IF 2 4区医学

Health Pub Date : 2026-06-26 DOI: 10.1177/13634593261461506

Henriette Søby Gärtner, Bodil H Blix, Mette Raunkiær, Helle Timm

{"title":"Sharing stories: Experiences of sharing personal stories and creating a collective story about living with advanced cancer.","authors":"Henriette Søby Gärtner, Bodil H Blix, Mette Raunkiær, Helle Timm","doi":"10.1177/13634593261461506","DOIUrl":"https://doi.org/10.1177/13634593261461506","url":null,"abstract":"Narratives play a crucial role in shaping individual and collective identities, also in the context of illness. This study explored the experiences of individuals with advanced cancer who participated in a narrative course at a Danish research clinic in 2022. This course included a collective storytelling exercise where participants shared personal illness narratives that eventually were integrated into a collective story document. Drawing on ethnographic fieldwork including participant observations, individual interviews, focus groups, and the collective story documents, this study explores two key research questions: What do collective stories reveal about participants' experiences of living with advanced cancer? How do participants experience the process and significance of creating collective stories, both within the course setting and beyond? The findings reveal that the collective stories predominantly centered on themes of suffering and loss, including physical, emotional, and social challenges. Sharing and listening to these stories in common fostered a sense of community among participants, alleviating feelings of loneliness and validating their experiences. However, attempts to share the collective stories outside the course setting often proved challenging, highlighting the unique role of the course as a supportive \"local moral world.\"The study underscores the potential of collective storytelling in rehabilitation and palliative care, while emphasizing the influence of broader cultural and social narratives on illness experiences.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261461506"},"PeriodicalIF":2.0,"publicationDate":"2026-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148328846","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Spatiotemporal framing of uncertainty in Czech media vaccination debates before and during COVID-19. COVID-19之前和期间捷克媒体疫苗接种辩论中的不确定性时空框架

IF 2 4区医学

Health Pub Date : 2026-06-23 DOI: 10.1177/13634593261458856

Dino Numerato, Eva Soares Moura

{"title":"Spatiotemporal framing of uncertainty in Czech media vaccination debates before and during COVID-19.","authors":"Dino Numerato, Eva Soares Moura","doi":"10.1177/13634593261458856","DOIUrl":"10.1177/13634593261458856","url":null,"abstract":"Uncertainty represents one of the principal aspects of public debates concerning health issues, and it has been particularly prominent in the context of epidemics and pandemics. The mass media play an important role in shaping public perceptions, decision-making, and behaviour. This study examines how mass media in Czechia constructed and navigated uncertainties before and during the COVID-19 pandemic, with a focus on spatiotemporality. Through qualitative content analysis of 437 articles published in three online media, we move beyond research that typically treats uncertainty as a single, undifferentiated category, and systematically analyse distinct uncertainty frames and the spatiotemporal strategies through which journalists constructed, mitigated, or amplified uncertainty over time. Our analysis shows that journalistic accounts addressed uncertainties in both expert-knowledge and socio-economic domains. Moreover, we identify four key frames used in the journalistic accounts to construct and navigate uncertainty: marginalisation of uncertainty, recognition of uncertainty, management of uncertainty, and amplification of uncertainty. Our study has implications for studying vaccine hesitancy or health crises, as well as for further exploration of media framing of health-related uncertainty more broadly.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261458856"},"PeriodicalIF":2.0,"publicationDate":"2026-06-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148301257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Who decides what is healthy? Algorithmic classification and medical normativity. 谁来决定什么是健康的？算法分类与医学规范。

IF 2.3 4区医学

Health Pub Date : 2026-06-09 DOI: 10.1177/13634593261458873

Wen Peng

{"title":"Who decides what is healthy? Algorithmic classification and medical normativity.","authors":"Wen Peng","doi":"10.1177/13634593261458873","DOIUrl":"https://doi.org/10.1177/13634593261458873","url":null,"abstract":"The proliferation of algorithmic classification systems in healthcare raises fundamental questions about medical normativity: who determines the standards of health, and through what mechanisms are those standards constructed and enforced? This paper makes three original contributions. First, it conceptualizes algorithmic normativity as a multidimensional phenomenon operating through training data selection, loss function design, and clinical deployment contexts. Second, it forges a novel analytical link between population-level structural inequity and the undertheorised phenomenological dimension of diagnostic identity fragmentation. Third, it proposes a human-centric governance framework integrating transparency, plural normativities, and meaningful patient participation as a coherent alternative to purely technical approaches to algorithmic fairness. Drawing on medical sociology, science and technology studies, and bioethics, I argue that algorithmic systems do not simply discover pre-existing medical truths but actively construct normative frameworks that reflect and reproduce social inequities embedded in their development. The question of who decides what is healthy cannot be answered through computational means alone but requires sustained democratic engagement with the ethical, social, and political dimensions of algorithmic medicine.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261458873"},"PeriodicalIF":2.3,"publicationDate":"2026-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148204744","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

It's not a headache! It's a migraine: Exploring women's experiences of medical gaslighting in Ontario, Canada. 这不是头痛！这是一种偏头痛：探索加拿大安大略省女性的医疗煤气灯体验。

IF 2.3 4区医学

Health Pub Date : 2026-05-29 DOI: 10.1177/13634593261455073

Susan Cape

{"title":"It's not a headache! It's a migraine: Exploring women's experiences of medical gaslighting in Ontario, Canada.","authors":"Susan Cape","doi":"10.1177/13634593261455073","DOIUrl":"https://doi.org/10.1177/13634593261455073","url":null,"abstract":"This study explores the experiences of women seeking diagnosis and treatment for migraine symptoms in Ontario, Canada, and contributes to the growing literature on the concept of medical gaslighting. Migraine patients, particularly women, often report feeling disempowered within medical settings, where their symptoms and concerns may be minimized or dismissed. In recent years, the term medical gaslighting has increasingly been used by patients and in the media to describe these types of experiences. Guided by a critical ethnographic approach, this study seeks to illuminate how gaslighting is experienced within clinical interactions and traces the connections between women's lived experiences and the broader social, political, and cultural contexts that shape them. Qualitative interviews were conducted with 17 women in Ontario, Canada who had received a diagnosis and/or treatment for migraine. Analysis of participants' narratives revealed three key themes: questioning realities, narratives of diminishment, and shifting responsibility. Participants' accounts highlight how deeply embedded cultural norms and dominant discourses can shape healthcare experiences, reinforcing oppressive assumptions related to sex, ability, and what constitutes \"good care.\" By foregrounding these experiences, this study adds depth to emerging scholarship seeking to define what medical gaslighting is and identifies strategies to address these concerns within clinical environments.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261455073"},"PeriodicalIF":2.3,"publicationDate":"2026-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148053734","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Behind and beyond the (non-)use of cord blood banking: Delayed cord clamping and non-decisions. 脐带血库（非）使用的背后和超越：延迟脐带夹紧和非决策。

IF 2.3 4区医学

Health Pub Date : 2026-05-28 DOI: 10.1177/13634593261451020

Finja Filzinger, Alessandro Fischer Capote, Ruzana Liburkina

{"title":"Behind and beyond the (non-)use of cord blood banking: Delayed cord clamping and non-decisions.","authors":"Finja Filzinger, Alessandro Fischer Capote, Ruzana Liburkina","doi":"10.1177/13634593261451020","DOIUrl":"https://doi.org/10.1177/13634593261451020","url":null,"abstract":"Umbilical cord blood (UCB) banking has been criticised in social science scholarship as emblematic of the neoliberal responsibilisation of parenthood. Yet this article foregrounds what most parents actually do: they do not store UCB. Drawing on the concept of non-use in the social studies of technology, we examine this non-use of cryopreservation services. Our empirical material from Germany shows that non-use does not necessarily reflect inertia or ignorance but instead points, first, to alternative practices surrounding UCB and, second, to the situational circumstances of decision-making. As an increasingly common alternative use of UCB, we discuss delayed cord clamping (DCC). Here, blood flows back to the child rather than into sterile plastic containers, facilitating a slower pace of postnatal care. At the same time, our inquiry indicates that neither UCB banking nor DCC necessarily results from a decision having been made. Parents often encounter the option to store UCB under circumstances that preclude deliberation - namely pain, exhaustion, and a lack of time or engagement. Thus, we argue, practices involving UCB frequently emerge from what we term non-decisions.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261451020"},"PeriodicalIF":2.3,"publicationDate":"2026-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148053772","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Revisiting critical digital health studies in the age of generative AI: Research in Health and beyond. 在生成式人工智能时代重新审视关键的数字健康研究：健康研究及其他领域。

IF 2.3 4区医学

Health Pub Date : 2026-05-26 DOI: 10.1177/13634593261451272

Deborah Lupton

{"title":"Revisiting critical digital health studies in the age of generative AI: Research in Health and beyond.","authors":"Deborah Lupton","doi":"10.1177/13634593261451272","DOIUrl":"https://doi.org/10.1177/13634593261451272","url":null,"abstract":"This review article for Health's 30th anniversary special issue provides an update on an article I contributed for the 20th anniversary of Health in 2016 which outlined how the sub-field of critical digital health studies has been explored in the journal. The current review article is in two parts. It begins with an overview of digital health research published in Health in the decade since the first review was published, reflecting on the methods and conceptual approaches that have been used over the past 10 years to engage with this topic. The second part goes on to consider how critical digital health studies might address the latest 'big thing' in digital health: generative AI applications. Some bold claims have been made about the benefits that generative AI models are supposed to offer patients and healthcare providers, but their impacts have not yet been fully evaluated from a critical digital health perspective. The article ends by emphasising the importance of acknowledging and identifying how the introduction of generative AI applications into medicine and health care can harm humans and the ecosystems of which they are part. Critical digital health studies should therefore expand its focus beyond its current human-centric preoccupations. As an interdisciplinary social research journal from its inception, Health is well-placed to offer a home for such critical analyses.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261451272"},"PeriodicalIF":2.3,"publicationDate":"2026-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148029615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

De/Medicalisation is not the problem: On the idea of a "law clinic" for people experiencing housing instability and homelessness. 去医疗化不是问题：关于为住房不稳定和无家可归的人设立“法律诊所”的想法。

IF 2.3 4区医学

Health Pub Date : 2026-05-24 DOI: 10.1177/13634593261453461

Stefanie Plage, Kirsten Baker, Nancy Sturman

{"title":"De/Medicalisation is not the problem: On the idea of a \"law clinic\" for people experiencing housing instability and homelessness.","authors":"Stefanie Plage, Kirsten Baker, Nancy Sturman","doi":"10.1177/13634593261453461","DOIUrl":"https://doi.org/10.1177/13634593261453461","url":null,"abstract":"De/Medicalisation has become a staple of medical sociology to make sense of social issues at the intersection of health and illness. Broadly understood as the processes through which issues assume qualities that locate them within or beyond the remit of medicine, de/medicalisation continues to inform theoretical innovation and empirical research. The emergence of law clinics for people experiencing housing instability and homelessness offers a case study of how de/medicalisation can enrich the analysis of problems at the interstices of health and social care. Law clinics, often co-located or attached to primary and tertiary health care settings, aim to augment housing, health, wellness and social care offerings. Yet, this proximity - conceptual and spatial - may inadvertently reify understandings of homelessness as an individual pathology while aiming to offer pragmatic support to people who are otherwise excluded from core institutions in society. We present findings from a Roundtable with participants from law, social and health care professions and interviews with people experiencing housing instability (n = 27), lawyers, GPs and social workers (n = 10) in an Australian urban centre. In the vexed dynamics of the law clinic in-between different professions, de/medicalisation emerges as boundary-making and boundary-crossing to negotiate responsibilities, classify problems and reconcile competing logics.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261453461"},"PeriodicalIF":2.3,"publicationDate":"2026-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148015227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Moments of Misalignment: In the Space and Rhythms of Cancer Rehabilitation. 错位的时刻：癌症康复的空间和节奏。

IF 2.3 4区医学

Health Pub Date : 2026-05-20 DOI: 10.1177/13634593261449202

Mikala Erlik, Anette Lykke Hindhede, Malene Missel, Morten Quist, Helle Timm

{"title":"Moments of Misalignment: In the Space and Rhythms of Cancer Rehabilitation.","authors":"Mikala Erlik, Anette Lykke Hindhede, Malene Missel, Morten Quist, Helle Timm","doi":"10.1177/13634593261449202","DOIUrl":"https://doi.org/10.1177/13634593261449202","url":null,"abstract":"Cancer rehabilitation in Denmark is publicly funded and framed as a universal and ongoing element of the cancer pathway, aimed at restoring everyday functionality after diagnosis. Yet participation remains uneven, particularly among citizens marked by social vulnerability. This article examines how such inequality unfolds in practice by focusing on moments of misalignments: situations where users' bodies call attention to themselves by not aligning with the spatial orders of rehabilitation. Drawing on ethnographic fieldwork in two rehabilitation units, we explore how such misalignments become visible in small gestures of hesitation, partial participation, or strategic withdrawal. By tracing moments of misalignment, we show how spaces of rehabilitation are structured by normative expectations of movement, progress, and improvement, while also containing cracks where alternative bodily logics surface. Attention to misalignment, we argue, offers a new lens on health inequality: shifting attention from formal access to the question of which bodies, rhythms, and ways of being are recognized and sustained within contemporary healthcare.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261449202"},"PeriodicalIF":2.3,"publicationDate":"2026-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147971946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A photo-a-day practise in capturing moments of everyday life: Exploring the influence of photo-taking on wellbeing. 每天拍一张照片，捕捉日常生活的瞬间：探索拍照对幸福感的影响。

IF 2.3 4区医学

Health Pub Date : 2026-05-19 DOI: 10.1177/13634593261449196

Dagmara Minkiewicz, Nellinne Antoinette Perera

{"title":"A photo-a-day practise in capturing moments of everyday life: Exploring the influence of photo-taking on wellbeing.","authors":"Dagmara Minkiewicz, Nellinne Antoinette Perera","doi":"10.1177/13634593261449196","DOIUrl":"https://doi.org/10.1177/13634593261449196","url":null,"abstract":"The prevalence of mental health challenges, such as anxiety and depression, highlights the need for accessible and practical methods to enhance wellbeing as a preventative measure. Over half of the global population (54%) owns a smartphone, and the number of mobile users worldwide was projected to reach 7.49 billion by 2025. With smartphone cameras widely available, individuals can easily document daily moments, potentially benefitting their emotional wellbeing. This qualitative study explored the impact of photo-taking on individual wellbeing through a 3-week intervention grounded in positive psychology principles. Nineteen participants, recruited via social media took a daily photo for 3 weeks, each based on a theme set by the researcher: something they were grateful for (week 1), a selfie or self-portrait highlighting positive traits (week 2) and a picture to share with someone else (week 3). Participants then engaged in online one-on-one interviews with the researcher. Reflexive thematic analysis identified four core themes: (1) appreciation of life's value, (2) shifts in mindset, (3) cultivation of purpose and (4) pursuit of positivity. The findings suggest that this intervention contributes to fostering a positive outlook and enhancing feelings of happiness, contributing to participants' emotional wellbeing. While the study demonstrates a promising link between photo-taking and wellbeing as an accessible and preventative tool, further research is needed to examine additional variables, particularly across diverse age groups and ethnicities. As technology becomes increasingly integrated into daily life, such methods hold the potential for promoting individual and community flourishing with minimal effort.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261449196"},"PeriodicalIF":2.3,"publicationDate":"2026-05-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147971802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Social problems, technological solutions? German nursing care experts' perspectives, evaluations, and imaginaries of care robotics research. 社会问题，技术解决方案？德国护理专家对护理机器人研究的看法、评价和设想。

IF 2.3 4区医学

Health Pub Date : 2026-05-19 DOI: 10.1177/13634593261434598

Maximilian Braun, Svenja Breuer, Ruth Müller

{"title":"Social problems, technological solutions? German nursing care experts' perspectives, evaluations, and imaginaries of care robotics research.","authors":"Maximilian Braun, Svenja Breuer, Ruth Müller","doi":"10.1177/13634593261434598","DOIUrl":"https://doi.org/10.1177/13634593261434598","url":null,"abstract":"Nursing care work in Germany has been facing significant challenges, among them a steadily increasing shortage of nursing care workers. Funding programs promote the use of care robotics to mitigate these challenges' negative effects and to support nursing care practice. However, most robotics research on the topic has so far followed a technology-centered approach that hardly considers nursing care experts' distinct experiences, knowledge, or expertise. Drawing on interviews, focus groups, and workshops with nursing scientists, students, and practitioners, this study investigates the perspectives, evaluations, and imaginaries of German nursing care experts regarding care robotics. In their accounts, we found three salient themes that highlight care robotics as an open-ended, empirical concern for the nursing sciences; as a means for delineating between automatable and non-automatable nursing care activities; and as a potential remedy for nurses' assistive and executive responsibilities. Each of these themes highlights a particular set of challenges that nursing care work currently faces in the context of German healthcare from the nursing care experts' perspective and that shapes their perspectives on care robotics. We discuss the nursing care experts' responses as a reference point to re-articulate deep-seated disciplinary and professional concerns along three distinct dimensions: a nursing-as-science, nursing-as-practice, and nursing-as-profession dimension. We further conceptualize these dimensions as matters of care that care robotics research should engage with to generate care for nursing care work and workers. We conclude by suggesting ways for incorporating these dimensions into care robotics research and development.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261434598"},"PeriodicalIF":2.3,"publicationDate":"2026-05-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147971944","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

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