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Information needs of teenagers with cancer: developing a tool to explore the perceptions of patients and professionals 青少年癌症患者的信息需求:开发一种工具来探索患者和专业人士的看法
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80512-3
MSc, RGN, RSCN Louise Hooker (Lecturer Practitioner)
{"title":"Information needs of teenagers with cancer: developing a tool to explore the perceptions of patients and professionals","authors":"MSc, RGN, RSCN Louise Hooker (Lecturer Practitioner)","doi":"10.1016/S1364-9825(97)80512-3","DOIUrl":"10.1016/S1364-9825(97)80512-3","url":null,"abstract":"<div><p>People with cancer require information in order to fashion coping strategies appropriate to their personalities and circumstances. A cancer diagnosis during the years of adolescence poses particular challenges if developmental tasks are to be completed in addition to coping with diagnosis and treatment. For this exploratory pilot study, a card-sort instrument was developed to elicit the information priorities of teenagers with cancer and the beliefs of the professionals involved in their care. The teenagers' priorities were information about their diagnosis, prognosis and treatment. This was accurately perceived by the professionals. The professionals overestimated the importance of information regarding the impact of illness upon the teenagers' lifestyle, particularly concern for their appearance, and underrated their need for information about the future. The card-sort game developed for this study was positively evaluated, and enabled teenagers to consider their priorities and make their needs known. With further development, it has potential in research and clinical applications to allow professionals to meet teenagers' information needs more confidently and so support coping.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 4","pages":"Pages 160-168"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80512-3","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89129062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 17
Adolescents with cancer: is it the location or philosophy of care which matters? 青少年癌症患者:重要的是治疗地点还是治疗理念?
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80511-1
Faith Gibson (Senior Lecturer/Nurse Researcher)
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引用次数: 3
Oral care: ritualistic practice reconsidered within a framework of action research 口腔护理:在行动研究框架内重新考虑的仪式性实践
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80517-2
MSc (Cancer Nursing), RGN, RSCN, Cert Ed Faith Gibson (Senior Lecturer/Nurse Researcher) , RSCN, RGN Judy Horsford (Ward Sister) , BSc (Hons) Nursing Studies, NZ RN (comp), RSCN Wendy Nelson (Education Sister)
{"title":"Oral care: ritualistic practice reconsidered within a framework of action research","authors":"MSc (Cancer Nursing), RGN, RSCN, Cert Ed Faith Gibson (Senior Lecturer/Nurse Researcher) ,&nbsp;RSCN, RGN Judy Horsford (Ward Sister) ,&nbsp;BSc (Hons) Nursing Studies, NZ RN (comp), RSCN Wendy Nelson (Education Sister)","doi":"10.1016/S1364-9825(97)80517-2","DOIUrl":"10.1016/S1364-9825(97)80517-2","url":null,"abstract":"<div><p>Maintaining oral hygiene is an essential part of daily living and even in ‘healthy’ individuals this can be problematic (<span>Thurgood 1994</span>). There is an important role for the nurse in maintaining good oral hygiene, either directly by providing oral care or indirectly by providing advice and opportunities to provide self-care (<span>Torrance 1990</span>), thus contributing to the child's overall comfort.</p><p>The nurse has a pivotal role in deciding which form of oral care to provide, this includes which implement or cleansing agent to introduce and the frequency with which it is used. Performing indiscriminate oral care not only causes physiological problems but it may also have psychological ramifications for the child. Consequently, oral care procedures must be based on sound scientific evidence, and not on tradition, anecdote or subjective evaluation. Action research was chosen as the change strategy in which to examine oral care practice on a paediatric oncology unit, and the processes involved within this are described in this paper.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 4","pages":"Pages 183-190"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80517-2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75221720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 13
Comparison of cutaneous malignant melanoma in two European countries 两个欧洲国家皮肤恶性黑色素瘤的比较
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80521-4
H. Dryden, F. Whyte
{"title":"Comparison of cutaneous malignant melanoma in two European countries","authors":"H. Dryden, F. Whyte","doi":"10.1016/S1364-9825(97)80521-4","DOIUrl":"https://doi.org/10.1016/S1364-9825(97)80521-4","url":null,"abstract":"","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"33 1","pages":"208-214"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84576868","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comparison of cutaneous malignant melanoma in two European countries 两个欧洲国家皮肤恶性黑色素瘤的比较
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80521-4
BSc (Hons), RGN, RM Helen Dryden (Patient Adviser in Specialist Surgery) , MN (Cancer Nursing), RGN, RCNT, RNT, Dip N Fiona Whyte (Macmillan Lecturer in Cancer Nursing)
{"title":"Comparison of cutaneous malignant melanoma in two European countries","authors":"BSc (Hons), RGN, RM Helen Dryden (Patient Adviser in Specialist Surgery) ,&nbsp;MN (Cancer Nursing), RGN, RCNT, RNT, Dip N Fiona Whyte (Macmillan Lecturer in Cancer Nursing)","doi":"10.1016/S1364-9825(97)80521-4","DOIUrl":"https://doi.org/10.1016/S1364-9825(97)80521-4","url":null,"abstract":"<div><p>This paper presents a brief description of cutaneous malignant melanoma (CMM), including the relevant epidemiology before contrasting and comparing this particular cancer in Scotland and Norway. This is a cancer of increasing incidence worldwide, with over 92 000 cases reported in 1985, representing 1.2% of the total cancer burden (<span>Boyle et al 1995</span>). Although there have been advances in treatment with innovative approaches such as immunotherapy and gene therapy, metastatic melanoma remains largely incurable and accounts for 5000 deaths every year (<span>Jensen et al 1990</span>). The relevance of cancer epidemiology to the cancer nurse, with particular reference to this type of skin cancer, is also highlighted as an awareness of these issues can enable nurses to apply this knowledge to the main phases of their work in cancer prevention and care.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 4","pages":"Pages 208-214"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80521-4","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91683919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Personal reflection on a paediatric nurse's duty of care 对儿科护士护理职责的个人思考
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80519-6
I. Charles-Edwards
{"title":"Personal reflection on a paediatric nurse's duty of care","authors":"I. Charles-Edwards","doi":"10.1016/S1364-9825(97)80519-6","DOIUrl":"https://doi.org/10.1016/S1364-9825(97)80519-6","url":null,"abstract":"","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"35 1","pages":"197-199"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82203799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80514-7
BA Hons, RGN, RSCN Rachel Hollis (Paediatric Oncology In-Patients Services Manager)
{"title":"","authors":"BA Hons, RGN, RSCN Rachel Hollis (Paediatric Oncology In-Patients Services Manager)","doi":"10.1016/S1364-9825(97)80514-7","DOIUrl":"https://doi.org/10.1016/S1364-9825(97)80514-7","url":null,"abstract":"","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 4","pages":"Pages 169-170"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80514-7","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136549107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Information needs of teenagers with cancer: developing a tool to explore the perceptions of patients and professionals 青少年癌症患者的信息需求:开发一种工具来探索患者和专业人士的看法
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80513-5
BSc (Hons), RGN, RSCN, Dip.N Margaret Evans (Freelance Consultant and Writer)
{"title":"Information needs of teenagers with cancer: developing a tool to explore the perceptions of patients and professionals","authors":"BSc (Hons), RGN, RSCN, Dip.N Margaret Evans (Freelance Consultant and Writer)","doi":"10.1016/S1364-9825(97)80513-5","DOIUrl":"10.1016/S1364-9825(97)80513-5","url":null,"abstract":"","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 4","pages":"Page 169"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80513-5","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80021642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Personal reflection on a paediatric nurse's duty of care 对儿科护士护理职责的个人思考
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80519-6
Dip N, Dip Ed, MA, RSCN, RGN, RNT Imelda Charles-Edwards (Head of Paediatric Nursing and Child Health)
{"title":"Personal reflection on a paediatric nurse's duty of care","authors":"Dip N, Dip Ed, MA, RSCN, RGN, RNT Imelda Charles-Edwards (Head of Paediatric Nursing and Child Health)","doi":"10.1016/S1364-9825(97)80519-6","DOIUrl":"https://doi.org/10.1016/S1364-9825(97)80519-6","url":null,"abstract":"<div><p>Practice within the philosophy of Family Centred Care can give rise to an ethical dilemma for paediatric health-care professionals over our duty of care. On rare occasions, our duty to act in the child's interests may conflict with accepting parents' decisions. The ideology of Family Centred Care makes such disagreement with parents very problematic for professionals and, it is suggested, can lead to an abdication of the professional's responsibility towards the child. This dilemma surrounding a paediatric nurse's duty of care is explored from an ethical stance.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 4","pages":"Pages 197-199"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80519-6","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90016922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of conflict on the successful formation of nurse-parent relationships 冲突对奶妈关系成功形成的影响
Journal of Cancer Nursing Pub Date : 1997-12-01 DOI: 10.1016/S1364-9825(97)80518-4
BSc (Hons), RGN, RSCN Louise Soanes (Senior Lecturer)
{"title":"Effect of conflict on the successful formation of nurse-parent relationships","authors":"BSc (Hons), RGN, RSCN Louise Soanes (Senior Lecturer)","doi":"10.1016/S1364-9825(97)80518-4","DOIUrl":"10.1016/S1364-9825(97)80518-4","url":null,"abstract":"<div><p>The building of relationships and partnerships with parents during a bone marrow transplant (BMT) requires skills in communication from both parties involved, as well as the recognition of the empowerment, interpersonal and family system process of the family (Friedemann 1993). In this paper, a fictitious case study is used to examine the consequences of a disequilibrium in these factors and the effect that this has on nurse/parent relationships. In this case, the mother reversed the balance of power, empowered by 10 years exposure to health-care providers and her confidence in expressing her needs. However, it was her anger and aggression in expressing herself that resulted in conflict with the staff and prevented negotiation and partnership with nurses. Such conflict is still uncommon in paediatric BMT and thus, for many staff, a cycle of alienation, conflict, withdrawal and poor communication evolved. The complex issues involved in such a case are explored and suggestions as to how such a cycle can be avoided in the future are offered.</p></div>","PeriodicalId":100758,"journal":{"name":"Journal of Cancer Nursing","volume":"1 4","pages":"Pages 191-196"},"PeriodicalIF":0.0,"publicationDate":"1997-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/S1364-9825(97)80518-4","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79472315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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