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The Place of Spiritual Well-Being in Hospice Patients’ Overall Quality of Life 安宁疗护病人整体生活品质之精神健康地位
The Hospice journal Pub Date : 2000-06-01 DOI: 10.1080/0742-969X.2000.11882950
Judith E. Thomson
{"title":"The Place of Spiritual Well-Being in Hospice Patients’ Overall Quality of Life","authors":"Judith E. Thomson","doi":"10.1080/0742-969X.2000.11882950","DOIUrl":"https://doi.org/10.1080/0742-969X.2000.11882950","url":null,"abstract":"ABSTRACT There is an increasing awareness of, and interest in the relationship between spirituality and health. This research examines spiritual well-being as one of six components of hospice patients’ overall quality of life. Patients admitted over a four-month period were surveyed, using the Functional Assessment of Cancer Therapy scale (FACT-G), at admission, one month later, three months later, and six months later. Data showed spiritual well-being to be an important contributor to overall quality of life. The article concludes by advocating that providing spiritual care to hospice patients makes good business sense. [Article copies available for a fee from The Haworth Document Delivery Service: 1-800-342-9678. E-mail address: getinfo@haworthpressinc.com ]","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"15 1","pages":"13 - 27"},"PeriodicalIF":0.0,"publicationDate":"2000-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.2000.11882950","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59937054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 29
Physician Attitudes Toward Palliative Care at a Community Teaching Hospital 社区教学医院医生对姑息治疗的态度
The Hospice journal Pub Date : 2000-06-01 DOI: 10.1080/0742-969X.2000.11882953
J. Alaeddini, K. Julliard, Ashish Shah, Jamal Islam, Meyer Mayor
{"title":"Physician Attitudes Toward Palliative Care at a Community Teaching Hospital","authors":"J. Alaeddini, K. Julliard, Ashish Shah, Jamal Islam, Meyer Mayor","doi":"10.1080/0742-969X.2000.11882953","DOIUrl":"https://doi.org/10.1080/0742-969X.2000.11882953","url":null,"abstract":"ABSTRACT The goals of the study were to explore physicians’ attitudes and opinions about palliative care and its implementation. Four focus groups composed of attending physicians were conducted by a professional facilitator at a community teaching hospital. The audiotapes of the groups were carefully transcribed and analyzed according to rigorous qualitative methodology. Physicians perceived palliative care and pain control as important. Problems they perceived were a lack of education for physicians, residents, other health care professionals, and the general public; a lack of hospital support systems to implement palliative care appropriately, and a lack of knowledge and support regarding legal considerations. They believed that a palliative care unit was a reasonable tool to overcome many obstacles to good end-of-life care. [Article copies available for a fee from The Haworth Document Delivery Service: 1-800-342-9678. E-mail address: getinfo@haworthpressinc.com ]","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"15 1","pages":"67 - 86"},"PeriodicalIF":0.0,"publicationDate":"2000-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.2000.11882953","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59937674","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 12
Predictors of Family Members’ Satisfaction with Hospice 家庭成员安宁疗护满意度之预测因子
The Hospice journal Pub Date : 2000-06-01 DOI: 10.1080/0742-969X.2000.11882951
S. Nolen-Hoeksema, J. Larson, Michael Bishop
{"title":"Predictors of Family Members’ Satisfaction with Hospice","authors":"S. Nolen-Hoeksema, J. Larson, Michael Bishop","doi":"10.1080/0742-969X.2000.11882951","DOIUrl":"https://doi.org/10.1080/0742-969X.2000.11882951","url":null,"abstract":"ABSTRACT This large, long-term study of families served by hospice found that nearly 95 percent said hospice had been helpful. Still, about 30 percent of family members said there was something they wish hospice had done differently. Those who had some complaint were more likely than those who had no complaints to be women, to report the patient had needed a great deal of care, to have a history of depression and greater levels of distress before and after the patient’s death, and to be dissatisfied with the support they received from family members and friends. [Article copies available for a fee from The Haworth Document Delivery Service: 1-800-342-9678. E-mail address: getinfo@haworthpressinc.com ]","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"15 1","pages":"29 - 48"},"PeriodicalIF":0.0,"publicationDate":"2000-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.2000.11882951","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59937228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 22
Assessing Readiness for Death in Hospice Elders and Older Adults 评估安宁疗护长者及长者对死亡的准备程度
The Hospice journal Pub Date : 2000-06-01 DOI: 10.1080/0742-969X.2000.11882952
L. Moody, Theresa M. Beckie, Charlene Long, Allison Edmonds, Stephanie Andrews
{"title":"Assessing Readiness for Death in Hospice Elders and Older Adults","authors":"L. Moody, Theresa M. Beckie, Charlene Long, Allison Edmonds, Stephanie Andrews","doi":"10.1080/0742-969X.2000.11882952","DOIUrl":"https://doi.org/10.1080/0742-969X.2000.11882952","url":null,"abstract":"ABSTRACT Background: Readiness for death may affect the quality of the death experience and influence response to treatments. The psychologic vulnerability of the dying person is a major focus of palliative care. Accurate assessment of readiness for death may lead to earlier and more appropriate interventions. Objective: The purpose of this study was to assess the psychometric properties of the revised readiness for death instrument. Methods: Using a known groups technique and a cross-sectional study design, the revised instrument was administered to 52 elders in hospice care with a terminal diagnosis and 91 community dwelling adults without a terminal diagnosis. Results: Instrument content validity (Kappa = 0.96) was supported by three expert panelists who were hospice researchers. Principal components factor analysis explained 43% of the variance and partially supported the proposed four-factor structure of the revised 26-item instrument. Internal consistency was acceptable (.76). Discriminant validity was significant as assessed by an independent t-test between two contrast groups (t = 5.98, p = 0.000). The factor analysis, reliability testing, and qualitative analysis of items supported deletion of 2 items. Conclusions: Results indicated that the revised instrument has sound psychometric properties but further testing with a larger sample of hospice subjects is needed to confirm the factor structure of the instrument. [Article copies available for a fee from The Haworth Document Delivery Service: 1-800-342-9678. E-mail address: getinfo@haworthpressinc.com ]","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"77 1","pages":"49 - 65"},"PeriodicalIF":0.0,"publicationDate":"2000-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.2000.11882952","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59937528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 9
Matching bereavement services to level of need. 根据需要提供相应的丧亲服务。
The Hospice journal Pub Date : 2000-01-01 DOI: 10.1080/0742-969x.2000.11882948
K Walsh-Burke
{"title":"Matching bereavement services to level of need.","authors":"K Walsh-Burke","doi":"10.1080/0742-969x.2000.11882948","DOIUrl":"https://doi.org/10.1080/0742-969x.2000.11882948","url":null,"abstract":"<p><p>The establishment of hospices in the U.S. has resulted in an increase in bereavement services available to clients experiencing loss. Many of these services, such as educational and peer support groups, are provided without screening or assessment of risk for complicated bereavement in the individuals who utilize them. While acceptance of uncomplicated bereavement is important, assessment for complicated bereavement is also important to ensure that appropriate services are offered to those at risk for problematic adjustment. This article reviews the literature on risk criteria for complicated bereavement and proposes a method both for assessing risk and matching service to level of need, based on these criteria.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"15 1","pages":"77-86"},"PeriodicalIF":0.0,"publicationDate":"2000-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.2000.11882948","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21865425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 16
Cost, quality, and satisfaction with hospice after-hours care. 成本、品质与安宁疗护的满意度。
The Hospice journal Pub Date : 2000-01-01 DOI: 10.1080/0742-969x.2000.11882944
K Fontaine, R Rositani
{"title":"Cost, quality, and satisfaction with hospice after-hours care.","authors":"K Fontaine,&nbsp;R Rositani","doi":"10.1080/0742-969x.2000.11882944","DOIUrl":"https://doi.org/10.1080/0742-969x.2000.11882944","url":null,"abstract":"<p><p>Three hundred seventy-three patients enrolled in a health maintenance organization's hospice program were given two different models of after-hours nursing care, one using nurse employees and the other using contract nurses. Statistically significant differences were found between the two groups in cost, in quality of nursing care, and in patient/family satisfaction. Cost of hospital days for the organization was less when patients received after-hours care from nurse employees of the organization, and quality of documentation was better. More patients who received care from nurse employees were satisfied with nurses' arrival time and understanding of problems as well as with the service, information, courtesy, follow-up, and respect which patients received during their hospice stay.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"15 1","pages":"1-13"},"PeriodicalIF":0.0,"publicationDate":"2000-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.2000.11882944","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21864900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 13
The role of primary caregiver denial in inpatient placement during home hospice care. 家庭安宁疗护期间，主要照护者拒绝在住院病人安置中的作用。
The Hospice journal Pub Date : 2000-01-01 DOI: 10.1080/0742-969x.2000.11882945
D J Reese
{"title":"The role of primary caregiver denial in inpatient placement during home hospice care.","authors":"D J Reese","doi":"10.1080/0742-969x.2000.11882945","DOIUrl":"https://doi.org/10.1080/0742-969x.2000.11882945","url":null,"abstract":"<p><p>This study conducted with a sample of 68 home hospice patients revealed that primary caregivers in denial of the patient's terminality were more likely to place hospice patients in inpatient treatment. Moreover, patients placed in inpatient settings were more likely to die there, rather than at home as planned. These findings suggest an impact of primary caregiver denial upon patient self-determination, and indicate the importance of addressing denial in counseling with primary caregivers of terminally ill patients.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"15 1","pages":"15-33"},"PeriodicalIF":0.0,"publicationDate":"2000-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.2000.11882945","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21864901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 11
The evolution of volunteerism and professional staff within hospice care in North Carolina. 北卡罗来纳州临终关怀中志愿服务和专业人员的演变。
The Hospice journal Pub Date : 2000-01-01 DOI: 10.1080/0742-969x.2000.11882946
K E Steinhauser, G L Maddox, J L Person, J A Tulsky
{"title":"The evolution of volunteerism and professional staff within hospice care in North Carolina.","authors":"K E Steinhauser,&nbsp;G L Maddox,&nbsp;J L Person,&nbsp;J A Tulsky","doi":"10.1080/0742-969x.2000.11882946","DOIUrl":"https://doi.org/10.1080/0742-969x.2000.11882946","url":null,"abstract":"<p><p>Although the pursuit of Medicare certification has been one of the most controversial events in hospice history no study has examined its impact using data from a defined population of hospices before, during, and after federal legislation was enacted. This paper revisits the debate over the changing role of volunteers using such a longitudinal data source. Over time, as the patient population grew, aggregate levels of volunteers and professional staff increased. However, the ratios of professional staff and volunteers to patients reveal that regardless of certification status, hospices retained more professional staff per patient and fewer volunteers per patient over time. These data suggest hospices, particularly certified organizations, have transitioned from voluntary organizations to professionally staffed organizations with a strong volunteer component. The most important issue for future research is whether the observed changes have affected the quality of hospice care.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"15 1","pages":"35-51"},"PeriodicalIF":0.0,"publicationDate":"2000-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.2000.11882946","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21864903","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Nurses' work in a hospice and in an oncological unit in Sweden. 护士在瑞典的临终关怀医院和肿瘤科工作。
The Hospice journal Pub Date : 2000-01-01 DOI: 10.1080/0742-969x.2000.11882947
B H Rasmussen, P O Sandman
{"title":"Nurses' work in a hospice and in an oncological unit in Sweden.","authors":"B H Rasmussen,&nbsp;P O Sandman","doi":"10.1080/0742-969x.2000.11882947","DOIUrl":"https://doi.org/10.1080/0742-969x.2000.11882947","url":null,"abstract":"<p><p>This paper presents the results of a work-sampling study aimed at describing and comparing the activities of nurses at a free-standing in-patient hospice and a hospital oncological unit. Data suggests that although patient care at both sites is structured by organizational routines, the content and quantity of the nurses' physical and emotional labor differed markedly. Hospice nurses spend significantly more of their working time with patients and/or relatives (37%) than the oncological nurses (21%). When they are with patients the nurses in both settings are most often performing a physical activity such as helping patients with their daily activities in the hospice, and helping patients with needs in relation to investigations and treatment in the oncological unit.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"15 1","pages":"53-75"},"PeriodicalIF":0.0,"publicationDate":"2000-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.2000.11882947","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21865424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 7
The moment of death: is hospice making a difference? 死亡时刻：临终关怀有什么不同吗？
The Hospice journal Pub Date : 1999-11-09 DOI: 10.1080/0742-969X.1999.11882943
R. Kastenbaum
{"title":"The moment of death: is hospice making a difference?","authors":"R. Kastenbaum","doi":"10.1080/0742-969X.1999.11882943","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882943","url":null,"abstract":"The moment of death was a compelling image and dominant concept through much of history. In recent years this term has become destabilized by technological advances and changes in clinical practice. Perhaps even more significantly, the meanings previously associated with the death-bed scene and the final breath have become increasingly marginalized. Hospice programs continue to demonstrate that enlightened and dedicated care can markedly reduce the suffering of terminally ill people and their families. The vast experience acquired by hospice programs, however, has not yet been translated into a vision of the moment of death and the death-bed scene for our times. Several reasons are identified for the limited interest and even more limited hospice-based research into the death-bed scene and the moment of death. Hospice programs could contribute much to our understanding of the final moments of life if this should ever become a priority.","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4 1","pages":"253-70"},"PeriodicalIF":0.0,"publicationDate":"1999-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.1999.11882943","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49465461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 11
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