FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities最新文献_第2页

Reflections of the experiences of people with and without learning disabilities conducting research together in a community learning disability team 有学习障碍者和无学习障碍者在社区学习障碍小组共同开展研究的经验反思

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-12-01 DOI: 10.53841/bpsfpid.2023.21.3.41

Sarah Webster, Sofia Oliveira Andrade

引用次数: 0

Empirical Project: Investigating the onset and trajectory of Alzheimer’s disease in Down syndrome 经验项目：调查唐氏综合征阿尔茨海默病的发病和发展轨迹

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-12-01 DOI: 10.53841/bpsfpid.2023.21.3.67

Olivia Pounds

{"title":"Empirical Project: Investigating the onset and trajectory of Alzheimer’s disease in Down syndrome","authors":"Olivia Pounds","doi":"10.53841/bpsfpid.2023.21.3.67","DOIUrl":"https://doi.org/10.53841/bpsfpid.2023.21.3.67","url":null,"abstract":"Three decades of data, collected at a community learning disability service in a region of the UK, are reported on. Participants included 579 people with Down syndrome (DS), who were followed up from baseline to the point of a dementia diagnosis, and in some cases until death. Since most people with DS develop Alzheimer’s disease (AD), the aim was to see whether certain neuropsychological measures were changing in the prodromal stages of AD, above that of normal ageing, to support timely diagnoses. Variables associated with earlier age at dementia onset and subsequent survival times were also assessed. Generalised linear mixed models in R were used to compute prodromal changes for 204 of the sample, who had more than two complete assessments. Regression and hazard regression models in SPSS were used for onset (n= 279) and survival times (n= 185), respectively. Results suggest that difficulties with lexical-retrieval and visual memory may be early indicators of later AD. Awareness of the level of intellectual disability appears essential, since profound disability produced ‘floor’ effects, which impacted on the possibility for later declines. Earlier age at first assessment and living with family were predictive of an earlier age at diagnosis, which then led to longer duration of life, post-diagnosis. Both earlyand late-onset epilepsy, and living in a long-stay hospital were associated with earlier mortality. Implications for clinical practice and research are discussed.","PeriodicalId":302131,"journal":{"name":"FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities","volume":"237 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138991878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Does psychological distress impact Wechsler Adult Intelligence Scale performance in adults with intellectual disabilities? A systematic review 心理困扰会影响智障成人的韦氏成人智力量表成绩吗？系统回顾

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-12-01 DOI: 10.53841/bpsfpid.2023.21.3.15

Thom Gourley, Robert Moody, L. Yates, N. Beail, N. Vlissides, G. Rawlings

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Conducting video therapy with adults with an intellectual disability: A qualitative study of qualified and trainee NHS psychologists’ experiences 对智障成人进行视频治疗：对国家医疗服务系统合格心理学家和实习心理学家经验的定性研究

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-12-01 DOI: 10.53841/bpsfpid.2023.21.3.50

Jon Codd, Hope Blocksidge, Lara Willis

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Event summary: A focus on domestic violence and forced marriage in adults with a learning disability 活动总结:关注有学习障碍的成年人的家庭暴力和强迫婚姻

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-08-01 DOI: 10.53841/bpsfpid.2023.21.2.51

Chantelle Halford, Ellie McKillop, A. Spencer

{"title":"Event summary: A focus on domestic violence and forced marriage in adults with a learning disability","authors":"Chantelle Halford, Ellie McKillop, A. Spencer","doi":"10.53841/bpsfpid.2023.21.2.51","DOIUrl":"https://doi.org/10.53841/bpsfpid.2023.21.2.51","url":null,"abstract":"The North Thames Special Interest Group Annual Study Day was held in the BPS London Office in December. The day consisted of a business meeting and two presentations from Professor Michelle McCarthy, an expert in the area of sexuality and relationships in individuals with a learning disability. The first presentation focused on the issue of domestic violence affecting women with a learning disability. The second raised awareness of forced marriage of individuals with a learning disability. Both presentations discussed the characteristics, risk factors and considerations for clinicians to be aware of.■This article describes a meeting that many psychology professionals working within learning disability services attended in the North London area.■There was a business meeting in the morning and two presentations by Michelle McCarthy in the afternoon. Michelle McCarthy has done a lot of research on sexuality and relationships for people with a learning disability.■She talked about two dangers that can affect people with a learning disability (domestic violence and forced marriage). The article summarises what the authors learned from both presentations.","PeriodicalId":302131,"journal":{"name":"FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133511414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Event summary: Training, recruitment and retention of clinical psychologists in the learning disability services 活动总结:培训，招聘和保留学习障碍服务的临床心理学家

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-08-01 DOI: 10.53841/bpsfpid.2023.21.2.56

J. Roberts, Katie M. Ferrara

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An audit of psychology risk screen completion across five time points and consideration of risk content 审计心理风险屏幕完成跨越五个时间点和风险内容的考虑

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-08-01 DOI: 10.53841/bpsfpid.2023.21.2.43

M. Hearn

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Promoting the intellectual disability specialty within clinical psychology training; what are the barriers and how can we overcome them? 在临床心理学培训中推进智障专业建设障碍是什么，我们如何克服它们?

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-08-01 DOI: 10.53841/bpsfpid.2023.21.2.5

A. Spencer, J. Crabtree, Jenni Shaw, Catherine Randle-Phillips, K. Theodore, Hayley Thomas, Karen Dodd, Danielle Arnold

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A reflection on the importance of standardised Dementia guidelines for intellectual disabilities: A clinical audit 对智力残疾的标准化痴呆指南的重要性的反思:临床审计

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-08-01 DOI: 10.53841/bpsfpid.2023.21.2.33

Francesca Reyers, Deva D’Cruz

{"title":"A reflection on the importance of standardised Dementia guidelines for intellectual disabilities: A clinical audit","authors":"Francesca Reyers, Deva D’Cruz","doi":"10.53841/bpsfpid.2023.21.2.33","DOIUrl":"https://doi.org/10.53841/bpsfpid.2023.21.2.33","url":null,"abstract":"This paper discusses the outcomes of an audit of a Community Learning Disabilities Team (CLDT) dementia pathway in the North East. The audit results were reflected on by two assistant psychologists under the supervision of a principal clinical psychologist. 80 out of 128 recommendations of the NG97 National Institute for Health and Care Excellence (NICE) guidelines were deemed as not relevant to the CLDT. 45 relevant recommendations were met, three recommendations were deemed as both partially relevant and partially met. It was concluded that these findings highlight a need for intellectual disability-specific recommendations for more standardised dementia pathways within CLDTs.■As individuals with intellectual disabilities (ID) are more likely to be diagnosed with dementia than the general population, it is important to undertake regular audits to ensure that services are delivering the best care in-line with clinical standards.■An audit of the NICE guidelines for Dementia was completed through team meetings of different professionals who work on a CLDT dementia pathway.■Out of 128 recommendations, 80 recommendations were not relevant to the CLDT, 45 recommendations were relevant, and three were partially relevant.■All the relevant recommendations were being met■It was concluded that there is a need for ID-specific guidelines to standardise dementia pathways within CLDTs.","PeriodicalId":302131,"journal":{"name":"FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131329767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Psychologists’ experiences and perspectives of adults with long-Covid and neurodiversity, including intellectual disabilities 心理学家对患有长covid和神经多样性(包括智力残疾)的成年人的经验和观点

FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities Pub Date : 2023-08-01 DOI: 10.53841/bpsfpid.2023.21.2.23

G. Rawlings, N. Beail

{"title":"Psychologists’ experiences and perspectives of adults with long-Covid and neurodiversity, including intellectual disabilities","authors":"G. Rawlings, N. Beail","doi":"10.53841/bpsfpid.2023.21.2.23","DOIUrl":"https://doi.org/10.53841/bpsfpid.2023.21.2.23","url":null,"abstract":"While there is an increasing number of studies aimed at better understanding long-Covid, there is a lack of research involving people with intellectual disabilities (ID). We asked 12 psychologists working in long-Covid services, their views of the condition in adults with neurodiversity. While it was relatively common for psychologists to work with people with neurodiversity and long-Covid, eight had never worked with someone with ID in their service. Psychologists identified factors that may be predispose, precipitate, and perpetuate the condition in this group. Data reflects the importance of considering the intersection between ID and long-Covid. Guidelines recommend the adaptations of long-Covid treatments for people with ID; we provide examples of how this could be achieved.■The symptoms that people can experience after recovering from the Covid-19 virus has been called long-Covid or post-Covid syndrome.■While we are learning more about long-Covid, there is little research that includes people with neurodiversity.■Psychologists in services for people with long-Covid do not see people with intellectual disability often.■Our findings can help guide research being conducted in this area, and clinicians who are likely to encounter someone with long-Covid and neurodiversity.","PeriodicalId":302131,"journal":{"name":"FPID Bulletin: The Bulletin of the Faculty for People with Intellectual Disabilities","volume":"14 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132551101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0