Ricardo J Loor-Torres, Maria B Mateo Chavez, Kasey Boehmer, Laura Suarez Pardo, Heidi M Connolly, Alexander C Egbe, Kelli Passalacqua, Angela M Kosec, Luke J Burchill
{"title":"Self-management interventions to improve health outcomes in youth living with congenital heart disease: A Systematic Review and Narrative Synthesis.","authors":"Ricardo J Loor-Torres, Maria B Mateo Chavez, Kasey Boehmer, Laura Suarez Pardo, Heidi M Connolly, Alexander C Egbe, Kelli Passalacqua, Angela M Kosec, Luke J Burchill","doi":"10.1093/eurjcn/zvaf129","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf129","url":null,"abstract":"<p><strong>Aims: </strong>Congenital heart disease (CHD) presents lifelong challenges that require effective self-management skills, particularly for youth transitioning to adulthood. This systematic review evaluates the impact of self-management interventions, grounded in self-efficacy, on both health and patient-reported outcomes in youths with CHD.</p><p><strong>Methods and results: </strong>Adhering to PRISMA guidelines, we conducted a systematic review and registered the protocol in PROSPERO. We included interventional studies targeting youth aged 15-24 years with CHD that employed self-management interventions based on self-efficacy. Comprehensive searches were performed in Ovid MEDLINE, Ovid EMBASE, CINAHL, the Cochrane Central Register of Controlled Trials, the Cochrane Database of Systematic Reviews, and Scopus from January 1973 to March 2024, with an update to include studies published until December 2024. Two reviewers independently screened titles, abstracts, and full texts, resolving disagreements by consensus. Data extraction followed TIDieR guidelines, and risk of bias was assessed using the Cochrane ROBINS-I and RoB 2 tools. Out of 54 potential studies, 4 met the eligibility criteria, representing 150 patients aged 16-19 years. The studies reported improvements in condition-related knowledge, self-management skills, and social support, although data on clinical health outcomes were limited. A narrative synthesis of the selected interventions was performed.</p><p><strong>Conclusion: </strong>Self-management interventions using self-efficacy frameworks show promise for improving patient-reported outcomes among youth with CHD. However, there is a scarcity of data on their impact on health outcomes. Further research is needed to develop and implement interventions tailored to this population, potentially improving both self-management and clinical outcomes.</p><p><strong>Registration: </strong>CRD42024499008.</p>","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144556203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Expanding the reach of psychological care: reflections on iCBT in cardiovascular populations.","authors":"Peter Johansson","doi":"10.1093/eurjcn/zvaf095","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf095","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144556202","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Correction to: The importance of respectful language to enhance care. A statement of the Association of Cardiovascular Nurses & Allied Professions (ACNAP) of the ESC, the ESC Patient Forum and the ESC Advocacy Committee.","authors":"","doi":"10.1093/eurjcn/zvaf110","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf110","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144546636","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The promise and potential pitfalls of artificial intelligence in risk prediction models.","authors":"Patricia M Davidson, Peter Brown","doi":"10.1093/eurjcn/zvaf117","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf117","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The implantable cardioverter-defibrillator: unseen but should not be forgotten.","authors":"Karen Smyth, Catherine Gavin","doi":"10.1093/eurjcn/zvaf111","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf111","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Conjoint Trajectories of Anxiety and Depression in Patients with Heart Failure and Their Caregivers within Three Months Post-Discharge: Exploring Their Interconnections with Dyadic Burdens Using Network Analysis.","authors":"Bowen Wan, Yaqi Wang, Qingyun Lv, Sisi Cheng, Yujun Wang, Jingwen Liu, Yuan He, Hairong Chang, Xueying Xu, Xia Chen, Li Fu, Xiaoying Zang, Xiaonan Zhang","doi":"10.1093/eurjcn/zvaf126","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf126","url":null,"abstract":"<p><strong>Aims: </strong>To reveal the multi-trajectory of anxiety and depression in patients with HF(heart failure) and their caregivers within three months post-discharge and to illustrate the interconnections among these trajectories and dyadic burden components.</p><p><strong>Methods and results: </strong>We recruited 248 pairs of patients with HF and caregivers from four tertiary hospitals in Tianjin, China. Data were collected at baseline, two weeks, four weeks, and three months post-discharge. Group-Based Trajectory Modeling (GBTM) was used to identify the trajectories, while network analysis was used to explore interconnections among these trajectories and dyadic burdens components. Expected Influence (EI) was utilized to identify core nodes within the network. Three co-joint trajectories were identified: mild disorder (27.4%), moderate disorder (58.9%), and severe disorder (13.7%), with significant demographic differences noted among groups. The five most core nodes in the network were personal burden (EI=1.19), role burden (EI=1.07), dyspnea when lying down (EI=0.83), daytime dyspnea (EI=0.38), and difficulty sleeping (EI=0.36). The nodes most strongly associated with anxiety and depression trajectories included chest pain, fatigue, and dizziness. Sensitivity analysis affirmed the findings' robustness.</p><p><strong>Conclusion: </strong>Anxiety and depression co-joint trajectories among patients with HF and caregivers showed heterogeneity, with core constructions identified for future intervention studies to reduce dyadic burdens and improve the adverse development of anxiety and depression.</p><p><strong>Registration: </strong>ChiTR ChiCTR2400088241.</p>","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Correction to: Frailty and nutrition in older adults with ACS: advancing risk stratification and care-a commentary.","authors":"","doi":"10.1093/eurjcn/zvaf101","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf101","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144487559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Advocacy Spotlight Series : Jennifer Crow.","authors":"Sara Tavares, Jennifer Crow","doi":"10.1093/eurjcn/zvaf093","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf093","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-06-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144512854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Response to the letter to the editor-'Effectiveness of a home-based music-paced physical activity programme on exercise-related outcomes after cardiac rehabilitation: a randomized controlled trial' by B.N. Ata.","authors":"Sek Ying Chair, Ho Yu Cheng, Kai Chow Choi","doi":"10.1093/eurjcn/zvaf097","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf097","url":null,"abstract":"","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-06-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144512856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Interconnected Challenges in Caregiving: A Multidimensional Analysis of Stroke Survivors' Caregivers During the Hospital-to-Home Transition.","authors":"Mariachiara Figura, Cristiana Rago, Mayra Veronese, Felice Curcio, Michele Virgolesi, Ercole Vellone, Rosaria Alvaro, Gianluca Pucciarelli","doi":"10.1093/eurjcn/zvaf114","DOIUrl":"https://doi.org/10.1093/eurjcn/zvaf114","url":null,"abstract":"<p><strong>Aim: </strong>Stroke survivors face significant challenges during their transition from hospital to home, impacting both their own well-being and that of their caregivers. Informal caregivers, often family members, assume substantial caregiving roles without professional training, leading to emotional strain and caregiver burden. Understanding the experiences of caregivers during this critical transitional period is essential for developing targeted interventions that alleviate burden and improve caregiving outcomes. This study aims to provide a comprehensive, multidimensional understanding of SS caregivers' experiences during the transitional care phase, using Automatic Analysis of Textual Data to uncover complex relationships and hidden patterns in caregivers' narratives.</p><p><strong>Methods and results: </strong>A qualitative design was employed, utilizing semi-structured interviews with 18 SS caregivers. Data were analyzed using Automatic Analysis of Textual Data, applying Exploratory Multidimensional Data Analysis to identify key themes and interconnections within caregivers' experiences.Findings revealed five central themes: the role of social support, the need for practical support, pre-discharge preparation, practical daily challenges, and emotional strain. Social support and practical assistance emerged as crucial factors in reducing emotional burden. Caregivers emphasized the importance of pre-discharge training and clear instructions to navigate the transition. The analysis revealed the interdependence between practical and emotional caregiving demands, highlighting the need for integrated, holistic support systems.</p><p><strong>Conclusions: </strong>This study underscores the complex, multidimensional nature of caregiving during the transition from hospital to home. Results suggest that effective caregiving interventions must address both practical and emotional aspects, integrating preparation, social support, and practical assistance to enhance caregiver resilience and reduce burden.</p>","PeriodicalId":93997,"journal":{"name":"European journal of cardiovascular nursing","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144510052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}