社区康复对脑瘫儿童父母生活的影响:印度卡纳塔克邦的一项混合方法研究

Doly Bokalial, Md. Forhad Hossain, N. Kumar, Shristi Bajracharya
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引用次数: 1

摘要

目的:本研究旨在确定CBR计划对印度卡纳塔克邦脑瘫儿童父母的影响。它还试图找出使社区康复方案更有效所需的挑战和改进。方法:采用横断面描述性研究设计,收集100名脑瘫儿童父母的样本,这些儿童的GMFCS等级为IV和v。样本来自班加罗尔、Davanagere和Bijapur的各个社区,这些社区都有残疾人协会的服务。对研究对象进行了面对面的访谈。数据采用SPSS统计软件进行描述性统计和推理统计分析。结果:CBR方案对父母的健康、知识、社会生活和赋权产生了积极影响。对健康、知识、社会生活与辅助器具使用之间的关系进行二元logistic回归分析。除GMFCS和辅助器具使用(p= 0.004)外,所有区域(p= 0.001)与辅助器具使用(p= 0.004)有很强的相关性。两者的比值比大于1,表明CBR项目对家长有较强的积极作用。结论:CBR方案不仅对脑瘫患儿有积极的影响,而且对家长的生活也有重要的影响。这对父母的整体活动有积极的影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Effectiveness of Community-Based Rehabilitation on the lives of Parents of Children with Cerebral Palsy: A Mixed Method Study in Karnataka, India
Purpose: The study aimed to identify the effects of the CBR programme on parents of children with Cerebral Palsy, living in Karnataka State, India. It also tried to find the challenges and improvements needed to make the CBR programme more effective. Method: A cross-sectional, descriptive study design was used to collect a sample of 100 parents of children with Cerebral Palsy, with GMFCS levels IV and V. The sample was drawn from various communities in Bangalore, Davanagere and Bijapur, where the services of The Association of People with Disability are available. Face-to-face interviews were conducted with the study subjects. Data was analysed by SPSS using descriptive and inferential statistics. Results: It was observed that the CBR programme had a positive effect on parents’ health, knowledge, social lives and empowerment. A binary logistic regression was done to find the relationship between health, knowledge, social lives and assistive devices use. A strong association was found between all the areas (p=.001) except GMFCS and assistive devices use (p=.004) at 95% CI. The odds ratios between them were greater than 1 and showed the strong positive effect of the CBR programme on parents. Conclusion: The CBR programme not only has a positive effect on children with Cerebral Palsy, but also plays an important role in parents’ lives. It contributes in a positive way to parents’ overall activity.
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