Archives of physical medicine and rehabilitation最新文献

{"title":"Disparities in Mortality Outcomes Among Older Adults With Communication Disabilities Using the National Health and Aging Trends Study","authors":"Jennifer Y. Oshita PhD ,&nbsp;Nicholas S. Reed AuD ,&nbsp;Peter W. Callas PhD ,&nbsp;Emmanuel E. Garcia Morales PhD ,&nbsp;Charles D. MacLean MD","doi":"10.1016/j.apmr.2024.12.013","DOIUrl":"10.1016/j.apmr.2024.12.013","url":null,"abstract":"<div><h3>Objective(s)</h3><div>To examine whether a nationally representative population of older adults with communication disabilities (CDs) has a higher risk of mortality than older adults without these disabilities, independent of sociodemographic, health, and other disability characteristics.</div></div><div><h3>Design</h3><div>Retrospective, cohort study. We conducted a survival analysis using multivariable Cox proportional hazards regression, adjusting for sociodemographic, health, and other disability characteristics.</div></div><div><h3>Setting</h3><div>Annual data from the National Health and Aging Trends Study (Rounds 2011-2020).</div></div><div><h3>Participants</h3><div>A nationally representative sample of Medicare beneficiaries aged ≥65 years with and without any receptive or expressive communication difficulties.</div></div><div><h3>Interventions</h3><div>Not applicable.</div></div><div><h3>Main Outcome Measures</h3><div>Hazard ratios demonstrated the independent mortality risk by CD, over a 10-year period.</div></div><div><h3>Results</h3><div>The presence of CD was associated with an increased hazard of dying (hazard ratio, 2.79; 95% CI, 2.51-3.10). After adjustment, older adults with CD had a 1.46 times higher risk of death than those without CD (95% CI, 1.31-1.62).</div></div><div><h3>Conclusions</h3><div>Having a CD in older age increases mortality risk, independent of health, sociodemographic, and other disability characteristics. These findings warrant consideration of communication-specific mechanisms contributing to disparate mortality outcomes in older adulthood.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Pages 750-758"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142880871","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Predicting Device Implementation Potential: Development and Validation of a Tool Based on the DART Framework","authors":"Amy Kemp ,&nbsp;Courtney Celian ,&nbsp;Andrew Berry ,&nbsp;Hannah Reed ,&nbsp;Kevin Smaller ,&nbsp;Miriam Rafferty","doi":"10.1016/j.apmr.2025.03.032","DOIUrl":"10.1016/j.apmr.2025.03.032","url":null,"abstract":"<div><h3>Introduction</h3><div>The Design for AcceleRated Translation (DART) framework identifies factors that impact translation speed. This study outlines the development and validation of the DART for Rehabilitation Technologies (DART-RT). We hypothesized a survey-based tool could predict the readiness for implementation of a device based on end-user evaluations on seven determinants: cost, safety, effectiveness, clinical demand, patient values, relative advantage, and clinical utility.</div></div><div><h3>Methods</h3><div>DART-RT was developed through three phases: 1) item development, 2) scale development, and 3) scale evaluation. In Phase 1, content experts generated and reviewed items and descriptions of neurorehabilitation technologies. Phase 2 included cognitive interviews with end users (i.e., rehabilitation clinicians, providers, patients, and engineers). The survey was then pilot-tested with end users. Phase 3 included exploratory factor analysis, model fit, reliability, and validity.</div></div><div><h3>Results</h3><div>Phase 1 resulted in 12 descriptions of neurorehabilitation tools and seven constructs as defined by the DART framework. Phase 2 iteratively interviewed six end users to assess the questions' appropriateness and the responses' strength. The pilot data included 104 responses. Preliminary factor analysis and model fit indicate results load into two factors (&lt; 0.4) determined to be F1: Viability (cost, safety, effectiveness) and F2: Implementation potential (clinical demand, patient values, relative advantage, and clinical utility). Preliminary model fit was adequate (CFI: 0.969, SRMR: 0.064, RMSEA: 0.054).</div></div><div><h3>Conclusions</h3><div>DART-RT addresses the complexity of describing implementation potential. Understanding implementation potential profiles can inform whether a technology is ready for clinical implementation, requires further refinement, or lacks viability.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Pages e8-e9"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143887785","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Learning to Explore and Exploring to Learn: Understanding Powered Mobility Use in Toddlers with Disabilities","authors":"Kimberly Ingraham,&nbsp;Heather Feldner,&nbsp;Katherine Steele","doi":"10.1016/j.apmr.2025.03.024","DOIUrl":"10.1016/j.apmr.2025.03.024","url":null,"abstract":"<div><div>For toddlers with disabilities, powered mobility technology can be a powerful tool to facilitate self-initiated exploration and social engagement in home, community, and clinical environments. However, despite overwhelming evidence that access to independent mobility is critical for early development, access to powered mobility for toddlers with disabilities is significantly limited. New devices, such as the Permobil Explorer Mini, have recently made it easier and safer to provide powered mobility options for young children with disabilities at appropriate developmental stages. Yet, many open questions remain surrounding how toddlers learn to use these devices, how powered mobility can support development, and how we should design powered mobility interventions. Our transdisciplinary team of engineers, clinician scientists, and rehabilitation professionals has investigated how toddlers with disabilities use powered mobility for self-directed play and rehabilitation across a spectrum of environments: in the lab, at home, and in the clinic. We will discuss quantitative and qualitative results from our recent Explorer Mini experiments with over 35 children with diverse developmental disabilities, including device use patterns, developmental outcomes, and the perceptions of caregivers and rehabilitation professionals. We found that after 16 weeks of using powered mobility at home, there were significant improvements in the Bayley IV across all domains. In the lab, we demonstrated that on average, kids move a distance of 52 meters in a 15-minute play session. These results support our long-term goal of building the scientific foundation needed to foster the translation of clinically impactful mobility technologies for infants and toddlers with disabilities.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Page e6"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143887920","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Machine Learning Algorithms for Prediction of Ambulation and Wheelchair Transfer Ability in Spina Bifida","authors":"Gina McKernan PhD ,&nbsp;Matt Mesoros BS ,&nbsp;Brad E. Dicianno MD","doi":"10.1016/j.apmr.2024.11.013","DOIUrl":"10.1016/j.apmr.2024.11.013","url":null,"abstract":"<div><h3>Objective</h3><div>To determine which statistical techniques enhance our ability to predict ambulation and transfer ability in people with spina bifida (SB).</div></div><div><h3>Design</h3><div>Retrospective cohort study.</div></div><div><h3>Setting</h3><div>Thirty-five US outpatient SB clinic sites.</div></div><div><h3>Participants</h3><div>Individuals (n=4589) with SB aged 5-73 years (median age=13.59y).</div></div><div><h3>Intervention</h3><div>Not applicable.</div></div><div><h3>Main Outcome Measures</h3><div>Ambulation ability, which consisted of the following categories: community ambulators, household ambulators, therapeutic ambulators, and nonambulators.</div></div><div><h3>Secondary Outcome</h3><div>Wheelchair transfer ability, as defined by the ability to transfer in and out of a wheelchair unassisted.</div></div><div><h3>Results</h3><div>A recurrent neural network (RNN) using a multilayer perceptron discarded 76 cases during case processing, resulting in 4513 that were run through the RNN. The predictions in the resulting testing dataset were 83.22% accurate. Recall was 93.21% for community ambulators, 10.00% for household ambulators, 23.96% for therapeutic ambulators, and 76.70% for nonambulators. Precision was 85.34% for community ambulators, 16.05% for household ambulators, 16.67% for therapeutic ambulators, and 93.47% for nonambulators. Total predictions included 68.39% for community ambulators, 2.25% for household ambulators, 3.83% for therapeutic ambulators, and 25.53% for nonambulators. Correspondingly, the model accurately classified 70% of wheelchair transfers while correctly identifying 97.3% of those able to transfer unassisted.</div></div><div><h3>Conclusions</h3><div>RNN models hold promise for the prediction of functional outcomes such as ambulation and transfer ability in people with SB, particularly for community ambulators and nonambulators. Compared with the previous work using traditional logistic regression approaches which misclassified 16% of cases, the RNN resulted in greater prediction accuracy with fewer than 7% of cases misclassified.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Pages 682-687"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142778724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Novel Cluster Analysis Scheme for Determining Levels of Upper Extremity Functional Capacity in People with Chronic Stroke","authors":"Akhil Mohan ,&nbsp;Yanjun Wu ,&nbsp;Ryan Chatterjee ,&nbsp;Steven Wang ,&nbsp;Kyle O'Laughlin ,&nbsp;Xin Li ,&nbsp;Ken Uchino ,&nbsp;Xiaofeng Wang ,&nbsp;Ela Plow","doi":"10.1016/j.apmr.2025.03.026","DOIUrl":"10.1016/j.apmr.2025.03.026","url":null,"abstract":"<div><h3>Introduction</h3><div>Outcomes or assessments in stroke are typically performed in silos of measuring impairment or dexterity. Recently, Woodbury et al. have developed a functional capacity measure that seeks to combine different types of assessments (Upper Extremity Fugl-Meyer, UEFM-impairment measure and Wolf Motor Function Test, WMFT-functional ability measure) to provide a comprehensive understanding of stroke patients' functional status. However, how functional capacity varies across different severity ranges in stroke has never been identified to build targeted upper extremity (UE) therapies. With this goal, our rehabilitation group, paired with statistical modeling experts, developed a classification scheme for the first time to define cut-off scores that differentiate levels of UE functional capacity in people with chronic stroke.</div></div><div><h3>Methods</h3><div>We performed cluster analysis of the UEFM+WMFT short form to identify groups of participants with similar levels of functional capacity (Range: 0-57). We further evaluated the consistency of the clusters through Silhouette analysis.</div></div><div><h3>Results</h3><div>We pooled seventy-one stroke survivors' baseline data from three funded interventional studies. Participants had a mean (standard deviation, SD) age of 63.6 (SD 10.4), UEFM Score of 30.1 (SD 17.5), and WMFT Functional Ability Score of 36.8 (SD 21.1). Results from our cluster analysis support a three-group classification scheme of UE functional capacity: 0-26 (Low), 27-41 (Moderate), and 42-57 (High). The average silhouette width was 0.6, indicating reasonable consistency of clusters.</div></div><div><h3>Conclusion</h3><div>Severity-specific functional capacity characterized using our classifier scheme can facilitate the design of targeted UE rehabilitation interventions for people with chronic stroke.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Page e7"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143887662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Intentional Inclusion of Navigator Scientists to Enhance the Relevance and Sustainability of Peer Support Interventions","authors":"Susan Magasi ,&nbsp;Hilary Marshall ,&nbsp;Audrey Phillips ,&nbsp;Christina Papadimitriou ,&nbsp;Rachel Adler ,&nbsp;John Abbate ,&nbsp;Ronnell Booze ,&nbsp;Robert Green ,&nbsp;Ryann Browne","doi":"10.1016/j.apmr.2025.03.007","DOIUrl":"10.1016/j.apmr.2025.03.007","url":null,"abstract":"<div><div>We are approaching a quarter of a century of enshrined civil rights legislation that mandates full and equal participation of people with disabilities across all aspects of society. Yet, the 61 million Americans living with disabilities continue to experience well-documented barriers to health, healthcare, and community living at the nexus of disability status, social determinants of health and intersectional minoritized identities. In our increasingly interconnected world, there is a critical need to diversify our approach to science and intervention to break down systemic barriers to care and community participation. mENTER is a 12-month mHealth-enabled peer support intervention aimed at people with acquired physical disabilities transitioning from in-patient rehabilitation to independent living. This evidence-informed behavioral intervention was conceptualized using community-based participatory approaches between academic rehabilitation researchers, disability rights advocates at a Center for Independent Living, and a Medicaid managed care organization. As the project has evolved so too has our approach to transdisciplinary science and the ways to intentionally increase engagement of people with lived experience to promote both program relevance and the quality of the science. Specifically, we created a \"navigator scientist\" approach that embeds people with disabilities as co-designers, interventionists, and evaluators of the mENTER training, intervention, and technology infrastructure to support this complex behavioral intervention. In this presentation, we will describe the strategies that we have used to embed navigator scientists in our transdisciplinary team that includes rehabilitation researchers, behavioralists and implementation scientists, and computer scientists. We will emphasize strengths, challenges, and creative possibilities inherent in this approach.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Page e2"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143887919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"End-of-Life Conversations With Adult Patients and Their Families: An Evidence-based Guide for Occupational and Physical Therapists.","authors":"Olivia Crozier, Erica Lo, Neha Dewan, Atul Jaiswal, Ryan Carrick, Timothy A Reistetter, Himani Puri, Patricia Watford, Sodiq Fakorede, Mandi L Sonnenfeld, Monika Gross, Saurabh P Mehta","doi":"10.1016/j.apmr.2025.03.045","DOIUrl":"https://doi.org/10.1016/j.apmr.2025.03.045","url":null,"abstract":"","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":" ","pages":""},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143960278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Employment Outcomes Among Clients With Stroke Utilizing Public Vocational Rehabilitation Services in the United States","authors":"Chen Lin MD, MBA ,&nbsp;Jinhee Park PhD ,&nbsp;Eun-Jeong Lee PhD","doi":"10.1016/j.apmr.2024.12.012","DOIUrl":"10.1016/j.apmr.2024.12.012","url":null,"abstract":"<div><h3>Objective</h3><div>To examine the correlations between individual characteristics among clients with stroke within public vocational rehabilitation (VR) and the employment outcome, as well as the utilization of VR services and their employment outcomes after VR services.</div></div><div><h3>Design</h3><div>Observational cohort study.</div></div><div><h3>Setting</h3><div>Nationwide VR data from the Rehabilitation Service Administration Case Service Report for fiscal year 2022.</div></div><div><h3>Participants</h3><div>Individuals with stroke as primary cause of disability.</div></div><div><h3>Interventions</h3><div>Not applicable.</div></div><div><h3>Main Outcome Measures</h3><div>Employment status and VR service types.</div></div><div><h3>Results</h3><div>Of those with stroke who received VR services (n=1793), 653 (36.4%) achieved a competitive employment outcome. Black clients were less likely to be competitively employed at closure than White clients, odds ratio (OR, 0.72; 95% CI, 0.56-0.92). Clients whose primary disability was auditory or communicative disabilities were more likely to be competitively employed at closure (OR, 2.25; 95% CI, 1.22-4.17). Regarding VR services, receiving distinct types of VR services significantly was associated with the competitive employment outcome for clients. Clients who received short-term job support services were 6.36 times more likely to be competitively employed at closure than those who did not receive the service (OR, 6.36; 95% CI, 4.28-9.46).</div></div><div><h3>Conclusions</h3><div>Our results found that race, types of primary disability, level of education, receipt of Supplemental Security Income/Social Security Disability Insurance and the length of the VR services were associated with obtaining or regaining employment among clients with stroke who received public VR services. In terms of VR service patterns, job support services, job placement assistance, rehabilitation technology supports, maintenance services, other services, and VR counseling and guidance were associated with competitive employment outcomes among individuals with stroke.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Pages 723-728"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142871171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health Care, Educational, and Vocational Transitions in Young Adults With Pediatric-Onset Disabilities: Associations With Social Determinants of Health","authors":"Christine L. Petranovich PhD ,&nbsp;Karlisha Person-Jones MD ,&nbsp;Samantha Koerber MD ,&nbsp;Ann Lantagne PhD ,&nbsp;Sarah Graber BA ,&nbsp;Cristina A. Sarmiento MD ,&nbsp;Robin L. Peterson PhD ,&nbsp;Tess Simpson PhD ,&nbsp;Pamela Wilson MD ,&nbsp;Andrea Miele PhD ,&nbsp;Susan Apkon MD ,&nbsp;Michael Dichiaro MD ,&nbsp;Amy K. Connery PsyD ,&nbsp;Michael W. Kirkwood PhD","doi":"10.1016/j.apmr.2024.11.015","DOIUrl":"10.1016/j.apmr.2024.11.015","url":null,"abstract":"<div><h3>Objective</h3><div>We aim to describe health care, vocational, and educational transitions in young adults with pediatric-onset disabilities and to examine the associations with social determinants of health and depressive symptoms.</div></div><div><h3>Design</h3><div>This cross-sectional study used multinomial and binary logistic regression to examine the associations of sociodemographic factors and depressive symptoms with health care, educational, and vocational transitions.</div></div><div><h3>Setting</h3><div>Participants were recruited from outpatient specialty clinics in a rehabilitation medicine department at a quaternary academic children's hospital.</div></div><div><h3>Participants</h3><div>Transition age adults with acquired brain injury (17), spina bifida (10), and neuromuscular disorders (28) participated in this study.</div></div><div><h3>Interventions</h3><div>Not applicable.</div></div><div><h3>Main Outcome Measures</h3><div>Participants provided information about their current health care utilization and educational/vocational status.</div></div><div><h3>Results</h3><div>Twenty-five percent of participants were unsure of their primary resource for preventative health care; this uncertainty was associated with White race/Hispanic ethnicity (<em>P</em>=.004) and public insurance (<em>P</em>=.02). When asked about their primary health care resource if they are sick or have an immediate health-related question, 18% identified the emergency department; this was significantly related to greater neighborhood disadvantage (<em>P</em>=.009). Considering current educational and vocational status, having a job while also going to school was associated with more self-reported depressive symptoms (<em>P</em>=.009) and younger age (<em>P</em>=.02).</div></div><div><h3>Conclusions</h3><div>Outcomes during the transition to adulthood are related to multiple factors, including race and ethnicity, public insurance, neighborhood disadvantage, and depressive symptoms. Targeted interventions to support health care, vocational, and educational transitions in the context of social determinants of health and mental health status are needed.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Pages 674-681"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142875774","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Emphasis on Parent Education and Engagement in Research to Increase Physical Activity Engagement for Ambulatory Children and Adolescents with Cerebral Palsy","authors":"Mara Yale ,&nbsp;Jacqueline Chen ,&nbsp;Brian Wishart ,&nbsp;Katherine Dimitropoulou","doi":"10.1016/j.apmr.2025.03.018","DOIUrl":"10.1016/j.apmr.2025.03.018","url":null,"abstract":"<div><div>Existing studies of parents with children and adolescents with cerebral palsy, or other brain injuries early in life, focus on parents' perspectives about physical activity (PA) as well as barriers and facilitators that may hinder or support their children's participation. Less is known about parents' potential needs to better understand their children's PA needs, abilities, and potential. This project is part of the Game On Sports Multidimensional Framework that emphasizes parents' active engagement, education, and participation in developing and supporting PA for children and adolescents with CP. We use a community based participatory research design and provide perspectives of parents as research partners, research consultants, and research participants. We provide an example of a parent group (N=16), whose children attended a 5 day (5 hrs/day) Game On Summer Soccer Camp. During camp, we facilitated one session for parents to connect, share their origin stories, and appreciation for what they'd witnessed in their children at camp and outside of camp during the week. We present qualitative data from that group activity and from individual parents' interviews after their children completed the camp. Thematic analysis of the post camp individual interviews reveals that parents highly value: a) personnel responsiveness (i.e. coaches and camp leaders) to campers' abilities (not deficits); b) positive social interactions that PA engagement can provide for their children; c) the opportunity for their children to develop personal interests related to their bodies and self-monitor their goals; and d) the development of social relationship that are beyond the PA events.</div></div>","PeriodicalId":8313,"journal":{"name":"Archives of physical medicine and rehabilitation","volume":"106 5","pages":"Page e5"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143887966","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}