儿童脑瘫诊断后与父母的治疗工作:问题和实践指南

J. Higginson, M. Matthewson
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引用次数: 7

摘要

在孩子被诊断为脑瘫后,心理教育支持小组对父母和家庭积极适应的有效性知之甚少。采用系统评价和荟萃分析(PRISMA)指南的首选报告项目进行了系统的文献综述,以了解脑瘫儿童父母的适应过程以及心理教育支持计划对这一过程的影响。检索的数据库包括psychINFO、Taylor and Francis Online、PsychARTICLES、Medline和ProQuest。共发现1083篇论文,并对其中19篇论文进行了分析。采用叙述方法综合提取的数据。在回顾中确定了一些影响家庭成员在诊断脑瘫后适应的因素。这些因素包括但不限于向父母和家庭提供适当和相关的信息,确定家庭可用的社区服务和资源,协助减少心理社会困扰,并鼓励在整个过程中促进和合作建立强有力的父母-专业伙伴关系。在此基础上,提出了针对这一群体的心理教育指导方针。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Working Therapeutically with Parents after the Diagnosis of a Child's Cerebral Palsy: Issues and Practice Guidelines
Little is known about the effectiveness of psychoeducational support groups on positive adaptation in parents and families after a child has been diagnosed with cerebral palsy. A systematic literature review adopting the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines was conducted to gain an understanding of the process of adaptation in parents with a child with cerebral palsy and the effects psychoeducational support programs have on this process. The databases searched were psychINFO, Taylor and Francis Online, PsychARTICLES, Medline and ProQuest. A total of 1083 papers were found and 19 of those papers were analysed. A narrative approach was used to synthesise the data extracted. A number of factors that influence adaption within a family after the diagnosis of cerebral palsy in a family member were identified in the review. These factors include, but are not limited to, providing appropriate and relevant information to parents and families, identifying community services and resources available to the family, assisting in the reduction of psychosocial distress, and encouraging the facilitation and collaboration of a strong parent-professional partnership throughout the process. Based on this information guidelines for psychoeducation programs for this client group were proposed.
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