Journal of Autism and Developmental Disorders最新文献

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Self-Compassion and Psychological Health of Parents: A Meta-Analysis Focused on Some Neurodevelopmental Disorders. 自我同情与父母心理健康:一项基于神经发育障碍的元分析。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-04-21 DOI: 10.1007/s10803-025-06841-9
Cansu Ozturk, H Senay Guzel
{"title":"Self-Compassion and Psychological Health of Parents: A Meta-Analysis Focused on Some Neurodevelopmental Disorders.","authors":"Cansu Ozturk, H Senay Guzel","doi":"10.1007/s10803-025-06841-9","DOIUrl":"10.1007/s10803-025-06841-9","url":null,"abstract":"<p><p>Parents of children with neurodevelopmental disorders (NDDs) may face various psychological problems and experience parenting stress because of the nature of these disorders. Parents' psychological distress and high levels of parenting stress have a negative impact on their well-being. In addition, recent studies on the buffering effect of self-compassion related with psychological difficulties have also attracted attention. At this point, this study aims to carry out a meta-analytic review of studies examining the association between self-compassion and psychological distress, parenting stress, and well-being. Web of Science (WOS), Scopus, and EBSCOHost (APA PsycArticles, MEDLINE, TR Index, ERIC) electronic databases were searched in November 2023. Studies were included if they were quantitative and included parents of children with NDDs as the study population. As a result, 131 studies were obtained. After the duplicate studies were removed and evaluated according to the inclusion criteria, n = 15 were included. The random effects model was used to obtain the pooled effect sizes. The results showed that there was a large, negative, and significant relationship between self-compassion and parental depression score and parenting stress; a moderate, negative, and significant relationship between self-compassion and parental anxiety score; and a large, positive, and significant relationship between self-compassion and parental well-being. According to these findings, it is important to observe and measure the level of self-compassion for the well-being of parents of children with neurodevelopmental disorders. Moreover, increasing self-compassion in parents of children with neurodevelopmental disorders may be a protective factor for the psychological health of these parents.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"3828-3843"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13538213/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144010888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Low Battery Alarm; A Scoping Review of Autistic Burnout. 低电量报警;自闭症倦怠的范围审查。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-05-03 DOI: 10.1007/s10803-025-06860-6
Pardis Jahandideh, Homa Seyedmirzaei, Pegah Rasoulian, Amirhossein Memari
{"title":"Low Battery Alarm; A Scoping Review of Autistic Burnout.","authors":"Pardis Jahandideh, Homa Seyedmirzaei, Pegah Rasoulian, Amirhossein Memari","doi":"10.1007/s10803-025-06860-6","DOIUrl":"10.1007/s10803-025-06860-6","url":null,"abstract":"<p><p>Autistic people have long talked about autistic burnout in social media yet there is limited data available in the academic literature, and its definition is still under debate. This scoping review aims to explore the key concepts related to autistic burnout and identify gaps in the current knowledge of this condition. We conducted a comprehensive search across PubMed, Scopus, Embase, Web of Science, and PsycINFO databases to gather data on autistic burnout. The extracted data from 14 included studies fell into six themes, namely Subjective Understanding of Burnout (four subthemes), Burnout Characterization (three subthemes), Evaluation, Co-occurrence and Misidentification, Biological Mechanisms, and Solutions. The Subjective Understanding of Burnout represents the internal point of view (POV) on autistic burnout (experiences and feelings of people who have personally encountered burnout), while the rest fall into the category of external POV (observations or assessments from outside people or experts who observed autistic burnout in affected individuals). Despite the growing literature on autistic burnout, our study reveals several gaps in current knowledge, such as its epidemiology, protective and risk factors, consequences, and educational plans and guidelines to improve awareness and support. Separating findings by the internal and external POVs makes up one of the strengths of this study.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"3931-3951"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143982231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"The System Sweeps it Under the Rug": Educational Staff's Perspectives on Romantic Relationships Among Autistic Adolescents. “系统把它扫到地毯下”:教育工作者对自闭症青少年恋爱关系的看法。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-05-14 DOI: 10.1007/s10803-025-06872-2
Carmit-Noa Shpigelman, Gal Hodara Hassan
{"title":"\"The System Sweeps it Under the Rug\": Educational Staff's Perspectives on Romantic Relationships Among Autistic Adolescents.","authors":"Carmit-Noa Shpigelman, Gal Hodara Hassan","doi":"10.1007/s10803-025-06872-2","DOIUrl":"10.1007/s10803-025-06872-2","url":null,"abstract":"<p><p>Article 23 of the Convention on the Rights of Persons with Disabilities (CRPD) calls to recognize the right of people with disabilities to have romantic relationships, marry and raise children. However, to date, research has mainly focused on this issue in relation to people with physical or intellectual disabilities. Less is known about romantic relationships among autistic adolescents and how others in their immediate environment, such as educational staff, perceive and refer to this issue. To address this gap, the present study aimed to understand and describe the perspectives of educational staff on the romantic relationships of autistic adolescents, including their views regarding the right and capability of adolescents to form and maintain such relationships, and the education system's role in providing relevant knowledge and skills. A descriptive phenomenological qualitative approach was applied. Face-to-face interviews were conducted with 20 educational staff members from special education schools in Israel. Four main themes emerged from the thematic analysis of the interviews: (1) Stigmatic attitudes regarding the ability of autistic adolescents to develop romantic relationships; (2) Preventive sexual education as a priority; (3) Behavioral implications of educational neglect; and (4) Recommended practices. The findings highlight the need for macro- and micro-level change by developing an adapted curriculum that views romantic relationships as positive and constructive and eliminating stigmatic perceptions among educational staff. Another recommendation is to provide educational staff with emotional and practical preparation for addressing the issue of romantic relationships in class.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"4135-4146"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144006769","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Financial Literacy Skills Instruction Among Autistic Individuals: A Systematic Review. 自闭症个体的金融素养技能指导:系统回顾。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-05-03 DOI: 10.1007/s10803-025-06853-5
David Schena, Monica Galizzi, Ashleigh Hillier, Jacob Desruisseaux
{"title":"Financial Literacy Skills Instruction Among Autistic Individuals: A Systematic Review.","authors":"David Schena, Monica Galizzi, Ashleigh Hillier, Jacob Desruisseaux","doi":"10.1007/s10803-025-06853-5","DOIUrl":"10.1007/s10803-025-06853-5","url":null,"abstract":"<p><strong>Purpose: </strong>Financial literacy skills are crucial for an independent life in modern societies. However, it does not appear that researchers have examined financial literacy skills among autistic individuals. This manuscript uses a systematic review to identify existing research which examines financial literacy skill instruction for autistic individuals.</p><p><strong>Method: </strong>We used a systematic review strategy to identify approximately 9500 articles. These articles proceeded through abstract and full-text screening for relevance.</p><p><strong>Results: </strong>We identified two studies which directly taught financial literacy skills, and ten more which taught more basic money skills (such as calculating change). Neither of the two studies which taught financial literacy skills did so as an exclusive focus; both taught these skills alongside other objectives, as part of a larger intervention.</p><p><strong>Conclusions: </strong>Research on financial literacy skill instruction among autistic individuals is lacking, though there is a foundation of research examining money skills and related life skills to build upon. We recommend additional research on financial literacy skill instruction, ideally designed with the unique skills and needs of autistic individuals in mind, and with their input.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"3878-3892"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144019664","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social Responsiveness as a Mediator in Adapted Cognitive Behavioral Therapy for Autistic Youth with Maladaptive and Interfering Anxiety. 社会反应:适应认知行为治疗对自闭症青少年适应不良和干扰性焦虑的中介作用。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-05-07 DOI: 10.1007/s10803-025-06866-0
Jeffrey J Wood, Eric A Storch, Katherine Sung, Karen S Wood, Philip C Kendall
{"title":"Social Responsiveness as a Mediator in Adapted Cognitive Behavioral Therapy for Autistic Youth with Maladaptive and Interfering Anxiety.","authors":"Jeffrey J Wood, Eric A Storch, Katherine Sung, Karen S Wood, Philip C Kendall","doi":"10.1007/s10803-025-06866-0","DOIUrl":"10.1007/s10803-025-06866-0","url":null,"abstract":"<p><p>Numerous adaptations to interventions have been included in cognitive behavioral therapy (CBT) for autistic youth. This study examines the degree to which CBT adapted to the social needs of autistic youth confers significant benefit by promoting social responsiveness. A secondary analysis was conducted on a multisite randomized clinical trial (Wood et al. in JAMA Psychiatry 77:474-483, 2020) comparing adapted CBT with standard-of-practice CBT and treatment-as-usual (TA). Autistic youth (N = 167; aged 7-13) with maladaptive and interfering anxiety participated. The adapted CBT (BIACA) uses a modular format, with an emphasis on supplementing common CBT practice elements (reframing and graded exposure) with social skill supports. The primary outcome measure was the Pediatric Anxiety Rating Scale. Social responsiveness was assessed with the Social Responsiveness Scale, Second Edition. Participants' general mental health was assessed as a secondary outcome using the Brief Problem Checklist. Mediation was tested using the SPSS PROCESS macro. Analyses suggested that the effect of adapted CBT on anxiety was mediated by its effects on social responsiveness, with a statistically significant indirect effect. Youth randomly assigned to adapted CBT exhibited better overall mental health at posttreatment compared to those randomized to the other conditions, and this effect was also mediated by improved social responsiveness. CBT adapted to address some of the social needs of autistic youth may enhance mental health outcomes by supporting social responsiveness, perhaps increasing the ease and effectiveness with which some youth can navigate potentially stressful situations such as entering and participating in group activities.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"3755-3764"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13538194/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143968263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sensitivity and Specificity of Developmental Surveillance and Autism Screening in an Australian Multicultural Cohort: The Watch Me Grow Study. 澳大利亚多元文化队列中发育监测和自闭症筛查的敏感性和特异性:观察我成长研究。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-05-15 DOI: 10.1007/s10803-025-06859-z
Charmaine Bernie, Alicia Montgomery, Louise Sealy, Joseph Descallar, Cheryl Dissanayake, Bin Jalaludin, Elisabeth Murphy, Sue Woolfenden, Katrina Williams, Valsamma Eapen
{"title":"Sensitivity and Specificity of Developmental Surveillance and Autism Screening in an Australian Multicultural Cohort: The Watch Me Grow Study.","authors":"Charmaine Bernie, Alicia Montgomery, Louise Sealy, Joseph Descallar, Cheryl Dissanayake, Bin Jalaludin, Elisabeth Murphy, Sue Woolfenden, Katrina Williams, Valsamma Eapen","doi":"10.1007/s10803-025-06859-z","DOIUrl":"10.1007/s10803-025-06859-z","url":null,"abstract":"<p><p>To examine accuracy of two-tiered surveillance to detect developmental disability and autism in a multicultural birth cohort; a subset of the Watch Me Grow Study. Surveillance tools were used at or soon after 18 months of age, including the Parents' Evaluation of Developmental Status (PEDS), the Ages and Stages Questionnaire (ASQ-3), and the revised Modified Checklist for Autism in Toddlers (M-CHAT-R/F). Children with and without identified concerns were assessed between 18 and 23 months using the Mullen Scales of Early Learning (MSEL) and the Autism Diagnostic Observation Schedule-2 (ADOS-2). Sensitivity and specificity of the surveillance tools used in isolation and in combination in this cohort ranged from 51 to 87% (n = 165). Some children (n = 21) who were not identified with high likelihood of difficulties were later assessed as having probable developmental disability. Adding the M-CHAT-R/F did not significantly improve autism likelihood identification in comparison with tiered developmental surveillance. There was highly variable sensitivity and specificity of combined tools for tiered developmental surveillance in this cohort. There remains a need in Australia to improve methods of, and engagement in, developmental screening and surveillance that includes detection of concerns in community and primary healthcare settings.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"4164-4174"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13538240/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144078267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Atypical Social Behavior is Predicted by Overconnectivity Between Salience and Default Mode Networks in Autism Spectrum Disorder. 自闭症谱系障碍显著性和默认模式网络之间的过度连接预测非典型社会行为。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-04-24 DOI: 10.1007/s10803-025-06840-w
Alina Minnigulova, Maria Protopova, Olga Dragoy, Vardan Arutiunian
{"title":"Atypical Social Behavior is Predicted by Overconnectivity Between Salience and Default Mode Networks in Autism Spectrum Disorder.","authors":"Alina Minnigulova, Maria Protopova, Olga Dragoy, Vardan Arutiunian","doi":"10.1007/s10803-025-06840-w","DOIUrl":"10.1007/s10803-025-06840-w","url":null,"abstract":"<p><p>As Default Mode and Salience networks (DMN, SN) contribute to social behavior and switching between inner and outer attention, they are believed to function and develop differently in individuals with Autism Spectrum Disorder (ASD). However, it remains unclear what alterations of their interactivity are connected to certain autistic traits and how age influences these networks' maturing. Behavioral (social responsiveness, executive functions and communication skills) and resting-state functional connectivity (FC) data from the Autism Brain Imaging Data Exchange were analyzed comprising individuals with ASD (n = 144) and healthy controls (n = 99). We compared FC between the groups investigating DMN and SN separately and in combination. Finally, we assessed FC-behavior links in the ASD group and age effects on FC across these networks in both samples. Individuals with ASD exhibited increased FC between DMN and SN but decreased one within DMN compared to the control group. FC between right insular and medial prefrontal cortices predicted more severe social responsiveness impairments in ASD but there were no significant associations with executive functions nor adaptive behavior. Additionally, DMN and SN matured in ASD with partly different patterns than in typical development. Our results replicated and expanded previous findings on DMN and SN pointing to robust differences within and between these networks in ASD and their contribution to autistic traits regarding social responsiveness.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"3844-3852"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144063892","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sensitivity and Expected Change of Commonly Used Social Communication Measures in Longitudinal Research of Young Autistic Children. 青少年自闭症儿童常用社交手段的敏感性及预期变化。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-05-10 DOI: 10.1007/s10803-025-06863-3
Kyle Sterrett, Maria Pizzano
{"title":"Sensitivity and Expected Change of Commonly Used Social Communication Measures in Longitudinal Research of Young Autistic Children.","authors":"Kyle Sterrett, Maria Pizzano","doi":"10.1007/s10803-025-06863-3","DOIUrl":"10.1007/s10803-025-06863-3","url":null,"abstract":"<p><p>Social communication measures used to track change in autistic children have not undergone rigorous psychometric evaluation. There is little data on their expected change or sensitivity to change. Meta-analytic techniques were used to examine sensitivity to change and expected change over time and whether these are influenced by factors like children's age and the presence of intervention. Pooled effect sizes were generated within measures, rather than within broader constructs. Change over time was small to medium, although there was variability. Most outcomes were not sensitive to change over time. Change in some measures was influenced by child characteristics and methodological characteristics of included studies such as study quality and the method of scoring measures (e.g., using age-equivalents versus standard scores). Tests measuring similar constructs can vary in their expected change, and so care is needed when selecting them.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"3893-3909"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13538225/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144018051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Autism Predicts Performance on iPad-Administered Tests of Executive Functioning in Preschoolers in Mainland China. 自闭症预测中国大陆学龄前儿童ipad执行功能测试的表现
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-05-07 DOI: 10.1007/s10803-025-06854-4
Vanessa Zhou, Jingyu Xu, Xue Li
{"title":"Autism Predicts Performance on iPad-Administered Tests of Executive Functioning in Preschoolers in Mainland China.","authors":"Vanessa Zhou, Jingyu Xu, Xue Li","doi":"10.1007/s10803-025-06854-4","DOIUrl":"10.1007/s10803-025-06854-4","url":null,"abstract":"<p><p>The purpose of this study was to investigate whether autism diagnostic status (versus neurotypical status) predicts performances on iPad-delivered measures of executive functioning (EF) in mainland Chinese preschoolers. The present study included 21 autistic preschoolers and 28 age- and gender-matched neurotypical preschoolers aged 3-6 years old. Participants were administered tests of visuospatial working memory, inhibitory control, and cognitive flexibility using the Early Years Toolbox. Results showed that autism predicted poorer performances on tests of working memory, inhibitory control, and cognitive flexibility in Chinese preschoolers. This study provides support for difficulties with visuospatial working memory, inhibitory control, and cognitive flexibility in autistic preschoolers in mainland China.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"4061-4075"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143991616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
'Being Autistic is Kind of Who You Are, It's an Identity Rather than a Disorder': Identity Negotiation and Construction Among Autistic Adults Diagnosed in Later Life. “自闭症是一种你是谁,它是一种身份而不是一种障碍”:晚年诊断为自闭症的成年人的身份协商和建构。
IF 2.6 2区 心理学
Journal of Autism and Developmental Disorders Pub Date : 2026-10-01 Epub Date: 2025-05-06 DOI: 10.1007/s10803-025-06865-1
Kate Bransgrove, Gabriella Karakas
{"title":"'Being Autistic is Kind of Who You Are, It's an Identity Rather than a Disorder': Identity Negotiation and Construction Among Autistic Adults Diagnosed in Later Life.","authors":"Kate Bransgrove, Gabriella Karakas","doi":"10.1007/s10803-025-06865-1","DOIUrl":"10.1007/s10803-025-06865-1","url":null,"abstract":"<p><p>The purpose of this study is to address the gap in research concerning how identity is constructed and negotiated among individuals diagnosed with autism later in life. With the increasing number of adult autism diagnoses, it is crucial to understand the identity formulation process in these individuals to mitigate potential long-term impacts on mental health, well-being, and the acceptance of their autistic identity. This study employed a qualitative approach, involving eight autistic individuals who were diagnosed later in life. The participants' experiences, understandings, and unique support needs were explored to gain insights into their identity development. Thematic analysis was utilized to identify recurring themes in the data, leading to the creation of a new identity framework. This framework was compared against the Cognitive Adaptation Model (1983), a widely used identity framework, to assess its relevance. The analysis identified significant themes, including the roles of social, formal, media, and peer support, in aiding late-diagnosed autistic individuals to embrace their autistic identity. The newly developed identity framework outlines the stages of identity development that these individuals experience post-diagnosis, highlighting the importance of various support systems in their journey. This study contributes to a deeper understanding of the identity formulation process in late-diagnosed autistic individuals, offering valuable insights for practitioners, mental health organizations, policymakers, and the general public. By promoting awareness of the unique identity development and support needs of this population, the study aims to improve services and support systems, ultimately helping late-diagnosed autistic individuals better accept and integrate their autistic identity.</p>","PeriodicalId":15148,"journal":{"name":"Journal of Autism and Developmental Disorders","volume":" ","pages":"3970-3987"},"PeriodicalIF":2.6,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144022649","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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