Measurement and Evaluations in Cancer Care最新文献

{"title":"Patient reported experience measures to assess psychosocial cancer care: A rapid review of current instruments","authors":"","doi":"10.1016/j.ymecc.2024.100007","DOIUrl":"10.1016/j.ymecc.2024.100007","url":null,"abstract":"<div><h3>Purpose</h3><div>Patient Reported Experience Measures (PREMs) are instruments that capture patients’ perspectives of health care services and offer insight into the perceived quality of care and identify areas for improvement. This rapid review aimed to identify and evaluate existing PREMs that explore patients’ experiences of psychosocial cancer care, describe their conceptual content and assess the quality of their development.</div></div><div><h3>Methods</h3><div>Databases (MEDLINE and PsycINFO) were searched from January 1995 to January 2023. Eligible papers included PREMs developed or tested in adult cancer populations. The psychosocial content of concepts assessed by PREMs were mapped and the quality of their development assessed using the Quality Assessment Checklist (QAC).</div></div><div><h3>Results</h3><div>Twenty-three articles describing the development of 20 PREMs were identified. The content of these PREMs varied in terms of psychosocial domain coverage and the rigour of the development process. Quality assessment indicated that whilst instruments were well-developed, psychometric testing at this stage was less thoroughly reported on.</div></div><div><h3>Conclusion</h3><div>Several patient-reported instruments are available to measure patients’ psychosocial cancer care experiences; however, these differ in content and thoroughness. The choice of instrument used by researchers will therefore depend on research or clinical objectives and on striking a balance between comprehension and length. Limitations of this review are discussed.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142359036","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) for health professionals in cancer care settings","authors":"Sharon Linsey Bingham ,&nbsp;Cherith Jane Semple ,&nbsp;Sean Richard O’Connor ,&nbsp;Lynn Dunwoody","doi":"10.1016/j.ymecc.2024.100006","DOIUrl":"10.1016/j.ymecc.2024.100006","url":null,"abstract":"<div><h3>Background</h3><p>Cancer and associated treatment can have a significant and detrimental impact on a person’s sexual wellbeing. Sexual attitudes and beliefs of healthcare professionals (HPs) working in cancer care settings can affect the support provided to help patients and partners to manage these concerns. This study evaluated psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) adapted for use in cancer care settings.</p></div><div><h3>Methods</h3><p>Adaptation of original SABS was informed by evidence reviews and an expert panel of researchers. The 12-item SABS was completed by HPs working in cancer care (n = 391) prior to completing an eLearning intervention aimed at promoting provision of sexual support to patients and partners. Exploratory (EFA) and confirmatory factor analysis (CFA) were conducted, reliability and validity of the scale were also explored.</p></div><div><h3>Results</h3><p>EFA showed potential for a three-factor model, with CFA indicating a better model fit (CMIN/DF &lt; 3; GFI &gt; .9; CFI &gt; .9 and &lt; RMSEA &lt; .08) for 8 of the SABS-C items, lending support for a unidimensional model, with moderately acceptable reliability of.69. The 8-item scale was also able to discriminate between known groups with lower attitudinal barriers to providing sexual support apparent in HPs with over 12 years of experience, in nurses compared with other HPs, and in those with previous sexual wellbeing education (<em>p</em> &lt; 0.001).</p></div><div><h3>Conclusion</h3><p>The SABS-C8 is a brief scale with acceptable reliability that can be used to assess attitudinal barriers to sexual support and help to identify HPs learning needs around providing sexual support in cancer care.</p></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949877524000017/pdfft?md5=3780c69cb28cddc0b29b4a27f862d3fb&pid=1-s2.0-S2949877524000017-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141052182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development of a structured questionnaire to assess cancer patients’ individual needs in general practice. A qualitative study","authors":"Frederik Rosenbæk ,&nbsp;Sanne Rasmussen ,&nbsp;Jens Søndergaard ,&nbsp;Mette Terp Høybye ,&nbsp;Dorte Gilså Hansen","doi":"10.1016/j.ymecc.2023.100004","DOIUrl":"https://doi.org/10.1016/j.ymecc.2023.100004","url":null,"abstract":"<div><h3>Background</h3><p>Present studies report a vast number of unmet rehabilitation needs for cancer patients and a lack of professional focus irrespective of the type of cancer, prognosis, treatment, and clinical setting. Therefore, interventions targeting individual needs assessments using patient-reported outcome measures are recommended.</p></div><div><h3>Aim</h3><p>This paper explores the perceived value of a primarily author-developed questionnaire that assesses the needs experienced by cancer patients and general practitioners in their interaction in general practice.</p></div><div><h3>Methods</h3><p>We conducted nine semi-structured qualitative interviews with nine general practitioners and nine cancer patients to evaluate their assessment of our 33-item questionnaire.</p></div><div><h3>Results</h3><p>The general practitioners and patients demonstrate similarities but differences in their perception of the questionnaire’s value. The general practitioners were anxious about the questionnaire's comprehensiveness, which could indicate to the patients that they should solve all their problems related to the aftermaths of their illness. This is why the alignment of expectations was essential to the general practitioners. The comprehensiveness was, however, also regarded as instructive to the general practitioners, given that they would get more knowledge about the patient’s conditions and problems. The patients saw the questionnaire as a helpful tool that could aid them in their illness, by targeting highly relevant areas that were not always addressed by their general practitioner. The comprehensiveness was thus regarded as helpful. They hoped the general practitioners would allocate enough time to go through all their needs, provided the general practitioners received the filled-in questionnaire before the consultations.</p></div><div><h3>Conclusion</h3><p>The GPs and patients favored the comprehensiveness of an author-developed structured questionnaire. Both groups agreed that it addressed all issues relevant to the patients during their illness. Although the GPs stressed that expectations should be aligned before introducing the questionnaire to the patients at consultations.</p></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949877523000047/pdfft?md5=23a41eef7efedc82a23bf36d2648b8dd&pid=1-s2.0-S2949877523000047-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138581947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The HAIR-QoL measure Part 2: Validation of an instrument to measure of the severity and impact of chemotherapy-induced alopecia (CIA)","authors":"Julie Winstanley ,&nbsp;Laura Libreros-Peña ,&nbsp;Dorthe Schaffrin-Nabe ,&nbsp;Azra Arif ,&nbsp;Esther de Vries ,&nbsp;Annie Young ,&nbsp;Alice Markussen ,&nbsp;Hope S. Rugo ,&nbsp;M. Dercksen ,&nbsp;Takayuki Kinoshita ,&nbsp;Frances Boyle ,&nbsp;Corina van den Hurk","doi":"10.1016/j.ymecc.2023.100003","DOIUrl":"10.1016/j.ymecc.2023.100003","url":null,"abstract":"<div><h3>Objective</h3><p>Chemotherapy-induced alopecia (CIA) is one of the most common and distressing side effects related to cancer treatment. Few patient-reported outcome measures (PROMs) have been developed specifically to measure the patient-experience of hair loss during chemotherapy treatment. In part I of this research, a set of provisional questionnaire items were developed for a new tool. This article focusses on the validation and psychometric testing of the CIA-specific scoring items in the provisional HAIR-QoL measure.</p></div><div><h3>Methods</h3><p>The provisional HAIR-QoL questionnaire, comprised of 43 CIA-specific items, was administered to a large sample of patients (n = 228) from 8 international centres, who were undergoing chemotherapy. Psychometric testing used a combination of Classical Test Theory (CTT) and Item Response Theory methods; Principal Components Analysis (PCA) and Rasch Analysis, respectively.</p></div><div><h3>Results</h3><p>From the initial item pool of 43 items, 28 items satisfied the criteria for inclusion into four components. The four subscales identified were as follows, 1) Concern about change in appearance, 2) Image of self, 3) Preparedness for hair loss and 4) Impact of hair loss on you and others. The results of the quantitative analyses, PCA and Rasch analysis, suggested modest amendment to the number of items to the provisional HAIR-QoL measure<strong>.</strong> Psychometric properties were reported to be very good/excellent for all four subscales and were found to be sensitive to detecting group differences.</p></div><div><h3>Conclusion</h3><p>The refined items which comprise the final HAIR-QoL measure were found to tap into several important psycho-social domains of concern for patients who experienced CIA. The subscale scores have the potential to inform future decision-making on patients’ unmet information and support needs and pave the way for personalised psychological care and more robust research on efficacy of scalp cooling.</p></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949877523000035/pdfft?md5=a8d92d8f2bbc5fe4d14a03a53d719afa&pid=1-s2.0-S2949877523000035-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135714671","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The HAIR-QoL measure Part 1: What are the quality of life issues for people with cancer with chemotherapy-induced alopecia?","authors":"C. van den Hurk ,&nbsp;L. Libreros-Peña ,&nbsp;J. Winstanley ,&nbsp;A. Arif ,&nbsp;D. Schaffrin-Nabe ,&nbsp;E. de Vries ,&nbsp;A. Young ,&nbsp;F. Boyle","doi":"10.1016/j.ymecc.2023.100002","DOIUrl":"10.1016/j.ymecc.2023.100002","url":null,"abstract":"<div><p>This paper describes the development of the provisional HAIR-QoL questionnaire on the impact of chemotherapy-induced alopecia on health-related quality of life. A total of 43 items have been developed.</p></div><div><h3>Introduction</h3><p>Chemotherapy Induced Alopecia (CIA) is the most visible side effect of chemotherapy treatment, carrying an important psychosocial burden, and negatively affecting health-related quality of life (HRQoL). No internationally validated instrument for the severity and impact of CIA exists for people with cancer for both sexes, which has hindered research in this area. Therefore, our aim was to develop a patient-reported measure for use in research and patient care.</p></div><div><h3>Methods</h3><p>We established a list of potential issues based on experiences of patients and healthcare professionals (HCPs) through a literature review, interviews, and focus groups with 52 patients in various cancer centres from three countries. Thereafter, a total of 51 eligible patients and 11 HCPs from four countries scored these issues on relevance and priority before translating into items for the provisional HAIR-QoL questionnaire.</p></div><div><h3>Results</h3><p>The literature search identified 293 issues, and focus groups and interviews another 618 issues. Removing duplicates and general HRQoL issues resulted in 95 pertinent issues across 6 health-related QoL domains: (1) meaning and importance of hair, (2) satisfaction with the received information regarding hair loss and preparedness, (3) impact of hair loss on self, (4) impact of hair loss on others, (5) management of changes/side effects, and (6) regrowth of hair. Differences in relevance scores could be detected between males and females, and were associated with 5 items on the wearing of a wig/head cover (Z = 2.9–3.4, p between 0.001 and 0.004). Also relevance scores for ‘wearing a wig/head cover for my partner/children’ were higher for female patients with breast cancer compared to other cancers (Z = 3.2, p = 0.001). The calculated scores on relevance and priority led to a total of 43 issues that have been translated into items.</p></div><div><h3>Conclusion</h3><p>This study shows that people with cancer with CIA experience important HRQoL issues, not adequately measured by existing HRQoL measures. CIA can affect male people with cancer as much as it can affect females. The provisional HAIR-QoL questionnaire provides an optimal approach for multidisciplinary teams who care for people with cancer in understanding their patients’ concerns and priorities around CIA.</p></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949877523000023/pdfft?md5=36ff905b095d3abbff32661540c790b3&pid=1-s2.0-S2949877523000023-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135714999","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric properties of the Arabic version of the good death inventory (GDI-A) questionnaire tested on Palestinian family members of deceased adult cancer patients","authors":"Hammoda Abu-Odah ,&nbsp;Frances Kam Yuet Wong ,&nbsp;Juanjuan Zhao ,&nbsp;Abdallah Ahmad Alwawi ,&nbsp;Ali Alkhatib ,&nbsp;Alex Molassiotis","doi":"10.1016/j.ymecc.2023.100001","DOIUrl":"https://doi.org/10.1016/j.ymecc.2023.100001","url":null,"abstract":"<div><h3>Background</h3><p>Despite the importance of understanding the concept of good death (GD) from different cultural perspectives, it has not been assessed in Arab communities because of the unavailability of validated instruments. This study aimed to evaluate the psychometric properties of the Arabic version of the Good Death Inventory (GDI-A) questionnaire used among Palestinian bereaved family members of cancer patients.</p></div><div><h3>Methods</h3><p>A cross-sectional methodological study was applied. An online survey was adopted as a data collection method. The online survey was delivered through Qualtrics and posted in cancer and health-related social media groups on Facebook, the most commonly utilized social media platform in Palestine. A convenient and snowball sampling of 285 family members of deceased adult cancer patients was adopted. The participants were asked to complete GDI online survey. A confirmatory factor analysis (CFA), content validity, and internal consistency reliability were assessed.</p></div><div><h3>Results</h3><p>Participants showed a good perspective about death (<em>M</em> = 300.01, <em>SD</em> = 31.09). Significant differences in GDI-A total score were reported with the “patient’s relationship with family” (M = 303.02, SD = 31.42), F(2, 282) = 7.787, <em>p</em> = .001, “educational level” (M = 305.97, SD = 28.38), F(4, 280) = 3.685, p = .006, and “member’s relationship with the patient” (M = 311.74, SD = 16.57), F(5, 279) = 3.125, <em>p</em> = .009. The Arabic version scale-level content validity index and the scale-level content validity index-universal agreement were 0.96 and 0.85, respectively. Factor analysis with a varimax rotation matrix revealed that 16 factors explained 76.08% of the variance.</p></div><div><h3>Conclusion</h3><p>This study provides the literature with an Arabic questionnaire for understanding the concept of a GD from the perspective of bereaved families. The GDI Arabic translated version is a psychometrically robust instrument with satisfactory measurement, which can be used for evaluating a GD among bereaved families.</p></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"67739256","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}