Zubina Khan, Majumi M Noohu, Sarah Parveen, Maria Usmani, Fayaz Khan, Mashael Ghazi Alsobhi, Md Dilshad Manzar, Chhavi Arora Sehgal
{"title":"Effect of Mirror Therapy on Upper Limb Function in Children and Adolescents with Hemiplegic Cerebral Palsy: A Systematic Review and Meta-Analysis.","authors":"Zubina Khan, Majumi M Noohu, Sarah Parveen, Maria Usmani, Fayaz Khan, Mashael Ghazi Alsobhi, Md Dilshad Manzar, Chhavi Arora Sehgal","doi":"10.1080/17518423.2024.2349676","DOIUrl":"10.1080/17518423.2024.2349676","url":null,"abstract":"<p><strong>Background: </strong>This review aimed to explore the effect of mirror therapy (MT) on upper limb function in children and adolescents with hemiplegic cerebral palsy (HCP).</p><p><strong>Methods: </strong>MEDLINE, CENTRAL, Scopus, PEDro, and Web of Science were systematically searched. PEDro scale was used for the quality assessment of included trials. Risk of Bias assessment was done using Cochrane Risk-of-bias tool version 2. Meta-analysis was performed on four of the seven studies included.</p><p><strong>Results & conclusion: </strong>The majority of the trials included in this review found MT efficacious in improving motor function in HCP. Quantitative analysis of the included trials using QUEST scores for evaluation of quality of upper extremity function revealed positive but non-significant difference between the groups (MD = -0.12; 95% CI = -2.57,2.33; Z = 0.09, <i>p</i> = .92). Pooled analysis of the included trials using BBT, however, favored control (MD = 4.98; 95% CI = 2.32,7.63; Z = 3.67, <i>p</i> = .0002).</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"106-115"},"PeriodicalIF":1.7,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140873283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ro Julia Robotham, Michelle Barner Bærentzen, Frederik Lehman Dornonville de la Cour
{"title":"Comparing Self-Report Fatigue Assessment Tools for Adults with Cerebral Palsy in a Danish Context.","authors":"Ro Julia Robotham, Michelle Barner Bærentzen, Frederik Lehman Dornonville de la Cour","doi":"10.1080/17518423.2024.2347989","DOIUrl":"10.1080/17518423.2024.2347989","url":null,"abstract":"<p><strong>Purpose: </strong>Many youth and adults with Cerebral Palsy (CP) experience high levels of fatigue. This study aimed to compare three fatigue self-report questionnaires to guide clinicians.</p><p><strong>Method: </strong>Thirty youth and adults (age range 17-64) with CP were assessed with Danish versions of the Fatigue Impact and Severity Self-Assessment questionnaire, the Modified Mental Fatigue Scale, and the Multidimensional Fatigue Inventory. Psychometric properties were investigated. Rank order and classification models were compared across questionnaires.</p><p><strong>Results: </strong>The Reduced Motivation and Physical Fatigue subscales of the Multidimensional Fatigue Inventory showed inadequate internal consistency. Participants were frequently ranked differently with the questionnaires. There were issues related to the conceptualization of physical fatigue.</p><p><strong>Conclusion: </strong>The choice of assessment tool should be based on assessment purpose as the questionnaires assess different aspects of fatigue severity, impact, and management. Also, test selection can have important implications on the conclusions that are made about fatigue type and severity.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"34-43"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140868877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Cognitive Functioning and Assessment in Adults with Cerebral Palsy: A Scoping Review.","authors":"Katrine Sand, Randi Starrfelt, Ro J Robotham","doi":"10.1080/17518423.2024.2347991","DOIUrl":"10.1080/17518423.2024.2347991","url":null,"abstract":"<p><p>In this scoping review, we summarize the current knowledge of cognitive functioning in adults with cerebral palsy (CP), and identify the neuropsychological tests typically used in this population. 39 studies from the period January 1990 - August 2023 were included in the review, and they differ widely in their aims and approach to studying cognition. Very few studies have cognitive assessment as their core aim and use a neuropsychological test battery. The included studies show great variability in reported intelligence and cognitive functioning in adults with CP, and cognitive deficits have been reported in all cognitive domains. Most of the studies suffer from methodological limitations, and there is ample room for improvement within the field. We conclude by suggesting a number of recommendations that may contribute to increasing our understanding of cognitive impairments in adults with CP.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"57-67"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140862130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jenefer Sargent, Tom Griffiths, Michael T Clarke, Kim Bates, Katrina Macleod, John Swettenham
{"title":"The Functional Vision for Communication Questionnaire (FVC-Q): Exploring Parental Report of Non-Speaking Children's Fixation Skills Using a Structured History-Taking Approach.","authors":"Jenefer Sargent, Tom Griffiths, Michael T Clarke, Kim Bates, Katrina Macleod, John Swettenham","doi":"10.1080/17518423.2024.2346254","DOIUrl":"10.1080/17518423.2024.2346254","url":null,"abstract":"<p><p>This paper explores whether a structured history-taking tool yields useful descriptions of children's looking skills. Parents of 32 children referred to a specialist communication clinic reported their child's looking skills using the Functional Vision for Communication Questionnaire (FVC-Q), providing descriptions of single object fixation, fixation shifts between objects and fixation shifts from object to person. Descriptions were compared with clinical assessment. 24/32 children were reported to have some limitation in fixation. Limitation was subsequently seen in 30/32 children. Parental report and assessment agreed fully in 23/32 (72%). The largest area of discrepancy was object-person fixation shifts, with five children not observed to show this behavior despite its being reported. Findings indicate a structured questionnaire yields description of fixations, which correspond well with clinical assessment. Descriptions supported discussion between parents and clinicians. It is proposed that the FVC-Q is a valuable tool in supporting clinicians in eliciting information about fixation skills.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"27-33"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140857617","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Effect of Caregiver-Implemented Training on Augmentative Alternative Communication Use by Individuals with Rett Syndrome: Remote Coaching via Telehealth.","authors":"Jennifer J McComas, Rebecca Kolb, Shawn Girtler","doi":"10.1080/17518423.2023.2301617","DOIUrl":"10.1080/17518423.2023.2301617","url":null,"abstract":"<p><p>Limited published literature exists demonstrating functional relations between idiosyncratic responses or augmentative alternative communication (AAC) and social reinforcement for individuals with Rett syndrome. In this study, six females with Rett syndrome ages 2-25 demonstrated requesting for preferred items using both idiosyncratic responses (e.g, looking, reaching) and AAC (e.g. single response microswitches). Researchers connected remotely via telehealth to coach caregivers to implement all sessions in home environments. Researchers individualized response prompt delays during AAC sessions (request/mand training) based on each participants' latency to respond during baseline. Implications for practice and directions for future research are discussed.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"436-449"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139111393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Relationship Between Solution-Focused Communication Skills and Perceived Social Support: A Descriptive Levels of Study of the Perceptions of Turkish Parents with of Children with Developmental Disabilities.","authors":"Demet Gözaçan Karabulut, Duygu Ayar, Fatma Karasu","doi":"10.1080/17518423.2023.2301612","DOIUrl":"10.1080/17518423.2023.2301612","url":null,"abstract":"<p><strong>Purpose: </strong>This descriptive, correlational study examined the relationship between solution-focused communication skills and perceived level of social support for parents of children with developmental disabilities.</p><p><strong>Method: </strong>One hundred and sixty one parents of children with developmental disabilities completed a researcher developed personal information form, the Solution Focality in Communication Scale, and the Revised Parental Social Support Scale. Data were analyzed using ANOVA, in independent groups, t tests, and correlation tests.</p><p><strong>Results: </strong>Findings included a positive correlation between the Solution Focality in Communication Scale and the perceived level of social support of the Revised Parental Social Support Scale and the perceived social support satisfaction level sub-dimensions (<i>p</i> < .001).</p><p><strong>Conclusion: </strong>This descriptive study found a correlation between the level of solution-focused communication skills reported by parents of children with developmental disabilities, and the parent's improved perceptions of social support. In addition, parents reported increased satisfaction with the social support they had received as their solution-focused communication skills improved.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"429-435"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139089726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Libby Crook, Jessica S Riccardi, Jennifer P Lundine, Angela Ciccia
{"title":"The Influence of the Family Functioning and Social Relationships on Child Participation After Traumatic Brain Injury.","authors":"Libby Crook, Jessica S Riccardi, Jennifer P Lundine, Angela Ciccia","doi":"10.1080/17518423.2024.2331446","DOIUrl":"10.1080/17518423.2024.2331446","url":null,"abstract":"<p><strong>Purpose: </strong>To describe the relationship amongst child and family characteristics (e.g. social relationships, family functioning) and child participation after traumatic brain injury (TBI) an average of 2.65 years post-TBI (SD = 2.12).</p><p><strong>Method: </strong>Cross-sectional, secondary analysis of data collected as part of a larger research project.</p><p><strong>Results: </strong><i>N</i> = 44 children with TBI. Analysis revealed statistically significant correlations between child participation, family functioning, and child characteristics.</p><p><strong>Conclusions: </strong>School-aged children with TBI might experience chronic participation restrictions, associated with challenges in family functioning. Professionals can support children with TBI and their families through follow-up services that include a focus on family-based interventions to better support long-term outcomes for this population.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"462-470"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140330438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Leona Wolters, William F White, Holly Ellerton, Suzanna Watson, Kate Psaila, Catherine Ford, Fergus Gracey
{"title":"An Evaluation of the Use of the Child and Adolescent Scale of Participation (CASP) to Measure Social Participation After Pediatric ABI in a Specialist Service in East Anglia.","authors":"Leona Wolters, William F White, Holly Ellerton, Suzanna Watson, Kate Psaila, Catherine Ford, Fergus Gracey","doi":"10.1080/17518423.2023.2301607","DOIUrl":"10.1080/17518423.2023.2301607","url":null,"abstract":"<p><p>Pediatric acquired brain injury (ABI) can lead to lifelong challenges restricting social participation, which is an important goal for rehabilitation due to associations with improved wellbeing. This evaluation considered the utility of the Child Adolescent Scale of Participation (CASP) in ABI rehabilitation services. The 20-item measure is rated on a Likert scale with reference to what the rater would expect of their child at that age, including \"not applicable\" (N/A). It showed high internal consistency (α = 0.954-0.968). Two-step cluster analysis indicated greater difficulties in children with lower participation, including more impairments of executive function and higher staff involvement. Between-group analysis indicated higher rates of N/A answers for younger children and those of ethnic minorities. Overall, the CASP is reliable and clinically useful on an individual level, helping identify people who may need prioritizing for neurorehabilitation; however, group-level analyses were more challenging due to high frequency of N/A responses.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"419-428"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139418836","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Shannon E Scratch, Kylie D Mallory, Hiba Al-Hakeem, Andrew Lovell, Kim Moody, Brendan Lam, Lindsay Brazill, Patricia Knapp, Andrea Hickling
{"title":"Move&Connect-Youth: A Virtual Group Intervention for Youth Experiencing Persisting Symptoms After Concussion.","authors":"Shannon E Scratch, Kylie D Mallory, Hiba Al-Hakeem, Andrew Lovell, Kim Moody, Brendan Lam, Lindsay Brazill, Patricia Knapp, Andrea Hickling","doi":"10.1080/17518423.2024.2331455","DOIUrl":"10.1080/17518423.2024.2331455","url":null,"abstract":"<p><p><i>Move&Connect-Youth (M&C-Y)</i> is an interdisciplinary virtual group intervention for youth experiencing persisting symptoms after concussion (PSAC) that includes psychoeducation, active rehabilitation, and goal-setting. Using an intervention mapping framework, this paper describes the iterative development of <i>M&C-Y</i> and findings from initial feasibility testing. Ten youth participated in <i>M&C-Y</i> completing pre-intervention demographic questionnaires and semi-structured exit interviews to understand participants' experience and gather feedback. <i>M&C-Y</i> was feasible based on <i>apriori</i> criteria and findings from interviews provided insights related to: (1) intervention structure, (2) intervention engagement, and (3) intervention takeaways. <i>M&C-Y</i> is a meaningful, feasible, and engaging intervention for youth with PSAC.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"471-482"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140295650","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Laura R Bowman, Anna Oh, Kari Renahan, Stephanie Ellis, Carolyn McDougall, Janice Archer, Nadia Niles-Campbell, Ying Xu, C J Curran
{"title":"Putting Youth in Charge: Exploring a Multi-Year Interagency Community Engagement Experiential Programme for Youth with Disabilities and Their Families.","authors":"Laura R Bowman, Anna Oh, Kari Renahan, Stephanie Ellis, Carolyn McDougall, Janice Archer, Nadia Niles-Campbell, Ying Xu, C J Curran","doi":"10.1080/17518423.2024.2331440","DOIUrl":"10.1080/17518423.2024.2331440","url":null,"abstract":"<p><p>This paper outlines a qualitative exploration of the experiences of Youth in Charge (YiC), a 3-year pilot programme. YiC was designed to promote early, immersive community participation for students with physical disabilities, and was co-developed/co-hosted by three agencies (hospital, community rehabilitation, school board). To better understand the experiences of the youth, parents, and staff involved in this broad intervention, observation of 10 programme sessions and annual semi-structured interviews with youth (<i>n</i> = 5), parents (<i>n</i> = 4) and staff (<i>n</i> = 6) were undertaken. Qualitative results comprise six themes based in the two major thematic areas of participation-related experiences and programme considerations. Results indicate the need for community-based experiences, measured risk-taking, long-term engagement, parental involvement, and greater interagency collaboration and integration.</p>","PeriodicalId":93976,"journal":{"name":"Developmental neurorehabilitation","volume":" ","pages":"450-461"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140178276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}