{"title":"在复杂中寻求安慰:永久住院儿童的回家之路","authors":"C. C. Paine","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.546","DOIUrl":null,"url":null,"abstract":"Pediatric Palliative Care's guiding principle of whole-patient and whole-family care brings with it a unique opportunity to appreciate and advocate for care gaps and disparities. The growing population of children with medical complexity and technological dependency have represented a challenge in Palliative Care practice as well as resource utilization and economic justice. Serving at the only major academic medical center in an under-resourced state, we have a population of majority-minority, …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"38 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Seeking Comfort In Complexity: A Path Home for Permanently Hospitalized Children\",\"authors\":\"C. C. Paine\",\"doi\":\"10.1542/PEDS.147.3_MEETINGABSTRACT.546\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Pediatric Palliative Care's guiding principle of whole-patient and whole-family care brings with it a unique opportunity to appreciate and advocate for care gaps and disparities. The growing population of children with medical complexity and technological dependency have represented a challenge in Palliative Care practice as well as resource utilization and economic justice. Serving at the only major academic medical center in an under-resourced state, we have a population of majority-minority, …\",\"PeriodicalId\":158699,\"journal\":{\"name\":\"Section on Hospice and Palliative Medicine Program\",\"volume\":\"38 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2021-02-24\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Section on Hospice and Palliative Medicine Program\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.546\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Section on Hospice and Palliative Medicine Program","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.546","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Seeking Comfort In Complexity: A Path Home for Permanently Hospitalized Children
Pediatric Palliative Care's guiding principle of whole-patient and whole-family care brings with it a unique opportunity to appreciate and advocate for care gaps and disparities. The growing population of children with medical complexity and technological dependency have represented a challenge in Palliative Care practice as well as resource utilization and economic justice. Serving at the only major academic medical center in an under-resourced state, we have a population of majority-minority, …