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Trustworthy Evidence to Support Quality Digital Healthcare Policy for Underserved Communities: What Needs to Happen to Translate Evidence into Policy? 为未得到充分服务的社区提供支持优质数字医疗政策的可信证据：将证据转化为政策需要做些什么？
HealthcarePapers Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27270
Clare L Ardern, Alex Haagaard, Megan MacPherson, Jessica Nadigel, Bahar Kasaai, Sonya Cressman, Jennifer Cordeiro, Kendall Ho
{"title":"Trustworthy Evidence to Support Quality Digital Healthcare Policy for Underserved Communities: What Needs to Happen to Translate Evidence into Policy?","authors":"Clare L Ardern, Alex Haagaard, Megan MacPherson, Jessica Nadigel, Bahar Kasaai, Sonya Cressman, Jennifer Cordeiro, Kendall Ho","doi":"10.12927/hcpap.2024.27270","DOIUrl":"10.12927/hcpap.2024.27270","url":null,"abstract":"<p><p>In this paper, we explore what is needed to generate quality research to guide evidence-informed digital health policy and call the Canadian community of patients, clinicians, policy (decision) makers and researchers to action in setting digital health research priorities for supporting underserved communities. Using specific examples, we describe how evidence is produced and implemented to guide digital health policy. We study how research environments must change to reflect and include the communities for whom the policy is intended. Our goal is to guide how future evidence reaches policy makers to help them shape healthcare services and how these services are delivered to underserved communities in Canada. Understanding the pathways through which evidence can make a difference to equitable and sustainable digital health policy is vital for guiding the types of research that attract priority resources.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 4","pages":"64-75"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121772","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relational Work Is the Work: Virtual Healthcare Transformation for Rural, Remote and First Nations Communities in British Columbia. 关系工作就是工作：不列颠哥伦比亚省农村、偏远地区和原住民社区的虚拟医疗转型。
HealthcarePapers Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27274
John Mah, John Pawlovich, Terri Aldred, Scott Graham, Ray Markham, Kim Williams, Bob Woollard, John Grogan, Dee Taylor, Nelly D Oelke, Alison James, Melissa Stewart, Sonya Cressman, Arianna Hogan, Daniel Harper
{"title":"Relational Work Is the Work: Virtual Healthcare Transformation for Rural, Remote and First Nations Communities in British Columbia.","authors":"John Mah, John Pawlovich, Terri Aldred, Scott Graham, Ray Markham, Kim Williams, Bob Woollard, John Grogan, Dee Taylor, Nelly D Oelke, Alison James, Melissa Stewart, Sonya Cressman, Arianna Hogan, Daniel Harper","doi":"10.12927/hcpap.2024.27274","DOIUrl":"10.12927/hcpap.2024.27274","url":null,"abstract":"<p><p>The healthcare crisis across unceded First Nations' territories in rural, remote and Indigenous communities in British Columbia (BC) is marked by persistent barriers to accessing care and support close to home. This commentary describes an exceptional story of how technology, trusted partnerships and relationships came together to create an innovative suite of virtual care programs called \"Real-Time Virtual Support\" (RTVS). We describe key approaches, learnings and future considerations to improve the equity of healthcare delivery for rural, remote and First Nations communities. The key lessons include the following: (1) moving beyond a biomedical model - the collaboration framework for health service design incorporated First Nations' perspective on health and wellness; (2) relational work is the work - the RTVS collaboration was grounded in building connections and relationships to prioritize cultivating trust in the partnership over specific outputs; and (3) aligning to the core values of co-creation - working from a commitment to do things differently and applying an inclusive approach of engagement to integrate perspectives across different sectors and interest groups.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 4","pages":"28-37"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Defining "Essential Digital Health for the Underserved". 定义 "为得不到医疗服务的人群提供基本数字医疗服务"。
HealthcarePapers Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27276
Kendall Ho, Owen Adams, Ambreen Sayani, Gurleen Cheema
{"title":"Defining \"Essential Digital Health for the Underserved\".","authors":"Kendall Ho, Owen Adams, Ambreen Sayani, Gurleen Cheema","doi":"10.12927/hcpap.2024.27276","DOIUrl":"10.12927/hcpap.2024.27276","url":null,"abstract":"<p><p>The World Health Organization envisions achieving \"Health for All,\" to strive for equitable access to important health information and services to attain wellness (WHO 2023a). The COVID-19 pandemic reshaped the Canadian health system toward increasing digital health services, which improved access for some but underserved others. Integrating digital health into holistic health services delivery deserves careful consideration. This paper introduces the concept of \"essential digital health for the underserved,\" by first defining the terms \"digital health,\" \"essential\" and \"underserved.\" Then, we share a summary of a discussion at a May 2023 conference with stakeholders, including patients, caregivers, health professionals, health policy makers, private sectors and health researchers. A series of papers follow to explore how digital health can help chart a responsible course for the future of essential digital health in Canada. In this post-pandemic era - with a health human resources shortage through attrition and retirement, an increased health service demand from patients and a greater strain on our recovering economy - innovative solutions need to be implemented to strengthen our Canadian health system.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 4","pages":"5-14"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Learning Health Systems: A Paradigm Shift in What We Can Do about Digital Health Inequities. 学习型卫生系统：我们能为数字健康不平等做些什么的范式转变》（Learning Health Systems: A Paradigm Shift in What We Can Do about Digital Health Inequities）。
HealthcarePapers Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27269
Sonya Cressman, Ibukun-Oluwa Omolade Abejirinde, Joan Assali, Mavis B Dennis, Alies Maybee, Michele Strom, Kendall Ho, Clare L Ardern, Ambreen Sayani, Ray Markham, Onil Bhattacharyya
{"title":"Learning Health Systems: A Paradigm Shift in What We Can Do about Digital Health Inequities.","authors":"Sonya Cressman, Ibukun-Oluwa Omolade Abejirinde, Joan Assali, Mavis B Dennis, Alies Maybee, Michele Strom, Kendall Ho, Clare L Ardern, Ambreen Sayani, Ray Markham, Onil Bhattacharyya","doi":"10.12927/hcpap.2024.27269","DOIUrl":"10.12927/hcpap.2024.27269","url":null,"abstract":"<p><p>Learning health systems (LHSs) embed social accountability into everyday workflows and can inform how governments build bridges across the digital health divide. They shape partnerships using rapid cycles of data-driven learning to respond to patients' calls to action for equity from digital health. Adopting the LHS approach involves re-distributing power, which is likely to be met with resistance. We use the LHS example of British Columbia's 811 services to highlight how infrastructure was created to provide care and answer questions about access to digital health, outcomes from it and the financial impact passed on to patients. In the concluding section, we offer an accountability framework that facilitates partnerships in making digital health more equitable.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 4","pages":"76-84"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121745","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enabling Connected Care with a Person-Centred Data Foundation. 通过以人为本的数据基础实现互联护理。
HealthcarePapers Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27271
Anne Forsyth, Ann Chapman, Shannon Malovec, Michael Tatto, Mauree Aki Matsusaka, Jennifer Cordeiro, Meagan Mak
{"title":"Enabling Connected Care with a Person-Centred Data Foundation.","authors":"Anne Forsyth, Ann Chapman, Shannon Malovec, Michael Tatto, Mauree Aki Matsusaka, Jennifer Cordeiro, Meagan Mak","doi":"10.12927/hcpap.2024.27271","DOIUrl":"10.12927/hcpap.2024.27271","url":null,"abstract":"<p><p>Having the right information at the right time and at the fingertips of the right individuals is not just a necessity for a well-functioning healthcare system but it is also the difference between life and death for Canadians. It is particularly critical to enable improved access to and quality of care for equity-deserving individuals because these data eliminate blind spots for clinicians, policy makers and system planners. The COVID-19 pandemic put a spotlight on the health data challenges that exist across Canada and the tangible impact those have on the healthcare system's ability to meet the needs of underserved populations. It sparked unified urgency at the federal and provincial/territorial levels to build a learning health system powered by connected health data for clinical care, patient access, care organization operations, health system use and population/public health. Person-centric data content standards will lie at the foundation of Canada's learning health system, enabling the creation and exchange of data.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 4","pages":"56-63"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121742","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Can Answers to the Health Workforce Crisis Be Found in Equity-Informed Digital Health? 能否在公平知情的数字医疗中找到解决医疗人员危机的答案？
HealthcarePapers Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27273
Helen Novak Lauscher, Chad Kim Sing, Chantz Strong, Anita Palepu, Jason Jaswal, Dietrich Fürstenburg, Nelly D Oelke, Patricia Kay Pearce, Kendall Ho
{"title":"Can Answers to the Health Workforce Crisis Be Found in Equity-Informed Digital Health?","authors":"Helen Novak Lauscher, Chad Kim Sing, Chantz Strong, Anita Palepu, Jason Jaswal, Dietrich Fürstenburg, Nelly D Oelke, Patricia Kay Pearce, Kendall Ho","doi":"10.12927/hcpap.2024.27273","DOIUrl":"10.12927/hcpap.2024.27273","url":null,"abstract":"<p><p>In this paper, we describe current pressures on health human resources (HHRs) in the Canadian context and related factors that impact equity-deserving communities/populations. We explore issues of HHR challenges in rural, remote and urban underserved contexts and explore the associated benefits and challenges of incorporating digital health (DH). We present examples and evidence of integrating hybrid models of care as a means of supporting HHRs via DH in the publicly funded health system.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 4","pages":"38-46"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121739","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Consolidated Principles for Equitable and Inclusive Digital Health and Virtual Care Co-Design. 公平、包容的数字医疗和虚拟护理共同设计综合原则》。
HealthcarePapers Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27275
Paula Voorheis, Jennifer Major, Jennifer Stinson, Ron Beleno, Colleen Ferris, Carolyn Steele Gray
{"title":"Consolidated Principles for Equitable and Inclusive Digital Health and Virtual Care Co-Design.","authors":"Paula Voorheis, Jennifer Major, Jennifer Stinson, Ron Beleno, Colleen Ferris, Carolyn Steele Gray","doi":"10.12927/hcpap.2024.27275","DOIUrl":"10.12927/hcpap.2024.27275","url":null,"abstract":"<p><p>Digital health and virtual care (DH/VC) interventions have been rapidly transforming healthcare systems, offering enormous potential to bridge gaps in healthcare access and deliver person-centred interventions to equity-deserving populations. Working in partnership with patients, caregivers and communities to meaningfully integrate lived experience perspectives into DH/VC interventions can help ensure that diverse needs are met. In this commentary, we propose a consolidated set of principles for co-designing equity-informed DH/VC interventions. We also identify how these principles can be leveraged through resources and opportunities offered by Healthcare Excellence Canada and others.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 4","pages":"16-27"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Guest Editor's Response to "Canadians Need Improved Access to Drugs for Rare Diseases, Not More Denial". 客座编辑对“加拿大人需要改善罕见病药物的获取，而不是更多的拒绝”的回应。
HealthcarePapers Pub Date : 2023-07-01 DOI: 10.12927/hcpap.2023.27198
Joel Lexchin
{"title":"The Guest Editor's Response to \"Canadians Need Improved Access to Drugs for Rare Diseases, Not More Denial\".","authors":"Joel Lexchin","doi":"10.12927/hcpap.2023.27198","DOIUrl":"10.12927/hcpap.2023.27198","url":null,"abstract":"<p><p>Rawson and Adams (2023) are certainly entitled to express their views about the lead and response articles by Sirrs et al. (2023a; 2023b). Their entitlement comes with a responsibility to accurately and comprehensively state their conflicts of interest (COI) so that readers can assess whether their arguments may be influenced by other interests.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 3","pages":"70-71"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54233200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Systemic Anti-Blackness and Racism in Healthcare: A European Perspective. 医疗保健中的系统性反黑人和种族主义：欧洲视角。
HealthcarePapers Pub Date : 2023-07-01 DOI: 10.12927/hcpap.2023.27195
Alana Helberg-Proctor, Jamiu O Busari
{"title":"Systemic Anti-Blackness and Racism in Healthcare: A European Perspective.","authors":"Alana Helberg-Proctor,&nbsp;Jamiu O Busari","doi":"10.12927/hcpap.2023.27195","DOIUrl":"10.12927/hcpap.2023.27195","url":null,"abstract":"<p><p>Despite notions of colour-blindness and denials of widespread systemic racism, anti-Black racism remains inherent in the political, economic, educational and healthcare systems in Europe. We use the Netherlands as a case study to explore some of these mechanisms. Here, we discuss how a focus on cultural deficiency and the denial of racism allows the bearers of inequality and inequity to be blamed for their own disenfranchisement. Nonetheless, scholars in the Netherlands continue to show how everyday racism is negatively impacting marginalized people's lives and their access to the social determinants of health and well-being in society.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 3","pages":"25-30"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54233196","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Uprooting Medical Violence: Excavating the Roots of Settler Colonialism and Systemic Anti-Black Racism within Healthcare. 根除医疗暴力：挖掘定居者殖民主义和医疗保健中系统性反黑人种族主义的根源。
HealthcarePapers Pub Date : 2023-07-01 DOI: 10.12927/hcpap.2023.27190
Nanky Rai
{"title":"Uprooting Medical Violence: Excavating the Roots of Settler Colonialism and Systemic Anti-Black Racism within Healthcare.","authors":"Nanky Rai","doi":"10.12927/hcpap.2023.27190","DOIUrl":"10.12927/hcpap.2023.27190","url":null,"abstract":"<p><p>In this issue, Dryden (2023) disrupts the myth of neutrality in healthcare and outlines the importance of naming anti-Black racism in order to dismantle it. In this commentary, I take up Dryden's (2023) call to study the relationship between colonialism, anti-Blackness and healthcare. I utilize historical and present-day examples that uncover the roots of settler colonialism and slavery within North American healthcare systems. Finally, I explore how dispossessed communities have resisted medical violence. I call on healthcare workers to fight for non-reformist reforms, uplift self-determining care and engage in resistance toward liberatory futures.</p>","PeriodicalId":101342,"journal":{"name":"HealthcarePapers","volume":"21 3","pages":"56-61"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54233202","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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