Gabriela Bolea Muguruza , Cristina de Frutos Martínez , M. Teresa Tamayo Martínez , Judith Martín Corral
{"title":"Transición a la alimentación oral competente en prematuros: explorando tiempo y determinantes","authors":"Gabriela Bolea Muguruza , Cristina de Frutos Martínez , M. Teresa Tamayo Martínez , Judith Martín Corral","doi":"10.1016/j.anpedi.2024.503718","DOIUrl":"10.1016/j.anpedi.2024.503718","url":null,"abstract":"<div><h3>Introduction</h3><div>The achievement of oral feeding competence (OFC) is a challenge in preterm infants and can be affected by several factors.</div></div><div><h3>Objective</h3><div>The aim of our study was to determine the time elapsed to development of OFC in very low birth weight (VLBW, weight <<!--> <!-->1500<!--> <!-->g) preterm infants and to identify factors associated with greater difficulty in achieving this skill.</div></div><div><h3>Population and methods</h3><div>Observational, longitudinal and prospective study in VLBW infants over a period of 7 years (2016-2022). We collected data on perinatal variables, feeding practices and complications associated with prematurity. We analyzed the number of days needed to achieve OFC and which variables predicted greater delay in achieving OFC.</div></div><div><h3>Results</h3><div>We included 145 VLBW infants with a median gestational age (GA) of 29 weeks with a weight of 1247<!--> <!-->g. Oral feeding was initiated at 33.6 weeks (SD, 1.2) and full oral feeding was achieved at 35.9 weeks (SD, 1.9). The median time to achievement of OFC was 15 days (8-22.5). The variables associated with longer delay of OFC were severe combined morbidity (24 vs 14 days; <em>P</em> <<!--> <!-->.001) and moderate/severe bronchopulmonary dysplasia (23 vs 14 days; <em>P</em> <<!--> <!-->.001). In infants without severe combined morbidity, we found no differences in the days elapsed to achievement of OFC between those born before or after 28 weeks of GA (<em>P</em> <!-->=<!--> <!-->.131).</div></div><div><h3>Conclusions</h3><div>Our findings highlight the importance of structuring the transition to oral feeding and identifying the most at-risk group, which in our study were infants with severe morbidity associated with prematurity, for the purpose of targeting potential interventions.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"102 1","pages":"Article 503718"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174273","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pedro Gorrotxategi Gorrotxategi, Ángel Carrasco Sanz, Teresa Cenarro Guerrero, Teresa Arana Navarro, en representación del Ejecutivo de la Asociación Española de Pediatría de Atención Primaria
{"title":"Situación actual de la formación sanitaria especializada en pediatría y áreas específicas: retos y necesidades","authors":"Pedro Gorrotxategi Gorrotxategi, Ángel Carrasco Sanz, Teresa Cenarro Guerrero, Teresa Arana Navarro, en representación del Ejecutivo de la Asociación Española de Pediatría de Atención Primaria","doi":"10.1016/j.anpedi.2024.503716","DOIUrl":"10.1016/j.anpedi.2024.503716","url":null,"abstract":"","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"102 1","pages":"Article 503716"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143131411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yaiza Taboada-Iglesias , María del Carmen Iglesias-Pérez , Águeda Gutiérrez-Sánchez
{"title":"Diseño y validación de un cuestionario sobre hábitos, salud y ejercicio en el uso de portabebés","authors":"Yaiza Taboada-Iglesias , María del Carmen Iglesias-Pérez , Águeda Gutiérrez-Sánchez","doi":"10.1016/j.anpedi.2024.503717","DOIUrl":"10.1016/j.anpedi.2024.503717","url":null,"abstract":"<div><h3>Introduction</h3><div>Understanding the characteristics and implications of the use of baby carriers can help health care providers understand the habits of their patients and provide guidance to improve quality of life in both children and caregivers. The aim of our study was to design and validate the first self-administered questionnaire to assess babywearing habits and their impact on health and physical activity as a means to monitor musculoskeletal complaints in caregivers.</div></div><div><h3>Material and methods</h3><div>Three hundred fifty individuals who currently used or had used baby carrying systems in the last 10 years completed the questionnaire, which was previously subject to a pilot study in a panel of experts. We used exploratory factor analysis to assess the validity of the internal structure of the questionnaire. The Cronbach α coefficient was used to assess reliability. We used varimax rotation to improve the interpretation of the extracted factors.</div></div><div><h3>Results</h3><div>The factor analysis showed that the questionnaire is appropriate for measuring the dimensions or carriage factors established a priori. It extracted 3 factors each for the constructs of duration and weight of carriage, motivation, exercise habits and effects on infant health and 2 factors for caregiver pain that explained between 55% and 72% of the variance in each construct. The Cronbach α values were greater than 0.5.</div></div><div><h3>Conclusions</h3><div>The results support the validity of the questionnaire and demonstrate that it is useful for its intended purpose.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"102 1","pages":"Article 503717"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143172959","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ana Martín Costa , Ignacio Ros Arnal , Ruth García Romero , Gerardo Rodríguez Martínez , Beatriz García Rodríguez
{"title":"Hipertransaminasemia grave durante la alerta de hepatitis aguda de origen desconocido de 2022","authors":"Ana Martín Costa , Ignacio Ros Arnal , Ruth García Romero , Gerardo Rodríguez Martínez , Beatriz García Rodríguez","doi":"10.1016/j.anpedi.2024.08.012","DOIUrl":"10.1016/j.anpedi.2024.08.012","url":null,"abstract":"<div><h3>Introduction</h3><div>The impact of acute severe hepatitis of unknown origin in children (SHIC) subject to a medical alert in 2022 medical alert is poorly understood.</div></div><div><h3>Material and methods</h3><div>Observational study of the incidence, aetiology and clinical presentation of acute hypertransaminasaemia (HTRA) with laboratory values in the severe range (ALT and/or AST ≥<!--> <!-->500<!--> <!-->U/l) in paediatric patients (age 0 to 16 years) in one health care zone from 2012 to 2022, comparing the periods of the SHIC alert and the SARS-CoV2 pandemic with previous years.</div></div><div><h3>Results</h3><div>The incidence of severe HTRA of any cause was 195.28 per 100 000 blood tests, with an incidence of 181.38 in the SHIC alert period and 166.09 during the SARS-CoV-2 pandemic, without statistically significant differences.</div><div>Hepatitis of unknown origin accounted for 7.42% of total cases and transaminase levels normalised in 126 days (SD, 99.4). During the SHIC alert period there was a nonsignificant trend towards a higher incidence, as occurred in 2012 and 2018. In this group of cases, there was a significant increase in the presence of fever, vomiting and upper respiratory symptoms and lower levels of albumin and alkaline phosphatase. One patient required a liver transplant.</div></div><div><h3>Conclusions</h3><div>In our setting, there was no significant increase in the incidence of severe HTRA of any aetiology or of unknown source during either the SHIC alert or the SARS-CoV2 pandemic. In the SHIC alert period, a clinical pattern emerged characterised by an increase in nonspecific infectious symptoms, so we cannot rule out a higher prevalence of an infectious agent different from the usual involved pathogens, but it did not cause a significant change in epidemiological trends.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"101 6","pages":"Pages 370-377"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142756778","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Carlos Martín de Vicente , Silvia Jade Cáceres Barrera , Celia Fuentes Sánchez , Cristina Gutiérrez Alonso , Ruth García Romero
{"title":"Colecistitis aguda como efecto adverso del tratamiento con elexacaftor/tezacaftor/ivacaftor en un paciente afecto de fibrosis quística","authors":"Carlos Martín de Vicente , Silvia Jade Cáceres Barrera , Celia Fuentes Sánchez , Cristina Gutiérrez Alonso , Ruth García Romero","doi":"10.1016/j.anpedi.2024.09.003","DOIUrl":"10.1016/j.anpedi.2024.09.003","url":null,"abstract":"","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"101 6","pages":"Pages 413-414"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142756697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Valeria Antoñanzas Bernar , Pilar Storch de Gracia Calvo , Inés Leoz Gordillo , Ana Castillo Robleda , Alberto García-Salido
{"title":"La expresión de CD64 en neutrófilos aumenta en lactantes menores de tres meses con fiebre sin foco: estudio piloto en urgencias pediátricas","authors":"Valeria Antoñanzas Bernar , Pilar Storch de Gracia Calvo , Inés Leoz Gordillo , Ana Castillo Robleda , Alberto García-Salido","doi":"10.1016/j.anpedi.2024.08.010","DOIUrl":"10.1016/j.anpedi.2024.08.010","url":null,"abstract":"","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"101 6","pages":"Pages 416-418"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142756699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ana-Coral Barreda-Bonis , Josep Maria de Bergua Domingo , Enrique Galán-Gómez , Encarna Guillén-Navarro , Isabel Leiva-Gea , Isolina Riaño-Galán
{"title":"Consenso de expertos para el manejo de pacientes con acondroplasia en tratamiento con vosoritida","authors":"Ana-Coral Barreda-Bonis , Josep Maria de Bergua Domingo , Enrique Galán-Gómez , Encarna Guillén-Navarro , Isabel Leiva-Gea , Isolina Riaño-Galán","doi":"10.1016/j.anpedi.2024.09.005","DOIUrl":"10.1016/j.anpedi.2024.09.005","url":null,"abstract":"<div><h3>Introduction</h3><div>Patients with achondroplasia present, in addition to disproportionate short stature, multiple manifestations that require a comprehensive approach. The present consensus of experts in Spain responds to the need to establish clear guidelines for the management of achondroplasia with the introduction of a new treatment, vosoritide.</div></div><div><h3>Material and methods</h3><div>A panel of six experts in achondroplasia participated in the development of the consensus. They developed a narrative review of the recommendations on achondroplasia and vosoritide treatment, which were agreed upon and adapted to the Spanish context in two subsequent meetings with a structured discussion format.</div></div><div><h3>Results</h3><div>This protocol underscores that achondroplasia requires specialized and multidisciplinary management involving expert paediatricians and specialists in paediatric endocrinology or medical genetics, in collaboration with specialists in neurology, neurosurgery, pneumology, otorhinolaryngology, rehabilitation, and orthopedics or psychology, among others, with adequate coordination of care. This interdisciplinary team should be involved in the planning of vosoritide treatment (including the education of patients and caregivers, with management of their expectations, and their training in the practical aspects of vosoritide administration), treatment initiation and close monitoring with regular assessment of anthropometric, biochemical, functional or patient-reported variables.</div></div><div><h3>Conclusions</h3><div>This protocol for the administration of vosoritide will allow standardised implementation and optimization of treatment outcomes. It also offers an opportunity to improve the management of achondroplasia in Spain through a comprehensive and interdisciplinary approach.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"101 6","pages":"Pages 401-410"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142756695","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maricel Licht-Ardila , Alexandra Hurtado-Ortiz , Edgar Fabián Manrique-Hernández , Justo José Santiago Peña
{"title":"Impacto físico, social y emocional en los pacientes con cardiopatía congénita sometidos a cateterismo cardiaco","authors":"Maricel Licht-Ardila , Alexandra Hurtado-Ortiz , Edgar Fabián Manrique-Hernández , Justo José Santiago Peña","doi":"10.1016/j.anpedi.2024.08.014","DOIUrl":"10.1016/j.anpedi.2024.08.014","url":null,"abstract":"<div><h3>Introduction</h3><div>The management of congenital heart disease (CHD) has evolved, improving patient outcomes; however, challenges persist for patients, emphasizing the importance of assessing health-related quality of life (HRQoL). The widely used Pediatric Quality of Life Inventory underscores the relevance of HRQoL assessment, especially in children subject to medical procedures.</div></div><div><h3>Objective</h3><div>To evaluate HRQoL in children with congenital heart disease undergoing cardiac catheterization, analysing its association with clinical and sociodemographic variables in a tertiary care hospital.</div></div><div><h3>Materials and methods</h3><div>We conducted a cross-sectional study in paediatric patients aged 2 to 18 years undergoing haemodynamic procedures for congenital heart diseases. We used the Pediatric Quality of Life Inventory (PedsQL) to assess HRQoL. The statistical analysis included descriptive statistics, χ<sup>2</sup> tests, Kruskal-Wallis tests and multivariate linear regression analysis with the aim of identifying factors associated with HRQoL.</div></div><div><h3>Results</h3><div>The sample included 164 patients, among whom pulmonary atresia and patent ductus arteriosus were frequent diagnoses. Physical functioning and school functioning were significantly impaired, with median scores of 32.14 (IQR, 17.14-62.87) and 56 (IQR, 28-88), respectively. The results were more favourable for emotional functioning and social functioning, with median scores of 62 (IQR, 32-74) and 68 (IQR, 44-100), respectively. Single ventricle defects and pulmonary atresia were associated with lower quality of life scores in emotional functioning (<em>P</em>=.035) and physical functioning (<em>P</em>=.048), respectively.</div></div><div><h3>Conclusion</h3><div>This study highlights the current challenges in evaluating HRQoL for children with CHD. It identified significant associations between specific diagnoses and decreased HRQoL scores, emphasizing the need for comprehensive care strategies.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"101 6","pages":"Pages 378-387"},"PeriodicalIF":1.5,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142756779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}