Agnes Fallah Kamara, Sia Mary Kamara, Michael Gebeh, Reginald Fallah-Turay
{"title":"Using Neurodiversity-Affirming Intersectional Approaches to Build More Equitable Societies and Shape Public Policy in Liberia and Sierra Leone","authors":"Agnes Fallah Kamara, Sia Mary Kamara, Michael Gebeh, Reginald Fallah-Turay","doi":"10.1111/josi.70041","DOIUrl":"https://doi.org/10.1111/josi.70041","url":null,"abstract":"<div>\u0000 \u0000 <p>This paper discusses the consequences of cultural misunderstandings, institutional and structural obstacles, and ableism on non-speaking autistic people and their families in post-conflict Liberia and Sierra Leone, based on the global neurodiversity literature and gaps in diagnosis, support, and inclusion in the West African context. The research question will focus on whether intersectional neurodiversity perspectives can improve public policy for diverse people. The objectives will be (1) to assess social, educational, and family concerns; (2) to analyze cultural stigma and beliefs; (3) to test neurodiversity-inclusive interventions. The study utilized a thematic analysis-based qualitative and feminist multimodal design to purposely select 30 participants (10 non-speaking autistics aged 5–18, 10 parents, 10 caregivers) living in urban (60%) and non-urban (40%) areas in both countries, using interviews, focus groups, arts-based approaches, and observations as methods over the 8 months. Results revealed 90% attributing autism to supernatural causes, only 1/30 of the participants were formally diagnosed, 80% female caregivers facing isolation and financial strain, and less than 20% primary school completion due to inadequate resources. The results point to systemic injustice, and the implications include culturally responsive policies that incorporate traditional healers, diagnostic expansion (which may increase the rate of diagnostics by 50%), and equitable caregiving practices to build more equitable societies.</p>\u0000 </div>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145407446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nancy Marshall, Kirsebom Damon, Kendra, Russel, Clara
{"title":"Autistic Experiences of Applied Behavior Analysis (ABA): Toward Improved Autistic-Centered Supports","authors":"Nancy Marshall, Kirsebom Damon, Kendra, Russel, Clara","doi":"10.1111/josi.70037","DOIUrl":"https://doi.org/10.1111/josi.70037","url":null,"abstract":"<p>This study (extracted from a larger doctoral-level dissertation project) adopts a Critical Autism Studies (CAS) framework, and transformative mixed methods design, to examine lived experiences of Applied Behavior analysis (ABA) and to guide improvements in autism services. Autistic people have shared their lived experiences of the ways ABA has caused them harm due to the rigidly applied positive reinforcement and punishment procedures used to make them appear less autistic. Increasingly, ABA practitioners and researchers have responded by attempting to transform their practices to be more accepting of autistic ways of being. The four-staged methodology (surveys—interviews—analysis—participatory dissemination) responds to Milton's (2014) call for “interactional expertise” between non-autistic researchers and autistic people. The survey stage yielded 68 completed surveys from autistic people in Canada—22 respondents had received ABA and 46 had not but wished to express their views. Four participants who had received ABA—two with positive experiences and two with negative experiences—participated in semi-structured interviews and authorship of recommendations. Findings revealed diverse perspectives on ABA practices. Implications for policy and practice highlight the importance of authentically engaging with autistic communities to develop supports that are helpful and not harmful.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70037","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Legal Defense of Autistic Defendants in the United States: A Qualitative Analysis of the Experiences of Legal Professionals","authors":"Carolina R. Caliman, Colleen M. Berryessa","doi":"10.1111/josi.70034","DOIUrl":"https://doi.org/10.1111/josi.70034","url":null,"abstract":"<p>Autistic individuals encounter distinct barriers within the criminal-legal system, such as misinterpretations of their behaviors, a lack of accommodations, and systemic biases. Despite growing understanding of these challenges, research on how defense attorneys understand and advocate for autistic clients remains limited. This study explores how defense attorneys in the United States conceptualize autism and apply neurodiversity-informed strategies in their advocacy. Semi-structured interviews with 31 defense attorneys revealed that while most attorneys view autism through a medicalized lens, they acknowledge the need for better strategies to secure accommodations in court. Findings suggest that attorneys often rely on expert testimony and recognize the courtroom as primarily designed for neurotypical individuals. Gaps in training and understanding about neurodiversity may hinder effective defense strategies and limit access to justice for autistic defendants. This research highlights the urgent need for enhanced legal training and systemic reform to improve representation and legal experiences for autistic individuals.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70034","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Genealogy of Neurodiversity and Its Entangled Politics","authors":"Tom Walters","doi":"10.1111/josi.70036","DOIUrl":"https://doi.org/10.1111/josi.70036","url":null,"abstract":"<p>This article will outline a genealogy of neurodiversity, highlighting the power structures and systems that brought about the neurodiversity movement and their implications. Understanding the neurodiversity paradigm from the politicized perspective of genealogy, it builds on this to conduct an intersectional analysis of the categories of neurodiversity in the present day. It draws attention to their “entangled” relations with other types of identity and political movements. In so doing, this paper proposes the concept of “neuroliberalism.” Finally, it applies this perspective to UK education and healthcare policy, critiquing policies, such as performance-related pay.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70036","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rachel Mukwezwa Tapera, Karen Brewer, Dr Anneka Anderson
{"title":"Positioning Neurodiversity: The Perspectives of Neurodivergent African Migrants in Aotearoa, New Zealand","authors":"Rachel Mukwezwa Tapera, Karen Brewer, Dr Anneka Anderson","doi":"10.1111/josi.70039","DOIUrl":"https://doi.org/10.1111/josi.70039","url":null,"abstract":"<p>Neurodiversity, a complex phenomenon acknowledging natural variations in human brain function and behaviour, is predominantly conceptualised through a Western-centric lens. This narrow perspective excludes diverse understandings across different communities and contexts, significantly impacting equity and inclusivity for neurodivergent individuals. This paper, grounded in the African philosophy of Ubuntu, investigates the social effects of neurodiversity on African migrants and their families in Aotearoa, New Zealand. Key findings underscore the critical importance of relationality, connectedness, and diverse perspectives in understanding neurodiversity. The research reveals complex lived realities and challenges in accessing services and supports. Importantly, it highlights the profound impact of intersectionality on the everyday experiences of neurodivergent African migrants. This study argues for the urgent prioritisation of these intersectional experiences in conceptualising and implementing neurodiversity-affirming approaches across research, policy, and practice. Such inclusion is vital for creating truly equitable and inclusive societies where all neurodivergent individuals can thrive.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70039","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Towards an Inclusive Approach to Studying Social Inclusion Among Neurodivergent Adolescents and Adults","authors":"Regina Conti, Aliza Reinstein, Kati Williams","doi":"10.1111/josi.70027","DOIUrl":"https://doi.org/10.1111/josi.70027","url":null,"abstract":"<div>\u0000 \u0000 <p>The perspectives of neurodivergent people with the most intensive support needs, particularly those with multiple marginalized identities, are underrepresented in research on community inclusion. Thus, developing a method for studying social inclusion that captures every perspective is crucial for realizing the promise of neurodiversity. Based on validated measures of two dimensions of social inclusion (community participation and interpersonal relationships), we worked towards developing a method that provides quantitative and qualitative data on community experiences. With feedback from pilot participants, we developed a dyadic interview protocol that 11 neurodivergent participant-support person dyads responded to in Study 1. Study 2 incorporates taking photographs and engages 20 participant-support person dyads in an interactive interview with open-ended questions and scaled items. Findings are discussed with the goal of stimulating future research on the development of a meaningful and fully accessible methodology for studying social inclusion experiences.</p>\u0000 </div>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Tolerance as Social Practice in Antakya, Türkiye: Navigating Coexistence and Power","authors":"Reşit Kışlıoğlu","doi":"10.1111/josi.70032","DOIUrl":"https://doi.org/10.1111/josi.70032","url":null,"abstract":"<div>\u0000 \u0000 <p>In recent years\u0000, the study of intergroup relations has renewed its focus on tolerance as a lens for understanding diversity and difference. This study examines tolerance as a social practice in Antakya, a historically diverse Eastern Mediterranean city in Türkiye, situating the analysis within the legacies of the Ottoman millet system and Turkish nationhood. Drawing on social representations theory, it explores how tolerance is dialogically constructed and negotiated through everyday practices, symbolic boundaries, and political asymmetries. Semi-structured interviews with seven members of the Choir of Civilizations—a local musical group that symbolizes Antakya's intercommunal harmony—reveal how participants navigate coexistence and power in making sense of local diversity. The analysis identifies two interrelated themes. The first, “doing tolerance,” examines how local communities represent tolerance as an essentialized everyday practice and a celebrated mode of coexistence that regulates intercommunal relations within national and historical frames. The second, “beyond tolerance,” highlights tensions between political strategies of depoliticization—integrating local diversity into the national frame—and repoliticization, which critiques tolerance as a hierarchical and paternalistic framework in response to structural silences and representational constraints. The findings show how tolerance operates both as a celebrated practice of coexistence and as a representation that manages difference within existing power relations. This study offers a culturally and geopolitically grounded account of intergroup relations and demonstrates how social psychology can more fully engage with the complexities of difference in post-Ottoman contexts.</p>\u0000 </div>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145367091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jenny Mai Phan, Sara L. Middleton, Flavio Azevedo, Bethan J. Iley, Magdalena Grose-Hodge, Samantha L. Tyler, Steven K. Kapp, Siu Kit Yeung, John J. Shaw, Helena Hartmann, FORRT
{"title":"Bridging Neurodiversity and Open Scholarship: How Shared Values Can Guide Best Practices for Research Integrity, Social Justice, and Principled Education","authors":"Jenny Mai Phan, Sara L. Middleton, Flavio Azevedo, Bethan J. Iley, Magdalena Grose-Hodge, Samantha L. Tyler, Steven K. Kapp, Siu Kit Yeung, John J. Shaw, Helena Hartmann, FORRT","doi":"10.1111/josi.70035","DOIUrl":"https://doi.org/10.1111/josi.70035","url":null,"abstract":"<p>Not all people conform to socially constructed norms, nor should they have to. Neurodiversity, the natural variation in human brains and cognition, is fundamental to understanding human behavior, yet neurodivergent individuals in academia are often stigmatized, undervalued, or pressured to mask their differences. This position statement, authored predominantly by neurodivergent scholars, explores how aligning the values of the neurodiversity movement with practices of Open Scholarship (OSch) can foster greater research integrity, rigor, social responsibility and justice, diversity, equity, inclusivity, and accessibility in academia. We review systemic barriers faced by neurodivergent researchers—from disclosure dilemmas and hidden curriculum expectations to intersectional disadvantages—and identify how OSch principles (transparency, accessibility, collaboration) can help mitigate these challenges. Drawing on lived experiences and current research, we propose concrete reforms, including adopting universal design in scholarly communication, promoting participatory research methods, and enacting supportive policies (e.g., flexible work arrangements, inclusive codes of conduct). By leveraging shared values of openness and neuro-inclusion, academia can become more just and epistemically equitable. Our recommendations chart a path toward an academic culture where neurodivergent scholars can thrive openly, to the benefit of scientific rigor and social justice alike\u0000.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70035","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145366350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Geopolitical Roots and Branches: Identity Label Preferences Among People of African Descent in the United States","authors":"Kobimdi O. Iheoma, Jordyn Scott, Phia S. Salter","doi":"10.1111/josi.70029","DOIUrl":"https://doi.org/10.1111/josi.70029","url":null,"abstract":"<p>In the United States, people of African descent have historically used different labels to express their collective racial identities. Scholars have traced these historical changes over time, which have shifted for various reasons, across different political and social movements, and with changing group dynamics. The purpose of this study was to examine contemporary racial identity label preferences among people of African descent living in the United States and explore the geopolitical roots and branches of those choices. In this study, an online sample of 451 people of African descent completed a survey about their racial identity label preferences and why they selected those labels. We hypothesized that selecting one's racial label for geopolitical reasons (vs. external or accuracy reasons) would predict how people of African descent see themselves (i.e., in terms of race and ancestry), how they perceive the world (i.e., perceptions of American racism), and how they act in the world (i.e., political activism). Overall, selecting one's racial identity label preference for geopolitical reasons was a consistent predictor of our outcomes.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70029","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145366395","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}