{"title":"Perceived distress due to nasopharyngeal swab collection: Correspondence.","authors":"Pathum Sookaromdee, Viroj Wiwanitkit","doi":"10.1002/pne2.12124","DOIUrl":"10.1002/pne2.12124","url":null,"abstract":"","PeriodicalId":94166,"journal":{"name":"Paediatric & neonatal pain","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163226/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Special issue on “Children's and adolescents' rights to participate in their pain management”","authors":"Juan Bornman, Stefan Nilsson","doi":"10.1002/pne2.12116","DOIUrl":"https://doi.org/10.1002/pne2.12116","url":null,"abstract":"The dialogues between children and adolescents and their healthcare providers are essential in managing pain in accordance with the child's interests and wishes. It can, however, be challenging to ensure that pain management is in the child's best interest due to a myriad of reasons. One of these relates to the specific communicative challenges that exist in this population, that might arise because of the child's level of development, including receptive and expressive communication skills, the particular illness and treatment (e.g., tracheotomy), distress, and/or disabilities. It is therefore unsurprising that children and adolescents are regarded as vulnerable groups in pediatric healthcare. The importance of using person-centred care has been emphasized in healthcare to facilitate the voices of children and young people and as a way in which their views can be respected. The use of person-centred care promotes the child and adolescent's narratives and emphasizes the use of shared decision-making to be the primary source of pain management decisions.1 This approach is also in line with the United Nation's Convention on the Rights of the Child,2 and specifically with Article 24 that focusses on health. Other articles of this convention also apply. For example, Article 12 highlights respect for children's views and allows them the opportunity to give their opinions freely, specifically about issues that directly affect them. In addition, Article 13 emphasizes children's right to share their thoughts freely in terms of what they learn, think, and feel and that this can be done by talking, drawing, or writing. The nexus between these two articles and person-centred care is thus clear. Likewise, Article 17, which focusses on access to information from the Internet, radio, television, newspapers, books, etcetera, is equally relevant. Article 17 also urges adults (in this case healthcare providers) to ensure that the information provided to children is not harmful and that it is in a language format that all children can understand. Previous research has demonstrated that parent's assessments of pain symptoms in children and adolescents differ from the child's and adolescent's own assessment.3 Self-reports of the evaluation of pain management should be the first choice in pediatric healthcare. However, children's rights, as described above, are not always prioritized, and healthcare provider's own measurements often guide the decision-making around children and adolescents´ pain management.4 This means that it is necessary to develop and implement new strategies that optimize shared decision-making in pediatric healthcare. In an attempt to allow children and adolescents to take on a greater role in their own pain management, new tools and interventions are required to support acute and chronic pain measurement and treatment. This special issue includes five papers that showcase and expand knowledge about children's rights in pain management. Articles","PeriodicalId":94166,"journal":{"name":"Paediatric & neonatal pain","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135091750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Pain communication in children with autism spectrum disorder: A scoping review","authors":"Ensa Johnson, Karen van Zijl, Ariné Kuyler","doi":"10.1002/pne2.12115","DOIUrl":"https://doi.org/10.1002/pne2.12115","url":null,"abstract":"Children with autism spectrum disorder (ASD) experience social interaction and communication challenges and often display repetitive, restricted patterns of behavior, activities, and interests. The concept of pain is regarded as one of the most complex human stressors due to its subjective and personal nature and the influences of multiple internal and external factors. Due to the complexity of this disorder, it remains concerning how children with ASD communicate their pain and how observers (i.e., parents, carers, and health care practitioners) respond to these children's pain communication. This scoping review aimed to identify how children with ASD communicate or express their pain. Ten studies met the inclusion criteria for further data extraction. Through reflexive thematic analysis, two main themes were identified: verbal and nonverbal responses used by children with ASD to communicate their pain that could influence pain assessment and management strategies. This review highlighted that children with ASD utilized various verbal and nonverbal methods to communicate their pain experiences and that these methods differed compared to children without disabilities. Furthermore, this review emphasizes the importance of holistic pain assessment strategies as well as additional pictorial support for children with ASD. This review recommends that future research should focus on understanding how the inclusion of different stakeholders in pain assessment for children with ASD, can contribute to holistic pain assessment.","PeriodicalId":94166,"journal":{"name":"Paediatric & neonatal pain","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135856867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mia A McLean, Lisa Nakajima, Cecil M Y Chau, Joanne Weinberg, Anne R Synnes, Steven P Miller, Ruth E Grunau
{"title":"Cortisol levels are related to neonatal pain exposure in children born very preterm at age 18 months in two independent cohorts.","authors":"Mia A McLean, Lisa Nakajima, Cecil M Y Chau, Joanne Weinberg, Anne R Synnes, Steven P Miller, Ruth E Grunau","doi":"10.1002/pne2.12112","DOIUrl":"10.1002/pne2.12112","url":null,"abstract":"<p><p>Exposure to pain-related stress from frequent invasive procedures in the neonatal intensive care unit (NICU) has been associated with altered physiological stress regulation, neurodevelopment, and behavior in children born very preterm (≤32 weeks gestation). Previously, in a cohort born 2003-2006 (Cohort 1), we found that, at 18 months corrected age (CA), children born extremely low gestational age (ELGA; 24-28 weeks) and very low gestational age (VLGA; 29-32 weeks), had higher pre-test cortisol levels and a different pattern of cortisol output across a developmental assessment involving cognitive challenge compared to children born full-term (FT; 39-41 weeks). Also, greater neonatal pain-related stress exposure among the preterm children was related to higher pre-test cortisol levels. Given the adverse long-term effects of neonatal pain in preterm infants and the ensuing rise in clinical concerns to appropriately manage pain in the NICU in recent years, we aimed to examine whether our findings from Cohort 1 would still be evident in an independent cohort (Cohort 2) born 2006-2011 and recruited from the same tertiary NICU in Vancouver, Canada. We also compared the cortisol patterns, clinical and socio-demographic factors, and their interrelationships between the two cohorts. In Cohort 2, our findings using multi-level modeling support and extend our earlier findings in Cohort 1, demonstrating that children born ELGA display higher pre-test cortisol levels than FT. As well, greater cortisol output across assessment was related to more anxiety/depressive behaviors in children born VLGA. Importantly, children born ELGA were exposed to less neonatal pain/stress, mechanical ventilation, and morphine in Cohort 2 than Cohort 1. In both cohorts, however, cortisol levels and patterns were related to neonatal pain/stress and clinical factors (days on mechanical ventilation, overall morphine exposure). Despite less exposure to pain/stress and adverse clinical factors in Cohort 2 compared to Cohort 1, cortisol levels and patterns across cognitive challenge in preterm children at 18-month CA were consistent across the two independent cohorts. These findings highlight that, despite improvements to neonatal care, children born extremely preterm continue to display altered HPA axis activity, which is associated with their poorer neurodevelopmental and behavioral outcomes.</p>","PeriodicalId":94166,"journal":{"name":"Paediatric & neonatal pain","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/b6/bb/PNE2-5-86.PMC10514780.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41165619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sharon Bateman, Line Caes, Christopher Eccleston, Melanie Noel, Abbie Jordan
{"title":"Co-occurring chronic pain and primary psychological disorders in adolescents: A scoping review.","authors":"Sharon Bateman, Line Caes, Christopher Eccleston, Melanie Noel, Abbie Jordan","doi":"10.1002/pne2.12107","DOIUrl":"10.1002/pne2.12107","url":null,"abstract":"<p><p>Long-term health conditions, whether mental or physical, often co-occur in adolescents. For instance, adolescents with chronic pain may experience co-occurring primary psychological disorders. In this scoping review, we determine the influence of co-occurring chronic pain and primary psychological disorders on adolescents' functioning. A systematic search of six databases was conducted to identify articles if they were: (1) peer-reviewed; (2) reported original findings; (3) included participants aged 11-19 years, who experienced chronic pain (i.e., pain lasting 3 months or more) and had a co-occurring diagnosis of a primary psychological disorder; and (4) assessed functioning. Searches returned 9864 articles after the removal of duplicates. A two-phase abstract and full-text screening process identified two eligible articles which compared emotional functioning (<i>n</i> = 1) and social functioning (<i>n</i> = 2) between groups of adolescents with co-occurring chronic pain and primary psychological disorders with adolescents only reporting chronic pain. Overall findings revealed no differences in social functioning, but adolescents with co-occurring chronic pain and a primary psychological disorder (depression and anxiety) reported worse emotional functioning compared with adolescents with chronic pain alone. This review confirms the limited research on the co-occurrence of primary psychological disorders and chronic pain in adolescents by only identifying two eligible articles exploring the co-occurrence of chronic pain with depression, anxiety, and/or attentional disorders.</p>","PeriodicalId":94166,"journal":{"name":"Paediatric & neonatal pain","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-05-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10514777/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41180156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gitte Würtz, Christina Schmidt, Claus Sixtus Jensen, Grete Teilman, Hanne Konradsen
{"title":"Pediatric pain knowledge and attitudes among health care professionals-A National Danish Survey.","authors":"Gitte Würtz, Christina Schmidt, Claus Sixtus Jensen, Grete Teilman, Hanne Konradsen","doi":"10.1002/pne2.12104","DOIUrl":"10.1002/pne2.12104","url":null,"abstract":"<p><strong>Aim: </strong>To explore and compare Danish health-care professionals' attitudes and knowledge towards pain management of children.</p><p><strong>Methods: </strong>The cross-sectional study was carried out using the Pediatric Pain Knowledge and Attitudes Questionnaire. The questionnaire was distributed to all health care professionals caring for children in three hospital settings, including nurses and physicians in departments of pediatric, emergency, and anesthesia and medical laboratory technologists.</p><p><strong>Results: </strong>The study was conducted in 2020 and 765 health care professionals participated. Within the six main categories included in the questionnaire, there were significant differences between nurses and physicians in three subcategories: view on the care of children in pain, using drugs to relieve pain, and the four mandatories. Comparing nurses with medical laboratory technicians, there were significant differences in the subcategory \"view on the care of children in pain.\" Comparing types of clinical departments, there were significant differences in the subcategories' view on the care of children in pain, using drugs to relieve pain, and the four mandatories. Overall, we found that the participating health professionals did not have a uniform understanding of pain management and therefore might treat children differently.</p><p><strong>Conclusion: </strong>The present study highlights the need to align health care professionals' knowledge regarding pain assessment and management of children, as well as the need to develop and test interventions that support the use of knowledge in practice.</p>","PeriodicalId":94166,"journal":{"name":"Paediatric & neonatal pain","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10514779/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41159177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Seth W Gregory, Andrea J Aul, Tara M Lodermeier, Jennifer L Rodemeyer, Amy L Weaver, Brian A Lynch
{"title":"The certified child life specialist: A novel resource in the pediatric primary care clinic for managing children's pain during routine immunizations.","authors":"Seth W Gregory, Andrea J Aul, Tara M Lodermeier, Jennifer L Rodemeyer, Amy L Weaver, Brian A Lynch","doi":"10.1002/pne2.12101","DOIUrl":"10.1002/pne2.12101","url":null,"abstract":"<p><p>This study evaluated the effect of the Certified Child Life Specialist (CCLS) on pediatric pain and pain management during routine immunization administration in the pediatric primary care clinic. Children 4-12 years of age (<i>n</i> = 125) presenting for a well child physical examination at a rural primary care clinic were selected to receive standard nursing care or standard nursing care plus CCLS support during routine immunization administration. Patient reported pain was measured using the Faces Pain Scale-Revised (FPS-R), and patient behavioral responses were measured during immunization administration using the Children's Emotional Manifestation Scale (CEMS). The performance of psychosocial interventions and administration of topical pain-relieving interventions were measured between both groups. CCLS support was associated with fewer negative emotional behaviors during immunization administration among 7- to 12-year-old children and a significantly higher provision of psychosocial interventions and topical pain-relieving interventions among all ages. This study demonstrates that the presence of a CCLS can increase the provision of psychosocial and pain-relieving interventions and reduce distress during immunization administration in a busy pediatric primary care clinic.</p>","PeriodicalId":94166,"journal":{"name":"Paediatric & neonatal pain","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/0d/ec/PNE2-5-66.PMC10514778.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41175176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}