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Establishing a NICU-integrated Palliative Care Service 建立新生儿重症监护室综合姑息治疗服务
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.529-A
L. Chavez, A. Hakkim, A. Damianos, J. Kimberly, J. Solis, G. Cantwell, Marta G. Galarza
{"title":"Establishing a NICU-integrated Palliative Care Service","authors":"L. Chavez, A. Hakkim, A. Damianos, J. Kimberly, J. Solis, G. Cantwell, Marta G. Galarza","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.529-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.529-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115510693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pediatric Palliative Care: Practice Variation and Recommendations 儿科姑息治疗:实践变化和建议
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.544
Louise Glaser, Katherine Schreiner, H. Homler, E. Schreiner, Q. Tran
{"title":"Pediatric Palliative Care: Practice Variation and Recommendations","authors":"Louise Glaser, Katherine Schreiner, H. Homler, E. Schreiner, Q. Tran","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.544","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.544","url":null,"abstract":"Background: Palliative care provides holistic supportive care for people with complex life-limiting disease including symptom relief, navigation of complex medical decisions and support for their unique psychological, social, and spiritual needs to enhance their quality of life. Children are distinct from adults in many ways including their diagnoses, disease trajectories, symptom burden, and spectrum of caregivers. As medical technologies improve, the number of children who are appropriate for pediatric palliative care (PPC) expertise is increasing. This project sought to characterize …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"171 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127580149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Challenges for Children Living with Complex Chronic Disease: It Takes a Village 患有复杂慢性病的儿童面临的挑战:需要一个村庄的努力
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.520
Audrey Y. Ofir, M. Nares, Kim Juanico, A. Alladin, G. Cantwell
{"title":"Challenges for Children Living with Complex Chronic Disease: It Takes a Village","authors":"Audrey Y. Ofir, M. Nares, Kim Juanico, A. Alladin, G. Cantwell","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.520","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.520","url":null,"abstract":"Introduction: Children with complex, chronic disease face hospital readmissions, considerations for advanced technologies and fractured care coordination. This case highlights the impactful role of palliative medicine in general pediatrics. Case Discussion: 16 mo female infant with congenital Zika virus infection required admission for RSV bronchiolitis and aspiration pneumonia. PMH: severe microcephaly with skull collapse, hydrocephaly, periventricular calcifications, chorioretinal scars; 3 brief admissions due to irritability and seizures. G-tube and tracheostomy considered due to severe failure to thrive, neurologic impairment and upper airway compromise. The infant’s care involved 14 subspecialties and …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"12 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134609178","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Two Case Reports: Utilizing Autopsy Review in Bereavement to Clarify Misconceptions and Help Families Find Meaning 两个案例报告:在丧亲之痛中利用尸检回顾澄清误解，帮助家庭找到意义
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.551
Melody J. Cunningham, Joanna Lyman
{"title":"Two Case Reports: Utilizing Autopsy Review in Bereavement to Clarify Misconceptions and Help Families Find Meaning","authors":"Melody J. Cunningham, Joanna Lyman","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.551","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.551","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"55 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116361752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Seeking Comfort In Complexity: A Path Home for Permanently Hospitalized Children 在复杂中寻求安慰:永久住院儿童的回家之路
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.546
C. C. Paine
{"title":"Seeking Comfort In Complexity: A Path Home for Permanently Hospitalized Children","authors":"C. C. Paine","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.546","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.546","url":null,"abstract":"Pediatric Palliative Care's guiding principle of whole-patient and whole-family care brings with it a unique opportunity to appreciate and advocate for care gaps and disparities. The growing population of children with medical complexity and technological dependency have represented a challenge in Palliative Care practice as well as resource utilization and economic justice. Serving at the only major academic medical center in an under-resourced state, we have a population of majority-minority, …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"38 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127218094","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Determining Futility - One Free-standing Children's Hospital's Experience with a Policy 判定无效——一家独立儿童医院的政策经验
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.525
Tressia M. Shaw, Bille Winegard, Zebulon Timmons
{"title":"Determining Futility - One Free-standing Children's Hospital's Experience with a Policy","authors":"Tressia M. Shaw, Bille Winegard, Zebulon Timmons","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.525","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.525","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"27 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114209199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hospice Home Birth 安宁疗护家居分娩
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.533
G. Knowles, T. Vente, Jessica T. Fry
{"title":"Hospice Home Birth","authors":"G. Knowles, T. Vente, Jessica T. Fry","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.533","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.533","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132964085","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Shared Decision Making in Pediatrics: When the Burden Outweighs the Benefit. A Case Illustration from the Intensive Care Nursery 儿科共同决策:当负担大于收益。重症监护室的案例说明
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.546-A
Eve R. Golden, T. Shimotake, M. Moody
{"title":"Shared Decision Making in Pediatrics: When the Burden Outweighs the Benefit. A Case Illustration from the Intensive Care Nursery","authors":"Eve R. Golden, T. Shimotake, M. Moody","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.546-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.546-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"116 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134266290","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Is Inpatient Hospice Unit Utilization Affected By The Availability Of A Pediatric Specific Unit? 住院安宁疗护病房使用率是否受到儿科专科病房可用性的影响?
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.538
Tressia M. Shaw, Wendy Bernatavicius, K. Berger, C. Berkel
{"title":"Is Inpatient Hospice Unit Utilization Affected By The Availability Of A Pediatric Specific Unit?","authors":"Tressia M. Shaw, Wendy Bernatavicius, K. Berger, C. Berkel","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.538","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.538","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"40 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114222283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dreams as a Gateway to Facilitate Difficult Discussion at the End of Life 梦是在生命结束时促进困难讨论的途径
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.528
Jennifer E. mayer, T. Vente
{"title":"Dreams as a Gateway to Facilitate Difficult Discussion at the End of Life","authors":"Jennifer E. mayer, T. Vente","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.528","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.528","url":null,"abstract":"Title: Dreams as a Gateway to Facilitate Difficult Discussion at the End of Life Objectives: 1. Recognize the common experience of dreams at end-of-life 2. Explore how disclosure of dreams at end-of-life may facilitate difficult conversations with patients and families 3. Recognize the utility of integrating dream assessment into routine care Background: Dreams and visions at end-of-life have been documented throughout history and across cultures. Studies of bereaved family …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114917012","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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