Mental retardationPub Date : 2005-06-01DOI: 10.1352/0047-6765(2005)43[196:PSFMOC]2.0.CO;2
Brian Skotko, Ricardo Canal Bedia
{"title":"Postnatal support for mothers of children with Down syndrome.","authors":"Brian Skotko, Ricardo Canal Bedia","doi":"10.1352/0047-6765(2005)43[196:PSFMOC]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43[196:PSFMOC]2.0.CO;2","url":null,"abstract":"<p><p>Delivering and receiving a postnatal diagnosis of Down syndrome is not an easy experience for most physicians or parents. In this study, 467 mothers of children with Down syndrome in Spain completed a survey about the postnatal support services they received immediately following the diagnosis of their child. Mothers reported feeling anxious, frightened, guilty, angry, and, in rare cases, suicidal. According to most mothers, physicians did not give adequate amounts of information about Down syndrome and rarely did they give enough printed materials or make referrals to parent support groups. Little seems to have changed since 1972. Mothers provided recommendations on how the Spanish medical system could be improved, with implications for other countries including the United States.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 3","pages":"196-212"},"PeriodicalIF":0.0,"publicationDate":"2005-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43[196:PSFMOC]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25100269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mental retardationPub Date : 2005-04-01DOI: 10.1352/0047-6765(2005)43<149:FYIPMA>2.0.CO;2
Robert Prouty, Kathryn Coucouvanis, K Charlie Lakin
{"title":"Fiscal year 2004 institution populations, movement, and expenditures by state with national comparisons to earlier years.","authors":"Robert Prouty, Kathryn Coucouvanis, K Charlie Lakin","doi":"10.1352/0047-6765(2005)43<149:FYIPMA>2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43<149:FYIPMA>2.0.CO;2","url":null,"abstract":"","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 2","pages":"149-51"},"PeriodicalIF":0.0,"publicationDate":"2005-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43<149:FYIPMA>2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"24997308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mental retardationPub Date : 2005-04-01DOI: 10.1352/0047-6765(2005)43<83:FIDPTI>2.0.CO;2
Matthew N I Oliver, Trisha T Miller, Gemma D Skillman
{"title":"Factors influencing direct-care paraprofessionals' decisions to initiate mental health referrals for adults with mental retardation.","authors":"Matthew N I Oliver, Trisha T Miller, Gemma D Skillman","doi":"10.1352/0047-6765(2005)43<83:FIDPTI>2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43<83:FIDPTI>2.0.CO;2","url":null,"abstract":"<p><p>Direct-care paraprofessionals' recognition of psychopathology of varying severity in persons with mental retardation was evaluated. Factors that may influence paraprofessionals' decisions to initiate referrals for mental health services on behalf of individuals with mental retardation were also evaluated. Results suggest that staff members recognized and differentiated psychopathology of varying levels of clinical severity. Results also suggest that paraprofessionals are more likely to initiate making a referral when professionals are perceived as being competent in treating individuals with mental retardation, and when providers' interventions are consistent with the referring agency's philosophy.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 2","pages":"83-91"},"PeriodicalIF":0.0,"publicationDate":"2005-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43<83:FIDPTI>2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"24997310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mental retardationPub Date : 2005-04-01DOI: 10.1352/0047-6765(2005)43<135:PAOTCJ>2.0.CO;2
Tran M Ly, Robert M Hodapp
{"title":"Parents' attributions of their child's jigsaw-puzzle performance: comparing two genetic syndromes.","authors":"Tran M Ly, Robert M Hodapp","doi":"10.1352/0047-6765(2005)43<135:PAOTCJ>2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43<135:PAOTCJ>2.0.CO;2","url":null,"abstract":"<p><p>Parents' attributions of the jigsaw-puzzle performance of their child with Prader-Willi syndrome (n = 20) or Williams syndrome (n = 21) were examined. Parents in both groups placed more importance on internal versus external attributions. Parents of children with Prader-Willi syndrome exhibited a hedonic bias by attributing their child's success to internal factors (particularly when the child was good at puzzles), downplayed the role of chance when their child had higher puzzle skills and higher cognitive functioning, and differentiated between internal and external attributions. In contrast, parents of children with Williams syndrome showed an inconsistent attributional pattern. These findings help identify how parents understand the intellectual performance of their child with disabilities and how interventions might be beneficial.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 2","pages":"135-44"},"PeriodicalIF":0.0,"publicationDate":"2005-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43<135:PAOTCJ>2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"24997305","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mental retardationPub Date : 2005-04-01DOI: 10.1352/0047-6765(2005)43<120:RTLASC>2.0.CO;2
W M L Finlay, E Lyons
{"title":"Rejecting the label: a social constructionist analysis.","authors":"W M L Finlay, E Lyons","doi":"10.1352/0047-6765(2005)43<120:RTLASC>2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43<120:RTLASC>2.0.CO;2","url":null,"abstract":"<p><p>Research has shown that people often do not claim labels associated with mental retardation or learning difficulties. We discussed the interpretation that this rejection is an example of a denial process, the purpose of which is to protect self-esteem. Alternative explanations for this lack of identification were offered, based on an understanding of the socially constructed nature of diagnostic labels and on the distinction between diagnostic labels and social categories. Some of the problems in using the label as a descriptive or explanatory resource are illustrated using quotes from a study in which people who have been labeled discussed the label.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 2","pages":"120-34"},"PeriodicalIF":0.0,"publicationDate":"2005-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43<120:RTLASC>2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"24997403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mental retardationPub Date : 2005-04-01DOI: 10.1352/0047-6765(2005)43<92:IOEAWA>2.0.CO;2
Ellen Brantlinger, Janette Klingner, Virginia Richardson
{"title":"Importance of experimental as well as empirical qualitative studies in special education.","authors":"Ellen Brantlinger, Janette Klingner, Virginia Richardson","doi":"10.1352/0047-6765(2005)43<92:IOEAWA>2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43<92:IOEAWA>2.0.CO;2","url":null,"abstract":"<p><p>In the past few decades qualitative research has increasingly appeared in special education journals. However, much of this work falls within the parameters of producing useful technical information that can be applied to the contexts where children and adults with disabilities learn, work, and live. Experimental qualitative studies that rely on postmodern or poststructural analyses, critical theory, and narrative research with subjective personal stories seem to be considered too radical, ideological, and theoretical to make it into many special education scholarly outlets. We argue that experimental qualitative designs have much to contribute to the fields of special education and disability studies and, hence, should reach those who receive or provide services to people with disabilities.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 2","pages":"92-119"},"PeriodicalIF":0.0,"publicationDate":"2005-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43<92:IOEAWA>2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"24997311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mental retardationPub Date : 2005-04-01DOI: 10.1352/0047-6765(2005)43<147:NSISOM>2.0.CO;2
John Ashbaugh, Robert S Mirel
{"title":"\"New\" state information systems; same \"old\" mistakes.","authors":"John Ashbaugh, Robert S Mirel","doi":"10.1352/0047-6765(2005)43<147:NSISOM>2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43<147:NSISOM>2.0.CO;2","url":null,"abstract":"","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 2","pages":"147-8"},"PeriodicalIF":0.0,"publicationDate":"2005-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43<147:NSISOM>2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"24997307","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mental retardationPub Date : 2005-02-01DOI: 10.1352/0047-6765(2005)43<11:UMHTOM>2.0.CO;2
David Smukler
{"title":"Unauthorized minds: how \"theory of mind\" theory misrepresents autism.","authors":"David Smukler","doi":"10.1352/0047-6765(2005)43<11:UMHTOM>2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43<11:UMHTOM>2.0.CO;2","url":null,"abstract":"<p><p>Recent representations of autism frequently include an assumption that autism is the result of a \"theory of mind\" deficit (i.e., an inability to understand others' mental states). This notion is examined using a social constructionist perspective. The belief that autism is a sort of \"mind-blindness\" has much in common with earlier representations of autism that depict it as a puzzle and, paradoxically, as a single entity defined by core characteristics. Theory of mind theorists also, like their predecessors, define autism as a form of insufficiency and as requiring fixing rather than accommodation. Alternative narratives about autistic minds that incorporate the perspectives of people labeled autistic are an important counterbalance to the limitations of such professional viewpoints.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 1","pages":"11-24"},"PeriodicalIF":0.0,"publicationDate":"2005-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43<11:UMHTOM>2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25056052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mental retardationPub Date : 2005-02-01DOI: 10.1352/0047-6765(2005)43<43:PAWUOP>2.0.CO;2
Marc Tumeinski
{"title":"Problems associated with use of physical and mechanical restraints in contemporary human services.","authors":"Marc Tumeinski","doi":"10.1352/0047-6765(2005)43<43:PAWUOP>2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2005)43<43:PAWUOP>2.0.CO;2","url":null,"abstract":"The use of restraint techniques in contemporary human services is endemic and in some fields is growing. Although I will define restraint more explicitly below, basically, human service restraint is the use of force by service workers to limit the movement of human service clients. Ironically, the analysis of and approaches to this problem for the most part remain relatively elementary and sometimes even superficial and, therefore, are of limited effectiveness. Considering the physical and psychological dangers associated with restraint as well as the seriousness of the decision to use force on another human being, there has been little in-depth critical examination of the issue. Although some individuals and organizations have raised concerns and taken strong positions against restraint, even these have mostly focused attention on abuses and excesses rather than on the inherent nature of restraint use. An example of such simplistic analysis is illustrated by the reality that restraint use is typically addressed in services as a stand-alone issue (e.g., it is all about the person restrained), when, in actuality, many things directly or indirectly impact on it. This reality is often not considered when use of restraint is discussed; or, if it is addressed, it is often done so only in a shallow fashion. impact on restraint use. Some examples from these realms include societal stereotypes about the people served, the incidence of violence in a society, budget decisions about human service funding, agency mindset, agency staffing patterns, backgrounds and personality of staff, and so on. In general, the majority of","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"43 1","pages":"43-7"},"PeriodicalIF":0.0,"publicationDate":"2005-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2005)43<43:PAWUOP>2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25056054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}