Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)最新文献

{"title":"Psycho-emotional care by neurological nurses. Keys to deciphering the enigma of emotional well-being","authors":"José Manuel Párraga Sánchez","doi":"10.1016/j.sedeng.2024.500171","DOIUrl":"10.1016/j.sedeng.2024.500171","url":null,"abstract":"","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 500171"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Functional social support in patients with myasthenia gravis: Narrative review","authors":"Mireia Larrosa-Dominguez,&nbsp;Laura Reyes-Martí","doi":"10.1016/j.sedeng.2024.100155","DOIUrl":"10.1016/j.sedeng.2024.100155","url":null,"abstract":"<div><h3>Introduction</h3><div>Social support promotes feelings of stability, predictability and self-esteem and reduces the social isolation, because information, tangible assistance and emotional support can be obtained from the social network.</div></div><div><h3>Methods</h3><div>We conducted a narrative review of the international empirical literature to provide a comprehensive understanding of the impact of social support and social networks on patients diagnosed with myasthenia gravis. The following databases were consulted: CINAHL, MEDLINE, APA PsycInfo, SCOPUS and Web of Science. Information was collected up to 2nd December 2022.</div></div><div><h3>Results</h3><div>The initial search generated 46 articles, but after the exclusion criteria had been applied, the total number of articles analysed was 13.</div></div><div><h3>Conclusions</h3><div>The symptoms of myasthenia gravis, especially ptosis and slurred speech, can have a major psychosocial impact and a negative effect on interaction social.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100155"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Presence of palinopsia as a sign of selective CNS tractopathy: A case report","authors":"Elnaz Asadollahzadeh ,&nbsp;Vahid Shahmaei ,&nbsp;Rezvan Hassanpour ,&nbsp;Zahra Ebadi ,&nbsp;Mohammad Ali Sahraian ,&nbsp;Abdorreza Naser Moghadasi","doi":"10.1016/j.sedeng.2024.100156","DOIUrl":"10.1016/j.sedeng.2024.100156","url":null,"abstract":"<div><div>Palinopsia, described as the persistence of visual images or their recurrence after the stimulus has disappeared, represents a rare but important neuro-ophthalmic complication. Until now, the pathophysiology and the main location of this visual mainteanance condition are not been clearly understood. This study presents a 30-year-old woman with palinopsia who had her selective optic radiation lesion assessed by diffusion tensor imaging (DTI). The finding of magnetic resonance imaging (MRI) did not reveal any damage in the selective optic pathway whereas DTI showed a decreased density of the optic radiation tract. Furthermore, the mean diffusivity (MD), axial diffusivity (AD), and radial diffusivity (RD) were increased in suspected regions of lesions ds, while fractional anisotropy (FA) was decreased. To the authors’ knowledge, this is the first report of a case of palinopsia representing the central nervous system (CNS) tractopathy. Therefore, we encourage further investigation of optic pathway pathology using DTI in complex neurological complications, including palinopsia.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100156"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Neurological deficit and degree of autonomy of patients with ischemic stroke treated with mechanical thrombectomy. A retrospective study","authors":"M.Lourdes Bermello López ,&nbsp;Emilio Rubén Pego Pérez ,&nbsp;Isidoro Rodríguez Pérez","doi":"10.1016/j.sedeng.2024.100158","DOIUrl":"10.1016/j.sedeng.2024.100158","url":null,"abstract":"<div><h3>Objective</h3><div>To determine the degree of autonomy of patients treated with mechanical thrombectomy; to assess the degree of neurological deficit on admission and 24 h, and the degree of dependency at 3 months after performing the mechanical thrombectomy.</div></div><div><h3>Method</h3><div>Quantitative, observational, and descriptive study, with a sample of 57 patients treated with mechanical thrombectomy in the Autonomous City of Buenos Aires. Neurological deficit was measured with the National Institute of Health Stroke Score upon admission and 24 h after treatment with mechanical thrombectomy, and functional outcome with the modified Rankin scale at three months.</div></div><div><h3>Results</h3><div>The degree of dependency at three months was 2,4 points. The mean neurological deficit score on admission was 12,1 points, and 9,3 points after 24 h. Neurological deficit at 24 h has been found to be predictive of functionality at three months.</div></div><div><h3>Conclusion</h3><div>The mean of the neurological deficit at admission was situated in a moderate neurological deficit. The mean of the neurological deficit at 24 h has been placed in a moderate neurological deficit. The score for the degree of dependency at three months was placed in the mild disability category. A significant correlation has been obtained between the neurological deficit at 24 h and the functional result at three months.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100158"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658603","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“No SMA can hold”: Nursing care for children with spinal muscular atrophy. Descriptive analysis of two case studies","authors":"Federico Ruta ,&nbsp;Paolo Ferrara ,&nbsp;Francesca Dal Mas","doi":"10.1016/j.sedeng.2024.100144","DOIUrl":"10.1016/j.sedeng.2024.100144","url":null,"abstract":"<div><h3>Background</h3><div>Spinal muscular atrophy (SMA) is one of the most common genetic causes of death in children affecting about one in 10,000 live births, while its prevalence is about 1–2 per 100,000 (live births). Recently, the European Commission (EU) approved a novel gene therapy based on the onasemnogen abeparvovec (Zolgensma) for the treatment of patients with SMA. In addition to drug treatment, it is essential that children with SMA apply self-care methods to maintain their health, monitor their weight and food intake, and use appropriate remedies. Self-care and co-production of health care services are crucial in the modern ecosystem, as they can improve survival and prevent hospitalizations. The aim of this work is to support healthcare professionals who may have to deal with patients affected by this disease.</div></div><div><h3>Methods</h3><div>The article uses two case studies of children with spinal muscular atrophy through the creation of a multi-professional research group composed of health professionals who provide direct care to SMA children. The collection and analysis of the data were carried out by involving different figures who interact with SMA children. Specifically, physicians, nurses, parents, physical therapists, social workers, and teachers were individually interviewed.</div></div><div><h3>Results</h3><div>The study aims to provide suggestions on assessing child self-care, believing it to be a valuable method to gather information on how the child performs daily activities and how much the surrounding environment affects self-care. This paper highlights how self-management behaviors depend on four basic aspects: the person (individual, cognitive, and social perceptions), the patient's family (level of knowledge of pathology, involvement in the management and quality of relationship with the patient), the community (relationships with external social contexts, such as school and other organizations), and the healthcare system (availability of resources and the degree of evolution of healthcare).</div></div><div><h3>Conclusions</h3><div>The experience conducted may be helpful to other health institutions to make the approach to children with SMA as most effective as possible, creating internal workgroups and collaboration with external experts on the subject. Moreover, it provides valuable information on caring for families with children with SMA.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100144"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658604","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of an empowering health education programme for patients with epilepsy","authors":"Isabel Manzanares ,&nbsp;Mar Carreño ,&nbsp;Sonia Sevilla ,&nbsp;María Lombraña ,&nbsp;Ana Grau ,&nbsp;Estefanía Conde-Blanco ,&nbsp;Antonio Donaire ,&nbsp;María Centeno ,&nbsp;Mariam Khawaja ,&nbsp;Adelaida Zabalegui","doi":"10.1016/j.sedeng.2024.100145","DOIUrl":"10.1016/j.sedeng.2024.100145","url":null,"abstract":"<div><h3>Aims</h3><div>To evaluate the effectiveness of an educational intervention with empowerment for patients with epilepsy in a Spanish reference hospital for epilepsy.</div></div><div><h3>Methods</h3><div>A nonrandomized clinical trial was designed in an epilepsy center. An empowerment group intervention program was conducted in which volunteers were recruited. The education contained common topics in health education in epilepsy, which was adapted to the demands of the patients. Patients were empowered to apply their knowledge and skills, using the nurse as a facilitator. Questionnaires were administered before and after the intervention to assess anxiety and depression, quality of life, and satisfaction with epilepsy care in patients with epilepsy.</div></div><div><h3>Results</h3><div>33 patients completed the sessions and study. Satisfaction with the information improved significantly after the intervention (p &lt; 0.005). The information items with significant improvements were satisfaction with information about epilepsy, treatment, provision of aid and treatment of the impact of epilepsy (p &lt; 0.005) Satisfaction with communication decreased (p &lt; 0.005), being the items with the most changes, the “time to answer the questions” and “consideration with their individual needs”. No significant changes were shown in depression and anxiety, quality of life and satisfaction with the organization.</div></div><div><h3>Conclusions</h3><div>Empowerment interventions demonstrated benefits to improve satisfaction with information in patients with epilepsy. The educational intervention designed allows sharing knowledge, solving problems and improving skills, empowering the patient in a new concept of education, which the nurse is a facilitator who collaborates with the demands of the patients. More studies are needed to increase the sample and demonstrate benefits in quality of life and anxiety and depression.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100145"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Misophonia: A self-report-based scale development study","authors":"Sevgi Koroglu,&nbsp;Gulgun Durat","doi":"10.1016/j.sedeng.2024.100157","DOIUrl":"10.1016/j.sedeng.2024.100157","url":null,"abstract":"<div><h3>Introduction</h3><div>Misophonia is an increasingly common psychiatric problem. Responses to triggers can lead to suicide, social isolation and poor quality of life. However, scale studies of misophonia usually focus on triggers and responses to triggers. Therefore, there is a need for scales that focus on measuring the effects of misophonia on daily functioning, interpersonal relationships and overall functional capacity.</div></div><div><h3>Objective</h3><div>This research aims to create a scale and validate its psychometric properties to assess the effects of misophonia on daily functioning, interpersonal relationships and overall functional capacity.</div></div><div><h3>Methods</h3><div>This scale for misophonia was applied to 326 participants reached online. The data were analyzed through exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) and internal consistency was evaluated using Cronbach's alpha.</div></div><div><h3>Results</h3><div>The scale shows a four-factor structure with EFA and explains 63.41% of the total variance. With CFA, the standard regression coefficients ranged between 0.51 and 0.98. In the internal consistency analysis, Cronbach's alpha coefficient was 0.96 and the correlation coefficients for the item–total score were in the range 0.43–0.78.</div></div><div><h3>Conclusion</h3><div>This scale, consisting of 30 items and four sub-dimensions, is a valid and reliable measurement tool for diagnosing and understanding the severity of misophonia in Turkish society.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100157"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658602","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Updating nursing competencies in neurological care. Times are changing but are we still the same?","authors":"Fidel López Espuela ,&nbsp;Alejandro Lendinez Mesa","doi":"10.1016/j.sedeng.2024.05.003","DOIUrl":"https://doi.org/10.1016/j.sedeng.2024.05.003","url":null,"abstract":"","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 6-8"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141423117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Femoral artery pseudoaneurysm after endovascular procedure in stroke patients: Case series","authors":"Macarena Marcos Osuna,&nbsp;Elena González Holgado,&nbsp;Maddi Llorente Olasagasti,&nbsp;Arantza López de Turiso López,&nbsp;Maite Martínez Zabaleta,&nbsp;Patricia de la Riva Juez","doi":"10.1016/j.sedeng.2023.06.002","DOIUrl":"10.1016/j.sedeng.2023.06.002","url":null,"abstract":"<div><h3>Background</h3><p>Femoral artery access site complications are uncommon but likely to become more frequent with the increased use of endovascular procedures in stroke patients.</p></div><div><h3>Aims</h3><p>This study aims to describe the clinical, diagnosis and treatment features of a consecutive case series of femoral artery pseudoaneurysms (FAP).</p></div><div><h3>Methods</h3><p>A retrospective case series was performed for consecutive patients diagnosed with FAP at our institution between January 2016 and January 2020. Variables regarding patient demographics, endovascular procedural features and PAF description, diagnosis, treatment and outcomes were included.</p></div><div><h3>Results</h3><p>We identified a total of 9 cases in a 5-year period; six happened after acute endovascular therapy for stroke, 2 after diagnostic arteriography and 1 after subarachnoid hemorrhage related ruptured aneurysm embolization. Most patients experienced local symptoms but in 3 cases the PAF was incidentally discovered during the stroke diagnostic study. Only 1 of the patients experienced severe anemia related to the PAF. Regarding treatment, local compression and patient rest was enough in 2 cases, thrombine percutaneous injection was used in 3 patients and open surgery in 3. Nurse reports included evaluation of the groin status (pain, lump, bruise) prior to the PAF diagnosis in six patients.</p></div><div><h3>Conclusions</h3><p>The clinical presentation of FAP after endovascular procedure is heterogeneous and its diagnosis and management may be challenging. Systematic assessment of the groin after EP in stroke patients could help in prompt diagnosis and treatment of this complication.</p></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 38-42"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81474887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nurses’ knowledge regarding dysphagia: A cross-sectional study","authors":"Patrícia Batista Olímpio ,&nbsp;Alexandre Santos Pereira ,&nbsp;Filipe Alexandre Bettencourt ,&nbsp;Simão Pinheiro Gonzalez Machado ,&nbsp;Isabel de Jesus Oliveira","doi":"10.1016/j.sedeng.2024.05.004","DOIUrl":"https://doi.org/10.1016/j.sedeng.2024.05.004","url":null,"abstract":"<div><h3>Background</h3><p>Dysphagia has a high prevalence with associated complications, such as respiratory infections and recurrent institutionalizations, factors associated with the burden of malnutrition and dehydration that negatively affects the patient's quality of life and entails added health costs.</p></div><div><h3>Objective</h3><p>To assess the knowledge of a group of Portuguese nurses regarding dysphagia and perform the cross-cultural adaptation of the questionnaire used.</p></div><div><h3>Methods</h3><p>Cross-sectional descriptive study based on an online self-ministered questionnaire sent to nurses, regardless of the length of professional experience and area of clinical practice. Data treatment was performed using the IMB SPSS computer software, and the open responses were treated using the QDA Miner Lite.</p></div><div><h3>Results</h3><p>241 nurses were enrolled between May and June 2021, of which 192 (79.6%) were female, with an age of 37.8<!--> <!-->±<!--> <!-->8.3 years and a length of service of 14.4<!--> <!-->±<!--> <!-->8.5 years. Overall knowledge of dysphagia was high (80.1%). Participants were dissatisfied with their knowledge and expressed a need for further training, mainly in therapeutic intervention.</p></div><div><h3>Conclusions</h3><p>It is essential to understand why nurses still consider themselves to lack knowledge despite higher levels of knowledge. Future research should explore these aspects. These findings corroborate the gap between the nurses’ perceived knowledge and their actual knowledge about dysphagia, which may influence practice by influencing the decision-making process. Due to its high prevalence and complications, this gap may translate into increased patient safety risks.</p></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"59 ","pages":"Pages 19-26"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141423910","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}