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Can You Hear My Empathy? Rapid Implementation of a Pediatric Palliative Care Virtual Visit Initiative during the COVID-19 Pandemic 你能听到我的共鸣吗?COVID-19大流行期间儿科姑息治疗虚拟就诊倡议的快速实施
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.519
Katharine Davidoff, B. Moresco, E. Jones, C. Ullrich, J. Wolfe, S. Liaw, J. Snaman, Elliot C Rabinowitz, Terrance Murphy
{"title":"Can You Hear My Empathy? Rapid Implementation of a Pediatric Palliative Care Virtual Visit Initiative during the COVID-19 Pandemic","authors":"Katharine Davidoff, B. Moresco, E. Jones, C. Ullrich, J. Wolfe, S. Liaw, J. Snaman, Elliot C Rabinowitz, Terrance Murphy","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.519","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.519","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"55 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114302830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parent Experiences And Considerations When Facing Tracheostomy Decisions For A Critically Ill Child 面对重病儿童气管切开术决定时的父母经验和考虑
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.543
Haoyang Yan, Arslanian-Engoren Cynthia, K. Pituch, P. Deldin, Stephanie K. Kukora
{"title":"Parent Experiences And Considerations When Facing Tracheostomy Decisions For A Critically Ill Child","authors":"Haoyang Yan, Arslanian-Engoren Cynthia, K. Pituch, P. Deldin, Stephanie K. Kukora","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.543","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.543","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"26 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127046421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Title: Snapchat story: I Need A Heart Transplant 标题:Snapchat故事:我需要心脏移植
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.547
T. Vente, K. Ross
{"title":"Title: Snapchat story: I Need A Heart Transplant","authors":"T. Vente, K. Ross","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.547","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.547","url":null,"abstract":"Introduction: Social media has become part of the developmental experience for adolescents and young adults (AYA) who remain its most prolific users. The impact of social media use across medical disciplines is an area of developing interest. Studies have shown that adolescents use the internet to gather information about their health. Diagnosis of a serious illness among AYA can …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"13 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122990945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Louisiana Pediatric Hospice Concurrent Care: Rewriting Culture and Language 路易斯安那州儿童临终关怀并发护理:改写文化和语言
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.541-A
A. Kiefer, Alexis Morvant, C. Buckingham, A. Vaden, J. Zeringue
{"title":"Louisiana Pediatric Hospice Concurrent Care: Rewriting Culture and Language","authors":"A. Kiefer, Alexis Morvant, C. Buckingham, A. Vaden, J. Zeringue","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.541-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.541-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"85 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124909842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Towards a Narrative Medicine Curriculum for Fellows in Hospice and Palliative Medicine 临终关怀与缓和医学研究员叙事医学课程之探讨
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.548
N. Lawal, Tatiana M. Arevalo Soriano, Shimei S. Nelapati, D. Mahoney
{"title":"Towards a Narrative Medicine Curriculum for Fellows in Hospice and Palliative Medicine","authors":"N. Lawal, Tatiana M. Arevalo Soriano, Shimei S. Nelapati, D. Mahoney","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.548","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.548","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"44 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116557802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How We Get Through Each Day: Resilience Among Parents of Adolescents and Young Adults with Advanced Cancer 我们如何度过每一天:患有晚期癌症的青少年和年轻人父母的恢复力
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.533-A
A. Trowbridge, Jori F. Bogetz, Molly Taylor, Jenny Kingsley, A. Rosenberg, Krysta S. Barton
{"title":"How We Get Through Each Day: Resilience Among Parents of Adolescents and Young Adults with Advanced Cancer","authors":"A. Trowbridge, Jori F. Bogetz, Molly Taylor, Jenny Kingsley, A. Rosenberg, Krysta S. Barton","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.533-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.533-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"177 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114017921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Complete Trisomy 22 and Congenital Heart Repair: The Impact of Shared Decision Making 完全22三体和先天性心脏修复:共同决策的影响
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.522
Vivien Phung, S. Dabagh
{"title":"Complete Trisomy 22 and Congenital Heart Repair: The Impact of Shared Decision Making","authors":"Vivien Phung, S. Dabagh","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.522","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.522","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"27 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128093223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family Centered Care For Patients With Congenital Heart Defects: Enhancing The Role Of Palliative Care 以家庭为中心的先天性心脏缺陷患者护理:增强姑息治疗的作用
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.530-A
J. Anderson, A. Yee, Allie Kiley, Kristin A Shadman, S. Srinivasan, Margo L Hoover-Regan
{"title":"Family Centered Care For Patients With Congenital Heart Defects: Enhancing The Role Of Palliative Care","authors":"J. Anderson, A. Yee, Allie Kiley, Kristin A Shadman, S. Srinivasan, Margo L Hoover-Regan","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.530-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.530-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"9 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133461502","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cultural Complexity As A Barrier To Shared Decision Making In Neonatal End Of Life Discussions. 在新生儿生命终结讨论中，文化复杂性是共同决策的障碍。
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.524
T. Chatmethakul, Abimbola Olayinka, T. Elgin
{"title":"Cultural Complexity As A Barrier To Shared Decision Making In Neonatal End Of Life Discussions.","authors":"T. Chatmethakul, Abimbola Olayinka, T. Elgin","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.524","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.524","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114384763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perception of Fathers of Hospitalized Children with Advanced Heart Disease 晚期心脏病住院患儿父亲的认知
Section on Hospice and Palliative Medicine Program Pub Date : 2021-02-24 DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.545
J. Reichman, C. Samsel, Emily Morell, David W Brown, M. Miller, Eleni G. Elia, L. Sleeper, E. Blume
{"title":"Perception of Fathers of Hospitalized Children with Advanced Heart Disease","authors":"J. Reichman, C. Samsel, Emily Morell, David W Brown, M. Miller, Eleni G. Elia, L. Sleeper, E. Blume","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.545","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.545","url":null,"abstract":"Background: Although survival of children with advanced heart disease (AHD) has been improving, long-term morbidity remains high, leading to chronic conditions. There is little data on the perspectives of fathers caring for chronically ill children. This study describes the experience and prognostic awareness of fathers of hospitalized children with AHD. Methods: Cross-sectional survey study of parents caring for children hospitalized with AHD (age 30 d - 19 yr) admitted for ≥ 7 d between 2/18-2/19. Inclusion criteria: single ventricle, pulmonary vein stenosis, pulmonary hypertension, length of stay >30 d, …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128675978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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