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Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80044-2
BSc (Hons), RGN, DipDN Karen Cox (Cancer Research Campaign Nursing Research Fellow)
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引用次数: 0
Quality of life in survivors of bone marrow transplant 骨髓移植幸存者的生活质量
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80016-8
BSc, PhD, SRN, FRSH, CMS Susan Holmes (Professor of Nursing) , BA, PhD, CPsychol Adrian Coyle (Lecturer in Psychology) , MSc, RGN Evelyn Thomson
{"title":"Quality of life in survivors of bone marrow transplant","authors":"BSc, PhD, SRN, FRSH, CMS Susan Holmes (Professor of Nursing) ,&nbsp;BA, PhD, CPsychol Adrian Coyle (Lecturer in Psychology) ,&nbsp;MSc, RGN Evelyn Thomson","doi":"10.1016/S1364-9825(97)80016-8","DOIUrl":"10.1016/S1364-9825(97)80016-8","url":null,"abstract":"<div><p>Although prospects for long-term survival after bone marrow transplantation (BMT) have increased, little is known about the nature or quality of that survival. Concern over the quality of life (QL) of survivors thus becomes increasingly important. This study attempts to define the concept of QL in a small sample of BMT survivors, 1–3 years after transplant, and to identify the factors influencing the quality of survival.</p><p>Interpretative phenomenological analysis of in-depth interviews indicated that survivors, despite lingering side-effects, viewed their QL as the same or better than before BMT, thus challenging the long-standing impression that they experience a less than optimal QL. However, whilst many similarities between survivors have been identified, and the global impression was that they were ‘doing well’, this must not overshadow the fact that one survivor described a life of ‘misery … disability … aloneness … and steady decline’. There is little doubt that carers must remain sensitive to individual differences and promote collaboration within the healthcare team to meet the often complex needs of BMT survivors.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 3","pages":"Pages 106-116"},"PeriodicalIF":0.0,"publicationDate":"1997-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80016-8","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74381268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 13
Quality of life in the year following treatment for head and neck cancer: a study in progress 头颈癌治疗后一年的生活质量:一项正在进行的研究
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80142-3
BSc, MN, RGN Zoe Whale (Lecturer)
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引用次数: 0
Psycho-sexual care for patients with cancer and their partners: a service development 癌症患者及其伴侣的性心理护理:一项服务发展
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80100-9
MSc, RGN Si⩽an Dennison
{"title":"Psycho-sexual care for patients with cancer and their partners: a service development","authors":"MSc, RGN Si⩽an Dennison","doi":"10.1016/S1364-9825(97)80100-9","DOIUrl":"10.1016/S1364-9825(97)80100-9","url":null,"abstract":"<div><p>Sexuality is an important issue in cancer care. It is evident from the research literature that health care professionals still avoid discussing sexual issues with patients and their partners (<span>Jenkins 1988</span>, <span>Gamel et al 1993</span>). To identify the educational needs of health care professionals, a multi-disciplinary questionnaire was developed to assess the understanding and requirements within two health-care trusts. From the results, a pilot sexuality study day was developed which was based on the needs identified. The day included education about sexuality, the impact of cancer and its treatments, how to assess and discuss sexual concerns and the effects of crises on relationships. It also allowed open discussion about difficult or embarrassing situations, communication strategies and appropriate referral services. Evaluation of the day was positive with regard to the knowledge gained and implications for clinical practice. It is hoped that these study days can improve the awareness and understanding of health care professionals but it is only through ongoing education and support that the sexual health of patients with cancer and their partners can be truly integrated into whole-patient care.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 3","pages":"Pages 141-143"},"PeriodicalIF":0.0,"publicationDate":"1997-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80100-9","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91045265","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Quality of life in survivors of bone marrow transplant 骨髓移植幸存者的生活质量
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80030-2
BSc, RN, PGDE, PGDA Noel Scanlon (Lecturer Practitioner)
{"title":"Quality of life in survivors of bone marrow transplant","authors":"BSc, RN, PGDE, PGDA Noel Scanlon (Lecturer Practitioner)","doi":"10.1016/S1364-9825(97)80030-2","DOIUrl":"10.1016/S1364-9825(97)80030-2","url":null,"abstract":"","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 3","pages":"Page 117"},"PeriodicalIF":0.0,"publicationDate":"1997-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80030-2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73033136","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 8
Noticeboard 警告牌
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80170-8
{"title":"Noticeboard","authors":"","doi":"10.1016/S1364-9825(97)80170-8","DOIUrl":"https://doi.org/10.1016/S1364-9825(97)80170-8","url":null,"abstract":"","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 3","pages":"Pages 157-158"},"PeriodicalIF":0.0,"publicationDate":"1997-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80170-8","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134686520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Quality of life in survivors of bone marrow transplant 骨髓移植幸存者的生活质量
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80030-2
N. Scanlon
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引用次数: 0
Development of a shared care programme for children with cancer 制定癌症儿童共同护理方案
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80128-9
Nina Patel (Clinical Nurse Specialist) , Beth Sepion (Lecturer/Practitioner in Paediatric Oncology Nursing) , Jacqueline Williams (Macmillan Clinical Nurse Specialist)
{"title":"Development of a shared care programme for children with cancer","authors":"Nina Patel (Clinical Nurse Specialist) ,&nbsp;Beth Sepion (Lecturer/Practitioner in Paediatric Oncology Nursing) ,&nbsp;Jacqueline Williams (Macmillan Clinical Nurse Specialist)","doi":"10.1016/S1364-9825(97)80128-9","DOIUrl":"10.1016/S1364-9825(97)80128-9","url":null,"abstract":"<div><p>The management of cancer services for children and their families at one regional paediatric oncology centre has changed recently to involve the paediatric department of the child's local District General Hospital (DGH). This system has been named shared care. A philosophy of shared care has been identified whereby the concept of holistic care is promoted across health-care boundaries, moving away from the traditional medical model of care where the patient is delivered to the care system, to a holistic one, where the system is delivered to the patient. This paper discusses the development of such a practice within a regional paediatric oncology centre where 36 DGHs currently purchase oncology services. It focuses on the changes in practice and attitudes that were required by all the staff at the regional oncology centre and the dissemination of specialist skills and knowledge to the health-care teams participating in shared care. The transition period and ongoing changes in practice will be identified with recommendations for further developments required to meet the ever-changing needs of children with cancer and their families.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 3","pages":"Pages 147-150"},"PeriodicalIF":0.0,"publicationDate":"1997-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80128-9","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"117869458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 10
Use of action research to explore the experience of being a parent living in a regional paediatric oncology unit 运用行动研究探索作为家长在地区儿科肿瘤科生活的经验
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80058-2
BSc (Hons) Nursing, RGN, RSCN, PG(Dip) HPE Linda Shuttleworth (Lecturer/Practitioner in Paediatric Oncology)
{"title":"Use of action research to explore the experience of being a parent living in a regional paediatric oncology unit","authors":"BSc (Hons) Nursing, RGN, RSCN, PG(Dip) HPE Linda Shuttleworth (Lecturer/Practitioner in Paediatric Oncology)","doi":"10.1016/S1364-9825(97)80058-2","DOIUrl":"10.1016/S1364-9825(97)80058-2","url":null,"abstract":"<div><p>This study utilizes an action research approach to explore the experience of living in a paediatric oncology unit from the perspective of parents and nurses. The study involved interviewing 5 parents and 5 nurses and the use of questionnaires to obtain further information from 3 parents and 7 nurses.</p><p>The main themes emerging from the data are: (a) parents have a need to stay with their children, (b) negotiation of care between parents and nurses is a transparent process, and (c) the parents reported experiencing an overwhelming boredom on the unit and found their exclusion from the kitchen facilities frustrating and a threat to their responsibility as a parent. Implications of the study take the form of proposed changes in current practice and recommendations are made for further study.</p><p>This study was the focus of a self-development module at Masters level, rather than a dissertation. However, what the study lacked in research rigour was compensated for by the immense learning which took place for myself and colleagues on the paediatric oncology unit. The study provided an agenda for learning, change and, hopefully, improvements in care.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 3","pages":"Pages 119-125"},"PeriodicalIF":0.0,"publicationDate":"1997-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80058-2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86427474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Developing and delivering evidence-based cancer nursing 发展和提供循证癌症护理
Journal of Cancer Nursing Pub Date : 1997-09-01 DOI: 10.1016/S1364-9825(97)80002-8
Alison Richardson (Editor), Lorraine Robinson (Associate Editor)
{"title":"Developing and delivering evidence-based cancer nursing","authors":"Alison Richardson (Editor),&nbsp;Lorraine Robinson (Associate Editor)","doi":"10.1016/S1364-9825(97)80002-8","DOIUrl":"10.1016/S1364-9825(97)80002-8","url":null,"abstract":"","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 3","pages":"Page 105"},"PeriodicalIF":0.0,"publicationDate":"1997-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80002-8","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79820850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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