Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)最新文献

{"title":"Misophonia: A self-report-based scale development study","authors":"Sevgi Koroglu,&nbsp;Gulgun Durat","doi":"10.1016/j.sedeng.2024.100157","DOIUrl":"10.1016/j.sedeng.2024.100157","url":null,"abstract":"<div><h3>Introduction</h3><div>Misophonia is an increasingly common psychiatric problem. Responses to triggers can lead to suicide, social isolation and poor quality of life. However, scale studies of misophonia usually focus on triggers and responses to triggers. Therefore, there is a need for scales that focus on measuring the effects of misophonia on daily functioning, interpersonal relationships and overall functional capacity.</div></div><div><h3>Objective</h3><div>This research aims to create a scale and validate its psychometric properties to assess the effects of misophonia on daily functioning, interpersonal relationships and overall functional capacity.</div></div><div><h3>Methods</h3><div>This scale for misophonia was applied to 326 participants reached online. The data were analyzed through exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) and internal consistency was evaluated using Cronbach's alpha.</div></div><div><h3>Results</h3><div>The scale shows a four-factor structure with EFA and explains 63.41% of the total variance. With CFA, the standard regression coefficients ranged between 0.51 and 0.98. In the internal consistency analysis, Cronbach's alpha coefficient was 0.96 and the correlation coefficients for the item–total score were in the range 0.43–0.78.</div></div><div><h3>Conclusion</h3><div>This scale, consisting of 30 items and four sub-dimensions, is a valid and reliable measurement tool for diagnosing and understanding the severity of misophonia in Turkish society.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100157"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658602","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of an empowering health education programme for patients with epilepsy","authors":"Isabel Manzanares ,&nbsp;Mar Carreño ,&nbsp;Sonia Sevilla ,&nbsp;María Lombraña ,&nbsp;Ana Grau ,&nbsp;Estefanía Conde-Blanco ,&nbsp;Antonio Donaire ,&nbsp;María Centeno ,&nbsp;Mariam Khawaja ,&nbsp;Adelaida Zabalegui","doi":"10.1016/j.sedeng.2024.100145","DOIUrl":"10.1016/j.sedeng.2024.100145","url":null,"abstract":"<div><h3>Aims</h3><div>To evaluate the effectiveness of an educational intervention with empowerment for patients with epilepsy in a Spanish reference hospital for epilepsy.</div></div><div><h3>Methods</h3><div>A nonrandomized clinical trial was designed in an epilepsy center. An empowerment group intervention program was conducted in which volunteers were recruited. The education contained common topics in health education in epilepsy, which was adapted to the demands of the patients. Patients were empowered to apply their knowledge and skills, using the nurse as a facilitator. Questionnaires were administered before and after the intervention to assess anxiety and depression, quality of life, and satisfaction with epilepsy care in patients with epilepsy.</div></div><div><h3>Results</h3><div>33 patients completed the sessions and study. Satisfaction with the information improved significantly after the intervention (p &lt; 0.005). The information items with significant improvements were satisfaction with information about epilepsy, treatment, provision of aid and treatment of the impact of epilepsy (p &lt; 0.005) Satisfaction with communication decreased (p &lt; 0.005), being the items with the most changes, the “time to answer the questions” and “consideration with their individual needs”. No significant changes were shown in depression and anxiety, quality of life and satisfaction with the organization.</div></div><div><h3>Conclusions</h3><div>Empowerment interventions demonstrated benefits to improve satisfaction with information in patients with epilepsy. The educational intervention designed allows sharing knowledge, solving problems and improving skills, empowering the patient in a new concept of education, which the nurse is a facilitator who collaborates with the demands of the patients. More studies are needed to increase the sample and demonstrate benefits in quality of life and anxiety and depression.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100145"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Updating nursing competencies in neurological care. Times are changing but are we still the same?","authors":"Fidel López Espuela ,&nbsp;Alejandro Lendinez Mesa","doi":"10.1016/j.sedeng.2024.05.003","DOIUrl":"https://doi.org/10.1016/j.sedeng.2024.05.003","url":null,"abstract":"","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 6-8"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141423117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nurses’ knowledge regarding dysphagia: A cross-sectional study","authors":"Patrícia Batista Olímpio ,&nbsp;Alexandre Santos Pereira ,&nbsp;Filipe Alexandre Bettencourt ,&nbsp;Simão Pinheiro Gonzalez Machado ,&nbsp;Isabel de Jesus Oliveira","doi":"10.1016/j.sedeng.2024.05.004","DOIUrl":"https://doi.org/10.1016/j.sedeng.2024.05.004","url":null,"abstract":"<div><h3>Background</h3><p>Dysphagia has a high prevalence with associated complications, such as respiratory infections and recurrent institutionalizations, factors associated with the burden of malnutrition and dehydration that negatively affects the patient's quality of life and entails added health costs.</p></div><div><h3>Objective</h3><p>To assess the knowledge of a group of Portuguese nurses regarding dysphagia and perform the cross-cultural adaptation of the questionnaire used.</p></div><div><h3>Methods</h3><p>Cross-sectional descriptive study based on an online self-ministered questionnaire sent to nurses, regardless of the length of professional experience and area of clinical practice. Data treatment was performed using the IMB SPSS computer software, and the open responses were treated using the QDA Miner Lite.</p></div><div><h3>Results</h3><p>241 nurses were enrolled between May and June 2021, of which 192 (79.6%) were female, with an age of 37.8<!--> <!-->±<!--> <!-->8.3 years and a length of service of 14.4<!--> <!-->±<!--> <!-->8.5 years. Overall knowledge of dysphagia was high (80.1%). Participants were dissatisfied with their knowledge and expressed a need for further training, mainly in therapeutic intervention.</p></div><div><h3>Conclusions</h3><p>It is essential to understand why nurses still consider themselves to lack knowledge despite higher levels of knowledge. Future research should explore these aspects. These findings corroborate the gap between the nurses’ perceived knowledge and their actual knowledge about dysphagia, which may influence practice by influencing the decision-making process. Due to its high prevalence and complications, this gap may translate into increased patient safety risks.</p></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 19-26"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141423910","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Femoral artery pseudoaneurysm after endovascular procedure in stroke patients: Case series","authors":"Macarena Marcos Osuna,&nbsp;Elena González Holgado,&nbsp;Maddi Llorente Olasagasti,&nbsp;Arantza López de Turiso López,&nbsp;Maite Martínez Zabaleta,&nbsp;Patricia de la Riva Juez","doi":"10.1016/j.sedeng.2023.06.002","DOIUrl":"10.1016/j.sedeng.2023.06.002","url":null,"abstract":"<div><h3>Background</h3><p>Femoral artery access site complications are uncommon but likely to become more frequent with the increased use of endovascular procedures in stroke patients.</p></div><div><h3>Aims</h3><p>This study aims to describe the clinical, diagnosis and treatment features of a consecutive case series of femoral artery pseudoaneurysms (FAP).</p></div><div><h3>Methods</h3><p>A retrospective case series was performed for consecutive patients diagnosed with FAP at our institution between January 2016 and January 2020. Variables regarding patient demographics, endovascular procedural features and PAF description, diagnosis, treatment and outcomes were included.</p></div><div><h3>Results</h3><p>We identified a total of 9 cases in a 5-year period; six happened after acute endovascular therapy for stroke, 2 after diagnostic arteriography and 1 after subarachnoid hemorrhage related ruptured aneurysm embolization. Most patients experienced local symptoms but in 3 cases the PAF was incidentally discovered during the stroke diagnostic study. Only 1 of the patients experienced severe anemia related to the PAF. Regarding treatment, local compression and patient rest was enough in 2 cases, thrombine percutaneous injection was used in 3 patients and open surgery in 3. Nurse reports included evaluation of the groin status (pain, lump, bruise) prior to the PAF diagnosis in six patients.</p></div><div><h3>Conclusions</h3><p>The clinical presentation of FAP after endovascular procedure is heterogeneous and its diagnosis and management may be challenging. Systematic assessment of the groin after EP in stroke patients could help in prompt diagnosis and treatment of this complication.</p></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 38-42"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81474887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Summary of the XXX Annual Congress and VI International Congress of the Spanish Society of Neurological Nursing","authors":"Henar Garzón López ,&nbsp;Paloma Muñoz Pedrazuela ,&nbsp;Ana Sofía Fernandes Ribeiro ,&nbsp;Isabel Manzanares ,&nbsp;Carmen Funes Molina ,&nbsp;Alejandro Lendínez Mesa ,&nbsp;Maria Palanca Cámara ,&nbsp;Mercè Salvat-Plana ,&nbsp;Noelia López Ramón ,&nbsp;Tania Herrera Barcia ,&nbsp;Eulalia Gine-Cipres ,&nbsp;Raquel Vallejo de la Paz ,&nbsp;Lourdes Bermelló López ,&nbsp;Ana María Duro Martínez ,&nbsp;Sergio González-Román Montalbán ,&nbsp;Silvia Morel ,&nbsp;Verónica Hidalgo Benítez ,&nbsp;María Figueras Jiménez ,&nbsp;David Iglesias ,&nbsp;Paloma Caro ,&nbsp;Fidel López Espuela","doi":"10.1016/j.sedeng.2024.05.002","DOIUrl":"https://doi.org/10.1016/j.sedeng.2024.05.002","url":null,"abstract":"","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 1-5"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141422756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Retrospective study on the presence of spasticity-plus syndrome in the advanced practice nurse’s office in multiple sclerosis","authors":"Haydee Goicochea Briceño,&nbsp;Yolanda Higueras,&nbsp;José Manuel García Domínguez,&nbsp;Ariana Meldaña Rivera,&nbsp;Juan Pablo Cuello,&nbsp;Elda Alba Suárez,&nbsp;María Luisa Martínez Ginés","doi":"10.1016/j.sedeng.2023.06.003","DOIUrl":"10.1016/j.sedeng.2023.06.003","url":null,"abstract":"<div><p>Spasticity plus syndrome (SSP) is a clinical diagnosis based on the presence of a compendium of symptoms that has been suggested recently in patients with demyelinating disease. Using this diagnosis might help to avoid polimedication and to offer a better symptomatology management in long-term patients.</p></div><div><h3>Objective</h3><p>The aim of this study is to retrospectively analyze the number of cases compatible with a SSP diagnostic in our nurse clinical-consultancy.</p></div><div><h3>Methodology</h3><p>We analyzed a time-window from 2002 till 2022 and we included cases compatible with SSP at those 2 time-points as well as the number of symptomatic treatments prescribed also in both time-points.</p></div><div><h3>Results</h3><p>All cases in the databased were compatible with SSP and also associated pain (90%), rigidity (83.3%), fatigue (75%) and bladder problems (43.3%). An increase in symptomatic treatments was stated (from 1.4 to 3.9 at the end of the temporal window of analysis), and THC:CBD was prescribed in 88.9% of them. There was no correlation between number of symptoms at the beginning and number of symptomatic treatments at the end of the time-window. No correlation either was found between number of symptomatic treatments and physical disability.</p></div><div><h3>Conclusions</h3><p>SSP is relatively easy to be diagnosed in our consultancy and it should be more frequently stated as it will offer the opportunity to individual management of symptoms and treatments for our patients that could impact their quality of life in the long-term.</p></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 27-31"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90555024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of the NIHSS scale in the Stroke Unit of the Ramón y Cajal University Hospital: A tool to improve the quality of care","authors":"Sara Pindado Carrasco,&nbsp;Mónica Esteban Cornejo,&nbsp;Silvia Morel Fernández","doi":"10.1016/j.sedeng.2023.06.004","DOIUrl":"10.1016/j.sedeng.2023.06.004","url":null,"abstract":"<div><h3>Introduction</h3><p>Stroke is a time-dependent pathology which requires a rapid and universal neurological assessment tool. Since October 2021, following training of nursing staff, the NIHSS scale has been implemented in order to increase comparability, concordance and improve communication with the medical team.</p></div><div><h3>Objectives</h3><p>1. To examine the concordance among scores of the NIHSS scale implemented by nursing staff and medical team in Neurology Service of the Ramón y Cajal Hospital. 2. To describe the subjective perception of using the NIHSS scale from the nursing staff in the Neurology Service of the Ramón y Cajal Hospital.</p></div><div><h3>Method</h3><p>Cross-sectional observational study that included 100 patients distributed in two periods of three months each in the Stroke Unit of the Ramón y Cajal Hospital. The NIHSS scale scores given by nursing and neurology were collected, as well as the discordant items of each assessment. Statistical analyzes included frequencies, percentages, Cronbach's alpha and the Intraclass Correlation Coefficient. A survey was conducted among the 22 professionals to assess the degree of acceptance.</p></div><div><h3>Results</h3><p>A high concordance (68% and 70% in each period) was achieved between the nursing and neurology. A total of 94% of professionals reported to get used to the NIHSS scale.</p></div><div><h3>Conclusions</h3><p>The implementation of the NIHSS scale is a clear opportunity for improvement in the stroke unit, facilitating communication between nursing and neurology teams, due to agreement between scores and increasing quality of medical care.</p></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 32-37"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85958622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acute disseminated encephalomyelitis (ADEM) following SARS-CoV-2 infection: A case report from Iran","authors":"Elnaz Asadollahzade ,&nbsp;Sara Azhdari ,&nbsp;Mohammed-Sadegh Johari ,&nbsp;Abdorreza Naser Moghadasi","doi":"10.1016/j.sedeng.2024.05.005","DOIUrl":"https://doi.org/10.1016/j.sedeng.2024.05.005","url":null,"abstract":"<div><p>The new coronavirus disease 2019 (COVID-19) outbreak has rapidly spread throughout the world, becoming a serious public health problem. COVID-19, in addition to respiratory symptoms, has neurotropic characteristics that can impact the nervous system. We present a 22-year-old female who developed diplopia and numbness of her limbs eight days after affecting by COVID-19 and she showed a left-sided outward gaze palsy without any history of previous a specific illness or medication. Supratentorial, infratentorial, and cervical cord enhancing plaques confirmed an acute demyelinating process in favor of Acute disseminated encephalomyelitis (ADEM). Her oligoclonal bands (OCB) were positive as well. As a result, a provisional diagnosis of ADEM was made. Her condition improved dramatically after starting corticosteroids and rituximab.</p></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 43-47"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141423911","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social support, quality of life and activities of daily living in patients with myasthenia gravis in Spain and Latin America","authors":"Mireia Larrosa-Dominguez ,&nbsp;Sílvia Reverté-Villarroya","doi":"10.1016/j.sedeng.2024.05.001","DOIUrl":"10.1016/j.sedeng.2024.05.001","url":null,"abstract":"<div><h3>Objective</h3><p>To determine the relationship of perceived social support with clinical variables, the profile of activities of daily living and quality of life in patients diagnosed with myasthenia gravis living in Spain and Latin America.</p></div><div><h3>Methods</h3><p>Observational, cross-sectional study. Subjects diagnosed with myasthenia gravis were recruited from associations, foundations and social media in the first quarter of 2022. The Medical Outcomes Study (MOS-SSS), the Myasthenia gravis activities of daily living profile (MG-ADL) and the 15-item Myasthenia Gravis Quality of Life scale revised (MG-QOL15R-S) instruments were included.</p></div><div><h3>Results</h3><p>Mean time to diagnosis (t = 2,38; <em>P</em> &lt; .05), history of thymoma (χ2 = 5.18; <em>P</em> &lt; .05), MG-ADL global score (t = 4.29; <em>P</em> &lt; .001), and MG-QOL15R-S global score (t = 7.67; <em>P</em> &lt; .001) were related to perceived social support in MG subjects. We also found that MOS-SSS score correlated significantly with MG-ADL (r = −0.15; <em>P</em> &lt; .001) and MG-QOL15R-S (r = −0.27; <em>P</em> &lt; .001) scores.</p></div><div><h3>Conclusions</h3><p>A history of thymoma reduces the likelihood of high perceived social support, and diagnosis of the disease at less than two years has been associated with a higher frequency of high perceived social support. In addition, high perceived social support is expected to correlate with high quality of life and lower severity of myasthenia gravis symptoms.</p></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 9-18"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141039516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}