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Minority status, consumer outcomes, and service inputs in four States. 四个州的少数民族地位、消费者结果和服务投入。
Mental retardation Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[165:MSCOAS]2.0.CO;2
Roger J Stancliffe, K Charlie Lakin
{"title":"Minority status, consumer outcomes, and service inputs in four States.","authors":"Roger J Stancliffe, K Charlie Lakin","doi":"10.1352/0047-6765(2006)44[165:MSCOAS]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[165:MSCOAS]2.0.CO;2","url":null,"abstract":"Data from the Center for Outcome Analysis were subjected to independent secondary analysis involving comparisons by ethnic group of eight indicators of service quality for users of adult developmental disability services in four states. Ethnic group membership had very limited or no association with the consumer outcomes and service inputs evaluated. Where significant ethnic group differences were found, they were small, and there was no consistent pattern of a particular ethnic group doing better. These findings may relate to the substantial influence of developmental disability services in the lives of service recipients and to the effect of disability itself, in that adaptive behavior was strongly related to most consumer outcomes.","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 3","pages":"165-83"},"PeriodicalIF":0.0,"publicationDate":"2006-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[165:MSCOAS]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26454991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Epidemiology of osteoporosis in women with cognitive impairment. 认知障碍女性骨质疏松的流行病学研究。
Mental retardation Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[203:EOOIWW]2.0.CO;2
Sarina Schrager
{"title":"Epidemiology of osteoporosis in women with cognitive impairment.","authors":"Sarina Schrager","doi":"10.1352/0047-6765(2006)44[203:EOOIWW]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[203:EOOIWW]2.0.CO;2","url":null,"abstract":"<p><p>Osteoporosis is increasing due to the aging of the population. Women with cognitive impairment from childhood are at disproportionally high risk for osteoporosis and fractures. Suggested explanations for this increased risk include high use of anticonvulsant medications, lower peak bone densities, and higher rates of nonambulation. Down syndrome seems to be an independent risk factor for low bone density and fractures, presumably due to lower muscle tone. Here, the limited information available on the epidemiology of osteoporosis in the general population and in women with cognitive disabilities is briefly reviewed. Health care professionals should consider women with cognitive disabilities at high risk for osteoporosis and fractures. Studies are needed to determine screening regimens and prevention strategies appropriate for women in this population.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 3","pages":"203-11"},"PeriodicalIF":0.0,"publicationDate":"2006-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[203:EOOIWW]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26454994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 23
Reductions continue in average daily populations of large state facilities; nearly 70% decrease between 1980 and 2005. 大型国家设施的日均人口继续减少;从1980年到2005年减少了近70%。
Mental retardation Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[235:RCIADP]2.0.CO;2
Kathryn Coucouvanis, K Charlie Lakin, Robert Prouty, Amanda Webster
{"title":"Reductions continue in average daily populations of large state facilities; nearly 70% decrease between 1980 and 2005.","authors":"Kathryn Coucouvanis,&nbsp;K Charlie Lakin,&nbsp;Robert Prouty,&nbsp;Amanda Webster","doi":"10.1352/0047-6765(2006)44[235:RCIADP]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[235:RCIADP]2.0.CO;2","url":null,"abstract":"","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 3","pages":"235-8"},"PeriodicalIF":0.0,"publicationDate":"2006-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[235:RCIADP]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26454919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 7
Health outcomes of midlife and older Latina and black American mothers of children with developmental disabilities. 有发育障碍儿童的拉美裔和美国黑人中年和老年母亲的健康状况。
Mental retardation Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[224:HOOMAO]2.0.CO;2
Sandra Magaña, Matthew J Smith
{"title":"Health outcomes of midlife and older Latina and black American mothers of children with developmental disabilities.","authors":"Sandra Magaña, Matthew J Smith","doi":"10.1352/0047-6765(2006)44[224:HOOMAO]2.0.CO;2","DOIUrl":"10.1352/0047-6765(2006)44[224:HOOMAO]2.0.CO;2","url":null,"abstract":"<p><p>The impact of caring for a child with a developmental disability on the physical and mental health of Latina and Black American women was examined. We used the National Health Interview Survey to compare the health of older mothers who were co-residing with a child who had a developmental disability to the health of same age mothers without caregiving responsibilities. Findings show that for both groups, older adult caregivers were more likely to report having limitations from arthritis than their noncaregiving counterparts. Caregiving was associated with more depressive symptoms for Latinas, but this relationship was not found for Black American women. Findings suggest that physical and mental health of caregivers need more attention in research and practice.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 3","pages":"224-34"},"PeriodicalIF":0.0,"publicationDate":"2006-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26454918","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mandating education of dental graduates to provide care to individuals with intellectual and developmental disabilities. 强制教育牙科毕业生为有智力和发育障碍的人提供照顾。
Mental retardation Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[184:MEODGT]2.0.CO;2
H Barry Waldman, Steven P Perlman
{"title":"Mandating education of dental graduates to provide care to individuals with intellectual and developmental disabilities.","authors":"H Barry Waldman,&nbsp;Steven P Perlman","doi":"10.1352/0047-6765(2006)44[184:MEODGT]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[184:MEODGT]2.0.CO;2","url":null,"abstract":"<p><p>In 2004, The Commission on Dental Accreditation adopted new standards for dental and dental hygiene education programs to ensure the preparation of practitioners to provide oral health services for persons with special health care needs. The course of action leading to the adoption of the new standards, together with the continuing obstacles of limited government support for dental services and the availability of faculty members to provide the needed dental educational experiences is reviewed. Expanding Health Resources and Services Administration definition of medically underserved areas is presented as one approach to improving the delivery of dental services.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 3","pages":"184-8"},"PeriodicalIF":0.0,"publicationDate":"2006-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[184:MEODGT]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26454992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 11
The Supreme Court, "Our Town," and disability policy: boardrooms and bedrooms, courtrooms and cloakrooms. 最高法院，“我们的城市”，残疾人政策:会议室和卧室，法庭和衣帽间。
Mental retardation Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[83:TSCOTA]2.0.CO;2
Matthew J Stowe, H Rutherford Turnbull, Chad Sublet
{"title":"The Supreme Court, \"Our Town,\" and disability policy: boardrooms and bedrooms, courtrooms and cloakrooms.","authors":"Matthew J Stowe,&nbsp;H Rutherford Turnbull,&nbsp;Chad Sublet","doi":"10.1352/0047-6765(2006)44[83:TSCOTA]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[83:TSCOTA]2.0.CO;2","url":null,"abstract":"<p><p>In this discussion of recent key disability-related decisions of the U.S. Supreme Court (1995- 2004), we (a) assess whether the Court has supported or undermined certain core concepts of disability policy and (b) examine how the Court balances the comparative rights of those with and those without disabilities. In cases involving employment discrimination, family law, and access to courts and other public decision-making entities, the Court adopts an idealized version of a previous America. We explain the Court's \"reverie\" for that version, resorting to the constructs known as (a) compelled confrontation and remission to majoritarian processes and (b) advancement of personal relationships.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 2","pages":"83-99"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[83:TSCOTA]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26014684","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 13
Christmas in purgatory: a retrospective look. 炼狱中的圣诞节:回顾。
Mental retardation Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[145:CIPARL]2.0.CO;2
Steven J Taylor
{"title":"Christmas in purgatory: a retrospective look.","authors":"Steven J Taylor","doi":"10.1352/0047-6765(2006)44[145:CIPARL]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[145:CIPARL]2.0.CO;2","url":null,"abstract":"It has now been 40 years since the publication of Blatt and Kaplan's (1966) Christmas in Purgatory, a photographic exposeof institutions. In this article I review this landmark work in the context of some of the major events in the field of mental retarda- tion in the era immediately following its publica- tion. The growing dissatisfaction with abusive and dehumanizing conditions at institutions soon led to the emergence of new concepts and philosophies as well as law suits that eventually challenged the very existence of institutions. ''There is hell on earth,'' wrote Burton Blatt (Blatt & Kaplan 1966), ''and in America there is a special inferno. We were visitors there during Christmas, 1965'' (p. v). Blatt, then a professor at Boston University, had followed the controversy surrounding Senator Robert Kennedy's unan- nounced visits to New York's Willowbrook and Rome State Schools in fall 1965. Kennedy publicly denounced conditions at the institutions. In re- sponse, public officials and supporters of Governor Nelson Rockefeller accused Kennedy of painting a misleading picture of conditions at the institutions based on superficial tours. Blatt was aware that Ken- nedy had accurately portrayed the nature of con-","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 2","pages":"145-9"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[145:CIPARL]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26014682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Comparison of reports by relatives and staff on living conditions of adults with intellectual disabilities. 成人智障人士家属与工作人员生活状况报告之比较。
Mental retardation Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[120:CORBRA]2.0.CO;2
Oie Umb-Carlsson, Karin Sonnander
{"title":"Comparison of reports by relatives and staff on living conditions of adults with intellectual disabilities.","authors":"Oie Umb-Carlsson,&nbsp;Karin Sonnander","doi":"10.1352/0047-6765(2006)44[120:CORBRA]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[120:CORBRA]2.0.CO;2","url":null,"abstract":"<p><p>Proxies typically serve as information providers in studies of persons with intellectual disabilities. However, little is known about the concordance between different proxy categories and how proxy characteristics influence the information provided. We compared 89 pairs of relative and staff reports on the living conditions of persons with intellectual disabilities, using percentage agreement and Cohen's kappa statistics. Results demonstrate differences between relative and staff reports for most of the domains investigated, with moderate agreement for objective items and fair agreement for subjective items. Relative and staff proxies contributed different information related to diverse viewpoints and varying types of information. Thus, we suggest that information provided by proxies should not be treated as being interchangeable but, rather, as complementary.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 2","pages":"120-7"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[120:CORBRA]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26014679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 6
Inclusion of people with mental retardation and other developmental disabilities in communities of faith. 将智障人士和其他发育障碍者纳入信仰社区。
Mental retardation Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[100:IOPWMR]2.0.CO;2
Jeannine Vogel, Edward A Polloway, J David Smith
{"title":"Inclusion of people with mental retardation and other developmental disabilities in communities of faith.","authors":"Jeannine Vogel,&nbsp;Edward A Polloway,&nbsp;J David Smith","doi":"10.1352/0047-6765(2006)44[100:IOPWMR]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[100:IOPWMR]2.0.CO;2","url":null,"abstract":"<p><p>Our focus in this paper is on efforts to include persons with developmental disabilities in faith communities. We provide a review of the relevant literature on religious participation and faith communities for persons with disabilities and blend the limited data available on these topics with the perspectives of individuals whose efforts focus on these concerns. Topics explored are the implications of being part of the faith community in terms of its impact on quality of life, the barriers to inclusion in such communities, strategies for overcoming these barriers, and special considerations for adults with mental retardation or other developmental disabilities. Discussion of the implications for enhancing inclusion in faith communities is provided.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 2","pages":"100-11"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[100:IOPWMR]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26014677","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 41
"Who would I be without Danny?" phenomenological case study of an adult sibling. "没有丹尼我会是谁"一个成年兄弟姐妹的现象学案例研究。
Mental retardation Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[135:WWIBWD]2.0.CO;2
Robin A Flaton
{"title":"\"Who would I be without Danny?\" phenomenological case study of an adult sibling.","authors":"Robin A Flaton","doi":"10.1352/0047-6765(2006)44[135:WWIBWD]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[135:WWIBWD]2.0.CO;2","url":null,"abstract":"<p><p>How is life different for someone who grows up with a sibling who has mental retardation? In this phenomenological case study, I profile the life experiences of a 39-year-old woman as sibling to a 35-year-old man with Down syndrome, using her own words as she explored her sibling experience and how this relationship shaped her identity, experiences, and life choices. Emerging themes, including her self-perception and perception of family members, her identity formation, and the impact of the experience are discussed. A number of possible variables for future quantitative research are suggested based on her experiences, including increased empathy in typically developing siblings and the sibling with disability as a barometer of other people's traits and their impact on the formation of other significant relationships.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 2","pages":"135-44"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[135:WWIBWD]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26014681","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 35
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