Susan Wiley, Vivian Kaul, Oliver F Adunka, Lynn Iwamoto, Rob Nutt, Kirsten Coverstone, Patricia Burk
{"title":"Hyperbilirubinemia Requiring Exchange Transfusion as a Risk Factor for Later-Onset Hearing Loss.","authors":"Susan Wiley, Vivian Kaul, Oliver F Adunka, Lynn Iwamoto, Rob Nutt, Kirsten Coverstone, Patricia Burk","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Previous position statements by the Joint Committee on Infant Hearing (JCIH) have recommended the presence of hyperbilirubinemia requiring exchange transfusion as a risk factor for childhood hearing loss. This article examines the strength of the evidence to support this recommendation.</p><p><strong>Methods: </strong>A PubMed<sup>®</sup> query using the keywords hyperbilirubinemia and hearing loss identified 77 original papers. All abstracts were reviewed for consideration of full article review and 44 articles were reviewed for consideration of inclusion and grading, with 21 articles graded using structured evidence-grading forms. Nineteen articles were included to provide supporting rationale for recommendations. Evidence grading was completed by recommendation.</p><p><strong>Results: </strong>A moderate level of evidence supports hyperbilirubinemia requiring exchange transfusion as a risk factor for elevated hearing thresholds among infants and young children. It is recommended to employ Automated Auditory Brainstem Response screening in this population of infants. These recommendations are based on the findings across multiple graded studies where the net benefit is moderate or substantial. Intervals for on-going monitoring of hearing previously recommended by JCIH are supported by expert consensus.</p><p><strong>Conclusion: </strong>If an infant with hyperbilirubinemia requiring exchange transfusion passes the newborn hearing screening, close monitoring of hearing, speech, and language milestones are important and should lead to improved outcomes for the child.</p>","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"9 2","pages":"1-18"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11875398/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544832","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gabriella Reynolds, Krystal L Werfel, Morgan Vachio, Emily A Lund
{"title":"Early Experiences of Parents of Children who are Deaf or Hard of Hearing: Navigating through Identification, Intervention, and Beyond.","authors":"Gabriella Reynolds, Krystal L Werfel, Morgan Vachio, Emily A Lund","doi":"10.26077/6d9d-06f3","DOIUrl":"10.26077/6d9d-06f3","url":null,"abstract":"<p><p>Guidelines created by the American Academy of Pediatrics ([AAP], 2010) and the Joint Committee on Infant Hearing ([JCIH], 2019) were designed to aid in the early identification of infant hearing loss. Despite these guidelines, a quarter of children who do not pass their initial screening are lost to the follow-up process and many more do not receive care in line with the 1-3-6 guidelines (Centers for Disease Control and Prevention [CDC], 2018; JCIH, 2019). To acquire more information about the experiences of families and identify specific barriers to timely diagnosis and intervention, interviews were conducted with 13 parents of children who are deaf or hard of hearing whose children were enrolled in a larger longitudinal study. These interviews revealed common themes regarding delayed identification, frustrations about timely intervention, and confusion when choosing communication modalities. Common themes amongst families who felt well-supported were also identified.</p>","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"8 1","pages":"56-68"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11349329/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142082904","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nicole Perez, David Adkins, Marissa Schuh, Jennifer Shinn, Lori Travis, Matthew Bush
{"title":"Sociodemographic Factors Influencing Pandemic-Era EHDI Use and Access.","authors":"Nicole Perez, David Adkins, Marissa Schuh, Jennifer Shinn, Lori Travis, Matthew Bush","doi":"10.26077/c18f-78ab","DOIUrl":"10.26077/c18f-78ab","url":null,"abstract":"<p><strong>Objective: </strong>The COVID-19 pandemic impact on Early Hearing Detection and Intervention (EHDI) programs is unknown. This research evaluated sociodemographic factors influencing adherence to EDHI diagnostic testing and the incidence of infant hearing loss during the pandemic.</p><p><strong>Method: </strong>We evaluated EHDI adherence and incidence of hearing loss in Kentucky before and during the COVID-19 pandemic. Using univariate and multivariate analysis, we evaluated the association of these outcomes to sociodemographic variables.</p><p><strong>Results: </strong>There were 71,206 births and 1,385 referred infant hearing screening tests during the study period. Infants during the pandemic had a 24% lower odds of hearing testing adherence (OR = 0.76, p = 0.05, 95%CI: 0.57-1). Hispanic infants have 45% lower odds of EHDI adherence (OR = 0.55, p = 0.03, 95%CI: 0.31-0.96) and infants of Swahili speaking families have 90% lower odds of EHDI adherence (OR = 0.10, p = 0.001, 95%CI: 0.02-0.42). Infants of mothers with a high school degree had a higher odds of adherence (OR = 1.50, p = 0.02, 95%CI: 1.06-2.17), presented earlier for testing (p = 0.003, 95%CI: -15.73- [-]3.32), and had a higher odds of normal hearing (OR = 1.63, p = 0.03, 95%CI: 1.06-2.51).</p><p><strong>Conclusion: </strong>EHDI adherence is influenced by the COVID-19 pandemic and sociodemographic factors. EHDI programs are encouraged to use this data to promote timely and equitable access and use of diagnostic services.</p>","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"8 2","pages":"26-33"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11967730/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143782144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Suhana Ema, Sana Charania, Xidong Deng, Charles Rose, Craig A Mason, Marcus Gaffney, Brandt Culpepper, Michael Lo, Tri Tran, Kirsten Coverstone, Marcia Fort
{"title":"Assessing Impact of COVID-19 Pandemic on Receipt and Timeliness of Newborn Hearing Screening and Diagnostic Services Among Infants Born in Four States.","authors":"Suhana Ema, Sana Charania, Xidong Deng, Charles Rose, Craig A Mason, Marcus Gaffney, Brandt Culpepper, Michael Lo, Tri Tran, Kirsten Coverstone, Marcia Fort","doi":"10.26077/05f5-2ffc","DOIUrl":"10.26077/05f5-2ffc","url":null,"abstract":"<p><p>The study compares receipt and timeliness of newborn hearing screening and follow-up diagnostic services between the pre-pandemic birth cohort and the pandemic birth cohort in four participating states. Findings from this study will help inform state Early Hearing Detection and Intervention (EHDI) programs in the future should a major public health event occur again.</p>","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"7 3","pages":"6-15"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11009938/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140853803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kelly Dundon, Suhana Ema, Xidong Deng, Mia Morrison, Treeby Brown, Karl White, Linda Hazard, Marcia Fort, Kirsten Coverstone, Craig A Mason, Marcus Gaffney
{"title":"Likely Impact of the COVID-19 Pandemic on Newborn Hearing Screening and Follow-up Services in the United States in 2020.","authors":"Kelly Dundon, Suhana Ema, Xidong Deng, Mia Morrison, Treeby Brown, Karl White, Linda Hazard, Marcia Fort, Kirsten Coverstone, Craig A Mason, Marcus Gaffney","doi":"10.26077/bdtm-7v57","DOIUrl":"10.26077/bdtm-7v57","url":null,"abstract":"<p><p>This perspective aims to highlight aspects of the Early Hearing Detection and Intervention (EHDI) newborn hearing screening and follow-up processes that were impacted by the COVID-19 pandemic and considers factors that likely impacted follow-up after failing newborn hearing screening among infants born in the United States during 2020. Efforts to minimize the potential impact of missed or delayed identification of hearing loss in infants and young children will also be discussed to help guide future program improvement activities.</p>","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"7 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11009935/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140867878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth A Walker, Caitlin Ward, Jacob Oleson, Caitlin Sapp, Ryan W McCreery, J Bruce Tomblin, Mary P Moeller
{"title":"Language Growth in Children with Mild to Severe Hearing Loss who Received Early Intervention by 3 Months or 6 Months of Age.","authors":"Elizabeth A Walker, Caitlin Ward, Jacob Oleson, Caitlin Sapp, Ryan W McCreery, J Bruce Tomblin, Mary P Moeller","doi":"10.26077/e97b-7add","DOIUrl":"10.26077/e97b-7add","url":null,"abstract":"<p><strong>Purpose: </strong>To evaluate the impact of hearing screening, diagnosis, and early intervention (EI) by 3 months or 6 months of age on language growth trajectories for children with hearing loss (HL) relative to children with normal hearing (NH).</p><p><strong>Method: </strong>We recruited 133 children with mild to severe HL through universal newborn hearing screening records and referrals from audiologists in the United States and 116 children with NH who served as a comparison group. Examiners administered a battery of developmentally appropriate language measures between 12 months and 8 years of age. We constructed latent growth curve models of global language, grammar, and vocabulary using Bayesian statistics.</p><p><strong>Results: </strong>Children with HL demonstrated no significant differences in initial language skills compared to children with NH. Children in the 1-3-6 group also showed no difference in language growth compared to children with NH. The slope for the 1-2-3 group was significantly steeper than children with NH for global language and grammar.</p><p><strong>Conclusions: </strong>This study documents the positive impact of EI on language outcomes in children with congenital HL. It is among the first to provide evidence to support the potential effects of very early intervention by 3 months of age.</p>","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"7 1","pages":"1-10"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11087018/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140913464","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Angela Yarnell Bonino, Amanda Hemann, Deborah Mood, Emily Kay, Elizabeth S Pancoast, Kristin K Sommerfeldt
{"title":"Visual Reinforcers Designed for Children with Developmental Disabilities.","authors":"Angela Yarnell Bonino, Amanda Hemann, Deborah Mood, Emily Kay, Elizabeth S Pancoast, Kristin K Sommerfeldt","doi":"10.26077/b0fc-4c2d","DOIUrl":"https://doi.org/10.26077/b0fc-4c2d","url":null,"abstract":"A library of visual reinforcers has been created to facilitate visual reinforcement audiometry (VRA) testing in children with developmental disabilities. The library includes 45 reinforcer sets-photos or videos grouped by a common theme-that were created based on commonly reported interests of children with developmental disabilities. Each reinforce set contains a minimum of 20 unique photo or video files that can be downloaded in two formats: one for commercially available VRA reinforcement systems and another for a custom setup. The library is freely available for download online under a Creative Commons License (Creative Commons Attribution-NonCommercial 4.0 International License). Use of these materials has the potential to improve behavioral testing outcomes for children with developmental disabilities, including children with restricted interests. Future research is needed to determine the effectiveness of implementing these materials in clinical settings.","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"6 1","pages":"69-76"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8061901/pdf/nihms-1691537.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38907975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Audiologist Perception on Reporting Hearing Assessment Results to State Early Hearing Detection and Intervention Programs.","authors":"Winnie Chung, Maria C Sanchez-Gomez","doi":"10.26077/df10-2c4d","DOIUrl":"10.26077/df10-2c4d","url":null,"abstract":"<p><strong>Purpose: </strong>To describe an evaluation conducted by 39 state Early Hearing Detection and Intervention (EHDI) programs on the reporting process and system usability for audiologists when reporting the hearing test results to the EHDI program and the barriers encountered during reporting.</p><p><strong>Method: </strong>Each author independently extracted numbers, percentages, and texts from the evaluation reports into an Excel spreadsheet, which then became the dataset. Authors then compared and cross-checked the datasets before coding. Texts conveying similar concepts were coded with the same name and organized into categories. Finally, thematic identification and analysis were performed when a theme(s) or concept(s) that pertained to similar challenges encountered by audiologists was identified and organized under a higher-order domain.</p><p><strong>Results: </strong>Some audiologists reported no barriers when reporting hearing test results to the state EHDI programs. Among those audiologists who reported barriers, the most recurrent barrier was a non-user-friendly data system design. The second most recurrent barrier was not having adequate administrative time to report data as a busy clinician. The third most recurrent barrier was an incomplete understanding of the state EHDI reporting requirements. Finally, the method audiologists were required to use when reporting results also posed some challenges, such as no internet connection in rural areas when required to report via an internet portal.</p><p><strong>Conclusion: </strong>Because of the wide variety of barriers faced by audiologists, multiple strategies to improve the reporting process would likely be beneficial.</p>","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"6 2","pages":"79-86"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10588097/pdf/nihms-1934820.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49694967","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sophie E Ambrose, Margo Appenzeller, Alexandra Mai, Jean L DesJardin
{"title":"Beliefs and Self-Efficacy of Parents of Young Children with Hearing Loss.","authors":"Sophie E Ambrose, Margo Appenzeller, Alexandra Mai, Jean L DesJardin","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The purpose of this study was to learn more about the beliefs and self-efficacy of parents of young children with hearing loss. Seventy-two parents completed the Scale of Parental Involvement and Self-Efficacy-Revised (SPISE-R), which queries parents about their child's hearing device use and their perceptions of their own beliefs, knowledge, confidence, and actions pertaining to supporting their child's auditory access and spoken language development. Two beliefs were identified that related to parents' action scores and one belief was identified that related to children's hearing device use. Knowledge and confidence scores were significantly correlated with action scores and children's hearing device use, whereas only confidence scores were related to scores on a measure of children's spoken language abilities. Results indicate the SPISE-R is a promising tool for use in early intervention to better understand parents' strengths and needs pertaining to supporting their young child's auditory access and spoken language development.</p>","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"5 1","pages":"73-85"},"PeriodicalIF":0.0,"publicationDate":"2020-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7523736/pdf/nihms-1628323.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38536548","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sophie E. Ambrose, Margo Appenzeller, Alexandra Mai, Jean Desjardin
{"title":"Beliefs and Self-Efficacy of Parents of Young Children with Hearing Loss.","authors":"Sophie E. Ambrose, Margo Appenzeller, Alexandra Mai, Jean Desjardin","doi":"10.26077/KKKH-VJ55","DOIUrl":"https://doi.org/10.26077/KKKH-VJ55","url":null,"abstract":"The purpose of this study was to learn more about the beliefs and self-efficacy of parents of young children with hearing loss. Seventy-two parents completed the Scale of Parental Involvement and Self-Efficacy-Revised (SPISE-R), which queries parents about their child's hearing device use and their perceptions of their own beliefs, knowledge, confidence, and actions pertaining to supporting their child's auditory access and spoken language development. Two beliefs were identified that related to parents' action scores and one belief was identified that related to children's hearing device use. Knowledge and confidence scores were significantly correlated with action scores and children's hearing device use, whereas only confidence scores were related to scores on a measure of children's spoken language abilities. Results indicate the SPISE-R is a promising tool for use in early intervention to better understand parents' strengths and needs pertaining to supporting their young child's auditory access and spoken language development.","PeriodicalId":91737,"journal":{"name":"Journal of early hearing detection and intervention","volume":"5 1 1","pages":"73-85"},"PeriodicalIF":0.0,"publicationDate":"2020-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42573408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}