Journal of Intellectual Disability Research最新文献

{"title":"Factors Influencing the Implementation of Transitional Care for Adolescents With Profound Intellectual and Multiple Disabilities: Experiences of Dutch Healthcare Professionals","authors":"Ilse Ooms,&nbsp;AnneLoes van Staa,&nbsp;Erica Witkamp,&nbsp;Agnes van der Heide","doi":"10.1111/jir.70101","DOIUrl":"10.1111/jir.70101","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The transition from paediatric to adult healthcare is particularly challenging for adolescents with profound intellectual and multiple disabilities (PIMD) and their families. This study aims to identify factors that Dutch healthcare professionals perceived as relevant to successful implementation of transitional care for adolescents with PIMD.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Semi-structured interviews were conducted with 20 professionals working in paediatric and adult healthcare. Data were analysed using directed content analysis, guided by Flottorp's checklist (2013) on preventing and enabling factors of improvements in healthcare.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Transitional care approaches vary at interpersonal, organisational and environmental levels. Enabling factors were parental self-reliance and competencies, a holistic perspective, professional networks, continuity and coordination of care, flexibility to deviate from standards and guidance from nonmedical actors. Preventing factors were family burden and emotions, suboptimal information transfer, insufficient agenda-setting, shortages of expert physicians and legal and administrative challenges. Continuous parental involvement and appropriate financial funding were enabling. The provision of person-centred care was considered essential.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Successful implementation of transitional care for adolescents with PIMD is a multifaceted process characterised by structural and personal challenges. Providing person-centred care increases the likelihood of appropriate transitional care in PIMD-care.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 9","pages":"935-944"},"PeriodicalIF":2.4,"publicationDate":"2026-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.70101","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147443856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Keynote Abstracts for Presentation at the SSBP 28th International Research Symposium and Educational Day, Edinburgh, UK","authors":"","doi":"10.1111/jir.70154","DOIUrl":"10.1111/jir.70154","url":null,"abstract":"","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 9","pages":"907-912"},"PeriodicalIF":2.4,"publicationDate":"2026-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.70154","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148840284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effective Translation Requires Effective Collaboration","authors":"Andrew C. Stanfield,&nbsp;Sarah E. A. Eley","doi":"10.1111/jir.70152","DOIUrl":"10.1111/jir.70152","url":null,"abstract":"","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 9","pages":"889-890"},"PeriodicalIF":2.4,"publicationDate":"2026-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148604127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Impact of Fragile X Syndrome on Caregivers: A Systematic Review","authors":"Katerina Poprelka,&nbsp;Konstantina Stavrogianni,&nbsp;Panagiota-Eleni Tsalouchidou,&nbsp;Maria Stefanatou,&nbsp;Anastasia Verentzioti,&nbsp;Athanasia Alexoudi,&nbsp;Anastasios Bonakis,&nbsp;Stylianos Gatzonis","doi":"10.1111/jir.70159","DOIUrl":"10.1111/jir.70159","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The effects of fragile X syndrome (FXS) reach beyond the individual with the condition, profoundly influencing the well-being of caregivers and family members. The aim of this review is to synthesise current evidence on the effects of FXS on caregivers, investigate contributors to their burden and identify gaps for future research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This review was conducted in accordance with PRISMA guidelines. A thorough search of electronic databases was performed to identify relevant original research. Two reviewers independently screened the studies for eligibility, and the quality of included studies was evaluated using the CASP tool. Key data were extracted, and a narrative synthesis was used to summarise and interpret the findings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty studies involving 3474 caregivers of children, adolescents and adults with FXS were included in this review. Thirteen studies were conducted in the United States, with additional research in the United States and Canada, Italy, France, the Netherlands and Australia. Female caregivers were the primary participants in most studies. Six primary factors were identified as shaping caregivers' experiences: care-recipients' age and gender, caregivers' characteristics, disease-related factors, compromised caregiver psychological well-being, disrupted family dynamics and limited support systems or unmet needs. Challenging behaviours in individuals with FXS consistently emerge as the factor exerting the greatest influence on caregivers' psychological and practical burden.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Caring for individuals with FXS places substantial burdens on caregivers, influenced by patient behaviour, family dynamics and limited support. Targeted, multidisciplinary interventions are needed to address these gaps and improve both caregiver well-being and care outcomes.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 9","pages":"945-961"},"PeriodicalIF":2.4,"publicationDate":"2026-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.70159","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148684905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Age Differences in Emotion Regulation Among Individuals With Down Syndrome.","authors":"Sophie Kowalski, Caron A C Clark","doi":"10.1111/jir.70163","DOIUrl":"https://doi.org/10.1111/jir.70163","url":null,"abstract":"<p><strong>Background: </strong>Although there is clear evidence that individuals with Down syndrome (DS) experience difficulties in identifying and interpreting emotions, there is limited research on emotional regulation in this population. Furthermore, many studies of individuals with DS focus on group comparisons against typically developing children, with few considering the role of development itself. Here, we addressed these gaps in the literature by examining individual differences in emotion regulation among individuals with DS using a multi-measure, multi-informant approach.</p><p><strong>Method: </strong>Thirty-eight individuals with DS aged 5-47 years and their caregivers completed an emotion recognition task, direct observations of their emotional negativity and self-comforting strategies during a frustrating puzzle and caregiver and participant reports of emotion regulation. Participants' language and executive function skills were also assessed.</p><p><strong>Results: </strong>Higher age was linked to less negativity and reduced use of comfort strategies during the puzzle task, although the relation of age to negativity was curvilinear, with negative behaviours being more prevalent again in late adulthood. Caregiver and self-reports indicated lower emotional lability among older participants. Language scores were linked to emotion recognition and caregiver-reported emotion regulation. Although correlated themselves, emotion recognition and executive function did not correlate significantly with other emotional regulation measures.</p><p><strong>Conclusion: </strong>Although further longitudinal research is required, results highlight the importance of a developmental perspective in research on emotion regulation in this population and suggest that interventions to enhance emotion regulation strategies may best be tailored to younger individuals with DS, whereas interventions that target language and executive function may support emotion recognition regardless of age.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148808671","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parent/Caregiver Perspectives on the Healthcare Decision-Making Involvement of Young People With Intellectual Disability: A Qualitative Study.","authors":"Jessica Keeley, Zhenmei Yeap, Thomas Nevill, Rachel Skoss, Aasta Abbott, Sandra Thompson, Sophie Haywood, Rachel Collins, Katherine Langdon, Jenny Downs","doi":"10.1111/jir.70165","DOIUrl":"https://doi.org/10.1111/jir.70165","url":null,"abstract":"<p><strong>Background: </strong>Young people with intellectual disability often have complex healthcare needs. Parent/caregivers can enhance their child's involvement in healthcare decision-making to improve treatment adherence and health outcomes. Healthcare decision-making is embedded within health literacy skillsets, and for people with intellectual disability additional time and assistance are needed to ensure preferences are included. This study aims to explore parent/caregiver perspectives on the different ways that young people with intellectual disability participate in healthcare decision-making and factors that influence involvement to inform future support resources.</p><p><strong>Methods: </strong>Fifty-three interviews were conducted with parent/caregivers of 26 females and 27 males with intellectual disability aged 10-25 years. Interviews took place online and were audio-recorded and transcribed verbatim after informed consent was provided. Interviews explored decision-making involvement at home and in healthcare settings. A conventional content analysis was conducted using NVivo.</p><p><strong>Results: </strong>The findings are organised into three overarching categories including the primary finding of the 'Ladder of decision-making involvement', which describes the different levels of participation in the decision-making process from active to passive, as described by parent/caregivers. Secondary findings include the 'Facilitators and barriers of decision-making involvement', which centre on five key areas (information, opportunities and experiences, communication, relationships, accommodations and support) and 'Parent/caregiver influences and experiences', which include reflections on the value (in terms of the young person's rights and agency), challenges and contextuality of decision-making. Some parent/caregivers did not consider it possible to involve their child in healthcare decision-making due to a perceived lack of capacity.</p><p><strong>Conclusions: </strong>This research makes an important contribution to the literature by mapping parent/caregiver perspectives on the scope of involvement and outlining key factors and influences that shape involvement opportunities, skills and experiences. Findings can inform the resources that support parent/caregivers to develop and assist decision-making skills with their child across levels of involvement.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148808624","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pathogenic Genetic Variants, Comorbid Autism and Adaptive Developmental Quotient as Independent Predictors of Intellectual Disability in Children With Global Developmental Delay: An Interpretable Machine Learning Model With Calibrated Risk Estimation.","authors":"Wang Yiwen, Yuan Junying, Zhu Dengna","doi":"10.1111/jir.70164","DOIUrl":"https://doi.org/10.1111/jir.70164","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Global developmental delay (GDD) frequently precedes intellectual disability (ID), but no validated multivariable prognostic tool exists to support individualised counselling during the initial diagnostic work-up. Existing risk indicators are typically considered in isolation, and their joint contribution within an interpretable predictive framework remains uncertain.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;We retrospectively analysed 2453 children diagnosed with GDD between January 2014 and December 2023 at a provincial tertiary children's rehabilitation centre, all followed to a minimum age of 60 months. Twenty-eight candidate predictors covering perinatal, developmental, neuroimaging, electrophysiological, genetic and comorbidity domains were retained after multiple imputation, multicollinearity screening with random-forest importance protection and standardisation. Five algorithms-L2- and L1-regularised logistic regression, random forest, XGBoost and LightGBM-were trained on a stratified 70% training partition with class-weight rebalancing; no synthetic minority over-sampling was applied. Probabilities from the L2 model were post hoc recalibrated by Platt scaling. We evaluated discrimination, calibration (slope and intercept after Platt scaling), Brier score and net benefit on the held-out 30% test set, with 1000 bootstrap confidence intervals. Sensitivity analyses excluded post-baseline candidate predictors, and we benchmarked the full model against parsimonious one-, three- and five-feature regressions.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Of the cohort, 2037 children (83.0%) progressed to ID, reflecting the referral profile of a tertiary centre. The Platt-calibrated L2 logistic regression achieved an AUC of 0.783 (95% CI 0.735-0.828) with calibration slope 1.01 and intercept -0.005, and a Brier score of 0.113 (95% CI 0.097-0.130). All five algorithms performed within a 0.015 AUC band. The strongest independent risk factors were pathogenic genetic variant pathogenicity (OR 2.13, 95% CI 1.86-2.44), comorbid autism spectrum disorder (OR 1.69, 95% CI 1.41-2.03) and EEG epileptiform discharges (OR 1.43, 95% CI 1.18-1.74); higher Gesell adaptive developmental quotient was the strongest protective factor (OR 0.45 per standardised unit, 95% CI 0.34-0.60). At the Youden-optimal threshold of 0.85, sensitivity, specificity, positive and negative predictive values were 66.1%, 76.8%, 93.3% and 31.7%, respectively. Removal of early intensive intervention from the model lowered AUC by only 0.012 (95% CI - 0.002 to 0.026), indicating that retrospective treatment information was not the primary driver of model performance. A parsimonious five-feature model achieved AUC 0.762, recovering most of the discriminative signal. Discrimination was robust to strict exclusion of post-baseline predictors (AUC 0.769), to complete-case analysis (0.839) and to restriction to genetically tested children (0.864).&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;Amon","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148808666","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Well-Being in First Person: A Relational Construction of Psychological Well-Being Among Young People With Intellectual Disabilities.","authors":"Javier Piñeiro-Cossio, Paz Cancino, Ignacia Celis, Saray Santana","doi":"10.1111/jir.70166","DOIUrl":"https://doi.org/10.1111/jir.70166","url":null,"abstract":"<p><strong>Background: </strong>Psychological well-being (PWB) has become a central construct in contemporary psychology; however, young people with intellectual disabilities (ID) remain largely underrepresented in well-being research. Much of the available evidence relies on proxy reports from caregivers or professionals, limiting understanding of how young people with ID themselves conceptualize and experience well-being. This qualitative study explores the meaning of psychological well-being from a first-person perspective among young people with mild intellectual disabilities.</p><p><strong>Method: </strong>Thirteen participants (six women and seven men, aged 15-29) took part in semi-structured interviews complemented by mind maps to support expression, organization of ideas and accessible communication. Data were analyzed inductively through line-by-line coding and constant comparison, allowing an emergent thematic structure to develop.</p><p><strong>Results: </strong>Findings portray psychological well-being as a relational, dynamic and everyday experience, closely linked to feeling accompanied, recognized and capable. Four interrelated dimensions emerged: (1) relationships as a foundation of emotional security and belonging; (2) positive interdependence, in which autonomy is enacted through supported decision-making rather than absolute independence; (3) action, including physical and sporting activities, as a pathway for emotional regulation, competence and identity affirmation; and (4) purpose and recognition, whereby goals acquire meaning through social contribution and validation.</p><p><strong>Conclusions: </strong>When contrasted with Ryff's eudaimonic model, which positions individual autonomy as its core dimension, an important tension emerges: in this study, autonomy is experienced in relational and interdependent ways. The findings support the need to broaden traditional models of psychological well-being by incorporating relational and contextual perspectives that more accurately reflect how young people with intellectual disabilities experience, construct and sustain well-being in their everyday lives.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148794163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Frailty in Adults With Down Syndrome: Cognitive, Functional and Biomarker Associations.","authors":"Georg Nübling, Lena Marth, Katja Sandkühler, Anna Stockbauer, Elisabeth Wlasich, Alexander Jäck, Olivia Wagemann, Julia Kustermann, Steffen Halbgebauer, Hayrettin Tumani, Günter Höglinger, Johannes Levin","doi":"10.1111/jir.70162","DOIUrl":"https://doi.org/10.1111/jir.70162","url":null,"abstract":"<p><strong>Background: </strong>Down syndrome (DS) entails widespread age-related functional decline affecting multiple organ systems, including genetically determined early-onset Alzheimer disease (DSAD), resulting in an increased vulnerability to frailty early in life. We investigated the relationship between frailty, cognition and intellectual disability (ID) in adults with DS and explored biomarkers associated with frailty.</p><p><strong>Methods: </strong>This cross-sectional study investigated 148 consecutive patients at a DSAD outpatient clinic. We applied correlation analyses and hierarchical linear models to determine associations of the Frailty Index for people with Intellectual Disabilities-short form (ID-FI_SF) with measures of cognition (Cambridge cognitive assessment, CAMCOG-DS), adaptive function (short adaptive behaviour scale, SABS), motor function (SPES/SCOPA), a screening tool (dementia screening questionnaire in individuals with intellectual disabilities, DSQIID-G) for dementia-related change in ADL (activities of daily living) performance, and ID severity (DSM-5). Patients were stratified as cognitively healthy, DS-MCI, DSAD dementia, secondary cognitive decline (CD) or CD of unknown cause. Exploratory analyses included blood biomarkers, bioimpedance measurements and indirect calorimetry.</p><p><strong>Results: </strong>Both baseline ID severity (β = 0.093, p = 0.014) and cognitive performance (CAMCOG-DS, β = -0.0033, p < 0.001) were independently associated with ID-FI_SF scores. Acquired cognitive decline was associated with (pre)frailty irrespective of aetiology. After adjustment for ID severity and cognition, ID-FI_SF scores were associated with adaptive function (SABS: β = -0.0033, p < 0.001), motor function (SPES-SCOPA: β = 0.015, p < 0.001), change in ADL performance (DSQIID-G: β = 0.0061, p < 0.001) and medication burden (β = 0.016, p < 0.001). Exploratory biomarker analyses identified associations with ID-FI_SF scores for markers of neurodegeneration, inflammation, body composition, cardiac function and cellular stress signalling.</p><p><strong>Conclusions: </strong>Frailty in DS is associated with both ID severity and acquired cognitive decline. Future studies should determine whether severe baseline ID increases susceptibility to frailty or primarily influences frailty measurement through lower baseline functional abilities, potentially necessitating ID-adapted frailty thresholds. Biomarker associations further support a multifactorial model of frailty involving neurodegeneration, inflammation and sarcopenia-related processes.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148794357","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effects of Organisational and Managerial Interventions in Formal Care Settings on Aggressive Behaviour in Adults With Intellectual Disability or Autistic Adults. A Systematic Scoping Review.","authors":"Yuliya Bodryzlova, Ashley J Lemieux, Evelyne Robert Berger, Marie-Joëlle Braconnier, Geneviève Pinard, Diane Morin, Anne G Crocker","doi":"10.1111/jir.70157","DOIUrl":"https://doi.org/10.1111/jir.70157","url":null,"abstract":"<p><strong>Background: </strong>Aggressive behaviour in formal care settings for persons with intellectual disability or autistic adults poses significant challenges. Individual-level interventions have shown limited efficacy, highlighting the need to explore organisational and systemic approaches. However, research remains scarce on how organisational and managerial practices affect aggressive behaviours in care settings.</p><p><strong>Objectives: </strong>This project aimed to review service organisation and managerial practices affecting aggression towards others and objects in adults with intellectual disability or autism in formal care settings.</p><p><strong>Methods: </strong>A systematic scoping review was conducted, focusing on the concepts of \"Intellectual Disability/Autism Spectrum Disorder,\" \"Aggressive Behaviour,\" and \"Care Organisation\". Academic databases (CINAHL, EMBASE, PsycINFO and Medline) and grey literature sources (Google Scholar, government sites) were searched for studies published between 1994 and 2023 in English and French. Selected articles were categorised by intervention type and a narrative synthesis was conducted for each category.</p><p><strong>Findings: </strong>Of 4426 references, 12 publications were selected for narrative synthesis. The following interventions demonstrated positive effects on the frequency and severity of aggressive behaviour in formal care settings: enhanced services and revised care pathways, improved provider accountability, staff support and more livable, homelike physical environments. No effect was found for case grouping.</p><p><strong>Conclusion: </strong>Interventions addressing organisational and managerial practices may help reduce aggressive behaviour in formal care settings. Ecological models of health may guide the efforts of decision-makers and practitioners in this endeavour.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148759521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}