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The medical gaze reframed: A phenomenological investigation of patient visibility in oncology. 医学凝视重构:肿瘤患者可见性的现象学研究。
IF 2.3 4区 医学
Health Pub Date : 2026-05-14 DOI: 10.1177/13634593261446988
Thomas Byrne, Susan E Leggett, Aaryanna Zapata, Fanny Smithing, Joshua MacLeod, Zekun Xiao, Liangtong Wu, Jack Pickert
{"title":"The medical gaze reframed: A phenomenological investigation of patient visibility in oncology.","authors":"Thomas Byrne, Susan E Leggett, Aaryanna Zapata, Fanny Smithing, Joshua MacLeod, Zekun Xiao, Liangtong Wu, Jack Pickert","doi":"10.1177/13634593261446988","DOIUrl":"https://doi.org/10.1177/13634593261446988","url":null,"abstract":"<p><p>Contemporary health research often examines patient objectification, patient self-objectification, and good patient performance as separate concerns. Treating them in isolation makes it difficult to see how they combine to shape what patients feel able to express in clinical encounters. To address this gap, this study examines how cancer survivors describe objectification, internalization, and performance within oncology care. Through this analysis, we develop a unified analytic account of these three experiences. In doing so, we reframe the \"medical gaze\" in existential terms as the \"medical look,\" by drawing on Sartre's account of how becoming visible to another reshapes lived experience and existence. We interpret clinical visibility as a structure that unfolds across encounters, rather than as isolated interactional events. Drawing on 29 interviews with cancer survivors, our findings show that being positioned through clinical routines, adopting those framings as self-measures, and calibrating self-presentation in anticipation of clinical judgment were lived as connected movements within one structure of visibility. Recognizing this continuity clarifies communication pressures and constrained agency in oncology, and identifies points where clinical practice may ease the conditions under which patients manage how they appear.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261446988"},"PeriodicalIF":2.3,"publicationDate":"2026-05-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147941288","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mapping the social studies of ADHD: From medicalization theory to neurodiversity in the digital age, and future directions. 绘制ADHD的社会研究:从医学化理论到数字时代的神经多样性,以及未来的方向。
IF 2.3 4区 医学
Health Pub Date : 2026-05-12 DOI: 10.1177/13634593261449197
Angela M Filipe, Deanna Holroyd
{"title":"Mapping the social studies of ADHD: From medicalization theory to neurodiversity in the digital age, and future directions.","authors":"Angela M Filipe, Deanna Holroyd","doi":"10.1177/13634593261449197","DOIUrl":"10.1177/13634593261449197","url":null,"abstract":"<p><p>The past 30 years have seen significant changes in how Attention-Deficit/Hyperactivity Disorder (ADHD) is understood, with public discourse and prevalence rates reaching an all-time high. While its evolution in the U.S. is well documented, recent global and digital shifts prompt a reexamination of ADHD research. The significance of this article is that it maps and analyzes, for the first time, an extensive and heterogeneous body of scholarship, spanning the sociology and anthropology of health and mental health; science, technology, media, and disability studies; and medical humanities, to propose the definition of a new subfield of \"social studies of ADHD.\" By synthesizing key conceptual developments, social theories, and empirical findings therein, our article fills in a substantive gap in the literature, identifies main analytical frameworks, and outlines future research directions. We first trace the history of ADHD diagnosis and the DSM, rendered as an exemplary case of medicalization-as both theory and process-in the sociological literature since the mid-1970s. Second, we examine debates on the globalization of ADHD diagnosis and treatment to illuminate new areas of study and cross-national comparison. Third, we discuss alternative models and emergent perspectives on demedicalization, decolonial approaches, and the neurodiversity paradigm, which operates both as a social scientific concept and a movement. We then synthesize the latest research on the digital health turn to consider how emergent technologies and online platforms are reconfiguring ADHD knowledge, subjectivity, and sociality. To conclude, we use our critical analysis as a launchpad for setting a future interdisciplinary agenda for ADHD research in three areas that are relevant to the social study of health, illness, and medicine more widely: (1) digital and more-than-human perspectives on attention and care; (2) ethnography and phenomenology of ADHD affect and embodiment; and (3) intersectional, decolonial, and community research approaches.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261449197"},"PeriodicalIF":2.3,"publicationDate":"2026-05-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147873984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Task redistribution as a dual process: Reconfiguring professional boundaries through knowledge development and jurisdictional competition. 任务再分配的双重过程:通过知识发展和管辖权竞争重新配置专业边界。
IF 2.3 4区 医学
Health Pub Date : 2026-05-11 DOI: 10.1177/13634593261446985
Stine Agnete Ingebrigtsen
{"title":"Task redistribution as a dual process: Reconfiguring professional boundaries through knowledge development and jurisdictional competition.","authors":"Stine Agnete Ingebrigtsen","doi":"10.1177/13634593261446985","DOIUrl":"10.1177/13634593261446985","url":null,"abstract":"<p><p>Health care systems globally are redistributing the responsibilities to address workforce shortages, yet task redistribution may create tensions between professional groups. Through this ethnographic study, I examine medication management as a case for exploring how professional boundaries are negotiated and reshaped during the redistribution of tasks. Fieldwork in three Norwegian nursing homes comprised 87 hours of observations and seven semi-structured interviews with nine informants. The data were thematically analysed and interpreted through Wenger's concepts of participation, reification, negotiation and boundary objects as well as Abbott's concepts of jurisdiction and workplace assimilation. Certified nursing assistants' (CNAs) participation in medication management created opportunities for knowledge development, as CNAs approached nurses for support. Medication administration records (MARs) functioned as boundary objects, enabling alignment but often lacking information meaningful to CNAs, leading them to seek clarification from nurses. These interactions facilitated knowledge sharing but simultaneously created tensions, as nurses experienced them as interruptions during high-risk tasks. Due to resource constraints and formal divisions of labour, CNAs' participation remained a form of peripheral, partial jurisdiction that both blurred and reconfigured boundaries while adding to nurses' workload. The study demonstrates that task redistribution is not a straightforward transfer of tasks but a dual process of knowledge development and negotiation of jurisdiction. Recognising this duality is crucial for designing policies that support the situated realities of professional work.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261446985"},"PeriodicalIF":2.3,"publicationDate":"2026-05-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147868217","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Tenderness (central), sensitivity and/or distress: Tracing gendered enactments of fibromyalgia in medical research. 压痛(中枢)、敏感和/或痛苦:在医学研究中追踪纤维肌痛的性别表现。
IF 2.3 4区 医学
Health Pub Date : 2026-05-11 DOI: 10.1177/13634593261446986
Ahalya Ganesh
{"title":"Tenderness (central), sensitivity and/or distress: Tracing gendered enactments of fibromyalgia in medical research.","authors":"Ahalya Ganesh","doi":"10.1177/13634593261446986","DOIUrl":"10.1177/13634593261446986","url":null,"abstract":"<p><p>Despite being unrelated to feminized organs or bodily processes, the contested condition called fibromyalgia is said to be overwhelmingly feminized and diagnosed predominantly in (assumed-) women. Few social scientific studies have explored the reasons or pathways for fibromyalgia's genderedness. In this article, I analyze medical scholarship on fibromyalgia over five decades to trace how it is gendered in this body of knowledge and how this genderedness is negotiated. I show that the genderedness of fibromyalgia is enacted multiply through the construction of fibromyalgia patient archetypes, through the reinscription and repudiation of clinical axioms in research design, and the elucidation of diagnostic criteria.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261446986"},"PeriodicalIF":2.3,"publicationDate":"2026-05-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147868219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Material deprivation affects mental health recovery assemblages: A micropolitical inquiry into sociomaterial inequalities. 物质剥夺影响心理健康恢复组合:对社会物质不平等的微观政治调查。
IF 2.3 4区 医学
Health Pub Date : 2026-05-10 DOI: 10.1177/13634593261446982
Jarkko Salminen, Liisa Häikiö
{"title":"Material deprivation affects mental health recovery assemblages: A micropolitical inquiry into sociomaterial inequalities.","authors":"Jarkko Salminen, Liisa Häikiö","doi":"10.1177/13634593261446982","DOIUrl":"https://doi.org/10.1177/13634593261446982","url":null,"abstract":"<p><p>This article examines the sociomaterial inequalities encountered by young adults experiencing distress at the micro level with a focus on how various forms of material deprivation become embedded within recovery assemblages. Drawing on the Deleuzian-Guattarian new materialist approach, we define assemblages as human and nonhuman networks that connect material and immaterial elements together. In these assemblages, matter is considered to have 'agentic' capacity, and thus, agency is attributed, in addition to human actors, to nonhuman elements. By using interview data, our analysis identifies three distinct recovery assemblages arising from different forms of material deprivation in the recovery processes of young adults. The first assemblage relates to a lack of safe recovery environments, the second involves insufficient financial resources, and the third reflects the loss of bodily strength and diminished capacity for everyday functioning. Assemblages marked by material deprivation can become relatively permanent and territorialized, limiting the agency of young adults experiencing distress. However, these assemblages are also subject to destabilization and deterritorialization through micropolitical actions. We demonstrate how young adults and their family members can disrupt these assemblages and influence material deprivation. According to the new materialist perspective, small acts can ignite significant change, offering the potential to challenge sociomaterial inequalities on a broader scale.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261446982"},"PeriodicalIF":2.3,"publicationDate":"2026-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147864067","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The case for demedicalizing stigma research. 污名化研究的案例。
IF 2.3 4区 医学
Health Pub Date : 2026-05-03 DOI: 10.1177/13634593261445376
Rowan Hildebrand-Chupp, Marquisele Mercedes, Rachel Fox, Monica Kriete
{"title":"The case for demedicalizing stigma research.","authors":"Rowan Hildebrand-Chupp, Marquisele Mercedes, Rachel Fox, Monica Kriete","doi":"10.1177/13634593261445376","DOIUrl":"https://doi.org/10.1177/13634593261445376","url":null,"abstract":"<p><p>Anti-stigma efforts with the goal of increasing treatment are often prioritized over anti-stigma efforts with the goal of improving the sociocultural status of a stigmatized way of being. We argue that a similar phenomenon exists within basic stigma research: research that enables efforts to increase rates of diagnosis and treatment has been prioritized over research that enables efforts to destigmatize. We refer to this as the <i>medicalization of basic stigma research</i>. In this critical review, we show that the medicalized state of stigma research manifests in several ways: the medicalized impetus and justification for much stigma research, the medicalized focus on the consequences of stigma, and the continued influence of attribution theory despite its empirical and practical limitations. We argue that researchers, reviewers, and funders should work to demedicalize stigma research, highlighting three potential steps. First, we must distinguish between improving the sociocultural valuation of a stigmatized way of being (destigmatization) and increasing the extent to which a way of being is defined and treated as a medical problem (medicalization). Second, we must prioritize research into what causes the sociocultural devaluation of stigmatized ways of being. Third, we must develop new theories of stigma that decenter health and illness and instead center cultural processes of devaluation.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261445376"},"PeriodicalIF":2.3,"publicationDate":"2026-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147814233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Micromanaging bodies: The role of enhancement drugs in adapting to financial work culture. 微观管理机构:强化药物在适应金融工作文化中的作用。
IF 2.3 4区 医学
Health Pub Date : 2026-05-03 DOI: 10.1177/13634593261445391
Johanne Collin, Nicolas Le Dévédec, Etienne Labarge-Huot
{"title":"Micromanaging bodies: The role of enhancement drugs in adapting to financial work culture.","authors":"Johanne Collin, Nicolas Le Dévédec, Etienne Labarge-Huot","doi":"10.1177/13634593261445391","DOIUrl":"https://doi.org/10.1177/13634593261445391","url":null,"abstract":"<p><p>The use of human enhancement drugs (HED), which include prescription drugs and other substances used for reasons beyond their intended medical use, has been the subject of considerable interest since the late 2000s. However, there is a lack of research exploring how working conditions and organisational norms may significantly contribute to an individual's decision to use substances for enhancement or performance purposes. Building on the concept of pharmaceuticalisation to examine the case of enhancement drugs use in the financial industry, this article highlights how the social context, particularly the workplace, can be central to analysing the causes and modalities of substance use for performance or enhancement purposes. This study therefore approaches the financial sector as a site where such processes may be observed in particularly acute forms. Through a qualitative analysis of an online forum, this study explores the experiences, motivations, opinions and beliefs about such substance use in the financial industry. The findings suggest that substance use is openly discussed in the forum and that difficult working conditions appear to contribute to shaping the modalities of such use. Stress and long working hours were the most reported problems associated with substance use. The study also shows that, far from being neutral, medicines and in particular HED themselves play a key social and normative role in the process of accepting these extreme working conditions. The narratives about the use of performance-enhancing substances created and disseminated within the community studied contribute to the idea that the micromanagement of the worker's bodies is ultimately the main tool available to adapt to their working conditions.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593261445391"},"PeriodicalIF":2.3,"publicationDate":"2026-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147814300","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Billie project: A story completion study of young people's views on citizenship for persons in mental health recovery. 比莉项目:一项关于青少年对精神健康康复者的公民观的故事完成研究。
IF 2.3 4区 医学
Health Pub Date : 2026-05-01 Epub Date: 2025-10-26 DOI: 10.1177/13634593251382932
Clara De Ruysscher, Oona Moeyaert, Jessica De Maeyer, Florian De Meyer, Ottar Ness, Marius Veseth
{"title":"The Billie project: A story completion study of young people's views on citizenship for persons in mental health recovery.","authors":"Clara De Ruysscher, Oona Moeyaert, Jessica De Maeyer, Florian De Meyer, Ottar Ness, Marius Veseth","doi":"10.1177/13634593251382932","DOIUrl":"10.1177/13634593251382932","url":null,"abstract":"<p><p>This study explores young people's perceptions of citizenship and recovery for individuals with severe mental health challenges using the story completion method. In this qualitative approach, participants were invited to complete an open-ended story stem about a fictional character, Billie, whose journey of recovery unfolds through their narratives. We analyzed 47 stories, with lengths ranging from 65 to 598 words (<i>M</i> = 253 words), applying both horizontal (thematic) and vertical (narrative progression) analyses. The findings reveal that participants often framed Billie's recovery in terms of social roles-such as student, friend, or worker-emphasizing the fluctuating and relational nature of recovery. At the same time, the narratives also reflect societal expectations and implicit biases surrounding mental health and citizenship. Broader systemic factors, such as rights, resources, and societal responsibilities, were less frequently addressed. The results suggest that young people's perspectives on mental health recovery are largely shaped by relational contexts but may lack a critical awareness of structural barriers to inclusive citizenship. This study underscores the potential of the story completion method as both a research tool and an educational intervention, fostering dialog on stigma, inclusion, and mental health recovery.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"430-452"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145372675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Do you want to know or not?" How prenatal providers manage clinical uncertainty related to chromosomal risk and noninvasive prenatal testing. “你到底想不想知道?”产前服务提供者如何管理与染色体风险和无创产前检测相关的临床不确定性。
IF 2.3 4区 医学
Health Pub Date : 2026-05-01 Epub Date: 2025-10-17 DOI: 10.1177/13634593251377111
Aleksa Owen
{"title":"\"Do you want to know or not?\" How prenatal providers manage clinical uncertainty related to chromosomal risk and noninvasive prenatal testing.","authors":"Aleksa Owen","doi":"10.1177/13634593251377111","DOIUrl":"10.1177/13634593251377111","url":null,"abstract":"<p><p>In 2011, noninvasive prenatal testing (NIPT) disrupted clinical screening and testing paradigms. While concerns have been raised over public and patient-oriented NIPT usage, providers' views of NIPT remain understudied. This is significant because providers offer pre-test counseling to pregnant patients. This study sought to better understand how prenatal care providers view NIPT in the context of risk and uncertainty. After obtaining institutional ethical approval, semi-structured interviews were conducted with certified nurse-midwives and obstetrician-gynecologists (<i>n</i> = 20). Interviews were audio-recorded, transcribed and coded using abductive analysis. Providers perceived chromosomal risk as an ever-present uncertainty that they worked to help patients make sense of, and providers perceived NIPT as a binary risk assessment tool to decrease uncertainty and increase patient knowledge. These results indicate that while providers may be more likely to use NIPT as a way to limit uncertainty, the social consequences of this move are that providers may inadvertently offload decisional responsibility onto patients, impacting respect for patients' autonomy.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"329-350"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145307869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
When health changes everything: The disruptive side of identity shifts in people with CF. 当健康改变一切:CF患者身份的破坏性方面发生了变化。
IF 2.3 4区 医学
Health Pub Date : 2026-05-01 Epub Date: 2025-09-01 DOI: 10.1177/13634593251366025
Noa Tal-Alon
{"title":"When health changes everything: The disruptive side of identity shifts in people with CF.","authors":"Noa Tal-Alon","doi":"10.1177/13634593251366025","DOIUrl":"10.1177/13634593251366025","url":null,"abstract":"<p><p>Cystic fibrosis (CF) is a severe genetic disorder historically associated with low life expectancy. The introduction of CF transmembrane conductance regulator (CFTR) modulator drugs like Trikafta has dramatically improved health outcomes for many people with CF (pwCF), shifting their lived experiences in unexpected ways. This qualitative study explores the psychological and social consequences of such improvements, focusing specifically on identity disruption and emotional adaptation. Utilizing a phenomenological approach, in-depth interviews were conducted with CF patients who had used Trikafta for at least 2 years, alongside an analysis of publicly available blog narratives. The findings reveal two central themes: identity disruption and ambivalent loss. Participants described profound challenges in adjusting to their new health status, including difficulties in redefining their identity after years of viewing themselves as chronically ill. Additionally, they reported a paradoxical sense of loss, grieving aspects of their previous illness experience, such as a sense of urgency in life decisions and strong connections within the CF community. While participants also shared hopeful and forward-looking narratives, this study centers on the less-explored emotional complexities that emerge when long-standing illness-based identities are disrupted. The findings underscore the need for comprehensive psychological support systems to help PwCF process identity shifts and sustain a sense of continuity in their lives.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"314-328"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144951729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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