{"title":"Parents’ Experiences of How Healthcare Professionals Communicate with Autistic Children","authors":"A. Westaway","doi":"10.1080/13575279.2022.2119939","DOIUrl":"https://doi.org/10.1080/13575279.2022.2119939","url":null,"abstract":"ABSTRACT Autistic children may have increased healthcare requirements as well as a range of communication difficulties and needs. However, there are reports in the literature that their healthcare experiences are not always satisfactory. Using qualitative research methodology and content analysis, this study aimed to investigate parents’ experiences of the ways in which healthcare professionals communicate and interact with autistic children and identifies the different communicative styles that parents consider to be successful or unsuccessful. Parents also describe these styles in terms of the impact that they have on children and also on parents themselves. These findings are discussed in relation to the existing literature around communication in healthcare, with recommendations for how parental experiences can be used to inform future healthcare practice for autistic children.","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":"29 1","pages":"68 - 82"},"PeriodicalIF":1.9,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48794056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
E. Shaffer-Hudkins, Henry Wood-Downie, Jason Hangauer
{"title":"Editorial","authors":"E. Shaffer-Hudkins, Henry Wood-Downie, Jason Hangauer","doi":"10.1080/13575279.2023.2165301","DOIUrl":"https://doi.org/10.1080/13575279.2023.2165301","url":null,"abstract":"This special edition of Child Care in Practice presents a range of articles that consider how the wellbeing of children on the autism spectrum can be promoted. This is considered from different perspectives and in different settings, including in education and healthcare. A consistent theme is the importance of environmental factors and adaptations that can be made at this level to promote wellbeing, as well as interventions that more directly focus on the individual child. The first two papers in this special edition address important and commonly co-occurring issues associated with autism. In the first paper, Donaghy et al. (2022) present a narrative review of co-occurring physical health issues associated within neurodivergent populations, including Ehlers-Danlos syndrome, Joint hypermobility syndrome, pain, and gastro-intestinal problems. The authors discuss the impact such conditions can have on the educational experiences of children on the autism spectrum, as well as barriers to obtaining appropriate support. The paper provides recommendations for key stakeholders to support such health issues, such as making environmental adaptations (e.g. to accommodate sensory processing differences), interoceptive training for the young people with health conditions, and the need for better awareness of co-occurring health issues for those that support these young people. In the second paper, Dr Nicola Cann (2022) discusses sleep problems in autism, including their aetiology and interventions to address such issues in children and adolescents on the autism spectrum. The author highlights the high prevalence of sleep issues in autism and the impact on quality of life this can have. Sleep issues are also linked to core aspects of difference in autism, such as social relationships and repetitive behaviours, as well as anxiety. The paper concludes that adopting a person-centred and multi-disciplinary approach is essential when working with autistic children and adolescents with sleep issues. The third and fourth papers identify contemporary recommendations for supporting neurodiversity both in medical settings, related to sensory processing challenges individuals with autism may experience, as well as discussing broader implications of supporting neurodiversity for individuals with autism. In the third paper (Williams et al., 2022), one author describes first-hand experience as an autistic individual receiving inpatient mental health services as an adolescent, while another is an adoptive parent of children with complex needs as well as a licensed psychotherapist specializing in children and family issues. The paper also discusses differences between traditional person-first terminology and identity-first language utilized throughout the paper, as does the fourth paper, through a contemporary lens. Through qualitative research methodology, the authors detail aspects of inpatient hospital stays that can be particularly aversive for autistic individuals from","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":"29 1","pages":"1 - 2"},"PeriodicalIF":1.9,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48064798","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Amy K. Izuno-Garcia, Morgan M. McNeel, Rachel H. Fein
{"title":"Neurodiversity in Promoting the Well-Being of Children on the Autism Spectrum","authors":"Amy K. Izuno-Garcia, Morgan M. McNeel, Rachel H. Fein","doi":"10.1080/13575279.2022.2126436","DOIUrl":"https://doi.org/10.1080/13575279.2022.2126436","url":null,"abstract":"ABSTRACT Autism spectrum disorder (ASD) is a neurodevelopmental disorder marked by differences in social communication and the presence of restricted and repetitive patterns of behaviors and interests [American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders]. The prevalence rate of autism has increased in recent years, now occurring in 1 in 44 children in the United States [Maenner et al. (2021). Prevalence of autism spectrum disorder among children aged 8 years – Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018. Surveillance Summaries, 70(11), 1–16. https://doi.org/10.15585/mmwr.ss7011a1 ]. As more children are identified as autistic, more healthcare and educational professionals are involved in the care of these unique individuals. Understanding the challenges, as well as the strengths, of individuals on the autism spectrum is paramount to promoting the well-being of these children. One framework that aids in better understanding and supporting autistic individuals is the neurodiversity paradigm. The purpose of this practitioner review is to: (1) provide a broad overview of the tenets of the neurodiversity paradigm and (2) provide recommendations for neurodiversity affirming service provision.","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":"29 1","pages":"54 - 67"},"PeriodicalIF":1.9,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42171128","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Co-Occurring Physical Health Challenges in Neurodivergent Children and Young People: A Topical Review and Recommendation","authors":"B. Donaghy, D. Moore, Jane Green","doi":"10.1080/13575279.2022.2149471","DOIUrl":"https://doi.org/10.1080/13575279.2022.2149471","url":null,"abstract":"ABSTRACT Background Neurodivergence has been established as associated with a significant number of co-occurring physical conditions, particularly for autistic individuals who are at risk for increased pain, hypermobility (including Ehlers-Danlos Syndrome) and gastrointestinal problems. However, data, so far, has been focused on adults and generally limited to discussions of condition prevalence alone. Methods The following article will present a topical review of the literature considering evidence for increased physical health concerns within neurodivergent populations, particularly autistic individuals, with a focus on the impact that these physical health concerns may have in an educational setting. Results and discussion The impact of physical health concerns within neurodivergent populations in an educational setting may be concerning. Such populations may face a range of challenges in obtaining appropriate support for physical conditions. We discuss a number of said challenges including; communication challenges, misattributing physical health symptoms as a part of neurodivergence, and a history of not being believed, which limits symptomatic reporting. We further consider the potential impact these physical health concerns may have on scholastic and social development, such as impacts for attainment and attendance. Furthermore, we provide recommendations for teachers, parents/carers and other allied professionals in young people’s lives, on supporting young neurodivergent people with physical health concerns.","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":"29 1","pages":"3 - 21"},"PeriodicalIF":1.9,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41631882","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Parents’ Self-efficacy and Children’s Behavior in the First Wave of the COVID-19 Pandemic in Greece","authors":"Anastasia Vatou","doi":"10.1080/13575279.2022.2126438","DOIUrl":"https://doi.org/10.1080/13575279.2022.2126438","url":null,"abstract":"ABSTRACT This exploratory study examines parents’ views of their parenting self-efficacy and children’s behaviour during the first wave of the COVID-19 pandemic in Greece. One hundred and fifty-nine parents whose children were 3–5 years old completed an online survey. The Short-Form of the Self-Efficacy for Parenting Tasks Index-Toddler Scale (SEPTI-TS) and the Strengths and Difficulties Questionnaire (SDQ) were used to assess parents’ self-efficacy and children’s behaviour problems, respectively. Data were collected from the 1st of April to the 31st of May 2020. Results from the descriptive statistical analysis revealed that young children did not show any behavioural challenges during this period, whereas parents experienced low levels of self-efficacy for their parenting skills, especially on discipline and routines. The results from MANOVA analysis demonstrated that a child’s total difficulties score impacted on a parent’s self-efficacy. The findings suggest that intervention programmes and policies that focus on parents’ support can enhance parents’ self-efficacy during times of crisis.","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":"29 1","pages":"458 - 469"},"PeriodicalIF":1.9,"publicationDate":"2022-10-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46584901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Mediating Role of Self-esteem in the Relationship between Persistence and Satisfaction with School and Life in Elementary School Children","authors":"Masahiro Imafuku, Airi Akatsuka","doi":"10.1080/13575279.2022.2124956","DOIUrl":"https://doi.org/10.1080/13575279.2022.2124956","url":null,"abstract":"","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2022-10-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48270968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An integrated play based curriculum for young children (2nd ed.)","authors":"Catriona Rogers","doi":"10.1080/13575279.2022.2126217","DOIUrl":"https://doi.org/10.1080/13575279.2022.2126217","url":null,"abstract":"","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":"29 1","pages":"335 - 336"},"PeriodicalIF":1.9,"publicationDate":"2022-10-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41765260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"African Americans Caregiving During COVID-19","authors":"Nakieta M. Lankster, Jessica C. Williams","doi":"10.1080/13575279.2022.2118672","DOIUrl":"https://doi.org/10.1080/13575279.2022.2118672","url":null,"abstract":"ABSTRACT The Coronavirus-19 (COVID-19) pandemic has caused global distress, and communities of color are disproportionately adversely affected. Within this group, many caregivers are concerned about issues such as staying healthy, keeping the family well, paying bills, and caring for children who are housebound. The purpose of this qualitative study is to explore the challenges facing caregivers, the manner in which systemic discrepancies have impacted African American caregivers, and how COVID-19 responses have exacerbated pre-existing issues. To do this, we administered semi-structured interviews to caregivers residing in California, Georgia, Maryland, Indiana, Alabama, and New York regarding their experiences caregiving during the COVID-19 pandemic. Data were then analyzed using grounded theory and content analysis. The results indicate an increase in subjective mental health symptomology, stressors associated with social isolation, and compounded stress due to civil unrest during the COVID-19 pandemic. Practical solutions for practitioners and caregivers are provided based on study findings. In addition, the authors of this study wish to bring awareness to the societal and systemic issues that adversely impact this population.","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":"29 1","pages":"343 - 357"},"PeriodicalIF":1.9,"publicationDate":"2022-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47812558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Muna Al Mushaikhi, Julie Taylor, Ben Donagh, A. Swift
{"title":"Health Education, its Methods and Effects on Parents’ Knowledge, Attitudes, and Behaviours to Prevent Unintentional Child Injuries at Home: A Systematic Review","authors":"Muna Al Mushaikhi, Julie Taylor, Ben Donagh, A. Swift","doi":"10.1080/13575279.2022.2121682","DOIUrl":"https://doi.org/10.1080/13575279.2022.2121682","url":null,"abstract":"","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2022-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48440353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Can Child Protection Social Workers Forecast Future Actions, Events and Outcomes? a Case Study of Long-term Work with Five Families.","authors":"D. Wilkins, M. Meindl","doi":"10.1080/13575279.2022.2118674","DOIUrl":"https://doi.org/10.1080/13575279.2022.2118674","url":null,"abstract":"","PeriodicalId":35141,"journal":{"name":"Child Care in Practice","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2022-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46626818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}