Journal of Cancer Survivorship最新文献

{"title":"A mixed-methods study characterizing patient experiences with digital survivorship services and preferences for care at a rural cancer center.","authors":"Christine M Gunn, Lisa G Gallagher, Mia St Angelo, Lisa A Purvis, Carly Sykes, Elaine S Kuhn","doi":"10.1007/s11764-026-02127-w","DOIUrl":"https://doi.org/10.1007/s11764-026-02127-w","url":null,"abstract":"<p><strong>Background: </strong>Delivering cancer survivorship services digitally may increase access for rural populations. This study examined the use of digital health services, digital health readiness, and preferences for survivorship services among cancer survivors treated at a rural comprehensive cancer center.</p><p><strong>Methods: </strong>We identified adults diagnosed with solid tumors from 2022 to 2024 who received treatment at Dartmouth Cancer Center locations. Demographics, visits, referrals, and questionnaires were collected via the health record. A survey was sent to a random sample of cohort patients stratified by tumor type. It assessed digital health readiness, service use and satisfaction, and interest in digital programming. Twenty-five survivors completed qualitative interviews about care experiences and unmet needs. Quantitative data were summarized descriptively; qualitative data were analyzed using a framework analysis.</p><p><strong>Results: </strong>The cohort included 8772 patients, 80% from rural areas, 81% with an active patient portal account, and 38% with at least one telehealth visit. Behavioral health was mainly delivered as telehealth (76% of visits), whereas cancer-directed specialties delivered < 5% of visits via telehealth. Of the 207 survey respondents, 42% reported using a patient portal often or always to manage their care. Digital health readiness was not associated with patient portal use or interest in digital services. Qualitative data described that digital services would enhance survivorship by facilitating communication with care teams, access to behavioral health, social support, and flexibility regarding visit modality.</p><p><strong>Conclusions: </strong>Despite perceptions that rural populations lack digital access, we found high engagement with telehealth and interest in digital care for survivorship. Augmenting in-person services with digital programming could improve the reach of survivorship care among rural populations.</p><p><strong>Implications for cancer survivors: </strong>Further research is needed to determine preferences for digital care delivery more explicitly across the continuum of survivorship (early, posttreatment, and long-term), as we would anticipate the needs and priorities of cancer survivors shift across time. As the use of digital tools to support information seeking, decision-making, and personal health monitoring expands, the need to support the interface between personal and health care data will require new solutions. Health systems that can deliver integrated digital services that support monitoring during survivorship will be best poised to provide high-quality care to cancer survivors and meet assessment criteria set forth in the national standards.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13637559/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149109866","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding and advancing alignment of the national standards for cancer survivorship care for adolescents and young adults: challenges and opportunities.","authors":"Andrea C Betts, K Scott Baker, Anne H Blaes, Katie A Devine, Erin E Hahn, Kimberly A Miller, Helen M Parsons, Jean C Yi","doi":"10.1007/s11764-026-02128-9","DOIUrl":"https://doi.org/10.1007/s11764-026-02128-9","url":null,"abstract":"<p><strong>Purpose: </strong>Adolescent and young adult (AYA) cancer survivors experience substantial late and long-term effects and require high-quality survivorship care. This work examines methodological challenges and related opportunities in assessing survivorship care availability, utilization, and key barriers and facilitators for AYAs, using the new National Standards for Cancer Survivorship Care as a guiding framework.</p><p><strong>Methods: </strong>Studies were conducted across nine geographically diverse health care systems in seven states (CA, FL, MN, NJ, NY, TX, WA), including seven NCI-designated comprehensive cancer centers, a large integrated health care system, and a county safety-net hospital. Designs included retrospective cohort and mixed methods approaches. Data collection methods comprised EHR abstraction; surveys of AYAs, clinicians, and administrators; and in-depth interviews and/or focus groups with AYAs, clinicians, and administrators. Across studies, AYAs were diagnosed between 2014 and 2024, were 15-44 years old at diagnosis, predominantly female, and racially and ethnically diverse, and had common AYA cancers.</p><p><strong>Results: </strong>Studies encountered challenges in defining survivorship care, accounting for AYA-specific factors, and addressing the complexity of survivorship care and the NCI Standards. First, we observed difficulties in defining and operationalizing survivorship care components, particularly in EHR data and across audiences who differed in how they understood survivorship care. Second, AYA-related factors such as geographic mobility, insurance changes, and fragmented care during young adulthood complicated assessment, especially for longitudinal analyses. Finally, the complexity of survivorship care and of the standards themselves posed substantial measurement challenges. In this context, collaboration and integration of data within and across AYA survivorship studies represent key research opportunities. Addressing known AYA barriers and priorities will be critical for guiding how the survivorship standards are evaluated and incorporated into clinical practice for AYAs.</p><p><strong>Implications for cancer survivors: </strong>Advancing the National Standards for Cancer Survivorship Care for AYAs requires nuanced approaches that integrate multiple perspectives, data sources, and care contexts.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149110231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A comparison of a novel neuropsychological screening tool with provider recommendations among pediatric cancer survivors.","authors":"Rachel S Werk, Shria K Haldipurkar, Jennifer L Reichek, Angela J Waanders, Suna Paek, Summer Baptiste, Jin-Shei Lai, Stephanie K Powell","doi":"10.1007/s11764-026-02136-9","DOIUrl":"https://doi.org/10.1007/s11764-026-02136-9","url":null,"abstract":"<p><strong>Purpose: </strong>We compared a novel parent-report screening tool developed by the Clinical Neuropsychology Collaborative for Childhood Cancers, referred to as the CNC3 Caregiver Report Questionnaire (CNC3-CRQ), against clinician recommendations for identifying childhood cancer survivors (CCS) needing referral to neuropsychology services.</p><p><strong>Methods: </strong>The CNC3-CRQ was administered to parents of CCS seen at a pediatric oncology survivorship clinic, with positive scores indicating need for referral to neuropsychology. CNC3-CRQ results as a cumulative variable and by individual neurocognitive domain were compared with clinically derived recommendations for referral to neuropsychology by their survivorship provider.</p><p><strong>Results: </strong>Among 173 participants, 41% had a history of hematologic malignancy and 20% had a history of central nervous system tumor. The CNC3-CRQ yielded recommendation for referral to neuropsychology for 68.2% of patients. Provider recommendations for referral to neuropsychology were significantly associated with higher odds of a positive CNC3-CRQ cumulative screen (OR = 13.2, 95% CI 3.76-52.1, p < 0.001). Across all neurocognitive domains, parent level of concern and symptom percentages were significantly positively associated with provider recommendations. When querying providers on their specific reasons for referral, reported parent/caregiver concern was significantly associated with a positive score in the CNC3-CRQ's Executive Functions: Behavior domain (OR 2.45, 95% CI 1.06-5.95, p < 0.05.) CONCLUSION: The CNC3-CRQ results had significantly positive convergent relationships with clinically derived recommendations by oncology providers specializing in CCS for referral to neuropsychology services.</p><p><strong>Implications for cancer survivors: </strong>The CNC3-CRQ may serve as a structured decision-support tool within clinics caring for CCS and may be particularly useful for those with less experience identifying neurocognitive late effects.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149110371","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Financial hardship in adolescent and young adult cancer survivors and adult survivors of childhood cancers.","authors":"Ayushi Garg, Sarah Monick, Brittany Kimball, Neel S Bhatt, Nandita Khera, Allison Rosenthal","doi":"10.1007/s11764-026-02133-y","DOIUrl":"https://doi.org/10.1007/s11764-026-02133-y","url":null,"abstract":"<p><strong>Purpose: </strong>Adolescent and young adult (AYA) cancer survivors and adult survivors of childhood cancer (CCSs) represent growing populations facing unique survivorship challenges. Among these, financial hardship has emerged as a critical late effect, with profound implications for quality of life and health equity.</p><p><strong>Methods: </strong>This narrative review synthesizes literature published between January 2020 and April 2025 on financial hardship in AYA cancer survivors and CCSs. Studies were identified through PubMed, Medline (Ovid), and Scopus and we compared the prevalence, determinants, and consequences of financial hardship across these populations.</p><p><strong>Results: </strong>Financial hardship represents a critical late effect with implications for quality of life and health equity. Common drivers include high out-of-pocket medical costs, educational and employment disruptions, job lock, and fertility preservation expenses. Marginalized groups, including racial and ethnic minorities, LGBTQIA+ individuals, and rural residents, face disproportionate risk. Financial hardship is linked to treatment non-adherence, delayed follow-up, and adverse psychosocial outcomes, which may be exacerbated during care transitions and insurance changes. Interventions remain limited, but emerging strategies include early financial risk screening, integration of financial navigation into survivorship care, policy reforms to decouple insurance from employment, and leveraging digital tools for resource delivery.</p><p><strong>Conclusions: </strong>Gaps persist in prospective, population-based research, culturally tailored interventions, and systematic inclusion of underserved survivors.</p><p><strong>Implications for cancer survivors: </strong>Addressing financial hardship in AYA cancer survivors and CCSs requires coordinated clinical, policy, and community efforts to ensure equitable survivorship outcomes.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149038989","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Secret or superpower? A narrative reflection on navigating dual identities as cancer survivors and cancer scientists.","authors":"Ursula M Sansom-Daly, Clarissa E Schilstra","doi":"10.1007/s11764-026-02110-5","DOIUrl":"https://doi.org/10.1007/s11764-026-02110-5","url":null,"abstract":"<p><strong>Purpose: </strong>International research policy increasingly recognises lived experience as a form of expertise, encouraging meaningful involvement of lived experience expertise in research. However, such guidance often assumes a binary distinction between researchers and those with lived experience, offering little direction for individuals who embody both identities. This commentary examines the tensions, opportunities, and ethical considerations faced by adolescent and young adult (AYA) cancer survivors who also work as psycho-oncology researchers.</p><p><strong>Methods: </strong>Drawing on our positionality as survivor-scientists, we reflect on how disclosure of lived experience is shaped by academic culture, career stage, mentorship, and evolving norms regarding experiential expertise.</p><p><strong>Results: </strong>Our narratives illustrate divergent pathways: one characterised by caution, driven by concerns about credibility and perceived bias, another enabled by mentorship that explicitly valued lived experience as an asset to rigorous research. Situating these reflections within existing literature on identity negotiation among AYA cancer survivors, we extend this work by examining how these challenges are intensified within academic and healthcare settings.</p><p><strong>Conclusions: </strong>We call for a shift from binary thinking about research and lived experience expertise, toward a continuum of expertise. Clear guidance and cultural change are needed to enable the lived experience expertise of academic cancer researchers to enhance the inclusivity, relevance, and quality of cancer research.</p><p><strong>Implications for cancer survivors: </strong>This commentary highlights that lived experience of cancer should not undermine the credibility of academic cancer researchers. Rather, increased guidance and culture change can open pathways through which survivor-scientists can contribute their expertise safely and authentically.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149061381","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding nonresponse and strategies to improve response rates in a randomized controlled trial among breast cancer survivors: the FASTRACS-INSIGHT mixed-methods study.","authors":"Aimline Soulier, Apolline Blazer, Marie Préau, Laure Guittard, Audrey Maurin, Béatrice Fervers, Laurent Letrilliart, Julien Carretier, Guillaume Broc, Jean-Baptiste Fassier, Julien Péron, Sabrina Rouat, Marion Lamort-Bouché","doi":"10.1007/s11764-026-02132-z","DOIUrl":"https://doi.org/10.1007/s11764-026-02132-z","url":null,"abstract":"<p><strong>Purpose: </strong>FASTRACS-RCT is a prospective, multisite, randomized, and controlled trial (N=431). It evaluates the effectiveness of the FASTRACS intervention on the return to work for breast cancer survivors (BCSs). A decrease in the rate of response to the intervention was observed during follow-up. This study aimed to identify reasons for nonresponse and evaluate the acceptability of strategies to improve responses through the INSIGHT (Identify Nonresponse and Strategies to Improve Questionnaires' Trustworthiness) intervention, focusing on BCSs' needs and sustainable response strategies.</p><p><strong>Methods: </strong>Needs assessment (1): A statistical analysis identified subgroups at higher risk of nonresponse within the FASTRACS-RCT, and individual interviews explored barriers and facilitators to participation. Intervention development and implementation (2): A brainstorming session was conducted with BCSs from the FASTRACS Intersectoral Strategic Participatory Committee (ISPC) and phone calls were made to interview participants. Evaluation (3): A before-and-after analysis of response rates was conducted.</p><p><strong>Results: </strong>(1) Nonrespondents were younger than respondents and reported more systemic side effects from breast cancer treatment. Nonresponse was influenced by the breast cancer experience, questionnaire design, and completion context (hospital versus home). (2) Four intervention components were developed: personalized reminder cards with tea bags, printed questionnaires for every participant, a medical appointments booklet with a FASTRACS pen, and reinforcement of phone completion and text reminders. (3) Response rates increased from 54.4% to 74.4% at T3 (p < 0.001) and from 46.2% to 76.7% at T4 (p < 0.001).</p><p><strong>Conclusions: </strong>The FASTRACS-INSIGHT intervention was developed and implemented, leading to a successful rise in questionnaire completion.</p><p><strong>Implications for cancer survivors: </strong>The inclusion of BCSs in the development of the FASTRACS-INSIGHT intervention demonstrates the importance of involving BCSs to develop interventions tailored to their needs.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149024997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Financial concerns: a critical gap in survivors' experience of the implementation of the national standards for cancer survivorship care.","authors":"Marguerite A Webster, Abigayle R Feather, Sandi Back-Haddix, Courtney Blair, Marjorie L Stanek, Lynn J Andreae, Laurie E McLouth, Jessica L Burris","doi":"10.1007/s11764-026-02126-x","DOIUrl":"https://doi.org/10.1007/s11764-026-02126-x","url":null,"abstract":"<p><strong>Purpose: </strong>It is vitally important to comprehensively identify and address cancer survivors' unmet needs. The new national standards for cancer survivorship care may improve survivorship care by defining quality care. The purpose of this convergent mixed-methods study was to describe how survivorship care at one cancer center aligns with the health system processes outlined in the national standards.</p><p><strong>Methods: </strong>Survey participants (N = 150) were survivors purposively sampled by treatment status, cancer stage, and geographic residence. Survey data evaluated how well providers assessed, listened to, and managed participants' concerns across key domains and were primarily analyzed descriptively. Survey data were complemented by semi-structured interview data from n = 17 survivors, which were analyzed using directed content analysis.</p><p><strong>Results: </strong>Greater than 70% of participants reported that their providers regularly assessed and listened to physical and emotional concerns. Fewer than 30% reported regular assessment of financial and insurance concerns. Once identified, most concerns were adequately managed by care teams, the exception being practical concerns. Interviewees highlighted quality survivorship care in general with some internal and external barriers. Participants recommended increasing awareness of available services and improving care coordination and navigation related to survivorship care.</p><p><strong>Conclusions: </strong>Results suggest that while survivorship care may align with the national standards related to physical and emotional concerns, there is critical need to improve assessment and management of financial concerns.</p><p><strong>Implications for cancer survivors: </strong>Cancer centers should conduct comprehensive screening that includes financial and other practical concerns and implement processes for connecting survivors with needed services.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149008665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Unequal paths to care: a scoping review of access and cancer outcomes in Alabama.","authors":"Nicole Caviness-Ashe, Cha'Breia Means, Lindsay Aaron-Wade, Abbie Ninson, Anita Aboagye, Stephen Sodeke, Miriam Miles, Mackenzie E Fowler, Emma O ' Hagan, Oluseun Akinyele, Mary Aboagye, Le'Andrea Anderson, Kathryn A Kaiser, Timiya S Nolan","doi":"10.1007/s11764-026-02115-0","DOIUrl":"10.1007/s11764-026-02115-0","url":null,"abstract":"<p><strong>Purpose: </strong>Alabama experiences some of the highest cancer incidence and mortality rates in the USA. Black and rural residents experience a disproportionate burden of cancer disparities, driven by geographic isolation, financial hardship, limited insurance coverage, and fragmented healthcare systems, all of which impede timely access to cancer prevention, treatment, survivorship, and palliative care services. This scoping review synthesizes historical and contemporary research describing barriers and access to cancer care among residents of Alabama across the cancer care continuum using Robinson and Hudson's Inter-relationships Framework.</p><p><strong>Methods: </strong>Guided by the PRISMA-ScR reporting and Joanna Briggs Institute methodologies, we searched MEDLINE, Embase, Scopus, CINAHL, and APA PsycINFO for peer-reviewed studies published between January 1, 1995, and December 30, 2024. Two reviewers independently screened articles and extracted data using a four-stage extraction and verification process. Critical appraisal was conducted using JBI tools to contextualize study quality; no studies were excluded based on appraisal scores.</p><p><strong>Results: </strong>A total of 28 studies met criteria, involving Black, rural, and older adults in Alabama. Barriers to cancer care occurred at multiple levels. Patient-level barriers included financial hardship, travel burden, and insurance limitations. Provider-level influences included communication quality, cultural responsiveness, and continuity of care. System-level barriers included rural healthcare workforce shortages, concentration of specialty care in urban centers, and the absence of Medicaid expansion. Lay navigation and telehealth-based symptom monitoring demonstrated promise in improving access and continuity of care.</p><p><strong>Conclusion: </strong>Access to cancer care in Alabama is influenced by patient, provider, and system-level factors. Sustainable progress will require coordinated efforts that expand insurance coverage, strengthen rural healthcare infrastructure, and adopt culturally responsive, culturally centered cancer care delivery models.</p><p><strong>Implications for cancer survivors: </strong>Accessible healthcare is critical to achieve timely diagnosis, deliver appropriate treatments, and provide necessary supportive care to cancer survivors in under-resourced areas.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149008617","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The national standards for cancer survivorship care in action: caregiver experiences across stage, phase, and geography.","authors":"Abigayle R Feather, Marguerite A Webster, Marjorie L Stanek, Lynn J Andreae, Sandi Back-Haddix, Courtney Blair, Jessica L Burris, Laurie E McLouth","doi":"10.1007/s11764-026-02124-z","DOIUrl":"https://doi.org/10.1007/s11764-026-02124-z","url":null,"abstract":"<p><strong>Purpose: </strong>Caregivers play a central role in supporting cancer survivors across the care continuum, often at detriment to their own well-being. Recognizing caregivers' role in survivorship, the National Standards for Cancer Survivorship Care state the health system should assess \"caregivers' experiences and unmet needs.\" This study sought to describe the extent to which this standard is being met from the perspective of caregivers.</p><p><strong>Methods: </strong>This cross-sectional, convergent mixed-methods study leveraged survey and semi-structured interview data from caregivers of survivors in active and post-treatment survivorship care at a southeastern U.S. cancer center. Surveys queried caregivers' concerns and their experience being asked about and communicating various concerns; interviews further characterized these experiences, including barriers and facilitators to accessing services. Survey data were analyzed descriptively (and by various subgroups), and interview data were examined using directed content analysis.</p><p><strong>Results: </strong>For the 77 caregivers surveyed (64.94% female; 96.10% non-Hispanic White; M average caregiving/week = 36 h), emotional concerns were most reported (66%), yet ≥ 50% of caregivers reported never being asked about these issues by the care team. Rural caregivers were less likely than non-rural caregivers to report the care team had inquired about their social and medical caregiving concerns. Interview data highlighted limited assessment of caregiver needs, logistical and communication barriers, and desire for proactive, tailored supportive services.</p><p><strong>Conclusions: </strong>Practice gaps in assessing and addressing caregivers' emotional, social, and physical health needs must be overcome to meet the caregiver standard, particularly if assessment is to be comprehensive in scope to mirror survivor assessment standards.</p><p><strong>Implications for cancer survivors: </strong>Cancer care should implement routine, comprehensive structured assessment and referral pathways to meet caregiver needs.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149001978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"This is not your fault: a reflection on cancer and pregnancy loss.","authors":"Leanna Blanchard","doi":"10.1007/s11764-026-02121-2","DOIUrl":"https://doi.org/10.1007/s11764-026-02121-2","url":null,"abstract":"<p><p>L Blanchard, a young survivor, was diagnosed with and treated for early-stage breast cancer. After undergoing years of treatment, including ongoing endocrine therapy, Leanna describes the emotional journey of pregnancy planning and loss after breast cancer. She describes a range of struggles, including fears of recurrence as she considers therapy breaks to pursue family planning. She also describes a myriad of emotions related to pregnancy losses after a cancer diagnosis. Through all these challenges, Leanna has continued to work in physical therapy and support other individuals recovering after a cancer diagnosis.Implications for Cancer Survivors Adolescent and young adult cancer survivors may face unique challenges related to fertility and family planning after cancer diagnosis and treatment. Survivors should be offered counseling on fertility and family planning options at the time of diagnosis and should be provided ongoing support in these areas throughout their treatment and survivorship experience.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149001990","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}