Journal of Cancer Survivorship最新文献

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The gap between guidelines and clinical practice in cancer-related fatigue management: a mixed-methods systematic review. 癌症相关疲劳管理指南与临床实践之间的差距:一项混合方法的系统综述。
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-18 DOI: 10.1007/s11764-025-01866-6
Marijn Witziers, Anne Looijmans, Ning Jia, Mariët Hagedoorn
{"title":"The gap between guidelines and clinical practice in cancer-related fatigue management: a mixed-methods systematic review.","authors":"Marijn Witziers, Anne Looijmans, Ning Jia, Mariët Hagedoorn","doi":"10.1007/s11764-025-01866-6","DOIUrl":"https://doi.org/10.1007/s11764-025-01866-6","url":null,"abstract":"<p><strong>Purpose: </strong>Cancer-related fatigue (CRF) is the most prevalent and disruptive side effect of cancer and its treatment, significantly impairing patients' quality of life. While guidelines mandate periodic screening, in-depth assessments, and non-pharmacological treatments for fatigue, the adherence of healthcare professionals (HCPs) to these guidelines is unknown. Therefore, this review aims to synthesize existing knowledge on HCPs' adherence to CRF guidelines.</p><p><strong>Methods: </strong>A systematic review was conducted, encompassing searches across six databases and Google Scholar. Studies reporting on CRF management, barriers to CRF care experienced by HCPs, or interventions aimed at improving CRF management were included. A narrative synthesis approach was employed to analyze findings.</p><p><strong>Results: </strong>Of the 7039 identified publications, seventy-seven studies met the inclusion criteria. Findings reveal notable discrepancies between guideline recommendations and clinical practice. Specifically, fatigue screening was inconsistently performed across healthcare settings, comprehensive fatigue assessments were scarce, and pharmacological interventions were commonly used to alleviate fatigue. Barriers such as time constraints and insufficient knowledge hindered optimal CRF management.</p><p><strong>Conclusion: </strong>Findings of this review suggest that HCPs do generally not adhere to clinical guidelines for fatigue management.</p><p><strong>Implications for cancer survivors: </strong>There is ample room to improve CRF management, with systematic changes essential to addressing barriers to effective fatigue management. As part of these changes, enhancing HCP education can help to frame CRF as a manageable, multifaceted symptom. These improvements will contribute to better fatigue communication, recognition, timely support, and a more coordinated approach to care for patients affected by this debilitating condition.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144659345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The positive and negative impact of cancer on daily life > 2 years after diagnosis: Results from a survey among 5,710 patients with various cancer types. 癌症对诊断后2年日常生活的积极和消极影响:对5,710名不同类型癌症患者的调查结果。
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-17 DOI: 10.1007/s11764-025-01870-w
Floortje Mols, Noortje van Willegen, Dagna Lek, Vivian Engelen
{"title":"The positive and negative impact of cancer on daily life > 2 years after diagnosis: Results from a survey among 5,710 patients with various cancer types.","authors":"Floortje Mols, Noortje van Willegen, Dagna Lek, Vivian Engelen","doi":"10.1007/s11764-025-01870-w","DOIUrl":"https://doi.org/10.1007/s11764-025-01870-w","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to understand the positive and negative long-term impact of cancer and its treatment on survivors more than two years post-diagnosis.</p><p><strong>Methods: </strong>The Dutch Federation of Cancer Patient Organisations (NFK), with input from patient representatives and researchers, created a national online survey. It was distributed via email, websites, and social media to patient organization members, with additional promotion by partner organizations. Participants shared their experiences regarding the physical and psychological effects of cancer on daily life.</p><p><strong>Results: </strong>A total of 5,710 cancer survivors participated. Of these, 73% felt proud of how they coped, 66% reported that cancer reshaped their priorities, 44% saw new opportunities, and 35% enjoyed life more. However, 58% could not be worry-free, and 49% struggled to resume life. Long-term symptoms were common: 55% experienced both physical and psychological symptoms, 33% reported only physical symptoms, and 2% only psychological. The most frequent physical symptoms included fatigue (56%), reduced fitness (47%), neuropathy (32%), sexual issues (25%), and sleep disturbances (24%). Common psychological symptoms were memory/concentration issues (32%), acceptance struggles (19%), depressive feelings (19%), planning issues (18%), and anxiety (16%).</p><p><strong>Conclusion: </strong>Cancer survivors often face persistent physical and psychological symptoms, with cancer continuing to affect their lives significantly.</p><p><strong>Implications for cancer survivors: </strong>Greater awareness of these long-term consequences among healthcare providers and patients is essential.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144649594","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Healthcare utilization among survivors of childhood and adolescent cancer: a population-based study. 儿童和青少年癌症幸存者的医疗保健利用:一项基于人群的研究
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-17 DOI: 10.1007/s11764-025-01863-9
Grace H Tang, Rinku Sutradhar, Wing C Chan, Sumit Gupta, Monika Krzyzanowska, Petros Pechlivanoglou, Paul C Nathan
{"title":"Healthcare utilization among survivors of childhood and adolescent cancer: a population-based study.","authors":"Grace H Tang, Rinku Sutradhar, Wing C Chan, Sumit Gupta, Monika Krzyzanowska, Petros Pechlivanoglou, Paul C Nathan","doi":"10.1007/s11764-025-01863-9","DOIUrl":"https://doi.org/10.1007/s11764-025-01863-9","url":null,"abstract":"<p><strong>Introduction: </strong>Survivors of childhood and adolescent cancers are at increased risk for late effects. Few studies have investigated if this translates into increased healthcare utilization during survivorship. We compared rates of healthcare utilization between survivors of childhood and adolescent cancer and matched cancer-free controls.</p><p><strong>Methods: </strong>This was a population-based matched cohort study using administrative databases in Ontario, Canada. The survivor cohort included individuals diagnosed with cancer ≤ 21 years old who had survived ≥ 5 years from their primary cancer diagnosis or relapse/recurrence during childhood/adolescence. Each survivor was matched to 5 controls based on year of birth, sex, and geographic location. Andersen-Gill recurrent event regression models were used to evaluate the association between survivorship and the rates of hospitalization, surgeries, diagnostic imaging, visits to the emergency department (ED), primary care physician (PCP), and sub-specialists. Models were adjusted for income quintile and comorbidity.</p><p><strong>Results: </strong>We identified 8090 survivors and 40,450 matched controls. Median follow-up time from index was 9 years. Compared to controls, survivors had higher rates of hospitalizations (adjusted relative rate (aRR) 1.82, 95% confidence interval [CI] 1.68-1.96), surgeries (aRR, 1.26; 95%CI, 1.20-1.32), sub-specialist visits (aRR, 1.55; 95%CI, 1.50-1.61), and diagnostic imaging (aRR, 1.48; 95%CI, 1.44-1.52). Rates of PCP and ED visits did not differ.</p><p><strong>Conclusions: </strong>Cancer survivors have higher rates of healthcare use compared to matched cancer-free controls in a publicly funded healthcare system.</p><p><strong>Implications for cancer survivors: </strong>Our findings suggest survivors do not receive additional care from their PCPs or visits to the ED. Future research is needed from other jurisdictions to supplement our findings.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144659344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Healthcare professionals understanding, perceptions and experiences of head and neck lymphoedema to promote self-management for patients following completion of head and neck cancer treatment: a qualitative study. 医疗保健专业人员对头颈部淋巴水肿的理解、感知和经验,以促进头颈部癌症治疗完成后患者的自我管理:一项定性研究
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-16 DOI: 10.1007/s11764-025-01868-4
Lauren J Mullan, Nicole E Blackburn, Jackie Gracey, Lynn Dunwoody, Jill Lorimer, Cherith J Semple
{"title":"Healthcare professionals understanding, perceptions and experiences of head and neck lymphoedema to promote self-management for patients following completion of head and neck cancer treatment: a qualitative study.","authors":"Lauren J Mullan, Nicole E Blackburn, Jackie Gracey, Lynn Dunwoody, Jill Lorimer, Cherith J Semple","doi":"10.1007/s11764-025-01868-4","DOIUrl":"https://doi.org/10.1007/s11764-025-01868-4","url":null,"abstract":"<p><strong>Purpose: </strong>Head and neck lymphoedema (HNL) is a chronic and often debilitating consequence of head and neck cancer (HNC) treatment. Despite the chronicity, it is often under-recognised and under-treated. There is a finite resource of specialists to provide HNL intervention, necessitating self-management as an important pillar of patient management. This study aims to explore healthcare professionals (HCPs) understanding, perceptions and experiences of HNL management to promote self-management and adherence to HNL interventions in patients following completion of HNC treatment.</p><p><strong>Methods: </strong>Eight focus groups were conducted with HCPs (n = 39) from different professional disciplines, acute and community settings and countries. Reflexive thematic analysis was adhered to in the development of key themes using an inductive approach.</p><p><strong>Results: </strong>Two main themes were established: (1) 'Raising awareness of HNL as a chronic and complex condition' and (2) 'What are the solutions for promoting HNL self-management?' Data demonstrated that HCPs lack confidence and understanding in providing HNL support. There was a lack of clarity towards roles and responsibilities of HNL management among HCPs, with many having a desire to be better equipped to promote patient self-management and adherence.</p><p><strong>Conclusion: </strong>HCPs involved in care delivery of patients with HNC require education and training on HNL, to support patient and family engagement with HNL self-management. To advance adherence and compliance of HNL self-management, there is a need to develop a dedicated HNL self-management intervention, integrating theory and evidence.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144649593","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effects of self-monitoring physical activity with a smartphone application combined with physiotherapy coaching in patients with cancer: a randomised controlled trial (SMART-COACH trial). 智能手机应用程序自我监测体育活动结合物理治疗指导对癌症患者的影响:一项随机对照试验(SMART-COACH试验)
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-15 DOI: 10.1007/s11764-025-01862-w
Harm L Ormel, Elizabeth H van Zutphen, Gabriela G F van der Schoot, Jourik A Gietema, Annemiek M E Walenkamp
{"title":"Effects of self-monitoring physical activity with a smartphone application combined with physiotherapy coaching in patients with cancer: a randomised controlled trial (SMART-COACH trial).","authors":"Harm L Ormel, Elizabeth H van Zutphen, Gabriela G F van der Schoot, Jourik A Gietema, Annemiek M E Walenkamp","doi":"10.1007/s11764-025-01862-w","DOIUrl":"https://doi.org/10.1007/s11764-025-01862-w","url":null,"abstract":"<p><strong>Purpose: </strong>Regardless of the compelling evidence showing that facility-based exercise effectively improves cancer treatment outcome, exercise programs are confronted with low participation and adherence rates. This study aimed to investigate a low-threshold modality to improve self-reported leisure-time physical activity (LTPA).</p><p><strong>Methods: </strong>In this single-centre, prospective randomised controlled trial, patients living with or beyond cancer were randomised to use the smartphone application \"RunKeeper\" to self-monitor LTPA with remote physiotherapy coaching for 12 weeks or usual care. The primary endpoint was between-group difference in LTPA at 12 weeks. Secondary endpoints were LTPA measured at 6 and 26 weeks, adhering to the national physical activity guideline, quality of life, cancer-specific functioning and symptoms, self-efficacy, and exercise motivation.</p><p><strong>Results: </strong>In total, 63 patients with a median age of 46.0 range [34.0 to 57.0] were included. No significant between-group differences were found in LTPA. Significant between-group differences in favour of the group that self-monitored LTPA were found in emotional functioning (P = .044), insomnia (P = .029) (week 12) and self-efficacy (P = .040) (week 26).</p><p><strong>Conclusions: </strong>Self-monitoring LTPA with RunKeeper and remote physiotherapy coaching did not significantly improve LTPA compared to usual care. The intervention did positively affect self-efficacy, emotional functioning, and insomnia.</p><p><strong>Implications for cancer survivors: </strong>Further research is needed to study the effectiveness of self-monitoring LTPA with remote physiotherapy coaching in a more homogeneous sample of patients with cancer.</p><p><strong>Trial registration: </strong>(NCT03128333).</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144642587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medically tailored meals in lung cancer care: patient experiences from the NutriCare Clinical Trial. 医学上量身定制的饮食在肺癌治疗:来自NutriCare临床试验的患者经验。
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-11 DOI: 10.1007/s11764-025-01857-7
Caroline E Owens, Laura Keaver, Divina Chandiramani, James McCann, Mary Kathryn Cohen, Joya Chandra, Carolyn J Presley, Jessica R Bauman, Lori Pai, Sue Daugherty, Jade Smith, Colleen Spees, Fang Fang Zhang
{"title":"Medically tailored meals in lung cancer care: patient experiences from the NutriCare Clinical Trial.","authors":"Caroline E Owens, Laura Keaver, Divina Chandiramani, James McCann, Mary Kathryn Cohen, Joya Chandra, Carolyn J Presley, Jessica R Bauman, Lori Pai, Sue Daugherty, Jade Smith, Colleen Spees, Fang Fang Zhang","doi":"10.1007/s11764-025-01857-7","DOIUrl":"https://doi.org/10.1007/s11764-025-01857-7","url":null,"abstract":"<p><strong>Purpose: </strong>To understand the perceptions and experiences of participants in NutriCare, a randomized controlled trial of medically tailored meals and nutrition counseling using medical nutrition therapy informed by motivational interviewing for patients with lung cancer.</p><p><strong>Methods: </strong>Descriptive analysis of exit surveys and thematic analysis of semi-structured interviews with 21 intervention arm (NutriCare) trial participants.</p><p><strong>Results: </strong>Most exit survey respondents reported overall satisfaction with the intervention, particularly with the nutrition counseling. In comparison, satisfaction with the medically tailored meals was more variable. Six main themes emerged from qualitative analysis: (1) convenience of medically tailored meals, (2) support navigating cancer and treatment impacts, (3) preference for fresher and more flavorful foods, (4) desire for increased food choice and meal flexibility, (5) dietitians' role in providing nutrition expertise and social support, and (6) enhanced motivation and knowledge promoting behavior change.</p><p><strong>Conclusions: </strong>Overall, participants valued the convenience of the NutriCare intervention, emphasizing the logistic ease of home-delivered meals and remote nutrition counseling during cancer treatment. Many participants felt the intervention supported their nutritional needs and overall well-being. Our findings underscore the perceived benefits of nutrition education and counseling in tandem with direct provision of food and point to a need for further research on tailoring FIM interventions for diverse patients with lung cancer.</p><p><strong>Implications for cancer survivors: </strong>Food is Medicine interventions, like NutriCare, show promise in supporting the nutrition and well-being of vulnerable patients with lung cancer, with additional benefits when combined with personalized nutrition counseling.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144608515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hospital and community supportive care for young women with breast cancer: a scoping review and environmental scan. 对患有乳腺癌的年轻妇女的医院和社区支助性护理:范围审查和环境扫描。
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-09 DOI: 10.1007/s11764-025-01846-w
Shira J Yufe, Karen D Fergus, Lucas G S Norton
{"title":"Hospital and community supportive care for young women with breast cancer: a scoping review and environmental scan.","authors":"Shira J Yufe, Karen D Fergus, Lucas G S Norton","doi":"10.1007/s11764-025-01846-w","DOIUrl":"https://doi.org/10.1007/s11764-025-01846-w","url":null,"abstract":"<p><strong>Purpose: </strong>This study is an up-to-date review of supportive care available to young women with breast cancer (YWBCs) in both hospital-based and community organizations. This review describes the types of psychosocial programming for YWBCs in English-speaking regions and is inclusive of community organizations which are generally not captured in reviews.</p><p><strong>Methods: </strong>We used a PRISMA-guided scoping review with a snowball search method (pulled from three databases: (1) PsycINFO, (2) CINAHL, and (3) PubMed) in conjunction with a web-based environmental scan using an online search engine strategy and including grey literature. The initial searches were performed from July 2020 to January 2021, and results were updated in April 2023 and January 2025. In addition to describing the models of care available, we explored the differing praxis associated with each support domain (hospital and community) that underlies the development of YWBC care.</p><p><strong>Results: </strong>A total of 6228 journal articles were screened by two researchers who engaged in continuous consensus discussions, and 22 were identified to be consistent with our inclusion criteria. The web-based environmental scan identified 24 organizations catering to YWBCs using the following keywords: \"breast cancer,\" \"young women,\" \"breast cancer young women's online community program,\" \"breast cancer support,\" \"under 50 young women breast cancer,\" and \"online program breast cancer for young women.\" While academic and hospital-based programs were more likely to offer empirically supported psychological interventions, community organizations were more likely to provide informal social support and practical assistance (e.g., childcare and finances). A \"hybrid-type\" model of care was identified and deemed to be optimal because of its comprehensiveness and ability to integrate both hospital and community resources.</p><p><strong>Conclusions: </strong>This study provided a descriptive review, with a comparison framework, of the interventions that currently exist from hospital-based and community-based paradigms. It is recommended that hybrid models be made available to YWBCs to support their unique needs.</p><p><strong>Implications for cancer survivors: </strong>Hybrid-type models of care identified in this review, which integrate community and hospital resources, may provide more comprehensive support than either model alone. The provision of timely, appropriate psychosocial support may aid in the transition to survivorship by mitigating the deleterious effect of issues specific to YWBCs, including concerns around fertility, body image, relationships, and fear of cancer recurrence.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144600583","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Who uses self-management apps from the OncoAppstore: description of characteristics, symptoms, and functioning of a real-world user population. 谁使用来自OncoAppstore的自我管理应用程序:描述真实世界用户群体的特征、症状和功能。
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-05 DOI: 10.1007/s11764-025-01855-9
A M de Korte, L van Deursen, M L van der Lee, J J Aardoom, N P M Ezendam, P Heine, F Mols, H Mulder-Mertens, M M Stouten, C R M Lammens
{"title":"Who uses self-management apps from the OncoAppstore: description of characteristics, symptoms, and functioning of a real-world user population.","authors":"A M de Korte, L van Deursen, M L van der Lee, J J Aardoom, N P M Ezendam, P Heine, F Mols, H Mulder-Mertens, M M Stouten, C R M Lammens","doi":"10.1007/s11764-025-01855-9","DOIUrl":"https://doi.org/10.1007/s11764-025-01855-9","url":null,"abstract":"<p><strong>Purpose: </strong>The rising prevalence of cancer in the Netherlands challenges resource allocation and sustainable care delivery. eHealth interventions, such as self-management applications, may reduce healthcare utilisation. To enhance access to self-management tools, the OncoAppstore was launched in July 2023. This study evaluates the sociodemographic and health-related quality of life (HRQoL) characteristics of OncoAppstore users.</p><p><strong>Methods: </strong>User data from the OncoAppstore and HRQoL data were integrated with clinical data from the Netherlands Cancer Registry. Descriptive analyses were used to describe sociodemographic and clinical characteristics. Chi-square and Mann-Whitney U tests compared OncoAppstore users with the Dutch adult cancer population.</p><p><strong>Results: </strong>A total of 3620 users requested a health credit, and 4333 applications were purchased. Most users were highly educated (61%), had breast cancer (50%) and a high socioeconomic position (53%). Compared to non-users, OncoAppstore users were younger (56 vs 69), predominantly female (78% vs 55%), more often received primary treatment, and were diagnosed earlier. The majority indicated clinically significant distress levels and approximately half reported substantial functional impairments. Symptom burden was highest in the fatigue, pain, and nausea/vomiting domains. CONCLUSION AND IMPLICATIONS FOR CANCER SURVIVORS: The OncoAppstore is primarily utilised by highly educated users who seek applications targeting cancer-related fatigue. Insights into the characteristics of users who are receptive to online self-management tools contribute to the improvement of self-management infrastructure and its long-term integration into Dutch cancer care. By providing self-management tools to those who are able to use it, we can potentially save scarce resources for those who are unable to profit from self-management alone.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144567435","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A meta-analysis of death anxiety in people living with or beyond cancer: the important role of culture. 癌症患者或癌症患者死亡焦虑的荟萃分析:文化的重要作用。
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-04 DOI: 10.1007/s11764-025-01856-8
Audrey Bennett, Louise Sharpe, Jack B Boyse
{"title":"A meta-analysis of death anxiety in people living with or beyond cancer: the important role of culture.","authors":"Audrey Bennett, Louise Sharpe, Jack B Boyse","doi":"10.1007/s11764-025-01856-8","DOIUrl":"https://doi.org/10.1007/s11764-025-01856-8","url":null,"abstract":"<p><strong>Purpose: </strong>This review explored associations between death anxiety and a range of psychosocial outcomes, such as fear of cancer recurrence (FCR), depression, anxiety, and quality of life, in people living with or beyond cancer. We also investigated culture (individualistic versus collectivist) as a moderator of the relationship between death anxiety and psychosocial outcomes.</p><p><strong>Methods: </strong>We included studies that measured death anxiety and one or more psychosocial outcomes in people with a history of cancer. Forty-one studies were included and meta-analysed to identify the strength of relationships between death anxiety and psychosocial outcomes. Cultural orientation was investigated as a moderator of these relationships. The quality of included studies was appraised.</p><p><strong>Results: </strong>Death anxiety was strongly associated with all psychosocial outcomes, including increased FCR, depression, anxiety, and poorer quality of life, self-esteem, and sense of meaning. Younger people and those currently in active treatment had higher levels of death anxiety. The relationship between death anxiety and depression was stronger in collectivist than individualistic cultures. Collectivist versus individualistic cultures differed in their death anxiety depending on the outcome measure used.</p><p><strong>Conclusions: </strong>Death anxiety is an important construct for people living with or beyond cancer, and this review confirms that different cultures may be concerned about different aspects of death, which warrants further empirical research.</p><p><strong>Implications for cancer survivors: </strong>These findings highlight the importance of providing targeted and culturally sensitive psychological interventions for death anxiety in those living beyond cancer.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144560156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient-reported walking difficulty predicting the post-discharge overall function in patients with lung cancer undergoing minimally invasive surgery. 患者报告的行走困难预测肺癌微创手术患者出院后的整体功能。
IF 3.1 2区 医学
Journal of Cancer Survivorship Pub Date : 2025-07-03 DOI: 10.1007/s11764-025-01859-5
Xin Tian, Peiyang Mao, Cheng Lei, Hongfan Yu, Wei Dai, Xing Wei, Jingyu Zhang, Wei Xu, Qiuling Shi
{"title":"Patient-reported walking difficulty predicting the post-discharge overall function in patients with lung cancer undergoing minimally invasive surgery.","authors":"Xin Tian, Peiyang Mao, Cheng Lei, Hongfan Yu, Wei Dai, Xing Wei, Jingyu Zhang, Wei Xu, Qiuling Shi","doi":"10.1007/s11764-025-01859-5","DOIUrl":"https://doi.org/10.1007/s11764-025-01859-5","url":null,"abstract":"<p><strong>Background: </strong>Postoperative mobility of patients with lung cancer is crucial for their physical rehabilitation. This study aimed to identify severe walking difficulty by a threshold and predicting the functional recovery of patients with lung cancer undergoing minimally invasive surgery (MIS).</p><p><strong>Methods: </strong>This prospective study enrolled patients with lung cancer who underwent MIS, divided into two cohorts. The 0-10 scale walking difficulty score was assessed regularly during hospitalization and post-discharge. Chi-square and receiver operating characteristic curve analyses guided to define the threshold, with the Timed Up and Go Test on postoperative day 2 as an anchor in cohort 1. Cohort 2 included patients assessed for walking difficulty at discharge. The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30 was assessed biweekly for 1 month post-discharge. Post-discharge functional status trajectories were compared based on the threshold.</p><p><strong>Results: </strong>Based on cohort 1, the threshold for walking difficulty was set to 4. Cohort 2 patients were categorized using the threshold: 71.26% exhibited no or mild, while 28.74% experienced severe walking difficulty upon discharge. Compliance rates for reporting walking difficulty post-discharge consistently exceeded 60%. Walking difficulty severity significantly impacted post-discharge physical function (P < 0.001), emotional function (P = 0.008), role function (P < 0.001), and quality of life (P = 0.033).</p><p><strong>Conclusions: </strong>A patient-reported walking difficulty score of ≥ 4 indicates severe walking difficulty. Significant differences in post-discharge functional status were observed among patients with different walking difficulty degrees.</p><p><strong>Implications for cancer survivors: </strong>Continuous rehabilitation care of severe walking difficulty demonstrates significant prognostic value for post-discharge functional recovery.</p><p><strong>Trial registration: </strong></p><p><strong>Clinicaltrials: </strong>gov Identifier: ChiCTR2000033016.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144553687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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