items for Systematic Review and Meta-Analysis (PRISMA) guidelines. Using a stepwise process, predetermined keywords will be used to search several electronic databases including CINAHL (EBSCOhost) Cochrane Library, Embase.com, MEDLINE (Ovid), and Scopus. Independent reviewers will review titles and abstracts, perform a full-text review, and extract data from eligible studies. Disagreements will be resolved through consensus or with another reviewer. The quality of included studies will be evaluated with JBI appraisal tools.</p><p><strong>Review registration: </strong>PROSPERO CRD420251241188.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2026-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148978260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identifying methodological guidance used for systematic reviews, clinical practice guidelines, and health technology assessment for rare diseases: a scoping review protocol. 确定用于罕见病系统评价、临床实践指南和卫生技术评估的方法学指南:范围审查方案。
IF 6.8
JBI evidence synthesis Pub Date : 2026-09-14 DOI: 10.11124/JBIES-25-00506
Abigail M Day-Sharman, Danielle Pollock, Timothy H Barker, Johanna H van der Lee, Tracy Merlin, Mirthe J Klein Haneveld, Cindy Stern, Brendan V Schultz, Federico Germini, Konstantinos Margetis, Iméze J Hieltjes, Zachary Munn
{"title":"Identifying methodological guidance used for systematic reviews, clinical practice guidelines, and health technology assessment for rare diseases: a scoping review protocol.","authors":"Abigail M Day-Sharman, Danielle Pollock, Timothy H Barker, Johanna H van der Lee, Tracy Merlin, Mirthe J Klein Haneveld, Cindy Stern, Brendan V Schultz, Federico Germini, Konstantinos Margetis, Iméze J Hieltjes, Zachary Munn","doi":"10.11124/JBIES-25-00506","DOIUrl":"https://doi.org/10.11124/JBIES-25-00506","url":null,"abstract":"<p><strong>Objective: </strong>This scoping review will identify methodological guidance relevant to systematic reviews (SRs), clinical practice guidelines (CPGs), and health technology assessments (HTAs) for rare diseases, and examine methodological challenges associated with their development.</p><p><strong>Introduction: </strong>Rare diseases affect approximately 400 million people worldwide. However, individual rarity limits health care provider knowledge and awareness and, subsequently, management of rare diseases is hindered by diagnostic delays, limited treatment options, and high treatment costs. Heterogenous populations and sparse, low-quality evidence also impede research quality and render traditional evidence evaluation methods ill-suited to rare diseases. Consequently, existing methodological frameworks guiding evidence-based development of SRs, CPGs, and HTAs may not appropriately consider contextual nuances of rare diseases.</p><p><strong>Eligibility criteria: </strong>This scoping review will consider both peer-reviewed and gray literature relevant to methodological guidance for SRs, CPGs, and HTAs. Eligible sources will focus on rare diseases collectively, or specific conditions that meet the criteria of a rare disease, and address at least 1 aspect of methodology used to develop SRs, CPGs, or HTAs relevant to rare disease contexts.</p><p><strong>Methods: </strong>The 3-step search strategy began with an exploratory PubMed search to refine terms, which will be followed by comprehensive searches in MEDLINE, Embase, Scopus, and the Cochrane CENTRAL Library. Gray literature will be searched via Google Scholar, Orphanet, the World Health Organization Institutional Repository for Information Sharing, the International Network of Agencies for Health Technology Assessment, and the National Institute for Health and Care Excellence. Identified sources will be independently screened, selected, and extracted by multiple reviewers. Data will be analyzed using descriptive statistics and qualitative content analysis, then presented in summary tables and summarized descriptively.</p><p><strong>Review registration: </strong>OSF https://osf.io/mrfev.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2026-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148963768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors affecting patient safety in teleconsultations for health services: a scoping review protocol. 影响医疗服务远程会诊患者安全的因素:范围审查方案。
IF 6.8
JBI evidence synthesis Pub Date : 2026-09-14 DOI: 10.11124/JBIES-25-00373
Juliana Salomão Rocha de Oliveira, Sineide Santos de Souza, Pamela Caroline Santos Uemoto, Edmilson Lins da Silva, Érica Brandão de Moraes, Rodrigo Jensen, Helena Aparecida De Rezende, Maristela Santini Martins
{"title":"Factors affecting patient safety in teleconsultations for health services: a scoping review protocol.","authors":"Juliana Salomão Rocha de Oliveira, Sineide Santos de Souza, Pamela Caroline Santos Uemoto, Edmilson Lins da Silva, Érica Brandão de Moraes, Rodrigo Jensen, Helena Aparecida De Rezende, Maristela Santini Martins","doi":"10.11124/JBIES-25-00373","DOIUrl":"https://doi.org/10.11124/JBIES-25-00373","url":null,"abstract":"<p><strong>Objective: </strong>This review will map the factors affecting patient safety in teleconsultations for health care services.</p><p><strong>Introduction: </strong>The use of communication technologies has gained prominence in the new paradigm of health care delivery. However, despite this expansion, patient safety during the delivery of telehealth initiatives has not been systematically mapped, particularly regarding the factors that affect safe care in teleconsultations.</p><p><strong>Eligibility criteria: </strong>This review will consider studies that investigate factors affecting patient safety in teleconsultations for health care services. Eligible studies must focus on synchronous interactions between patients and health care professionals conducted via telephone or video conferencing. This scoping review will consider quantitative, qualitative, and mixed methods study designs, as well as review articles, editorials, and textual evidence pieces.</p><p><strong>Methods: </strong>This review will be conducted in accordance with the JBI methodology for scoping reviews. The databases to be searched include PubMed, CINAHL (EBSCOhost), Scopus, ScienceDirect, LILACS Plus, and Embase (Embase.com), with librarian support during the search stage. Gray literature will be searched via Google Scholar, ProQuest Dissertations and Theses Global (ProQuest), and the Catalog of Theses and Dissertations of the Coordination of Higher Level Staff Improvement (Coordenação de Aperfeiçoamento de Pessoal de Nível Superior-Brasil). Additionally, 17 official websites of prominent health care institutions will be consulted. Data extraction will be performed in pairs with consensus rounds, by a team composed of experts on the topic and methodology. Sources published in any language will be included. A descriptive analysis will be conducted to present the findings.</p><p><strong>Review registration: </strong>OSF osf.io/4f8hp.</p>","PeriodicalId":36399,"journal":{"name":"JBI evidence synthesis","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2026-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148963760","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信
小红书