J. Reichman, C. Samsel, Emily Morell, David W Brown, M. Miller, Eleni G. Elia, L. Sleeper, E. Blume
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引用次数: 0
摘要
背景:虽然患有晚期心脏病(AHD)的儿童生存率有所提高，但长期发病率仍然很高，导致慢性疾病。很少有关于父亲照顾慢性病儿童的观点的数据。本研究描述adhd住院儿童父亲的经验与预后意识。方法:对2月18日至2月19日住院≥7天AHD患儿(年龄30 d - 19岁)的家长进行横断面调查研究。纳入标准:单心室、肺静脉狭窄、肺动脉高压、住院时间>30 d、…
Perception of Fathers of Hospitalized Children with Advanced Heart Disease
Background: Although survival of children with advanced heart disease (AHD) has been improving, long-term morbidity remains high, leading to chronic conditions. There is little data on the perspectives of fathers caring for chronically ill children. This study describes the experience and prognostic awareness of fathers of hospitalized children with AHD. Methods: Cross-sectional survey study of parents caring for children hospitalized with AHD (age 30 d - 19 yr) admitted for ≥ 7 d between 2/18-2/19. Inclusion criteria: single ventricle, pulmonary vein stenosis, pulmonary hypertension, length of stay >30 d, …
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