Journal of Cancer Survivorship最新文献

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Reliability and quality of YouTube exercise videos for people living with lung cancer: a cross-sectional content analysis. 肺癌患者YouTube运动视频的可靠性和质量:横断面内容分析。
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-16 DOI: 10.1007/s11764-026-02144-9
Mesut Ergan, Tahir Keskin, Bayram Sönmez Ünüvar, Zeliha Başkurt
{"title":"Reliability and quality of YouTube exercise videos for people living with lung cancer: a cross-sectional content analysis.","authors":"Mesut Ergan, Tahir Keskin, Bayram Sönmez Ünüvar, Zeliha Başkurt","doi":"10.1007/s11764-026-02144-9","DOIUrl":"https://doi.org/10.1007/s11764-026-02144-9","url":null,"abstract":"<p><strong>Objectives: </strong>To evaluate the characteristics, reliability, and quality of YouTube exercise videos designed for people with lung cancer.</p><p><strong>Methods: </strong>Video characteristics (e.g., likes, views, video length, and upload source) were recorded. Information reliability was assessed using the mDISCERN scale, and overall quality was evaluated using the Global Quality Scale (GQS) and the JAMA benchmark criteria. Exercise-specific quality was additionally rated on a Likert scale focusing on exercise safety, progression/adaptability, and demonstration/instructions. Two physiotherapists independently analyzed the videos. Of 2,158 videos screened, 24 met the final eligibility criteria and were included in the analysis.</p><p><strong>Results: </strong>According to the GQS, 54.2% (n = 13) of the videos were classified as high quality and 20.8% (n = 5) as low quality. GQS scores were positively correlated with mDISCERN and JAMA scores, and mDISCERN scores were also positively correlated with JAMA scores (all p < 0.05). Exercise-quality parameters were not correlated with daily video views or likes (p > 0.05). Inter-rater agreement was high (Cohen's kappa: mDISCERN = 0.77, GQS = 0.72, JAMA = 0.68).</p><p><strong>Conclusions: </strong>YouTube exercise videos for people with lung cancer show variable reliability and exercise-specific quality, with particular limitations in exercise demonstrations and instructions despite a substantial proportion being rated as high quality on the GQS.</p><p><strong>Implications for cancer survivors: </strong>YouTube provides readily accessible exercise information for lung cancer survivors; however, the reliability and quality of available videos vary, underscoring the need for guidance toward evidence-based resources.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149207122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction to: Resignation and return to work in patients receiving allogeneic hematopoietic cell transplantation. 更正:接受同种异体造血细胞移植的患者辞职并重返工作岗位。
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-15 DOI: 10.1007/s11764-026-02141-y
Saiko Kurosawa, Takuhiro Yamaguchi, Ayako Mori, Tomoko Matsuura, Takehiko Mori, Masatsugu Tanaka, Tadakazu Kondo, Yukari Umemoto, Hideki Goto, Satoshi Yoshioka, Shinichiro Machida, Takahiko Sato, Yuta Katayama, Seiko Kato, Katsuhiro Shono, Ishikazu Mizuno, Shin-Ichiro Fujiwara, Akio Kohno, Miyako Takahashi, Takahiro Fukuda
{"title":"Correction to: Resignation and return to work in patients receiving allogeneic hematopoietic cell transplantation.","authors":"Saiko Kurosawa, Takuhiro Yamaguchi, Ayako Mori, Tomoko Matsuura, Takehiko Mori, Masatsugu Tanaka, Tadakazu Kondo, Yukari Umemoto, Hideki Goto, Satoshi Yoshioka, Shinichiro Machida, Takahiko Sato, Yuta Katayama, Seiko Kato, Katsuhiro Shono, Ishikazu Mizuno, Shin-Ichiro Fujiwara, Akio Kohno, Miyako Takahashi, Takahiro Fukuda","doi":"10.1007/s11764-026-02141-y","DOIUrl":"https://doi.org/10.1007/s11764-026-02141-y","url":null,"abstract":"","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149194003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prevalence, mechanisms, and psychological outcomes of chronic pain in cancer survivors: a systematic review with narrative synthesis. 癌症幸存者慢性疼痛的患病率、机制和心理结果:一项综合叙事的系统综述。
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-10 DOI: 10.1007/s11764-026-02138-7
Zhuldyz Myrzabay, Dmitriy Viderman
{"title":"Prevalence, mechanisms, and psychological outcomes of chronic pain in cancer survivors: a systematic review with narrative synthesis.","authors":"Zhuldyz Myrzabay, Dmitriy Viderman","doi":"10.1007/s11764-026-02138-7","DOIUrl":"https://doi.org/10.1007/s11764-026-02138-7","url":null,"abstract":"<p><strong>Purpose: </strong>Chronic pain develops as a frequent health issue for cancer survivors. It affects both their physical and mental well-being. Although pain management is important, long-term care strategies are often lacking. The aim of this systematic review and narrative synthesis was to examine the prevalence of chronic pain among cancer survivors, explore the mechanisms of chronic pain, and examine its impact on their mental health.</p><p><strong>Methods: </strong>We conducted a systematic review of studies identified through PubMed, Scopus, Web of Science, Embase, and PsycINFO. The review included studies published between 2011 and 2026. Methodological quality was assessed using the Joanna Briggs Institute (JBI) critical appraisal tools, and the certainty of evidence across the three outcome domains was evaluated using the GRADE approach. The review protocol was registered in PROSPERO (CRD42025638968).</p><p><strong>Results: </strong>The research included 32 studies, including cross-sectional and cohort studies that investigated various types of cancer. Chronic pain prevalence varied substantially across studies, ranging from 8.6% to 67.1% among established long-term survivor cohorts. Across the included studies, neuropathic pain features were frequently reported, while some survivor populations showed symptom profiles consistent with nociplastic pain or central sensitization. However, most mechanistic classifications were based on screening instruments rather than diagnostic confirmation. Cancer survivors with chronic pain reported higher levels of anxiety, depressive symptoms, and emotional distress, together with poorer quality of life.</p><p><strong>Conclusion: </strong>Chronic pain represents a substantial and heterogeneous burden among adult cancer survivors and is associated with adverse psychological and functional outcomes. Neuropathic pain features are commonly reported, while evidence for nociplastic mechanisms and central sensitization remains suggestive and is largely based on symptom-based assessment tools. These findings support the need for multidimensional pain assessment in survivorship care while highlighting the need for stronger mechanistic research.</p><p><strong>Implications for cancer survivors: </strong>Chronic pain frequently persists after cancer treatment and is linked to psychological distress and poorer quality of life. Survivors should report ongoing pain and emotional symptoms, and survivorship care should include routine assessment of both.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149167921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Frailty and risk of common chronic diseases among cancer survivors: a prospective cohort study. 癌症幸存者的虚弱和常见慢性疾病的风险:一项前瞻性队列研究
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-09 DOI: 10.1007/s11764-026-02118-x
Wenqian Li, Zenghui Zhang, Can Lu, Yinuo Xu, Shaojie Han, Yufei Zhan, Guo Ge, Ziwen Wang, Xianwu Lan, Xiaoshen Zhang, Hua Lu, Jun Guo
{"title":"Frailty and risk of common chronic diseases among cancer survivors: a prospective cohort study.","authors":"Wenqian Li, Zenghui Zhang, Can Lu, Yinuo Xu, Shaojie Han, Yufei Zhan, Guo Ge, Ziwen Wang, Xianwu Lan, Xiaoshen Zhang, Hua Lu, Jun Guo","doi":"10.1007/s11764-026-02118-x","DOIUrl":"https://doi.org/10.1007/s11764-026-02118-x","url":null,"abstract":"<p><strong>Purpose: </strong>We examined the impact of baseline frailty on the incidence of diverse chronic diseases among cancer survivors.</p><p><strong>Methods: </strong>We analyzed 21,577 cancer survivors (aged 39-70) from the UK Biobank, excluding those with baseline diseases of interest. Baseline frailty was assessed using the frailty phenotype (range, 0-5) and the frailty index (range, 0-1). Incident cases across 39 chronic diseases were identified via hospital and death records. Cox proportional hazards models were used to estimate hazard ratios (HRs) and 95% CIs.</p><p><strong>Results: </strong>Frailty was significantly associated with an increased risk of multiple chronic diseases among cancer survivors, with the most pronounced overall effect observed for mental and neurological disorders. Overall, frailty increased the incidence of 28 out of 39 chronic diseases, encompassing all 8 cardiometabolic diseases, 5 of 10 mental/neurological diseases, 5 of 6 digestive system diseases, and 10 of 15 other conditions. Within these categories, the frailty index showed the greatest impact on heart failure (HR, 1.48 [1.36-1.61]); depression (HR, 2.39 [2.19-2.62]); irritable bowel syndrome (HR, 1.79 [1.54-2.08]); and bronchiectasis (HR, 2.11 [1.84-2.41]). Stratified analyses revealed that the association between frailty and risk of anxiety and depression was stronger in cancer survivors aged < 60 years, while prostate cancer survivors exhibited a significantly higher risk for bronchiectasis and diverticular disease. Sensitivity analyses confirmed the stability of the results.</p><p><strong>Conclusion: </strong>Frailty was prospectively associated with an increased risk of diverse chronic diseases in cancer survivors.</p><p><strong>Implications for cancer survivors: </strong>Routine assessment of frailty may help identify survivors who need targeted interventions and proactive clinical monitoring to prevent long-term comorbidities and enhance quality of life.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149136897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Meeting lifestyle recommendations among cancer survivors - a cross-sectional descriptive analysis from the Swedish CArdioPulmonary BioImage study (SCAPIS). 满足癌症幸存者的生活方式建议——来自瑞典心肺生物图像研究(SCAPIS)的横断面描述性分析
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-09 DOI: 10.1007/s11764-026-02140-z
Therese Christensson, Maria Hagströmer, Beatrix Algurén, Frida Bergman, Maria Bäck, Isabel Drake, Andrea Porserud, Jenny Rossen, Philip von Rosen
{"title":"Meeting lifestyle recommendations among cancer survivors - a cross-sectional descriptive analysis from the Swedish CArdioPulmonary BioImage study (SCAPIS).","authors":"Therese Christensson, Maria Hagströmer, Beatrix Algurén, Frida Bergman, Maria Bäck, Isabel Drake, Andrea Porserud, Jenny Rossen, Philip von Rosen","doi":"10.1007/s11764-026-02140-z","DOIUrl":"https://doi.org/10.1007/s11764-026-02140-z","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to describe lifestyle patterns in relation to recommendations -including physical activity, diet, smoking, alcohol consumption, and sleep quality-among Swedish cancer survivors, stratified by sex and age.</p><p><strong>Method: </strong>A descriptive cross-sectional study was performed using data from the Swedish CArdioPulmonary BioImage study (SCAPIS). Questionnaires and accelerometers were used to collect data. SCAPIS data were linked to the Swedish in- and out-patient registry. Descriptive statistics were used to describe proportion meeting lifestyle recommendations in different cancer diagnoses.</p><p><strong>Results: </strong>In total, 2576 individuals were identified as cancer survivors in the SCAPIS-cohort. The median age was 59 years, 57% were females, the median time since diagnosis was 13 years, and malignant melanoma was the most common cancer type (50%). Most cancer survivors in the sample met at least one lifestyle recommendation. Meeting multiple recommendations were significantly (p < 0.001) more common among breast cancer and malignant melanoma survivors than among other cancer types. Females were significantly (p < 0.001) more likely to meet multiple recommendations and were twice as likely (53%) to meet the dietary recommendation compared to men (26%).</p><p><strong>Conclusions: </strong>In this study of cancer survivors, differences across cancer types were observed in meeting multiple lifestyle recommendations. Most survivors met at least one recommendation, while the lowest proportion meeting the recommendations was observed for diet and alcohol consumption.</p><p><strong>Implications for cancer survivors: </strong>These findings suggest that cancer survivors might benefit from secondary prevention strategies targeting lifestyle factors in general and diet and alcohol consumption in particular.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149136902","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Fertility-related knowledge and childbearing attitudes among female survivors of hematopoietic stem cell transplantation: a cross-sectional study. 造血干细胞移植后女性幸存者的生育相关知识和生育态度:一项横断面研究
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-03 DOI: 10.1007/s11764-026-02134-x
Amir Hossein Dehghan, Fatemehzahra Vafaeinezhad, Amir Mohammad Chekeni, Golnar Ghane, Ali Karimi Rozveh, Mohammad Vaezi
{"title":"Fertility-related knowledge and childbearing attitudes among female survivors of hematopoietic stem cell transplantation: a cross-sectional study.","authors":"Amir Hossein Dehghan, Fatemehzahra Vafaeinezhad, Amir Mohammad Chekeni, Golnar Ghane, Ali Karimi Rozveh, Mohammad Vaezi","doi":"10.1007/s11764-026-02134-x","DOIUrl":"https://doi.org/10.1007/s11764-026-02134-x","url":null,"abstract":"<p><strong>Purpose: </strong>Hematopoietic stem cell transplantation (HSCT) causes severe gonadotoxicity. This study assessed fertility-related knowledge, childbearing attitudes, and their sociodemographic determinants among female HSCT survivors.</p><p><strong>Methods: </strong>This cross-sectional study evaluated 209 women (≥ 1 year post-HSCT) at Iran's largest referral center. Data were collected using sociodemographic profiles, a researcher-developed Fertility Knowledge Questionnaire, and the Attitude Toward Fertility and Childbearing Scale. Multivariable linear regression identified independent predictors.</p><p><strong>Results: </strong>Participants' mean age was 34.72 ± 9.05 years. Fertility knowledge was poor (mean score: 4.56 ± 1.92 out of 10), with critical deficits regarding post-transplant pregnancy timing (92.3% incorrect) and treatment-related risks (94.7% incorrect). Conversely, childbearing attitudes were relatively positive (mean score: 63.25 ± 10.73), and 47.4% desired future children. A significant inverse correlation emerged between knowledge and attitude scores (r = - 0.334, p < 0.01). In multivariable analyses, older age, Master's education, divorce, and insurance predicted higher knowledge (R<sup>2</sup> = 0.46). Younger age, fewer children, and superior economic status predicted more positive attitudes (R<sup>2</sup> = 0.31).</p><p><strong>Conclusions: </strong>Female HSCT survivors exhibit critical fertility knowledge deficits despite positive parenthood attitudes. The inverse knowledge-attitude correlation suggests that enhanced risk awareness might temper reproductive optimism.</p><p><strong>Implications for cancer survivors: </strong>These findings necessitate incorporating structured, multidisciplinary, and psychologically informed fertility counseling into routine HSCT survivorship care, ideally initiated prior to conditioning regimens, to facilitate informed reproductive decision-making.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149109938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cancer survivorship care among head and neck cancer patients living in rural and urban locations. 生活在农村和城市地区的头颈癌患者的癌症生存护理。
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-01 DOI: 10.1007/s11764-026-02129-8
Janet H Van Cleave, Ingrid Soares Henke Fortes, Jennifer A Rodriguez, Alejandro Araya, Ron J Karni, Carolina Gutiérrez, Susan H Fenton, Dena Schulman-Green, Sahiti Myneni, Yang Gong, Kunal S Jain, Brian L Egleston
{"title":"Cancer survivorship care among head and neck cancer patients living in rural and urban locations.","authors":"Janet H Van Cleave, Ingrid Soares Henke Fortes, Jennifer A Rodriguez, Alejandro Araya, Ron J Karni, Carolina Gutiérrez, Susan H Fenton, Dena Schulman-Green, Sahiti Myneni, Yang Gong, Kunal S Jain, Brian L Egleston","doi":"10.1007/s11764-026-02129-8","DOIUrl":"https://doi.org/10.1007/s11764-026-02129-8","url":null,"abstract":"<p><strong>Purpose: </strong>National Standards for Cancer Survivorship Care (i.e., survivorship standards) were developed as policy, process, and assessment standards to guide quality of survivorship care across all cancer settings. This descriptive study uses two methods to provide a picture of the alignment of care for patients with head and neck cancer (HNC) with survivorship standards in an academic health care system in Southeast Texas.</p><p><strong>Methods: </strong>One method consisted of an anonymous survey of 15 HNC providers' perceptions of alignment of survivorship standards with HNC. A modified kappa score for each standard was computed as proportion of participants' agreement that the standard was relevant to the institutions' HNC care. Scores ranged from 1 (highly relevant) to 0 (not relevant). The second method analyzed encounters over a 1-year period after diagnosis using electronic health record (EHR) data of 438 patients with HNC from the same institution. Statistical analysis included descriptive statistics and generalized linear models.</p><p><strong>Results: </strong>Modified kappa scores showed the institution's processes to provide HNC survivorship services were more aligned with survivorship standards (process = 0.60) than institutional policies or assessments (policies = 0.28; assessments = 0.29). EHR data analysis found HNC survivorship services consisted of nearly ¼ of encounters but concentrated in specialist and rehabilitation survivorship care.</p><p><strong>Conclusion: </strong>The study's cross-cutting themes include need for policies and assessments that increase EHR documentation of HNC survivorship care.</p><p><strong>Implications for cancer survivors: </strong>The survivorship standards may be useful in developing clinical and informatics infrastructure needed to advance the quality of HNC survivorship care.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149109945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Supporting implementation of the national standards for cancer survivorship care: development of the cancer survivorship maturity model (CSMM). 支持实施国家癌症生存护理标准:开发癌症生存成熟度模型(CSMM)。
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-01 DOI: 10.1007/s11764-026-02131-0
Heidi Dowst, Maryem Shirzadi, Martha Mims, Susan Hilsenbeck, Liwei Wang, Hoda Badr
{"title":"Supporting implementation of the national standards for cancer survivorship care: development of the cancer survivorship maturity model (CSMM).","authors":"Heidi Dowst, Maryem Shirzadi, Martha Mims, Susan Hilsenbeck, Liwei Wang, Hoda Badr","doi":"10.1007/s11764-026-02131-0","DOIUrl":"https://doi.org/10.1007/s11764-026-02131-0","url":null,"abstract":"<p><strong>Purpose: </strong>The National Standards for Cancer Survivorship Care define the domains of care that healthcare organizations should deliver, yet few tools exist to assess organizational capability and implementation maturity for the National Standards. We developed and preliminarily evaluated the cancer survivorship maturity model (CSMM), a framework designed to assess organizational maturity in real-world oncology settings.</p><p><strong>Methods: </strong>We conducted a mixed-methods, participatory model development study. A preliminary CSMM was refined through five multidisciplinary focus groups at a comprehensive cancer center using consensus-building techniques adapted from nominal group technique. Participants completed prioritization exercises, contributed to model refinement, and assessed the maturity of survivorship care delivery in their practice settings. Qualitative analysis identified model refinement needs and implementation barriers. The final model was distributed to external stakeholders for preliminary evaluation.</p><p><strong>Results: </strong>Fourteen internal participants and 12 external respondents contributed to model development and evaluation. The final CSMM included seven domains across five maturity levels ranging from ad hoc to optimized. Participants identified differences in prioritization across clinical impact, implementation feasibility, and perceived patient importance. Participants' assessment of survivorship care maturity was generally low, with most domains clustering between levels 1 and 2. Qualitative findings identified barriers, including unclear workflows, limited resources, insufficient time, and technical constraints.</p><p><strong>Conclusions: </strong>The CSMM provides a structured approach to assess organizational capability and implementation maturity for the National Standards while identifying domain-specific opportunities for improvement.</p><p><strong>Implications for cancer survivors: </strong>By helping institutions target areas for improvement and resource investment, the CSMM may support more consistent patient-centered survivorship care delivery.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149109930","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Measuring uptake of the 2024 national standards for survivorship care: Insights from National Cancer Institute funded pilot projects. 衡量2024年国家生存护理标准的吸收:来自国家癌症研究所资助试点项目的见解。
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-01 DOI: 10.1007/s11764-026-02130-1
Sara A Flores, Michelle Doose, Rachelle Brick, Sallie J Weaver
{"title":"Measuring uptake of the 2024 national standards for survivorship care: Insights from National Cancer Institute funded pilot projects.","authors":"Sara A Flores, Michelle Doose, Rachelle Brick, Sallie J Weaver","doi":"10.1007/s11764-026-02130-1","DOIUrl":"https://doi.org/10.1007/s11764-026-02130-1","url":null,"abstract":"<p><strong>Purpose: </strong>Measuring alignment with clinical program standards is essential for strengthening cancer survivorship care yet remains challenging due to the range and duration of services involved. The 2024 National Standards for Survivorship Care provide aspirational recommendations across three domains-policy, processes, and evaluation/assessment-for health systems developing survivorship care. Following their release, the National Cancer Institute (NCI) funded 18 supplements to understand alignment of existing services and programs with the standards and identify implementation barriers and facilitators. This report synthesizes measurement tools and approaches used in the supplements to evaluate alignment with the standards.</p><p><strong>Methods: </strong>Trained abstractors used a standardized codebook to extract project-level and measure-level characteristics, including the specific national standards assessed, data types, data collection methods, and respondent characteristics.</p><p><strong>Results: </strong>Fourteen of 18 supplement projects contributed 91 measurement tools (surveys, interview protocols, environmental scan protocols, EHR/administrative variables). Most addressed the health system process standards (82.4%), while health system policy (31.9%) and evaluation/assessment standards were less represented (15.4%). Existence or occurrence of care elements was most commonly assessed (72.5%); less commonly captured was the quality or degree to which a standard was met or how care processes occurred.</p><p><strong>Conclusions: </strong>These findings identify opportunities to improve how alignment with national standards is measured, including the need for shared operational definitions for each standard that are applicable across cancer care delivery settings and support consistent measurement.</p><p><strong>Implications for cancer survivors: </strong>Stronger measurement infrastructure helps healthcare systems identify gaps in survivorship care, supporting comprehensive care for a growing cancer survivor population.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149109979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A mixed-methods study characterizing patient experiences with digital survivorship services and preferences for care at a rural cancer center. 一项混合方法研究,描述了农村癌症中心数字化生存服务和护理偏好的患者体验。
IF 3.4 2区 医学
Journal of Cancer Survivorship Pub Date : 2026-10-01 DOI: 10.1007/s11764-026-02127-w
Christine M Gunn, Lisa G Gallagher, Mia St Angelo, Lisa A Purvis, Carly Sykes, Elaine S Kuhn
{"title":"A mixed-methods study characterizing patient experiences with digital survivorship services and preferences for care at a rural cancer center.","authors":"Christine M Gunn, Lisa G Gallagher, Mia St Angelo, Lisa A Purvis, Carly Sykes, Elaine S Kuhn","doi":"10.1007/s11764-026-02127-w","DOIUrl":"https://doi.org/10.1007/s11764-026-02127-w","url":null,"abstract":"<p><strong>Background: </strong>Delivering cancer survivorship services digitally may increase access for rural populations. This study examined the use of digital health services, digital health readiness, and preferences for survivorship services among cancer survivors treated at a rural comprehensive cancer center.</p><p><strong>Methods: </strong>We identified adults diagnosed with solid tumors from 2022 to 2024 who received treatment at Dartmouth Cancer Center locations. Demographics, visits, referrals, and questionnaires were collected via the health record. A survey was sent to a random sample of cohort patients stratified by tumor type. It assessed digital health readiness, service use and satisfaction, and interest in digital programming. Twenty-five survivors completed qualitative interviews about care experiences and unmet needs. Quantitative data were summarized descriptively; qualitative data were analyzed using a framework analysis.</p><p><strong>Results: </strong>The cohort included 8772 patients, 80% from rural areas, 81% with an active patient portal account, and 38% with at least one telehealth visit. Behavioral health was mainly delivered as telehealth (76% of visits), whereas cancer-directed specialties delivered < 5% of visits via telehealth. Of the 207 survey respondents, 42% reported using a patient portal often or always to manage their care. Digital health readiness was not associated with patient portal use or interest in digital services. Qualitative data described that digital services would enhance survivorship by facilitating communication with care teams, access to behavioral health, social support, and flexibility regarding visit modality.</p><p><strong>Conclusions: </strong>Despite perceptions that rural populations lack digital access, we found high engagement with telehealth and interest in digital care for survivorship. Augmenting in-person services with digital programming could improve the reach of survivorship care among rural populations.</p><p><strong>Implications for cancer survivors: </strong>Further research is needed to determine preferences for digital care delivery more explicitly across the continuum of survivorship (early, posttreatment, and long-term), as we would anticipate the needs and priorities of cancer survivors shift across time. As the use of digital tools to support information seeking, decision-making, and personal health monitoring expands, the need to support the interface between personal and health care data will require new solutions. Health systems that can deliver integrated digital services that support monitoring during survivorship will be best poised to provide high-quality care to cancer survivors and meet assessment criteria set forth in the national standards.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13637559/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149109866","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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