Health Services InsightsPub Date : 2023-11-20eCollection Date: 2023-01-01DOI: 10.1177/11786329231211780
Solomon K Cheboi, Wanjiru S Ng'ang'a, Philamon Nyamanga, Stanley Kibet
{"title":"Providers' Competencies and Management Practices for Traditional Palliative Cancer Care Service Delivery in Kenya.","authors":"Solomon K Cheboi, Wanjiru S Ng'ang'a, Philamon Nyamanga, Stanley Kibet","doi":"10.1177/11786329231211780","DOIUrl":"https://doi.org/10.1177/11786329231211780","url":null,"abstract":"<p><strong>Background: </strong>Many people in developing countries are struggling with chronic diseases yet traditional health services remain under-utilized in the quest for universal health care. Thousands patronize these outlets for care yet little is known about provider's competence and how these competencies inform palliative care decisions and practices. The study documented traditional health practitioners (THPs) competencies and practices for traditional palliative cancer care service delivery in Kenya.</p><p><strong>Methods: </strong>This study utilized mixed-methods design and was undertaken in major towns across Kenya. A total of 201 Traditional health practitioners were purposely sampled, and interviewed. Five in-depth interviews and 6 focus group discussions were conducted. Quantitative data were analyzed using SPSSv22 while thematic and discourse analysis was carried out for qualitative data.</p><p><strong>Results: </strong>Majority (92.7%) of the THPs provided general traditional health services. Nearly half of the respondents (47.7%, n = 92) stated that they had received their knowledge and abilities through divine gifting, 71 (36.8%) lineage, 61 (31.6%) apprenticeship, and 39 (20.2%) formal study. Palliative care was determined by patient state and followed consultation with caregivers for 165 (85.5%) of respondents. For 160 respondents (83%), management practices involved a mix of patient examination, conventional medical tests, herbal medicine administration, follow-up or referral. Positive feedback consisted of symptom reduction and function recovery.</p><p><strong>Conclusion: </strong>Core competencies identified include: knowledge acquisition and specialization, assessment, diagnosis and disclosure, decision making, treatment, follow-up, and referral. Traditional palliative care providers share common health-related beliefs, practices and abilities that influence how they approach and make decisions regarding the health management of their patients, despite marked ethnic diversity. The shared pathways offer a chance to develop a cogent traditional palliative care service delivery model and health policy framework to promote its integration within the health workforce. The leading unmet requirements are knowledge of intellectual property rights, disclosure frameworks, and ethical regulation principles.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231211780"},"PeriodicalIF":2.8,"publicationDate":"2023-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10658765/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138459527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Services InsightsPub Date : 2023-11-16eCollection Date: 2023-01-01DOI: 10.1177/11786329231212120
Molly McCarthy, Jason C McIntyre, Rajan Nathan, Emma L Ashworth, Pooja Saini
{"title":"Socioeconomic Predictors of Crisis and Clinical Pathways Among People Contacting a Mental Health Crisis Line.","authors":"Molly McCarthy, Jason C McIntyre, Rajan Nathan, Emma L Ashworth, Pooja Saini","doi":"10.1177/11786329231212120","DOIUrl":"https://doi.org/10.1177/11786329231212120","url":null,"abstract":"<p><strong>Objective: </strong>Crisis lines are the first mental health service contact point for many people, making them a vital community and public health intervention. Given the current and potential utility of crisis lines, better understanding the characteristics, socioeconomic factors and subsequent referral pathways of callers is critical to identifying targeted ways to improve such services.</p><p><strong>Study design: </strong>The dataset captured calls to the Cheshire & Wirral Partnership NHS Foundation Trust (CWP) crisis line between August 2020 and August 2021. Calls were examined if self-harm, risk to self, or overdose were reported by the caller. Descriptive analyses were conducted to produce a clinical and demographic profile of the callers using the crisis line.</p><p><strong>Results: </strong>Call handlers were significantly more likely to call 999, hand over to a practitioner and less likely to provide advice and guidance if self-harm, risk to self or overdose was reported. Social issues were found to be significantly associated with all 3 outcomes: self-harm, risk to self and overdose.</p><p><strong>Conclusion: </strong>The current study provides the first exploratory analysis of the socioeconomic factors and resultant care pathways for those contacting a UK crisis line service. The findings have important implications for community early intervention efforts to reduce self-harm and suicidal behaviours.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231212120"},"PeriodicalIF":2.8,"publicationDate":"2023-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10655650/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138459528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Services InsightsPub Date : 2023-11-09eCollection Date: 2023-01-01DOI: 10.1177/11786329231211093
Jun Li, Thomas Jeffers, Babatope Ogunjesa, Minakshi Raj
{"title":"Hospital Discharge Planners Need More Information When Referring Patients to Home Health Care: Insights From the Coronavirus Disease 2019 Pandemic.","authors":"Jun Li, Thomas Jeffers, Babatope Ogunjesa, Minakshi Raj","doi":"10.1177/11786329231211093","DOIUrl":"10.1177/11786329231211093","url":null,"abstract":"<p><p>Hospital discharge planners play an important role in helping patients choose appropriate home health care. However, during the COVID-19 pandemic, they may not have had enough information to make the best decisions for their patients. A study of 58 discharge planners from Michigan hospitals found that 90% of them wanted information about the quality of home health agencies and whether they were prepared for COVID-19. However, only about 20% had this information readily available. The study also found that discharge planners varied in how they incorporated quality information. Some did not incorporate any quality information at all, while others provided it to patients without explaining its significance. Only about 25% of discharge planners helped patients interpret different sources of information. These findings suggest that hospital discharge planners had an unmet need for quality information, and they also provided limited assistance to patients. This may have led to some patients receiving suboptimal care. Thus, we proposed that hospital discharge planners need more information about the quality of home health agencies. Discharge planners should be more transparent about the quality of information they have, and they should help patients interpret it.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231211093"},"PeriodicalIF":2.8,"publicationDate":"2023-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10637131/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89717978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Services InsightsPub Date : 2023-11-09eCollection Date: 2023-01-01DOI: 10.1177/11786329231211777
Mina Honyashiki, Jeroen Decoster, William Tak Lam Lo, Taichi Shimazu, Kentaro Usuda, Daisuke Nishi
{"title":"Mental Health Reform Processes and Service Delivery Shift From the Hospital to the Community in Belgium and Hong Kong.","authors":"Mina Honyashiki, Jeroen Decoster, William Tak Lam Lo, Taichi Shimazu, Kentaro Usuda, Daisuke Nishi","doi":"10.1177/11786329231211777","DOIUrl":"10.1177/11786329231211777","url":null,"abstract":"<p><strong>Aim: </strong>We aimed to illustrate and compare the processes of mental health policies aiming at a service delivery shift from the hospital to the community using implementation science, and to identify important implementation strategies.</p><p><strong>Methods: </strong>This study had a comparative case study design. The cases were the Belgian mental health reform, and the person-centered model of mental health in Hong Kong, China. Several documentary sources were reviewed, including the published literature and websites. Data on policy processes were extracted, analyzed using directed content analysis, and categorized into constructs of the conceptual model for evidence-informed policy formulation and implementation arranged for the mental health policy.</p><p><strong>Results: </strong>Several similarities were identified in the strategies for active implementation and dissemination; official staff allocation, and training to the community psychiatric services, an approach to adjust the number of psychiatric hospital beds, and promoting collaboration between health care sectors and social welfare sectors. Under distinct social contexts, differences were found in all processes.</p><p><strong>Conclusions: </strong>Each of the described policy processes can serve as a model for countries in similar social contexts seeking to shift their psychiatric service delivery. Furthermore, our findings suggest widely applicable implementation strategies for policies aiming at a service delivery shift.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231211777"},"PeriodicalIF":2.8,"publicationDate":"2023-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10637138/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89721568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Services InsightsPub Date : 2023-11-09eCollection Date: 2023-01-01DOI: 10.1177/11786329231211096
Jean-Baptiste Gartner, André Côté
{"title":"Optimization of Care Pathways Through Technological, Clinical, Organizational and Social Innovations: A Qualitative Study.","authors":"Jean-Baptiste Gartner, André Côté","doi":"10.1177/11786329231211096","DOIUrl":"10.1177/11786329231211096","url":null,"abstract":"<p><p>Numerous calls at national and international level are leading some countries to seek to redesign the provision of healthcare and services. Care pathways have the potential to improve outcomes by providing a mechanism to coordinate care and reduce fragmentation and ultimately costs. However, their implementation still shows variable results, resulting in them being considered as complex interventions in complex systems. By mobilizing an emerging approach combining action research and grounded theory methodology, we conducted a pilot project on care pathways. We used a strongly inductive process, to mobilize comparison and continuous theoretical sampling to produce theories. Forty-two interviews were conducted, and participant observations were made throughout the project, including 60 participant observations at meetings, workshops and field observations. The investigators kept logbooks and recorded field notes. Thematic analysis was used with an inductive approach. The present model explains the factors that positively or negatively influence the implementation of innovations in care pathways. The model represents interactions between facilitating factors, favourable conditions for the emergence of innovation adoption, implementation process enablers and challenges or barriers including those related specifically to the local context. What seems to be totally new is the embodiment of the mobilizing shared objective of active patient-partner participation in decision-making, data collection and analysis and solution building. This allows, in our opinion, to transcend professional perspectives for the benefit of patient-oriented results. Finally, the pilot project has created expectations in terms of spread and scaling. Future research on care pathway implementation should go further in the evaluation of the multifactorial impacts and develop a methodological framework of care pathway implementation, as the only existing proposition seems limited. Furthermore, from a social science perspective, it would be interesting to analyse the modes of social valuation of the different actors to understand what allows the transformation of collective action.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231211096"},"PeriodicalIF":2.8,"publicationDate":"2023-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10637140/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89717979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Services InsightsPub Date : 2023-10-30eCollection Date: 2023-01-01DOI: 10.1177/11786329231207930
Sahjid Mukhida, Nikunja Kumar Das, Deepu Palal, Prerna Verma, S Johnson
{"title":"Does India's Zero by 30 Strategic Plan Need the Addition of the Rabies Vaccine to the Universal Immunisation Programme?","authors":"Sahjid Mukhida, Nikunja Kumar Das, Deepu Palal, Prerna Verma, S Johnson","doi":"10.1177/11786329231207930","DOIUrl":"https://doi.org/10.1177/11786329231207930","url":null,"abstract":"","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231207930"},"PeriodicalIF":2.8,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10617289/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71423107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Services InsightsPub Date : 2023-10-16eCollection Date: 2023-01-01DOI: 10.1177/11786329231205145
Michael Doumit, Roxanne Strachan, Raynuka Lazarus, Peter Middleton, Ruth Dentice, Jessica Marouvo, Laura Jeffrey, Hiran Selvadurai, Sheila Sivam, Verity Pacey, Adam Jaffe, Kelly Gray
{"title":"Screening for Cystic Fibrosis Related Complications in the Context of a Pandemic and Altered Models of Care.","authors":"Michael Doumit, Roxanne Strachan, Raynuka Lazarus, Peter Middleton, Ruth Dentice, Jessica Marouvo, Laura Jeffrey, Hiran Selvadurai, Sheila Sivam, Verity Pacey, Adam Jaffe, Kelly Gray","doi":"10.1177/11786329231205145","DOIUrl":"https://doi.org/10.1177/11786329231205145","url":null,"abstract":"<p><strong>Background: </strong>Standard of care recommend that patients with cystic fibrosis (CF) require screening investigations to assess for complications. Changing models of care due to the COVID19 pandemic may have impacted completion of recommended screening.</p><p><strong>Objective: </strong>To compare the frequency of screening investigations completed in people with CF before and after the onset of the COVID19 pandemic.</p><p><strong>Methods: </strong>Medical records were reviewed at 4 CF-specialist centers to identify screening investigations completed in the 12-months before and after pandemic onset.</p><p><strong>Results: </strong>Records of 625 patients were reviewed. Prior to pandemic onset, there was between center variability in completion of screening investigations. There was greatest baseline variation between centers in performing oral glucose tolerance test (OGTT); range 38%-69%, exercise tests; 3%-51% and sputum screening for non-tuberculous mycobacteria; 53%-81%. Following pandemic onset, blood tests, and sputum cultures were maintained at the highest rates. Exercise testing, CXR and OGTT exhibited the greatest declines, with reductions at individual centers ranging between 10%-24%, 22%-43%, and 20%-26%, respectively. Return to in-person visits following pandemic onset was variable, ranging from 16% to 74% between centers.</p><p><strong>Conclusion: </strong>Completion of screening investigations varies between CF centers and changes in models of care, such as increased virtual care in response to COVID19 pandemic was associated with reduction in completion of investigations. Centers would benefit from auditing their adherence to standards of care, particularly considering recent changes in care delivery.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231205145"},"PeriodicalIF":2.8,"publicationDate":"2023-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10580724/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49676812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Services InsightsPub Date : 2023-10-16eCollection Date: 2023-01-01DOI: 10.1177/11786329231204757
Kartika W Taroeno-Hariadi, Camelia Herdini, Aulia S Briliant, Henry K Husodoputro, Wigati Dhamiyati, Sagung Rai Indrasari, Setiyani P Lestari, Yulestrina Widyastuti, Herindita Puspitaningtyas, Risa Rahmasari, Innayah Nur Rachmawati, Ibnu Purwanto, Nurhuda H Setyawan, Ericko Ekaputra, Susanna H Hutajulu, Sri R Dwidanarti, Torana Kurniawan, Lidya Meidania, Seize E Yanuarta, Mardiah S Hardianti, Johan Kurnianda
{"title":"Multidisciplinary Team Meeting in the Core of Nasopharyngeal Cancer Management Improved Quality of Care and Survival of Patients.","authors":"Kartika W Taroeno-Hariadi, Camelia Herdini, Aulia S Briliant, Henry K Husodoputro, Wigati Dhamiyati, Sagung Rai Indrasari, Setiyani P Lestari, Yulestrina Widyastuti, Herindita Puspitaningtyas, Risa Rahmasari, Innayah Nur Rachmawati, Ibnu Purwanto, Nurhuda H Setyawan, Ericko Ekaputra, Susanna H Hutajulu, Sri R Dwidanarti, Torana Kurniawan, Lidya Meidania, Seize E Yanuarta, Mardiah S Hardianti, Johan Kurnianda","doi":"10.1177/11786329231204757","DOIUrl":"10.1177/11786329231204757","url":null,"abstract":"<p><p>Nasopharyngeal cancer (NPC) cases are often diagnosed in advanced stages. The complexity of clinical management for advanced-stage NPC requires thorough communication and shared decisions between medical professionals and allied teams. Incorporating a multidisciplinary team meeting (MDTM) for newly diagnosed NPC patients was chosen to facilitate collaboration and communication between physicians. This retrospective study aimed to compare the quality of care, clinical responses and survival between NPC patients treated with and without MDTM. Data on clinical responses, assessment visits, date of progression and death with progression-free survival (PFS), overall survival (OS), and hazard ratio (HR) were collected and analyzed with 95% confidence interval (CI) and significance set as <i>P</i> < .05. There were 87 of 178 NPC patients treated with MDTM. Revisions of diagnosis and stage occurred in 5.7% and 52.9% of cases during the MDTM. More clinical responses were achieved by patients treated with MDTM (69.0%vs 32.0%, <i>P</i> < .00). NPC patients who received MDTM treatment recommendation had a lower risk for progression (median PFS 59.89 months vs 12.68 months; HR 0.267, 95% CI: 0.17-0.40, <i>P</i> < .00) and mortality (median OS was not reached vs 13.44 months; HR 0.134, 95% CI: 0.08-0.24, <i>P</i> < .00) compared to patients without MDTM. Incorporating the MDTM approach into NPC management improves patients' clinical responses and survival.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231204757"},"PeriodicalIF":2.8,"publicationDate":"2023-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/83/24/10.1177_11786329231204757.PMC10578065.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41234701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Services InsightsPub Date : 2023-09-30eCollection Date: 2023-01-01DOI: 10.1177/11786329231200707
Marie-Hélène Morin, Maryse Proulx
{"title":"Tracking Needs-Based Community and Specialized Services of Young Adults and Their Parents Before and During a First Episode of Psychosis (FEP): Highlighting Intervention Trajectories in FEP.","authors":"Marie-Hélène Morin, Maryse Proulx","doi":"10.1177/11786329231200707","DOIUrl":"10.1177/11786329231200707","url":null,"abstract":"<p><strong>Aim: </strong>This article aims to document 10 service trajectories of young adults (YA) and their parents, informed by healthcare professionals (HP), before and during a first episode of psychosis (FEP).</p><p><strong>Design: </strong>Based on a crisis model perspective of the Life Course Theory (Elder; Elder and Shanahan) developed by Carpentier and White, and adapted to the current context to track community and specialized services trajectories. Thematic analysis was used to code responses to open-ended questions around the need for help and accessing services by young adults affected by a psychotic disorder, and their parents.</p><p><strong>Setting: </strong>In collaboration with FEP clinics, setting of choice by YA and their parents.</p><p><strong>Participants: </strong>5 YA, 12 parents, and 6 HP.</p><p><strong>Results: </strong>10 individual service trajectories grouped into 3 distinct types of trajectories (optimal, typical, and complex) based on grouping 5 similar characteristics, highlighting service access complexity and early intervention in FEP.</p><p><strong>Conclusion: </strong>This study is the first of its kind to examine the experiences of those who seek needs-based community and specialized services leading up to and during a FEP. Findings provide key insights related to early intervention in FEP and recommendations on improving access to such services in Quebec.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231200707"},"PeriodicalIF":2.8,"publicationDate":"2023-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/23/8d/10.1177_11786329231200707.PMC10542222.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41127527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Patient as an Actor in His Care Pathway: Insights From the French Case.","authors":"Isabelle Aubert, Frédéric Kletz, Jean-Claude Sardas","doi":"10.1177/11786329231196029","DOIUrl":"https://doi.org/10.1177/11786329231196029","url":null,"abstract":"<p><p>In France, patients' right to take part in decisions regarding their health has been recognized by law since 2002. This legal recognition was the outcome of a long-standing call to allow all individuals to be \"actors in their own health\" and to co-develop their care pathway with the professionals involved. In practice, care pathways simultaneously intertwine both standardization and personalization dynamics, which involve different forms of professional-patient interaction. This article analyses the links between the organizational variables of care pathways, and the ways in which patients are involved in the management of their own pathway. To date, these links have received little attention in the management science and health literatures. We draw on material from a case study carried out in 2 French territories, combining the analysis of patient pathways with interviews conducted with professionals and carers. Building on this analysis, we propose a typology of patient profiles which distinguishes between their different forms of involvement in the development of their care pathway, based on its organizational characteristics.</p>","PeriodicalId":12876,"journal":{"name":"Health Services Insights","volume":"16 ","pages":"11786329231196029"},"PeriodicalIF":2.8,"publicationDate":"2023-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/c9/8d/10.1177_11786329231196029.PMC10540579.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41132462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}