{"title":"Views and Experiences of People with Intellectual Disabilities to Improve Access to Assistive Technology: Perspectives from India","authors":"F. Boot, Ritu Ghosh, J. Dinsmore, Mac MacLachlan","doi":"10.47985/DCIDJ.423","DOIUrl":"https://doi.org/10.47985/DCIDJ.423","url":null,"abstract":"Purpose: People with intellectual disabilities are deeply affected by health inequity, which is also reflected in their access to and use of assistive technology (AT) which could benefit them. Including the perspectives of adults with intellectual disabilities and their caregivers, together with the views of local health professionals, suppliers of AT and policy-makers, this paper aims to provide an overview of factors influencing access to AT and its use by people with intellectual disabilities in Bangalore, a southern region of India. Method: Face-to-face interviews were conducted with 15 adults with intellectual disabilities (ranging from mild to profound) and their caregivers, and with 16 providers of assistive technology. This helped to gain insight into the current use, needs, knowledge, awareness, access, customisation, funding, follow-up, social inclusion, stigma and policies around assistive technology and intellectual disability. Results: Access to assistive technology was facilitated by community fieldworkers and services to reach out and identify people with intellectual disability. Important barriers were stigma, and lack of knowledge and awareness among parents. Factors related to continued use were the substantial dependence on the care system to use assistive technology, and the importance of AT training and instructions for the user and the care system. Conclusion and Implications: The barriers and facilitators related to assistive technology for people with intellectual disability differ from other populations in need. The findings of this study can be used to inform and adjust country policies and frameworks whose aim is to improve access to AT and enhance the participation of people with intellectual disabilities within their communities.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"7 6","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132511181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lekshmi R. Suresh, K. Rai, A. Hegde, Cynthia Vinitha Dsouza
{"title":"Barriers to Utilisation of Dental Services among Children with Disabilities in a Coordinated Healthcare Programme in Mangalore, South India: A Mixed Methods Study","authors":"Lekshmi R. Suresh, K. Rai, A. Hegde, Cynthia Vinitha Dsouza","doi":"10.47985/DCIDJ.427","DOIUrl":"https://doi.org/10.47985/DCIDJ.427","url":null,"abstract":"Purpose: Unmet oral health needs affect the quality of life of individuals, especially if they are already at a disadvantage like children with special health care needs. Strategies to mitigate these disparities in India’s diverse healthcare settings have hitherto been largely ineffective. This study aimed to assess the utilisation and barriers to the use of dental health services among children with special health care needs, against the background of a coordinated healthcare programme implemented in the A B Shetty Institute of Dental Sciences in Mangalore, India. Method: The study was conducted over a 6-month period, from September 2018 to February 2019. A mixed-methods design was concurrently employed for data collection. Utilisation of dental services was assessed quantitatively, and the barriers to dental services utilisation were assessed qualitatively through caregiver interviews, with a sequential data integration strategy. Results: The quantitative data revealed gross underutilisation of dental resources by children (only 16% availed of some form of dental treatment), and the prevalence of avoidance behaviour (63% showed reluctance and did not turn up for appointments). Restorative needs formed the highest unmet dental component among the children (67% required secondary dental care). In-depth interviews with the children’s caregivers revealed that the presence of cognitive barriers could have a direct effect on the time and quality of dental care delivered to their children. Conclusion: Cognitive barriers among caregivers appear to have a profound impact on the underutilisation of dental services in their children with special healthcare needs. These barriers may be addressed within the integrated healthcare programme and the dental curricula through provisions for continued individual and community dental education, and motivational efforts that simultaneously target the caregivers and their children with special healthcare needs.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"106 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124222941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"People with Physical Disabilities playing Light Volleyball: A Qualitative Study in Hong Kong","authors":"K. Leung, W. Chu, M. Wong","doi":"10.47985/DCIDJ.400","DOIUrl":"https://doi.org/10.47985/DCIDJ.400","url":null,"abstract":"Purpose: This study aimed at understanding the perceptions of people with physical disabilities regarding playing Light Volleyball (LVB), identifying the possible constraints and risks they might face while playing, and providing their suggestions for fine-tuning the Light Volleyball intervention programmes. Method: Four focus group interviews were conducted with 17 participants who joined the Light Volleyball trial programme. The participants were 11 males and 6 females, with an average age of 53.5 years (SD=11.83 years). People with poliomyelitis (n = 15), spinal cord injury (n = 1), hearing impairment (n = 1) were included. Results: Participants indicated improved reactivity and coordination, happiness, cooperation in team, happiness, and novelty in general as positive outcomes while playing Light Volleyball. They preferred to play in the seated position (i.e., sitting light volleyball - SLVB), and with simpler rules. They believed that their ability to play Light Volleyball was subject to their body constraints. Conclusion: Sitting Light Volleyball can be one of the new physical activity options for future sport promotion among people with physical disabilities in the community. The effectiveness of playing Sitting Light Volleyball in enhancing health among people with physical disabilities needs to be studied in future.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"2 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121743484","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Doly Bokalial, Md. Forhad Hossain, N. Kumar, Shristi Bajracharya
{"title":"Effectiveness of Community-Based Rehabilitation on the lives of Parents of Children with Cerebral Palsy: A Mixed Method Study in Karnataka, India","authors":"Doly Bokalial, Md. Forhad Hossain, N. Kumar, Shristi Bajracharya","doi":"10.47985/DCIDJ.392","DOIUrl":"https://doi.org/10.47985/DCIDJ.392","url":null,"abstract":"Purpose: The study aimed to identify the effects of the CBR programme on parents of children with Cerebral Palsy, living in Karnataka State, India. It also tried to find the challenges and improvements needed to make the CBR programme more effective. Method: A cross-sectional, descriptive study design was used to collect a sample of 100 parents of children with Cerebral Palsy, with GMFCS levels IV and V. The sample was drawn from various communities in Bangalore, Davanagere and Bijapur, where the services of The Association of People with Disability are available. Face-to-face interviews were conducted with the study subjects. Data was analysed by SPSS using descriptive and inferential statistics. Results: It was observed that the CBR programme had a positive effect on parents’ health, knowledge, social lives and empowerment. A binary logistic regression was done to find the relationship between health, knowledge, social lives and assistive devices use. A strong association was found between all the areas (p=.001) except GMFCS and assistive devices use (p=.004) at 95% CI. The odds ratios between them were greater than 1 and showed the strong positive effect of the CBR programme on parents. Conclusion: The CBR programme not only has a positive effect on children with Cerebral Palsy, but also plays an important role in parents’ lives. It contributes in a positive way to parents’ overall activity.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130225075","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Stance Phase Kinematics in Ankle Joint during Ambulation on Uneven Surface: A Comparison between Stroke Survivors and Typical Adults","authors":"M. Rashid, Jerin Mathew, K. Raja","doi":"10.47985/DCIDJ.379","DOIUrl":"https://doi.org/10.47985/DCIDJ.379","url":null,"abstract":"Purpose: Gait impairment is a common disability among stroke survivors and is a known risk factor of falls. Outdoor ambulation is essential for everyone, even for basic activities of daily living, but routine assessment of stroke survivors concentrates mainly on indoor ambulation and function. This study is an attempt to document gait parameters in stroke survivors and typical adults during outdoor ambulation. Method: For this prospective pilot study, 7 chronic adult stroke survivors and 7 age-matched typical adults were recruited by convenience. Measurements were taken of their ankle and subtalar joint angles during various phases of gait, using video analysing software, Kinovea 0.8.15. Results: Large differences in range of motion in the ankle and subtalar joints were noticed between stroke survivors and typical adults during ambulation on various surfaces. During ambulation on a firm surface, plantar flexion range of motion at the ankle was greater at initial contact and mid-stance, whereas on pebbled surfaces vast differences could be seen on initial contact and mid-stance. Conclusion and Implications: Significant stance phase deviations are evident in stroke survivors during ambulation on uneven terrain. This may be a risk for falls and musculoskeletal degeneration. Although definitive conclusions cannot be drawn due to the small sample size, these findings indicate a need for considering outdoor gait evaluation in routine practice in the community. Mobility correlates highly with quality of life and meaningful strategies to adopt safe ambulation methods can be developed only with proper evaluation methods.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"48 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121603894","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Takashi Saito, Angelberth Bai, Nobuko Matsui, K. Izawa, Shuichiro Watanabe, Alfred Malagisa
{"title":"Characteristics of Outpatients receiving Physical Therapy Services at a Provincial Hospital in Papua New Guinea: A Descriptive Case Study","authors":"Takashi Saito, Angelberth Bai, Nobuko Matsui, K. Izawa, Shuichiro Watanabe, Alfred Malagisa","doi":"10.47985/DCIDJ.405","DOIUrl":"https://doi.org/10.47985/DCIDJ.405","url":null,"abstract":"Purpose: Development of Physical Therapy (PT) services for people with disability is one of the urgent challenges in the health sector in Papua New Guinea (PNG). However, information on the current status of PT services in PNG is scarce, as also is the case for the hospital-based outpatient PT services. This study aimed to describe the characteristics of outpatients receiving PT services in a provincial hospital in West New Britain (WNB) Province, PNG and to compare them with the characteristics of inpatients. Method: This was a retrospective case study using outpatient and inpatient records. The records of clients receiving PT services as either outpatients (413 records, outpatient group) or inpatients (350 records, inpatient group) were reviewed in relation to sex, age and diagnosis. Comparisons were made between the two groups on basis of quantitative data of the two patient groups . Results: The final analysis comprised 404 records in the outpatient group and 344 records in the inpatient group. In the outpatient group, injury and musculoskeletal disease were forming the most dominant diagnosis groups with 52.5% and 22.0%, respectively. Injury was most common in the agegroup 20 to 39 years and musculoskeletal diseases was most common in the agegroup 40 to 59 years. These two diagnosis groups and congenital malformations were significantly more represented among outpatients than among inpatients. Conclusions: Young to middle-aged clients with injury or musculoskeletal disease were predominant among outpatient PT services as compared to inpatient services. The study findings serve to provide information on the current situation and potential needs of hospital-based outpatient PT services in one provincial hospital of PNG. These findings could be the base for planning outpatient PT service in WNB Province and PNG.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"27 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126035910","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Community-Based Rehabilitation in Nigeria: A Scoping Study of Literature","authors":"A. Bashir, A. Hassan, Yassar Gambo Ibrahim","doi":"10.47985/DCIDJ.389","DOIUrl":"https://doi.org/10.47985/DCIDJ.389","url":null,"abstract":"Purpose: Previous reviews of community-based rehabilitation literature provide scant evidence supporting community-based rehabilitation in Nigeria. This study aimed at discovering the extent of the community-based rehabilitation impact in Nigeria by reviewing published literature and making it available to researchers, CBR project coordinators and managers, and policy-makers. Method: A scoping study of community-based rehabilitation literature on people with disabilities, families, and communities in Nigeria was conducted, using the databases of Pubmed, African journal online, Google Scholar, African journal of disability, Asksource.info, and REHABDATA on naric.com, for articles published between the years 1990 – 2018. Fourteen studies met all the inclusion criteria and were classified according to type as descriptive (n = 4), theory (n = 5), impact (n = 2), and case studies (n = 2) or review (n = 1) papers. Results: The results indicated a recent increase in community-based rehabilitation literature publication. Conclusion: However, there is a need for more well-designed literature to better inform community-based rehabilitation practice.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133495472","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Mixed-Methods Programme Evaluation of Disability Equality Training (DET) in Mongolia","authors":"Masateru Higashida, Ganbayar Gereltuya, Gantaikhuu Altanzul","doi":"10.47985/DCIDJ.412","DOIUrl":"https://doi.org/10.47985/DCIDJ.412","url":null,"abstract":"Purpose: An evaluation of a disability equality training (DET) programme, based on the social model of disability, was conducted to explore the changes in the participants’ attitudes and behaviours in Ulaanbaatar, Mongolia. Methods: This study is composed of two parts. First, the participants’ attitude changes during DET sessions were examined through a descriptive quantitative and qualitative analysis of questionnaires and related documents. Second, the behavioural changes at the organisational and individual levels, the impact on society, and related factors were explored by quantitative and qualitative analysis of good practice cases: 39 participants were selected through purposive sampling and semi-structured interviews were conducted. Results: It was found that most participants adopted the social model perspective within these sessions. A qualitative content analysis of the good practice cases also found that the majority of participants attempted to change their social environments after the sessions. Thematic analysis identified promotional factors, such as within-organisation dynamics and compatibility and barriers at the individual and organisational levels, which were associated with participants’ behaviours after DET sessions. Conclusion: The implications of these findings are discussed in connection with the strategic implementation of DET to promote disability-inclusive development. Future studies should examine the effectiveness of a strategy by considering the factors identified in this study and by using a reliable sample in various settings where DET sessions are conducted.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"76 6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123157813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"User Satisfaction with Conventional Lower-Limb Orthotic Devices: A Cross-Sectional Survey in Pakistan","authors":"Z. Aftab, Ahmad Zohaib Zaidi, Faraz Shafi","doi":"10.47985/DCIDJ.380","DOIUrl":"https://doi.org/10.47985/DCIDJ.380","url":null,"abstract":"Purpose: Persons with disabilities affecting lower-limb function use ankle-foot-orthoses (AFO) and knee-ankle-foot-orthoses (KAFO) on a regular basis. However, the effectiveness of these devices in daily use is seldom evaluated, especially in the developing world. This study aimed to evaluate user satisfaction with lower-limb orthotic devices while performing a broad spectrum of daily life activities in Pakistan, and to document the desired outcomes. Method: A survey was conducted among orthotic device users in the out-patient departments of three hospitals in Lahore, Pakistan. The survey questionnaire was devised by adapting the Prosthetic Evaluation Questionnaire to suit orthotics evaluation. Fifty-four AFO and KAFO users participated in the study. Results: Most users felt comfortable while walking on even surfaces with their orthoses. However, donning/doffing these, climbing stairs and performing certain routine activities were considered problematic for most people. Energy conservation was the most desired AFO feature, while the KAFO users wanted automatic knee-joint function. Conclusion and Implications: Overall satisfaction with the existing lower-limb orthoses is adequate. Yet, significant improvements are needed in terms of energy efficiency and comfort while walking on different terrains. Further research is required in order to improve the functioning of the existing orthotic devices.","PeriodicalId":127712,"journal":{"name":"Disability, CBR & Inclusive Development","volume":"35 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2020-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129121513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}