{"title":"Working Therapeutically with Parents after the Diagnosis of a Child's Cerebral Palsy: Issues and Practice Guidelines","authors":"J. Higginson, M. Matthewson","doi":"10.1017/jrc.2014.6","DOIUrl":"https://doi.org/10.1017/jrc.2014.6","url":null,"abstract":"Little is known about the effectiveness of psychoeducational support groups on positive adaptation in parents and families after a child has been diagnosed with cerebral palsy. A systematic literature review adopting the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines was conducted to gain an understanding of the process of adaptation in parents with a child with cerebral palsy and the effects psychoeducational support programs have on this process. The databases searched were psychINFO, Taylor and Francis Online, PsychARTICLES, Medline and ProQuest. A total of 1083 papers were found and 19 of those papers were analysed. A narrative approach was used to synthesise the data extracted. A number of factors that influence adaption within a family after the diagnosis of cerebral palsy in a family member were identified in the review. These factors include, but are not limited to, providing appropriate and relevant information to parents and families, identifying community services and resources available to the family, assisting in the reduction of psychosocial distress, and encouraging the facilitation and collaboration of a strong parent-professional partnership throughout the process. Based on this information guidelines for psychoeducation programs for this client group were proposed.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"40 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2014-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125337383","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"JRC volume 20 issue 1 Cover and Back matter","authors":"","doi":"10.1017/jrc.2014.8","DOIUrl":"https://doi.org/10.1017/jrc.2014.8","url":null,"abstract":"","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"25 1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2014-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132796151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"JRC volume 20 issue 1 Cover and Front matter","authors":"","doi":"10.1017/jrc.2014.7","DOIUrl":"https://doi.org/10.1017/jrc.2014.7","url":null,"abstract":"","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"11 suppl_1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2014-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132333768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Needs, Challenges and Goals of Australian Women With Disabilities: A Preliminary Survey","authors":"S. Copas, D. Dorstyn","doi":"10.1017/jrc.2014.3","DOIUrl":"https://doi.org/10.1017/jrc.2014.3","url":null,"abstract":"An online survey of adult women living in Australia with an acquired or congenital disability was conducted to explore the needs and challenges experienced by this population. Data for 116 respondents with a primary mobility (n = 92), sensory-related (n = 12), psychiatric (n = 6), or neurocognitive impairment (n = 6) were collected. Word clouds and content analysis were utilised to examine the data. Barriers to achieving vocational, health and relationship goals were identified, including systemic (e.g. financial resources, accessibility issues, societal attitudes), physical (e.g. medical sequalae), and psychological (e.g. self-concept, assertiveness) issues. Strategies to overcome these barriers included increased availability of peer support networks and opportunities for personal development. It follows that disability services require a multi-faceted approach, with a focus on biopsychosocial factors that include, but are not limited to, mobility, self-care and communication needs.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"30 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2014-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130381258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Introduction and Overview","authors":"C. E. Degeneffe","doi":"10.1017/jrc.2013.11","DOIUrl":"https://doi.org/10.1017/jrc.2013.11","url":null,"abstract":"Often referred to as the ‘silent epidemic’, traumatic and other forms of acquired brain injury are now considered to represent a significant and growing public health problem worldwide. Beyond the direct impacts of acquired brain injury on injured persons, this disability likewise impacts families. While medical personnel and acute rehabilitation services deliver an incredible array of high quality and sophisticated techniques to treat acute injuries, a concomitant service delivery system to support the needs of families is lacking. This is especially unfortunate given the extensive array of instrumental and affective forms of care families provide to their injured family members, often resulting in high levels of caregiver burden, depression and anxiety.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"477 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115874520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth C. Morriss, Suzanne Wright, Sharon Smith, Judy Roser, Melissa Kendall
{"title":"Parenting Challenges and Needs for Fathers Following Acquired Brain Injury (ABI) in Queensland, Australia: A Preliminary Model","authors":"Elizabeth C. Morriss, Suzanne Wright, Sharon Smith, Judy Roser, Melissa Kendall","doi":"10.1017/jrc.2013.15","DOIUrl":"https://doi.org/10.1017/jrc.2013.15","url":null,"abstract":"Parenting following acquired brain injury (ABI) has received little empirical or clinical investigation. The current study aimed to explore the challenges facing fathers following ABI and identify their needs for support. Interviews were conducted with three men with ABI, two partners and three rehabilitation coordinators. Five themes emerged from the data and a preliminary model of parenting for fathers following injury was developed. The interactive effects of the ABI and associated impairment on family relationships/functioning, perceptions/identity of parenting role, parenting knowledge/skills and confidence/self efficacy are described. Interventions should be flexible, individualised and tailored to address the unique parenting needs of the father within each family.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129973095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"JRC volume 19 issue 2 Cover and Front matter","authors":"","doi":"10.1017/jrc.2013.20","DOIUrl":"https://doi.org/10.1017/jrc.2013.20","url":null,"abstract":"","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"30 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121915640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elena López de Arroyabe, E. Calvete, C. L. Hayas, Anik Zubizarreta
{"title":"Distress of the Caregiver in Acquired Brain Injury: Positive aspects of care to moderate the effects of psychological problems","authors":"Elena López de Arroyabe, E. Calvete, C. L. Hayas, Anik Zubizarreta","doi":"10.1017/jrc.2013.13","DOIUrl":"https://doi.org/10.1017/jrc.2013.13","url":null,"abstract":"Acquired brain injury (ABI) causes numerous problems, including cognitive and personality changes, which can be quite stressful for caregivers. In this study, we aimed to adapt an instrument to measure caregivers’ distress, the Relative Version of the Head Injury Behaviour Scale (HIBS; Godfrey et al., 2003) to the Spanish language and to determine whether the positive aspects of caregiving moderate the effects of the psychological problems of ABI on caregivers’ distress. Moderation analyses indicated that positive aspects of caregiving involving one's outlook on life reduced the association between psychological problems and caregivers’ distress. The findings suggest that although the caregiver role is a source of distress, this role can also become a source of satisfaction, actually contributing to reducing caregivers’ distress. The importance of promoting the positive aspects of caregiving in rehabilitation programmes is discussed.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129737081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Future Concerns Among Families Following Brain Injury in the United States: Views from the Brain Injury Association of America State Affiliates","authors":"M. Tucker, C. E. Degeneffe","doi":"10.1017/jrc.2013.16","DOIUrl":"https://doi.org/10.1017/jrc.2013.16","url":null,"abstract":"The objective of this study was to examine brain injury professionals’ perspectives on the future concerns of families of persons with brain injuries in the United States of America. A total of 28 persons in leadership positions with the Brain Injury Association of America (BIAA) participated. Through qualitative data analysis of an open-ended question in an electronic survey containing both qualitative and quantitative questions, participants identified future concerns related to future caregiving responsibilities, financial concerns, living arrangements, recovery, access to professional care, relationships and employment. The findings indicate that many families are unprepared to meet the future care and support needs of their injured family members.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121674076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Norup, Daniel J. Snipes, Lars Siert, E. L. Mortensen, P. Perrin, J. Arango-Lasprilla
{"title":"Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury","authors":"A. Norup, Daniel J. Snipes, Lars Siert, E. L. Mortensen, P. Perrin, J. Arango-Lasprilla","doi":"10.1017/jrc.2013.12","DOIUrl":"https://doi.org/10.1017/jrc.2013.12","url":null,"abstract":"Scant research has examined health-related quality of life (HRQoL) in family members of patients with severe brain injury, even less has been done in Scandinavian countries, and none has examined this construct longitudinally. The current study therefore used multilevel modelling to investigate the trajectories of HRQoL in 94 Danish family members of patients with severe brain injury at five time points, beginning at the patient's stay in a neuro intensive care unit through one year after injury. The family members’ HRQoL scores significantly and strongly increased over time, and Role Limitations – Emotional scores were higher when patients had high Rancho Los Amigos Scale scores at admission to early intensive rehabilitation in hospital. These results suggest that the acute and sub-acute periods after brain injury are an extremely difficult time psychologically for many families, and family-based mental health interventions during the acute and sub-acute phases are critical, especially for families who have a patient with severe deficits.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"76 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131515151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}