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Multidisciplinary Guideline For Trisomy 13 And 18 Neonatal Care, Prenatal Counseling, And Risk Stratification 13和18三体新生儿护理、产前咨询和风险分层的多学科指南
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.542
Mayme Marshall, Erin Madriago, Tyler Tate, Christina Ronai, Ladawna L. Gievers, S. Taub, A. Kim
{"title":"Multidisciplinary Guideline For Trisomy 13 And 18 Neonatal Care, Prenatal Counseling, And Risk Stratification","authors":"Mayme Marshall, Erin Madriago, Tyler Tate, Christina Ronai, Ladawna L. Gievers, S. Taub, A. Kim","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.542","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.542","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"38 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132708424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
A Pilot Study of The Feasibility And Effectiveness Of An Inpatient Cycling Intervention In Pediatric Cancer Patients: ‘Oncobike’ 儿童癌症患者住院自行车干预的可行性和有效性的初步研究:“Oncobike”
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.516
Ece Soysal, B. Egeli, T. Mutluer, I. Necef, T. Banaz, Enes Topkaya, Yusuf Acar, Banu O Sozmen, O. Falay
{"title":"A Pilot Study of The Feasibility And Effectiveness Of An Inpatient Cycling Intervention In Pediatric Cancer Patients: ‘Oncobike’","authors":"Ece Soysal, B. Egeli, T. Mutluer, I. Necef, T. Banaz, Enes Topkaya, Yusuf Acar, Banu O Sozmen, O. Falay","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.516","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.516","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"8 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121312932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implementing a pediatric resident curriculum to improve confidence with breaking bad news to patients and their families 实施儿科住院医师课程，以提高向患者及其家属透露坏消息的信心
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.534
H. Kraushaar, N. Garber, D. D. Ross
{"title":"Implementing a pediatric resident curriculum to improve confidence with breaking bad news to patients and their families","authors":"H. Kraushaar, N. Garber, D. D. Ross","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.534","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.534","url":null,"abstract":"Background: The American Academy of Pediatrics advocates for program development in pediatric palliative care (PPC) for all tertiary care centers serving children. Effective and compassionate delivery of bad news is an essential PPC skill relevant to all pediatricians, yet many residency and fellowship programs do not provide dedicated instruction on the subject. Trainees are often expected to develop communication skills independently through observation and trial and error, which can lead to wide variations in skill level. Objectives: To pilot a curriculum for pediatric residents to improve confidence with delivering bad …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114873881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transdermal Buprenorphine in Children with Complex Chronic Conditions: A Case Series 经皮丁丙诺啡治疗儿童复杂慢性疾病:一个病例系列
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.550
Seema Amin, Mindy J. Dickerman, Elissa G Miller, Carly Levy
{"title":"Transdermal Buprenorphine in Children with Complex Chronic Conditions: A Case Series","authors":"Seema Amin, Mindy J. Dickerman, Elissa G Miller, Carly Levy","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.550","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.550","url":null,"abstract":"Introduction: Although the incidence of severe chronic abdominal pain is unknown in children with complex chronic conditions (CCC), it can be a distressing and challenging symptom to treat when present. Severe chronic abdominal pain in children with CCC can result from multiple different causes, including but not limited to severe dysmotility, intestinal pseudo-obstruction, and chronic pancreatitis. Although primary pediatricians and/or primary subspecialists often manage this chronic pain, our palliative care team is often consulted for additional pain …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"63 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132939274","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Holding Presence and Moving Forward: Pediatric Residents Lived Experience Providing Care for Dying Children 保持存在和前进:儿科住院医师的生活经验，为垂死的儿童提供照顾
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.531
A. Trowbridge, Lindsay M. Gibbon, Laura I. Buck, Lauren Schmidt, R. Engelberg, H. Starks
{"title":"Holding Presence and Moving Forward: Pediatric Residents Lived Experience Providing Care for Dying Children","authors":"A. Trowbridge, Lindsay M. Gibbon, Laura I. Buck, Lauren Schmidt, R. Engelberg, H. Starks","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.531","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.531","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132753427","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Integration of Palliative Care into Pediatric Brain Tumor Population: Assessing Patient and Family Perspectives on Palliative Care 姑息治疗融入儿童脑肿瘤人群:评估患者和家庭对姑息治疗的看法
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.536
Sarah Martinez, L. Weintraub, Joann Porter, K. Wash
{"title":"Integration of Palliative Care into Pediatric Brain Tumor Population: Assessing Patient and Family Perspectives on Palliative Care","authors":"Sarah Martinez, L. Weintraub, Joann Porter, K. Wash","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.536","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.536","url":null,"abstract":"Background: Pediatric oncology is a field of medicine that requires complex treatment approaches and multidisciplinary care. While historically used interchangeably with hospice care, palliative care offers an additional layer of support and benefit to the patients and their families that is not exclusive to end-of-life treatment. Despite prognosis, there is evidence that early integration of palliative care services leads to improved quality of life and symptom management. Currently, the Melodies Center for Childhood Cancer and Blood Disorders at Albany Medical Center does not …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123797343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Leading The Witness: Pediatric Palliative Program Improvement Through Instructional Investigation 领导证人:通过教学调查改善儿科姑息治疗项目
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.539
C. C. Paine, K. Richter
{"title":"Leading The Witness: Pediatric Palliative Program Improvement Through Instructional Investigation","authors":"C. C. Paine, K. Richter","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.539","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.539","url":null,"abstract":"Background: Palliative Care consultation can often be limited primarily to the practice areas of those staffing the program. In Pediatrics, this is further complicated by the difficulties of prognostication in chronically-ill children and confusion surrounding the purpose of Palliative Care in a non-terminal but seriously ill child. Quality Improvement initiatives that are limited to directive interventions, such as consult triggers or structured educational offerings, can often be viewed as invasive or presumptuous by colleagues that see palliative practice as part of their own specialty. In these circumstances, we have found …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"85 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130328672","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Increasing Palliative Care Team Involvement in Pediatric Oncology Patients 增加姑息治疗团队参与儿科肿瘤患者
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.535
J. Linebarger, Sana Farooki, Oluwaseun Olaiya, L. Tarbell, N. Clark, Kelstan Ellis, J. Stroh, Karen Lewing
{"title":"Increasing Palliative Care Team Involvement in Pediatric Oncology Patients","authors":"J. Linebarger, Sana Farooki, Oluwaseun Olaiya, L. Tarbell, N. Clark, Kelstan Ellis, J. Stroh, Karen Lewing","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.535","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.535","url":null,"abstract":"Background: Palliative care involvement with pediatric oncology patients improves quality of life and the likelihood of receiving goal-concordant end-of-life care. However, barriers to involvement exist. Between Jan 1, 2017 and Dec 31, 2018, the pediatric oncology department cared for 30 patients who died of refractory cancer with a 5-year event free survival (EFS) of 30 days prior to death occurred for 43%. This is less than the United States News and World Report benchmark of 75% for palliative care involvement >30 days prior to …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"139 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122590964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Charlie's Way: Changing Institutional Practices for Post-Mortem Care In Pediatrics By Bypassing The Morgue. 查理之道:通过绕过停尸房改变儿科死后护理的制度实践。
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.520-A
Rachel E. Diamond, B. Murante, Jennifer Pasley
{"title":"Charlie's Way: Changing Institutional Practices for Post-Mortem Care In Pediatrics By Bypassing The Morgue.","authors":"Rachel E. Diamond, B. Murante, Jennifer Pasley","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.520-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.520-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115954794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Tracheostomy as a Bridge to Hope: Family Decision Making Surrounding Tracheostomy in a Variety of Clinical Settings 气管切开术是通往希望的桥梁:在各种临床环境中，围绕气管切开术的家庭决策
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.548-A
B. Lambert, S. Gouda, Brett K Palama, K. Hoehn
{"title":"Tracheostomy as a Bridge to Hope: Family Decision Making Surrounding Tracheostomy in a Variety of Clinical Settings","authors":"B. Lambert, S. Gouda, Brett K Palama, K. Hoehn","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.548-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.548-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"66 42","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131638345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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