Measurement and Evaluations in Cancer Care最新文献

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Development and psychometric testing of a personal health-related resources instrument for working-age women with breast cancer 针对患有乳腺癌的工作年龄妇女的个人健康相关资源工具的开发和心理测量测试
Measurement and Evaluations in Cancer Care Pub Date : 2025-12-01 Epub Date: 2025-09-23 DOI: 10.1016/j.ymecc.2025.100020
Marika Skyttä , Lauri Sillanmäki , Minna Stolt , Mari Kangasniemi
{"title":"Development and psychometric testing of a personal health-related resources instrument for working-age women with breast cancer","authors":"Marika Skyttä ,&nbsp;Lauri Sillanmäki ,&nbsp;Minna Stolt ,&nbsp;Mari Kangasniemi","doi":"10.1016/j.ymecc.2025.100020","DOIUrl":"10.1016/j.ymecc.2025.100020","url":null,"abstract":"<div><h3>Background</h3><div>Personal health-related resources are essential for women with breast cancer, as these help them to maintain their own health and well-being during cancer care. Nurses play an important role in providing support to identify personal health-related resources of women during cancer treatments.</div></div><div><h3>Purpose</h3><div>To develop and test the psychometric properties of a new self-assessment personal health-related resources (PHRR) instrument for working-age women receiving breast cancer care.</div></div><div><h3>Methods</h3><div>A four-phase instrument development process was used. The data were analysed using the content validity index, content validity ratio and exploratory factor analysis. Reliability was tested using Cronbach's α coefficients.</div></div><div><h3>Results</h3><div>The instrument’s content validity index was 0.93. Exploratory factor analysis showed that the instrument version 3.0 comprised three main factors, 12 sub-factors and 46 items, which explained 67.4 % of the total variance in the measured variable. The instrument’s internal consistency was high, with Cronbach’s α of 0.92.</div></div><div><h3>Conclusion</h3><div>The instrument showed acceptable psychometric properties and was suitable for measuring PHRR in women aged 18–65 years with breast cancer. The instrument provides multidimensional understanding of the PHRR of women with breast cancer. The PHRR instrument can be used to achieve a comprehensive understanding of the personal health-related resources for women with breast cancer during cancer care. This instrument can provide information how to support women and development psychosocial support in different phases of illness.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"3 ","pages":"Article 100020"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145227105","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychometric assessment of the Traditional Chinese Version of patient reported outcome measurement for breast surgery (BREAST-Q) – Reconstruction module 传统中文版乳房手术患者报告结果测量(breast - q) -重建模块的心理测量评估
Measurement and Evaluations in Cancer Care Pub Date : 2025-12-01 Epub Date: 2025-03-12 DOI: 10.1016/j.ymecc.2025.100015
Ting-Yu Chang , Tongyao Wang , Chia-Chin Lin
{"title":"Psychometric assessment of the Traditional Chinese Version of patient reported outcome measurement for breast surgery (BREAST-Q) – Reconstruction module","authors":"Ting-Yu Chang ,&nbsp;Tongyao Wang ,&nbsp;Chia-Chin Lin","doi":"10.1016/j.ymecc.2025.100015","DOIUrl":"10.1016/j.ymecc.2025.100015","url":null,"abstract":"<div><h3>Background and objectives</h3><div>Patient-reported outcomes, as important indicators of quality of life, was utilized in a widely used breast surgery measurement (BREAST-Q) for assessing patient's physical, psychosocial wellbeing and satisfaction. However, the lack of a Traditional Chinese version has limited its use in patient management in Taiwan. The study aims to psychometrically evaluate the Traditional Chinese BREAST-Q reconstruction module for Taiwanese patients undergoing breast cancer related reconstruction.</div></div><div><h3>Methods</h3><div>Forward and backward translations of the BREAST-Q was followed by expert reviews and pilot testing. Patients undergoing silicon breast reconstruction surgery were recruited from the inpatient and outpatient clinic at a comprehensive medical center. 155 and 96 participants completed the BREAST-Q and the Functional Assessment of Cancer Therapy–Breast (FACT-B) before and after surgery, respectively. Psychometric properties were analyzed with internal consistency, test-retest reliability, content, construct and criterion validity.</div></div><div><h3>Results</h3><div>The translated BREAST-Q reconstruction module had Cronbach's alpha values of 0.87 and 0.92 before and after surgery, respectively. The Pearson r values between the baseline and the two-weeks retest were.85 and.73, indicating high test-retest reliability. Expert validity measured by the Content Validity Index were 0.96 and 0.98. Concurrent validity measured by the Pearson correlation coefficients between the BREAST-Q and the FACT-B were.26 and.38, indicating good criterion-related validity.</div></div><div><h3>Conclusions</h3><div>This study confirms reliability and clinical validity of the Traditional Chinese BREAST-Q reconstruction module in Taiwan for measuring the satisfaction with breasts, overall outcome, process of care, and psychosocial, physical and sexual well-being before and after patients’ breast reconstruction surgery.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"3 ","pages":"Article 100015"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143636882","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prospective psychometric validation of the swahili translated and adapted Pediatric Patient Reported Outcomes version of the Common Terminology Criteria for Adverse Events (Ped-PRO-CTCAE) 不良事件通用术语标准(Ped-PRO-CTCAE)的斯瓦希里语翻译和改编的儿科患者报告结果版本的前瞻性心理测量学验证
Measurement and Evaluations in Cancer Care Pub Date : 2025-12-01 Epub Date: 2025-01-29 DOI: 10.1016/j.ymecc.2025.100014
Hutton Chapman , Jacqueline Kamanga , Heronima J. Kashaigili , Kristin Schroeder
{"title":"Prospective psychometric validation of the swahili translated and adapted Pediatric Patient Reported Outcomes version of the Common Terminology Criteria for Adverse Events (Ped-PRO-CTCAE)","authors":"Hutton Chapman ,&nbsp;Jacqueline Kamanga ,&nbsp;Heronima J. Kashaigili ,&nbsp;Kristin Schroeder","doi":"10.1016/j.ymecc.2025.100014","DOIUrl":"10.1016/j.ymecc.2025.100014","url":null,"abstract":"<div><h3>Background</h3><div>High quality clinical research is necessary in order to address the significant disparities in pediatric cancer outcomes seen in low- and middle-income countries (LMICs). Patient reported outcomes are now recognized as a critical part of many clinical trials, however, use of patient reported outcomes (PROs) in LMICs is limited by the lack of thoroughly translated and validated PRO surveys. To address this gap in Tanzania, we subsequently undertook the prospective psychometric validation of a recently translated Swahili Ped-PRO-CTCAE survey in order to support its use in Swahili speaking settings.</div></div><div><h3>Methodology</h3><div>Between June and September, 2023, 41 patients seen in the pediatric oncology clinic at Bugando Medical Centre, in Mwanza, Tanzania, were enrolled. Patients or their parents, as age appropriate, were administered the Swahili Ped-PRO-CTCAE. Simultaneously, a CTCAE provider assessment was completed. Descriptive statistical and psychometric analysis of survey results was performed using R.</div></div><div><h3>Results</h3><div>49 surveys were collected, with 8 participants repeating surveys at later clinic visits. Internal consistency within symptom domains was supported by polychoric correlation coefficients all ≥ 0.5 with most ≥ 0.7. Principle component analysis of all evaluable symptom domains demonstrated one component explained &gt; 70 % of the cumulative variance for most symptoms. Concurrent validity was supported as nearly all Spearman correlation coefficients between Ped-PRO-CTCAE questions and relevant provider assessment questions were all ≥ 0.5.</div></div><div><h3>Conclusions</h3><div>Administration of the Swahili translated and adapted Ped-PRO-CTCAE in a representative Swahili speaking pediatric cancer patient population proved feasible and psychometric evaluation of survey results support the validity of the translation.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"3 ","pages":"Article 100014"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143136158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Quality criteria for paediatric oncology centres in Switzerland: A multistakeholder consensus finding process 瑞士儿科肿瘤中心的质量标准:多方利益相关者共识发现过程
Measurement and Evaluations in Cancer Care Pub Date : 2025-12-01 Epub Date: 2024-12-09 DOI: 10.1016/j.ymecc.2024.100011
Sarah P. Schladerer , Maria Otth , Katrin Scheinemann
{"title":"Quality criteria for paediatric oncology centres in Switzerland: A multistakeholder consensus finding process","authors":"Sarah P. Schladerer ,&nbsp;Maria Otth ,&nbsp;Katrin Scheinemann","doi":"10.1016/j.ymecc.2024.100011","DOIUrl":"10.1016/j.ymecc.2024.100011","url":null,"abstract":"<div><h3>Introduction</h3><div>Quality criteria aim to standardise and optimise the care provided to patients. Quality criteria for paediatric oncology centres exist in several countries but are missing for Switzerland. Therefore, we aimed to define quality criteria for paediatric oncology centres in Switzerland.</div></div><div><h3>Methods</h3><div>We conducted a three-round modified online Delphi process with 65 national stakeholders to reach a consensus on quality criteria retrieved from international sources. We asked stakeholders to decide on the relevance of categories of quality criteria (round 1), to rate (round 2) and re-rate (round 3) quality criteria regarding their relevance on a 5-point Likert scale, and to agree on a final list of quality criteria (round 3).</div></div><div><h3>Results</h3><div>Twenty-nine stakeholders (response rate (RR) 45 %) participated in round 1, 23 (RR 35 %) in round 2, and 24 (RR 37 %) in round 3. In round 1, ≥ 50 % of stakeholders agreed that the six categories of facilities, multidisciplinary team and other experts, supportive care, treatment, long-term care, and volume and numbers are relevant in round 1. In round 2, ≥ 75 % of stakeholders rated 61 quality criteria as “relevant” or “very relevant”. In round 3, ≥ 75 % of stakeholders rated one additional quality criterion as “relevant” or “very relevant”, resulting in the agreement on a list of 62 relevant quality criteria.</div></div><div><h3>Conclusion</h3><div>Implementing these quality criteria can improve transparency, comparability, and, therefore, the quality of care in treatment centres. These quality criteria can be piloted nationally but need to be regularly reviewed. They may also serve as a reference for other countries.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"3 ","pages":"Article 100011"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143136155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Clinical data-driven modeling of disease-specific survival in lung cancer: Insights from the national lung screening trial dataset 肺癌疾病特异性生存的临床数据驱动建模:来自国家肺筛查试验数据集的见解
Measurement and Evaluations in Cancer Care Pub Date : 2025-12-01 Epub Date: 2025-11-25 DOI: 10.1016/j.ymecc.2025.100023
Maria Amaro , Joana Vale Sousa , Margarida Gouveia , Hélder P. Oliveira , Tania Pereira
{"title":"Clinical data-driven modeling of disease-specific survival in lung cancer: Insights from the national lung screening trial dataset","authors":"Maria Amaro ,&nbsp;Joana Vale Sousa ,&nbsp;Margarida Gouveia ,&nbsp;Hélder P. Oliveira ,&nbsp;Tania Pereira","doi":"10.1016/j.ymecc.2025.100023","DOIUrl":"10.1016/j.ymecc.2025.100023","url":null,"abstract":"<div><h3>Purpose</h3><div>Lung cancer remains the leading cause of cancer-related mortality worldwide, highlighting the importance of accurate disease-specific survival (DSS) prediction to support clinical decision making. DSS, which isolates outcomes directly attributable to lung cancer, provides a precise and clinically relevant endpoint for prognostic evaluation and treatment planning.</div></div><div><h3>Methods</h3><div>In this study, we developed and evaluated a clinical modeling framework for DSS prediction using data from the National Lung Screening Trial (NLST), incorporating detailed clinical information from 2058 patients. Clinical features were categorized into three temporal sets: pre-diagnosis, diagnosis-informed, and full clinical information, and subjected to rigorous preprocessing, including LASSO-based feature selection and Variance Inflation Factor filtering to reduce redundancy and multicollinearity. Machine learning models, including Random Forest, Extreme Gradient Boosting, Support Vector Machine, and Logistic Regression, were trained using these features and were evaluated for predictive performance.</div></div><div><h3>Results</h3><div>Models trained on full clinical information achieved high discriminative performance (AUC = 0.919), while diagnosis-informed models still demonstrated strong predictive capability (AUC = 0.873). Explainability analysis consistently identifies the TNM (tumor, node, metastasis) staging as the most predictive variable in all clinical models. Kaplan–Meier survival analysis further confirmed that clinical models effectively stratify patients into statistically distinct survival groups.</div></div><div><h3>Conclusions</h3><div>These findings highlight the dominant role of clinical data in lung cancer DSS prediction and demonstrate the potential of clinically grounded, interpretable models to inform personalized prognosis and treatment planning.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"3 ","pages":"Article 100023"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145692991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reliability, validity, and clinical use of the newly developed Research and Clinical Assessment Tool-Fatigue (ReACT-F) 新开发的研究和临床评估工具-疲劳(ReACT-F)的信度、效度和临床使用
Measurement and Evaluations in Cancer Care Pub Date : 2025-12-01 Epub Date: 2025-08-06 DOI: 10.1016/j.ymecc.2025.100019
Kristin Dickinson , Andrew Lim , Bunny Pozehl , Debra Lynch Kelly , Kevin Kupzyk
{"title":"Reliability, validity, and clinical use of the newly developed Research and Clinical Assessment Tool-Fatigue (ReACT-F)","authors":"Kristin Dickinson ,&nbsp;Andrew Lim ,&nbsp;Bunny Pozehl ,&nbsp;Debra Lynch Kelly ,&nbsp;Kevin Kupzyk","doi":"10.1016/j.ymecc.2025.100019","DOIUrl":"10.1016/j.ymecc.2025.100019","url":null,"abstract":"<div><h3>Background</h3><div>Cancer-related fatigue (CRF) remains one of the most common and debilitating symptoms reported by individuals with cancer. Successful management of CRF has been substantially hindered by the lack of efficient and comprehensive tools to assess its multidimensional nature in clinical settings. The Research and Clinical Assessment Tool-Fatigue (ReACT-F) was created to address this need. The purpose of the current study was to document the reliability, validity, and clinical use of our newly developed ReACT-F questionnaire for use in oncology clinical settings.</div></div><div><h3>Methods</h3><div>Adults receiving treatment for cancer were enrolled between February 2019 and August 2022. Two study visits were conducted, during which participants completed three self-report CRF questionnaires (MFSI-SF, MFI-20, and the ReACT-F). Reliability and validity were examined. The clinical use of the ReACT-F questionnaire was evaluated by clinicians using a Likert scale.</div></div><div><h3>Results</h3><div>The ReACT-F demonstrated acceptable internal consistency (.92 reliability coefficient) and test-retest (<em>r</em> = .60 −.67, <em>p</em> &lt; .001) reliability. The ReACT-F demonstrated acceptable validity when compared with the two well established and validated measures, with all correlations significant (p &lt; .001) and nearly all were at least moderate (r &gt; .50). In terms of clinical use, all clinicians rated the ReACT-F as valuable for assessment of CRF, and nearly all would use the tool in practice.</div></div><div><h3>Conclusions</h3><div>The ReACT-F is both a reliable and valid tool for assessment of multidimensional CRF in adults receiving cancer-related treatment. Data from the ReACT-F questionnaire may guide clinicians to focused assessments and effective personalized management strategies targeting specific fatigue dimensions.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"3 ","pages":"Article 100019"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144893106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) for health professionals in cancer care settings 性态度和信念量表(SABS-C8)的心理测量特性,适用于癌症护理环境中的医护人员
Measurement and Evaluations in Cancer Care Pub Date : 2024-12-01 Epub Date: 2024-05-10 DOI: 10.1016/j.ymecc.2024.100006
Sharon Linsey Bingham , Cherith Jane Semple , Sean Richard O’Connor , Lynn Dunwoody
{"title":"Psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) for health professionals in cancer care settings","authors":"Sharon Linsey Bingham ,&nbsp;Cherith Jane Semple ,&nbsp;Sean Richard O’Connor ,&nbsp;Lynn Dunwoody","doi":"10.1016/j.ymecc.2024.100006","DOIUrl":"10.1016/j.ymecc.2024.100006","url":null,"abstract":"<div><h3>Background</h3><p>Cancer and associated treatment can have a significant and detrimental impact on a person’s sexual wellbeing. Sexual attitudes and beliefs of healthcare professionals (HPs) working in cancer care settings can affect the support provided to help patients and partners to manage these concerns. This study evaluated psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) adapted for use in cancer care settings.</p></div><div><h3>Methods</h3><p>Adaptation of original SABS was informed by evidence reviews and an expert panel of researchers. The 12-item SABS was completed by HPs working in cancer care (n = 391) prior to completing an eLearning intervention aimed at promoting provision of sexual support to patients and partners. Exploratory (EFA) and confirmatory factor analysis (CFA) were conducted, reliability and validity of the scale were also explored.</p></div><div><h3>Results</h3><p>EFA showed potential for a three-factor model, with CFA indicating a better model fit (CMIN/DF &lt; 3; GFI &gt; .9; CFI &gt; .9 and &lt; RMSEA &lt; .08) for 8 of the SABS-C items, lending support for a unidimensional model, with moderately acceptable reliability of.69. The 8-item scale was also able to discriminate between known groups with lower attitudinal barriers to providing sexual support apparent in HPs with over 12 years of experience, in nurses compared with other HPs, and in those with previous sexual wellbeing education (<em>p</em> &lt; 0.001).</p></div><div><h3>Conclusion</h3><p>The SABS-C8 is a brief scale with acceptable reliability that can be used to assess attitudinal barriers to sexual support and help to identify HPs learning needs around providing sexual support in cancer care.</p></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"2 ","pages":"Article 100006"},"PeriodicalIF":0.0,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949877524000017/pdfft?md5=3780c69cb28cddc0b29b4a27f862d3fb&pid=1-s2.0-S2949877524000017-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141052182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient reported experience measures to assess psychosocial cancer care: A rapid review of current instruments 用于评估社会心理癌症护理的患者报告体验测量方法:对现有工具的快速审查
Measurement and Evaluations in Cancer Care Pub Date : 2024-12-01 Epub Date: 2024-08-24 DOI: 10.1016/j.ymecc.2024.100007
Zoe Clothier , Jo Armes , Agnieszka Kehinde , Victoria Mumford , Kate Upshon , Clare Williamson , Rachel MacAthur , Rachel Stevenson , Sophie Otter , May Teoh , Jenny Harris
{"title":"Patient reported experience measures to assess psychosocial cancer care: A rapid review of current instruments","authors":"Zoe Clothier ,&nbsp;Jo Armes ,&nbsp;Agnieszka Kehinde ,&nbsp;Victoria Mumford ,&nbsp;Kate Upshon ,&nbsp;Clare Williamson ,&nbsp;Rachel MacAthur ,&nbsp;Rachel Stevenson ,&nbsp;Sophie Otter ,&nbsp;May Teoh ,&nbsp;Jenny Harris","doi":"10.1016/j.ymecc.2024.100007","DOIUrl":"10.1016/j.ymecc.2024.100007","url":null,"abstract":"<div><h3>Purpose</h3><div>Patient Reported Experience Measures (PREMs) are instruments that capture patients’ perspectives of health care services and offer insight into the perceived quality of care and identify areas for improvement. This rapid review aimed to identify and evaluate existing PREMs that explore patients’ experiences of psychosocial cancer care, describe their conceptual content and assess the quality of their development.</div></div><div><h3>Methods</h3><div>Databases (MEDLINE and PsycINFO) were searched from January 1995 to January 2023. Eligible papers included PREMs developed or tested in adult cancer populations. The psychosocial content of concepts assessed by PREMs were mapped and the quality of their development assessed using the Quality Assessment Checklist (QAC).</div></div><div><h3>Results</h3><div>Twenty-three articles describing the development of 20 PREMs were identified. The content of these PREMs varied in terms of psychosocial domain coverage and the rigour of the development process. Quality assessment indicated that whilst instruments were well-developed, psychometric testing at this stage was less thoroughly reported on.</div></div><div><h3>Conclusion</h3><div>Several patient-reported instruments are available to measure patients’ psychosocial cancer care experiences; however, these differ in content and thoroughness. The choice of instrument used by researchers will therefore depend on research or clinical objectives and on striking a balance between comprehension and length. Limitations of this review are discussed.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"2 ","pages":"Article 100007"},"PeriodicalIF":0.0,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142359036","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Development of a structured questionnaire to assess cancer patients’ individual needs in general practice. A qualitative study 开发结构化问卷,以评估全科医生对癌症患者的个人需求。定性研究
Measurement and Evaluations in Cancer Care Pub Date : 2024-12-01 Epub Date: 2023-11-30 DOI: 10.1016/j.ymecc.2023.100004
Frederik Rosenbæk , Sanne Rasmussen , Jens Søndergaard , Mette Terp Høybye , Dorte Gilså Hansen
{"title":"Development of a structured questionnaire to assess cancer patients’ individual needs in general practice. A qualitative study","authors":"Frederik Rosenbæk ,&nbsp;Sanne Rasmussen ,&nbsp;Jens Søndergaard ,&nbsp;Mette Terp Høybye ,&nbsp;Dorte Gilså Hansen","doi":"10.1016/j.ymecc.2023.100004","DOIUrl":"https://doi.org/10.1016/j.ymecc.2023.100004","url":null,"abstract":"<div><h3>Background</h3><p>Present studies report a vast number of unmet rehabilitation needs for cancer patients and a lack of professional focus irrespective of the type of cancer, prognosis, treatment, and clinical setting. Therefore, interventions targeting individual needs assessments using patient-reported outcome measures are recommended.</p></div><div><h3>Aim</h3><p>This paper explores the perceived value of a primarily author-developed questionnaire that assesses the needs experienced by cancer patients and general practitioners in their interaction in general practice.</p></div><div><h3>Methods</h3><p>We conducted nine semi-structured qualitative interviews with nine general practitioners and nine cancer patients to evaluate their assessment of our 33-item questionnaire.</p></div><div><h3>Results</h3><p>The general practitioners and patients demonstrate similarities but differences in their perception of the questionnaire’s value. The general practitioners were anxious about the questionnaire's comprehensiveness, which could indicate to the patients that they should solve all their problems related to the aftermaths of their illness. This is why the alignment of expectations was essential to the general practitioners. The comprehensiveness was, however, also regarded as instructive to the general practitioners, given that they would get more knowledge about the patient’s conditions and problems. The patients saw the questionnaire as a helpful tool that could aid them in their illness, by targeting highly relevant areas that were not always addressed by their general practitioner. The comprehensiveness was thus regarded as helpful. They hoped the general practitioners would allocate enough time to go through all their needs, provided the general practitioners received the filled-in questionnaire before the consultations.</p></div><div><h3>Conclusion</h3><p>The GPs and patients favored the comprehensiveness of an author-developed structured questionnaire. Both groups agreed that it addressed all issues relevant to the patients during their illness. Although the GPs stressed that expectations should be aligned before introducing the questionnaire to the patients at consultations.</p></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"2 ","pages":"Article 100004"},"PeriodicalIF":0.0,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949877523000047/pdfft?md5=23a41eef7efedc82a23bf36d2648b8dd&pid=1-s2.0-S2949877523000047-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138581947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing validity through cognitive interviewing: A methodological example using the registered nursing forecasting nurse survey 通过认知访谈提高有效性:注册护士预测护士调查的方法学实例
Measurement and Evaluations in Cancer Care Pub Date : 2024-12-01 Epub Date: 2024-09-29 DOI: 10.1016/j.ymecc.2024.100008
Zhuming Bao , Jenny Harris , Verna Lavender , Anne Marie Rafferty , Jo Armes
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