Patient reported experience measures to assess psychosocial cancer care: A rapid review of current instruments

Zoe Clothier , Jo Armes , Agnieszka Kehinde , Victoria Mumford , Kate Upshon , Clare Williamson , Rachel MacAthur , Rachel Stevenson , Sophie Otter , May Teoh , Jenny Harris
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Abstract

Purpose

Patient Reported Experience Measures (PREMs) are instruments that capture patients’ perspectives of health care services and offer insight into the perceived quality of care and identify areas for improvement. This rapid review aimed to identify and evaluate existing PREMs that explore patients’ experiences of psychosocial cancer care, describe their conceptual content and assess the quality of their development.

Methods

Databases (MEDLINE and PsycINFO) were searched from January 1995 to January 2023. Eligible papers included PREMs developed or tested in adult cancer populations. The psychosocial content of concepts assessed by PREMs were mapped and the quality of their development assessed using the Quality Assessment Checklist (QAC).

Results

Twenty-three articles describing the development of 20 PREMs were identified. The content of these PREMs varied in terms of psychosocial domain coverage and the rigour of the development process. Quality assessment indicated that whilst instruments were well-developed, psychometric testing at this stage was less thoroughly reported on.

Conclusion

Several patient-reported instruments are available to measure patients’ psychosocial cancer care experiences; however, these differ in content and thoroughness. The choice of instrument used by researchers will therefore depend on research or clinical objectives and on striking a balance between comprehension and length. Limitations of this review are discussed.
用于评估社会心理癌症护理的患者报告体验测量方法:对现有工具的快速审查
目的 患者报告体验测量(Patient Reported Experience Measures,PREMs)是一种记录患者对医疗保健服务看法的工具,可帮助患者深入了解所感知的医疗保健质量并确定需要改进的方面。本快速综述旨在识别和评估现有的患者社会心理癌症护理经验报告量表(PREMs),描述其概念内容并评估其开发质量。符合条件的论文包括在成人癌症人群中开发或测试的 PREMs。对 PREMs 所评估概念的社会心理内容进行了映射,并使用质量评估核对表 (QAC) 对其开发质量进行了评估。这些 PREM 的内容在社会心理领域的覆盖面和开发过程的严谨性方面各不相同。质量评估表明,虽然工具开发得很好,但对这一阶段的心理测试报告得不太全面。结论目前有多种患者报告工具可用于测量患者的社会心理癌症护理体验;但是,这些工具的内容和全面性各不相同。因此,研究人员对工具的选择将取决于研究或临床目标,以及在理解力和篇幅之间取得平衡。本综述的局限性也在讨论之列。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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