Rheumatology Advances in Practice最新文献_第4页

A scoping survey for the UK rheumatology occupational therapy capabilities framework. 英国风湿病职业治疗能力框架的范围调查。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-09 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf072

Yeliz Prior, Simone Battista, William J Gregory, Patricia Bisset, Sandra Derham, Dervil M Dockrell, Caroline Livesey, Gemma O'Callaghan

{"title":"A scoping survey for the UK rheumatology occupational therapy capabilities framework.","authors":"Yeliz Prior, Simone Battista, William J Gregory, Patricia Bisset, Sandra Derham, Dervil M Dockrell, Caroline Livesey, Gemma O'Callaghan","doi":"10.1093/rap/rkaf072","DOIUrl":"10.1093/rap/rkaf072","url":null,"abstract":"Objectives: An online survey was conducted to explore the clinical roles and expertise of rheumatology occupational therapists (OTs) to inform the development of a UK-specific capabilities framework to enhance care quality and career progression.Methods: A working group established through the British Society for Rheumatology (BSR) designed and disseminated an online survey via social media and profession-specific networks. Snowball sampling was employed. The survey collected data on job roles, work settings, satisfaction levels, perceived National Health Service Agenda for Change banding appropriateness and comfort with the European Alliance of Associations for Rheumatology (EULAR) Core Competencies. Responses underwent descriptive analysis.Results: Eighty-eight rheumatology OTs participated in the survey. Most worked full time (18.2%) at Band 6 (44.3%) or Band 7 (46.6%), primarily in acute settings (73.9%). The majority (75-90%) dedicated their time to direct clinical contact, with 75% feeling their job description accurately reflected their role and 23% reporting they had not had sufficient formal training to perform their job role. Participants performed a wide range of job roles, including assessment and advice on activities of daily living (97.7%), hand function (100%), self-management education (96.6%) and fatigue management education (95.5%). Comfort with applying EULAR competency recommendations was generally high, but 11% reported difficulty assessing the educational needs of people with rheumatic and musculoskeletal diseases and 9% with the ability to select and apply outcome measures.Conclusion: The findings highlight the need for a structured capabilities framework for UK OTs in rheumatology to improve standardisation, career progression and quality of care.","PeriodicalId":21350,"journal":{"name":"Rheumatology Advances in Practice","volume":"9 3","pages":"rkaf072"},"PeriodicalIF":2.1,"publicationDate":"2025-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12202759/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144529479","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Comment on: Longitudinal risk of serious infections in patients with inflammatory arthritis on immunomodulating therapy compared to controls. 评论：与对照组相比，接受免疫调节治疗的炎症性关节炎患者严重感染的纵向风险。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-05 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf068

Rebecca Parry

引用次数: 0

Comment on: Longitudinal risk of serious infections in patients with inflammatory arthritis on immunomodulating therapy compared to controls: Reply. 评论：与对照组相比，接受免疫调节治疗的炎症性关节炎患者严重感染的纵向风险：回复。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-05 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf069

Ingrid Egeland Christensen, Siri Lillegraven, Till Uhlig, Sella Aarrestad Provan

引用次数: 0

Patterns of pain and stiffness over 5 years in polymyalgia rheumatica: results from the PMR Cohort Study. 5年多肌痛风湿病的疼痛和僵硬模式：来自PMR队列研究的结果。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-05 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf060

Niall Hamad, Sara Muller, Samantha Hider, Richard Partington, Toby Helliwell, Henna Butt, Charles Hay, Christian D Mallen

{"title":"Patterns of pain and stiffness over 5 years in polymyalgia rheumatica: results from the PMR Cohort Study.","authors":"Niall Hamad, Sara Muller, Samantha Hider, Richard Partington, Toby Helliwell, Henna Butt, Charles Hay, Christian D Mallen","doi":"10.1093/rap/rkaf060","DOIUrl":"10.1093/rap/rkaf060","url":null,"abstract":"Objectives: To investigate the anatomical locations of pain and stiffness in people with polymyalgia rheumatica (PMR) and how these compare with the general population.Methods: A total of 739 people with PMR were invited to complete a postal survey at the time of their diagnosis. Respondents were sent further questionnaires after 1, 4, 8, 12, 18, 24 and 60 months. All questionnaires included a body manikin on which participants shaded areas of pain or stiffness lasting >1 day in the last month. The prevalence of pain was calculated in 44 mutually exclusive areas. Responses were compared with similar manikins completed at a single time point by an age- and gender-matched sample from a general population survey.Results: Completed surveys were received from 652 people with PMR at diagnosis, 244 at 24 months and 197 at 60 months. Pain was reported in a median of 16 sites at diagnosis, with the majority reporting bilateral shoulder (81%) and hip (59%) pain. After 1 month, the median number of pain areas in people with PMR was four-the same as the general population sample-but those with PMR continued to report more bilateral shoulder and hip pain. The converse was true for unilateral pain.Conclusion: Bilateral pain remains more common in people with PMR than their age- and gender-matched counterparts through the disease course. Causes of this pain could not be attributed but likely include residual disease activity, treatment sequelae and comorbidities. This knowledge will help to direct future investigations to improve quality of life for people with PMR.","PeriodicalId":21350,"journal":{"name":"Rheumatology Advances in Practice","volume":"9 3","pages":"rkaf060"},"PeriodicalIF":2.1,"publicationDate":"2025-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12204186/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144529482","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Strengthening rheumatology services: Rwanda's path to comprehensive training and care. 加强风湿病服务：卢旺达的综合培训和护理之路。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-05 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf071

Janvier Murayire, Kara L Neil, Emile Twagirumukiza, Emile Sebera, Menelas Nkeshimana, Zerihun Abebe, Marie Goretti Baransabira, Rosette Mutuyimana, Augustin Sendegeya, Xavier Chevalier, Jean Paul Rwabihama

引用次数: 0

Pericardial methotrexate-induced lymphoproliferative disorder in a patient with rheumatoid arthritis. 类风湿性关节炎患者甲氨蝶呤诱发的心包淋巴细胞增生性疾病。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-04 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf065

Miyu Wakatsuki, Hiroyuki Yamashita, Shintaro Aozaki, Takuya Harada, Yusuke Nakamichi, Hiroshi Kaneko

引用次数: 0

Imaging of gout: an atlas. 痛风成像：地图集。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-04 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf051

Luqman Wali, Emma Rowbotham

引用次数: 0

Atherosclerotic cardiovascular disease in systemic lupus erythematosus: from preclinical lupus to atherosclerotic plaque erosion. 系统性红斑狼疮的动脉粥样硬化性心血管疾病：从临床前狼疮到动脉粥样硬化斑块侵蚀。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-04 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf048

Sander I van Leuven, Lenny van Bon, Robin Nijveldt, Amy S Major

{"title":"Atherosclerotic cardiovascular disease in systemic lupus erythematosus: from preclinical lupus to atherosclerotic plaque erosion.","authors":"Sander I van Leuven, Lenny van Bon, Robin Nijveldt, Amy S Major","doi":"10.1093/rap/rkaf048","DOIUrl":"10.1093/rap/rkaf048","url":null,"abstract":"Patients with systemic lupus erythematosus (SLE) have increased risk of developing atherosclerotic cardiovascular disease (ASCVD). This excessive risk starts to accumulate during the earliest stages of SLE. ASCVD in SLE is associated with an adverse outcome. SLE-enhanced atherogenesis is most likely the consequence of a complex interplay between traditional risk factors and chronic auto-immune inflammation. This underscores the importance of conscientious management of traditional risk factors as well as maintaining low SLE disease activity. Shared immune pathways in SLE and ASCVD can affect the vascular biology of the atherosclerotic process in patients with SLE. In this review, we will discuss how the ASCVD risk evolves during the SLE disease course, and we consider whether patients with SLE are prone to developing superficial erosion of atherosclerotic plaques. This is highly relevant as pilot studies in the general population suggest antithrombotic therapy without stenting could be the better therapeutic approach in patients with plaque erosion.","PeriodicalId":21350,"journal":{"name":"Rheumatology Advances in Practice","volume":"9 2","pages":"rkaf048"},"PeriodicalIF":2.1,"publicationDate":"2025-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12137903/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144235027","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Physical fitness and physical activity in psoriatic arthritis: a systematic review. 银屑病关节炎的身体健康和身体活动：一项系统综述。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-02 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf066

Marlies Kaerts, Thijs W Swinnen, Wim Dankaerts, Kurt de Vlam, Barbara Neerinckx

{"title":"Physical fitness and physical activity in psoriatic arthritis: a systematic review.","authors":"Marlies Kaerts, Thijs W Swinnen, Wim Dankaerts, Kurt de Vlam, Barbara Neerinckx","doi":"10.1093/rap/rkaf066","DOIUrl":"10.1093/rap/rkaf066","url":null,"abstract":"Objectives: Despite the increased cardiometabolic risk in psoriatic arthritis (PsA) and the known beneficial effects of physical fitness (PF) and physical activity (PA) on cardiometabolic health, evidence of the current status of PF and PA in PsA is still unclear. Therefore, this study aimed to systematically review research on PF and PA in PsA.Methods: A systematic literature search using four databases was performed to include studies examining PF, specifically cardiorespiratory (CRF) and muscular fitness (MF), and PA in patients with PsA (PROSPERO ID 255501). Risk of bias (RoB) assessment was conducted. Due to the diversity of outcomes, a narrative synthesis was used.Results: Eighteen papers reporting PF and 33 papers examining PA were included. RoB was low in two studies assessing PF and in four PA studies. CRF was evaluated in two studies, indicating CRF levels similar to a sedentary general population. Handgrip strength (HGS) was reduced in PsA compared with healthy controls, but results concerning additional MF parameters were inconclusive. Three studies measured PA objectively and eight studies used a validated PA questionnaire, suggesting a decreased PA level in PsA. A negative impact of low PA and CRF levels on disease onset was observed. In contrast, a potential negative effect of biomechanical loading on disease parameters (disease onset, disease activity, structural joint and enthesial damage) was suggested.Conclusion: Current literature suggests a reduced PA level and decreased HGS, but is inconclusive regarding additional MF outcomes. Data on CRF are limited in PsA. Further robust methodological longitudinal and interventional research is needed to examine the relation between PF and PA on PsA disease parameters and cardiometabolic risk.","PeriodicalId":21350,"journal":{"name":"Rheumatology Advances in Practice","volume":"9 3","pages":"rkaf066"},"PeriodicalIF":2.1,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12188197/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144497935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Early, integrated systemic sclerosis palliative care for patients and their caregivers: description of a new model of care. 早期，综合系统性硬化症姑息治疗患者和他们的照顾者：一个新的模式的护理描述。

IF 2.1

Rheumatology Advances in Practice Pub Date : 2025-06-02 eCollection Date: 2025-01-01 DOI: 10.1093/rap/rkaf052

Julie McDonald, Carolyn Wicks, Laura Ross

{"title":"Early, integrated systemic sclerosis palliative care for patients and their caregivers: description of a new model of care.","authors":"Julie McDonald, Carolyn Wicks, Laura Ross","doi":"10.1093/rap/rkaf052","DOIUrl":"10.1093/rap/rkaf052","url":null,"abstract":"Objectives: SSc is a complex, multiorgan disease, associated with the early onset of significant symptoms, impaired quality-of-life and increased mortality due to cardiopulmonary disease. While palliative care could potentially impact the quality of life of patients and caregivers, there is currently no evidence that examines the role or efficacy of palliative care in SSc. This study describes the model of care provided in a clinic of early, integrated palliative care for patients with advanced SSc and their caregivers at a tertiary hospital.Methods: A prospective audit of the palliative care clinic's model of care was conducted during its first 12 months. Descriptive data quantified which aspects of care the patients and caregivers engaged with.Results: Between 01/07/2023 and 01/07/2024, 24 patients received 52 clinic reviews. Disease-directed management was changed for 50% of patients. Pharmacological management was prescribed for 88%. Psychological assessment and support was provided for 96% of patients and caregivers, while social support assessment was conducted for 100%. The majority of patients (88%) accepted serious illness discussion, while 58% engaged in a prognostic discussion. Advance care planning discussions were common (83%), while 42% of patients completed an advance care directive and 46% completed a medical power of attorney. Informal multidisciplinary team discussion occurred for 83% of patients.Conclusion: This clinic provided disease-orientated, multidisciplinary care alongside symptom management, psychosocial support and serious illness communication. The high uptake of key tasks signals a previously unmet palliative care need and suggests this model of care may be acceptable to patients and caregivers.","PeriodicalId":21350,"journal":{"name":"Rheumatology Advances in Practice","volume":"9 2","pages":"rkaf052"},"PeriodicalIF":2.1,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12137902/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144235028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0